Scribd Logo
Upload

Welcome to Scribd!

  • 279 views

    Cap - Osteogenesis Imperfecta

    Uploaded by

    api-265041352

    Copyright:

    © All Rights Reserved
    Download as DOCX, PDF, TXT or read online from Scribd

    Cap - Osteogenesis Imperfecta

    Uploaded by

    api-265041352
    279 views2 pages

    Original Title

    cap- osteogenesis imperfecta

    Copyright

    © © All Rights Reserved

    Available Formats

    DOCX, PDF, TXT or read online from Scribd

    Did you find this document useful?

    Is this content inappropriate?

    Copyright:

    © All Rights Reserved
    Download as DOCX, PDF, TXT or read online from Scribd
    Download as docx, pdf, or txt
    279 views2 pages

    Cap - Osteogenesis Imperfecta

    Uploaded by

    api-265041352

    Copyright:

    © All Rights Reserved
    Download as DOCX, PDF, TXT or read online from Scribd
    Download as docx, pdf, or txt
    of 2

    Where Does

    Counseling Play A Role


    In Lives of Individuals
    with OI?
    OI has a large impact on the daily life
    of an individual. This not only affects
    their physical health and abilities, but
    also their emotional and social well
    being.

    As counselors, this may affect the child
    or adolescents attendance in school,
    social interactions, self-esteem and
    self-worth. Daily living is a struggle for
    those with OI and this requires a large
    amount of medical attention and
    prevention.

    Our job is to have an understanding
    for the impact that OI has on an
    individual & know what the resources
    are available for not only them, but us
    as well. In the school setting, it is vital
    for us to be a support for this student
    and accommodate them as needed.

    Osteogenesis Imperfecta Foundation
    http://www.oif.org/site/PageServer
    American Academy of Orthopedic Surgeons
    http://orthoinfo.aaos.org/topic.cfm?topic=a00051
    Brittle Bone Society
    http://www.brittlebone.org


    Osteogenesis
    Imperfecta

    Osteogenesis Imperfecta
    Taylor Wyatt
    COUN 630
    Spring 2014
    An Informational Guide of
    Causes, Treatment, Resources
    for Working With Individuals
    with Brittle Bone Disease
    (Brittle Bone Disease)
    RESOURCES &
    REFERENCES
    Childrens Brittle Bone Foundation
    www.cbbf.org
    This site helps support those affected by OI by raising
    funds to go to research into treatment and prevention
    of the disease. They hold events and offer ways to give
    to the foundation to continue raising awareness and
    money in hopes of finding a cure.

    Information for Teens with OI
    http://www.oif.org/site/PageServer?pagename=OIF_Te
    ens
    This resource includes college and career planning for
    teens with OI. It includes financial aid resources,
    learning how to drive, and information pertaining to
    transition from pediatric to adult care.

    Guide for Professionals, Individuals & Families
    http://www.oif.org/site/DocServer/Medical_Guide_revi
    sed_2013.pdf?docID=15641

    This contains information about treatment, facts,
    precautions, and the various types of OI.



    Treatment
    There is currently no cure for OI, but there
    are treatments that alleviate and assist the
    symptoms of the disease.
    Types of doctors that an individual with OI
    would see include:
    Primary Care Physicians
    Orthopedists
    Endocrenologists
    Geneticists
    Physiatrists
    Physical Therapists

    Current treatments are focusing on
    minimization of fractures, maximizing
    mobility, and increasing independent function
    and general health.

    Treatments Include:
    Physical Therapy
    Medications to strengthen bones
    Support braces for legs, ankles, knees,
    and wrists
    Orthopedic surgery
    Spinal Fusion (for scoliosis)
    Metal Rodding (enforces the bone and
    lessens the number of fractures)
    Casts, splints, or wraps
    Mobility aids (canes, walkers,
    wheelchairs) for independence
    What Is Brittle
    Bone Disease?
    Osteogenesis Imperfecta (OI) is
    defined a genetic disorder
    characterized by fragile bones that
    break easily.

    Other Symptoms of OI include:
    Muscle Weakness
    Hearing Loss
    Fatigue
    Joint Laxity
    Curving Bones
    Scoliosis
    Blue Sclerae (blue tint to
    the whites of eyes)
    Brittle Teeth
    Short Stature
    Breathing problems
    Bleeding & Bruising easily
    There are 8 types of OI that range
    in severity and are based on
    specific medical problems a person
    will encounter.
    Causes
    OI is caused by a mutation on
    the gene that affects production
    of collagen in bones & other
    tissue. This genetic mutation
    impairs the bodys ability to
    make strong bones.
    School Resources
    Primary School
    http://www.brittlebone.org/assets
    /files/87045%20Advice%20For%20
    Primary%20Schools(1).pdf

    Secondary School
    http://www.brittlebone.org/assets
    /files/87045%20Advice%20For%20
    Secondary%20Schools.pdf

    Including Children & Adolescents
    with OI in Physical Education
    http://www.brittlebone.org/assets/fil
    es/87045%20Including%20Children
    %20In%20PE.pdf


    6 to 7 per 100,000 people
    worldwide are affected by OI

    You might also like