An Intergenerational
Dialogue on
HIV/
AIDS
Activist
Video
History
by Ryan Conrad and John Greyson
Martine Syms is an artist. Specialties: the color purple, modern comedy
and strategic swearing.
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ilmmaker John Greyson and I have been working
together with a handful of other artists and academics
as part of the Archive/Counter-Archive (A/CA)
initiative in Canada. A/CA is an expansive multi-year,
multi-institution initiative focused on preserving and
reactivating twentieth century Canadian media from
marginal communities. Our particular case study on AIDS
activist media recovers, preserves, analyses, reactivates,
and recirculates AIDS activist video tapes connected
to the Toronto artist/activist milieu of the 1980s and
early 90s. The following dialogue between us discusses
Greyson’s work on the recently recovered tapes from
the 1990–91 cable access television series Toronto
Living With AIDS as well as Greyson’s classic, recently
remastered feature-length AIDS musical Zero Patience
from 1993.
Poster for Toronto Living With AIDS (1990)
F
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The videos that made up the Toronto Living With AIDS
(TLWA) series ranged in form, content and imagined
audience, but all the tapes took seriously the medium of
public television as having the potential to impart critical
information about HIV/AIDS as much as entertaining
audiences viewing the series from their living rooms. For
example, at one end of the spectrum is Debbie Douglas
and Gabrielle Micallef’s anOther Love Story: Women and
AIDS, a narrative melodrama about racialized lesbian
women, serodiscordant relationships and HIV stigma. At
the other end is Marc Bérubé and Steve Walker’s AIDS:
A Family Affair a somewhat dour talk show-format video
that alternates between the host’s earnest direct address
and group-style talking head interviews with HIV-positive
gay men and their families. While all the tapes in the
series feel unique and can certainly stand alone, they
were in fact connected through their production funding
and initial distribution on public access cable TV under
the TLWA banner. Unlike individual artist responses to the
epidemic in Canada, of which there are many, the series
was uniquely funded with public money from health
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agencies as opposed to arts councils, making it a unique
political, cultural and social phenomenon.
Zero Patience, Greyson’s first feature-length commercial
film, was made shortly after TLWA concluded in 1991 and
tackles the myth of ‘Patient Zero’ popularized by Randy
Shilts’ book And the Band Played On. The film follows the
ghost of Gaëtan Dugas, a gay Québécois flight attendant,
who magically reappears in the present only to learn that
he has been falsely vilified as the first person to spread
HIV throughout North America. The film goes on to dismantle this myth and restore Dugas’ reputation through
a series of comedic song and dance numbers that revolve
around the activities of AIDS activists and the British
explorer Sir Richard Burton, who is somehow immortal
and the only one who can see Dugas’ ghost. From this
brief description, Zero Patience is an obvious outlier
among feature films made about HIV/AIDS. Greyson
utilizes comedy, musical accompaniments and magical
realism to tell a story that is to this day is still largely presented through heavy melodrama and committed-documentary conventions. The text that follows was edited
from conversations between Greyson and I beginning in
February 2020.
Still from Toronto Living With AIDS (1990)
Conrad Can you describe how the idea for the TLWA
series came about between you and video artist
Michael Balser?
John
Greyson I approached Michael and I said, “They’re doing
this weekly public access cable series in New York City,
Living with AIDS. It comes out of Gay Men’s Health Crisis.
Let’s go talk to the AIDS Committee of Toronto (ACT).”
So we met with ACT and identified that there’s these
new health funding opportunities that seemed to fit our
project, and that they could sponsor us. Michael and I
wrote the grant applications, identified the artists and
community groups, and got it all in place. Michael was
the one who really pushed it up the mountain. I’d stepped
back to the point where my responsibilities were making
The Great AZT Debate (1989) happen, which came out of
a hilarious conversation the two of us were having about
how much he hated AZT and him ritualistically flushing it
down the toilet because he was so disgusted by this medication that was making him so ill. We were brainstorming,
“How do we put this on screen?” and that’s what came
out of it. My other contribution was The World Is Sick [sic]
(1989), which was a short documentary of all the groundbreaking activist mobilizations at the 1989 International
AIDS Conference in Montreal. It satirized formal broadcast news conventions with renowned performance artist
David Roche in news anchor drag while giving voice to
AIDS activists who were there from all over the world.
These two tapes became the pilot episodes for TLWA.
R
C And can you talk about how the artists were paired
with community organizations?
J
G In my memory there was an open call, but we were also
recruiting. Like “Richard Fung, you have to apply—you
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have no choice!” and “Ian Rashid, you have to apply!”
Most of the pairings were quite organic and obvious
because the relationships already existed. Richard was
already working closely with Gay Asians Toronto, Ian partnered with the Alliance for South Asian AIDS Prevention,
Glace Lawrence worked with Black Coalition for AIDS
Prevention. The applications weren’t coming out of the
blue, it was a really good match of people who wanted to
do the work on this platform.
R
C A number of tapes in the series, including the
ones you just mentioned, are specific, culturally
appropriate, HIV prevention videos that undoubtedly
were used as teaching tools due to the sheer absence
of culturally relevant prevention materials at the time.
These tapes demonstrate how seriously the TLWA
series approached the issue of racial and ethnic
inclusion. It’s not like vapid state multiculturalism
where you simply change the colour of people’s skin
in front of the camera but don’t actually include
people of colour in the production and making of
tapes. So, this is a very different thing than the simple
demand for diversity without actually challenging
power or thinking about who is making the tapes and
that seems rather unique for the time. But one group
of people I found absent from the series that I was
surprised by was sex workers. Toronto was a hotbed
of sex worker HIV/AIDS organizing in the 1980s and
90s.
J
I
think
there’s two issues that we should have covered
G
at the time because they were urgent and remain urgent
today. One is sex workers and the other is HIV in prison.
It may have been an issue of identifying the artists and
activists on the street who would be willing to put in the
hard work of doing a half-hour tape on those topics. It’s
possible outreach was done to sex worker activists and
nothing landed, maybe it didn’t catch their fancy, and so
in the end our committee ended up going with who had
applied. In retrospect I think it’s one of those things that
we should have identified as a priority—we have to make
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An Intergenerational Dialogue on HIV/AIDS Activist Video History
anOther Love Story: Women
and AIDS (1990)
This heavily scripted melodrama is built around an
interracial lesbian couple’s
relationship and illustrates the
issues facing women, lesbians and racialized women in
regard to HIV/AIDS. The storyline revolves around a conflict between the two lovers when one of them
withdraws from the relationship after being
encouraged to take an HIV test by her doctor.
Through a series of candid conversations with
friends, the couple overcomes their fear of
HIV/AIDS and embrace safer sex.
AIDS: A Family Affair (1990)
This low-budget talk show
features group interviews
with families, caregivers and
partners of PLWAs, both
alive and deceased, as well
a few PLWAs themselves.
The tape switches between
group interviews and short
direct address by the host
Steve Walker who provides a framework for
understanding the interviewees as heroes
fiercely fighting stigma, government neglect
and medical mistreatment, all while caring for
one another.
Fighting Chance (1990)
A largely straightforward
talking-head documentary
introduces viewers to gay
Asian men in the US and
Canada surviving and thriving
with the virus. The interviews
take place exclusively outside in nature, making them
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intentionally public, vibrant and teeming
with life, much like the closing interview with
Michael Callen in Stuart Marshall’s Bright Eyes
(1984). Punctuating the interviews are short
vignettes of ritualistic activities, from making
origami shapes out of decorative paper to
communal bathing.
The Great AZT Debate
(1989)
This tape begins like a game
show, complete with a host,
giant spinning wheel and a
Vanna White-like character.
It quickly transitions into a
roundtable talk show format
with intertitles about the history and development of AZT.
Toronto AIDS activists Wayne Boone, Robert
Flack, Colman Jones, and Tim McCaskell discuss the merits and dangers of AZT—the only
approved AIDS drug at the time.
The World Is Sick [sic] (1989)
A deliciously camp documentary focused on the historic
activist interventions at the
Montreal International AIDS
Conference hosted at the
Palais des congrès in 1989.
Performance artist David
Roche in news reporter drag
regularly pops up against
green-screened footage of activists from AIDS
ACTION NOW!, Réaction SIDA and ACT UP
New York storming the convention centre.
At one point she is taken hostage by AIDS
activists for her dismissive coverage of their
protests, quickly succumbing to Stockholm
Syndrome and becoming an advocate for their
cause.
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An Intergenerational Dialogue on HIV/AIDS Activist Video History
it happen. Rather than passively waiting for somebody
to apply, we have to go out there the way we did with the
others and make it happen.
R
C It would have been interesting to see what a
group like Prisoners with HIV/AIDS Support Action
Network, who are still around today, could have made
back then. Michael Smith, a British expat living in
Toronto who helped found the group contributed the
tape Person Livid with AIDS to TLWA and that does
include some content around prisoners and HIV, but
also I don’t think his tape was ever finalized for the
series. I got my hands on the two-hour performance
documentation of Michael’s play, but I don’t think
the footage ever got edited into a segment for TLWA
before he died?
J
I
don’t
think it was ever edited. I think we accepted
G
the proposal and were excited to work with him. I can’t
remember the timeline of when he died, but it was soon.
We also commissioned Lloyd Wong to make a TLWA
tape and that one was never completed either. He died
around the same time. And I wish we’d done more with
Indigenous artists. Working with someone like René
Highway would’ve been the most amazing thing, but he
died in 1990 as well.
R
C You weren’t just struggling to find funding, working
administratively, finding artists, connecting with
community organizations, but people—friends—were
also dying.
R
There
was, at least in a sort of idealistic or utopian
C
way, the idea that this was just the first season. But then
Michael Balser got burned out and ill. I got tied up with
my own stuff and ended up putting all my energies into
Zero Patience. It was one of those questions, ‘How far do
you spread yourself, and is there someone else who can
pick up the ball?’ So when the Rogers cable company station manager Ed Nasello censored the series because of
some light thigh- stroking the series was effectively cancelled. I feel like ACT could have done more, but they had
their plates full. So it’s one of those, you know, ‘if there’s
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a will…’ If there’s an institutional that will to run with
something, often it lands in one person’s lap, and they’ve
got to be the one to push it up the mountain. Lacking
that person, things don’t move. Michael went on to make
a number of other important tapes, Voices of Positive
Women (1992) with Darien Taylor, Positive Men (1995) and
Treatments – Adventures in AIDS & Media (1996), but
sadly Michael passed away in 2002.
R
C Can you tell me more about the shift from doing
short, community-based, activist/art tapes with
friends on a shoestring budget like TLWA to making
Zero Patience, a feature-length film with producers,
professional actors, a substantial budget, and a
theatrical release? It seems like a big leap, but the
subject matter remains the same.
J
Between
my short 80s AIDS tapes and making the
G
'leap' to Zero Patience, there were two crucial in-between
steps. The first was Urinal (1988), my hybrid docudrama
feature about the policing of public sex in the province of
Ontario, working with an ensemble of union and non-union actors and a skeleton crew, and shooting half on
16mm and half on video (the budget was $35,000). Urinal
was the first time I attempted something truly longform, and a sustained attempt at embedding theory—
specifically Foucault’s analysis of state surveillance (as
explained on-screen by queer historical figures like Sergei
Eisenstein, Langston Hughes and Frida Kahlo), and the
policing of public and private acts—within representations of grassroots community activism. The second was
The Making of Monsters (1991), my thirty-five-minute
queer Brechtian musical addressing the representation of
anti-gay violence on screen, while restaging the Bertolt
Brecht–Georg Lukacs debates about the efficacy of realism, with Brecht played by a catfish. I was at the Canadian
Film Centre, and of course broke my number one rule for
film students that I have rigorously tried to enforce in all
my classes at York University: ‘no films about filmmaking,
please!’ Monsters uses explicit Brechtian alienation techniques and rewrites of Brecht/Kurt Weill songs (“Mac the
Promotional still for The Making of Monsters (1991)
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Knife” becomes “I Hate Straights”) to represent the new
militancy within queer communities, fighting back against
the rise in gay-bashing.
R
CThis certainly puts your own filmmaking evolution
in context, but I’d still like to know more about why
you went in the direction of making an AIDS musical
comedy for theatrical release. Zero Patience is an
anomaly among other AIDS films. 1993 also saw the
wide release of American films like Philadelphia and
the made-for-TV adaptation of Shilts’ And the Band
Played On, as well as Tom Joslin and Peter Friedman’s
devastating diary film Silverlake Life: The View from
Here, all of which utterly terrorized me as a young
proto-gay trying to imagine my own life not ending
with a painful and humiliating death that was my own
fault. Zero Patience on the other hand is this wacky
celebration of resistance and community organizing
through song and dance, including singing puppet
buttholes no less, that I never got to see until two
decades after it was made.
J
G During this late-80s/early-90s period, I was involved
in a number of collective grassroots AIDS creation, curation and distribution projects. We were trying to provide
collective support for this global groundswell of amazing
work by AIDS artists and activists, especially those living with HIV/AIDS. The projects included: TLWA; Video
Against AIDS (1989), a six-hour compilation of global indie
AIDS tapes co-curated with Bill Horrigan (distributed
by Vtape and Video Data Bank); and Angry Initiatives,
Defiant Strategies (1989), a compilation of clips and
excerpts from various global AIDS tapes created for the
Deep Dish TV/Paper Tiger TV model of public access
cable distribution.
The work was energizing, exciting and urgent, but also
frustrating because the audiences we reached were
tiny. We were essentially locked out of the mainstream.
Therefore, the overriding goal of doing Zero Patience
was the tactic of Trojan-horsing our AIDS activism into
the multiplexes, small-town theatres and late-night TV
channels—places that groups like ACT UP couldn’t necessarily reach. To a certain degree we succeeded because
the film travelled further than anyone thought it would. It
had theatrical and broadcast rights sold to thirteen countries and I still to this day get postcards from kids in small
towns, saying they saw it on late-night cable! I mentioned
my Monsters film earlier because that narrative was really
the trial balloon, test-driving the tactics, tone and style
of doing a no/low-budget musical about queer activism.
Monsters’ success meant that we could raise our financing from industry funders, so $1.2 million in total.
When we were shooting Zero Patience in 1992, there
were almost no feature-length AIDS films—just the
made-for-TV movie An Early Frost (1985) and the widely
released Longtime Companion (1989). Philadelphia
actually arrived in theatres the same week as Zero
Patience during its US release. This proved to be a gift
on a silver platter because critics—and audiences—were
handed two radically different AIDS films: a four-hanky
neoliberal American melodrama versus a queer po-mo
activist musical from Canada that featured assholes
singing Leo Bersani lyrics about the psychosexual politics
of buttfucking.
Whether you’re using Brechtian or neorealist tactics,
putting activism on screen is always challenging, and
it was no different for Zero Patience. At the time it was
not necessarily embraced or celebrated by ACT UP
activists or the New Queer Cinema movement. Within
queer communities, the response to Zero Patience
was definitely divided, by no means unanimously
positive, even though the film was centrally depicting
AIDS activism on screen. These critical responses turn
on inevitable questions of style, of the film not being
sharp or hip enough for some, of Zero Patience sitting
somewhere on the fence between the great experimental
po-mo hybrid AIDS films of that era like Derek Jarman’s
The Garden (1990), Todd Haynes’ Poison (1991) or Marlon
Riggs’ Tongues Untied (1989), and the more realist/
melodramatic narrative AIDS films like Gregg Araki’s The
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Stills from Zero Patience (1993)
Living End (1992), Laurie Lynd’s RSVP (1991) and Stewart
Main and Peter Wells’ A Death in the Family (1986).
Arguably, it really took three more decades, until French
filmmaker Robin Campillo’s BPM in 2017, for the world to
finally get the neorealist drama about AIDS activism that
we’d all been yearning for so long.
I think Zero Patience’s aesthetic and narrative
ambitions were certainly honest, heartfelt and ambitious,
somewhat naively aspiring to the sort of artistry that
Jarman’s Edward II (1991) or Wittgenstein (1993) achieved
so beautifully—but instead, because of budget and
inexperience, I feel we landed more on the low-budget
and somewhat clunky Rocky Horror side of the tracks.
One of Zero Patience’s t-shirts proclaims, ‘hindsight is
20/20’ and it’s true that I would do almost everything
differently given the chance. There’s so much about Zero
Patience that I’d love to ‘fix,’ but that’s of course not
possible. I’m honoured that the film made an intervention
and was part of the activist conversations of the time,
and I’ve made my peace with the place it occupies in the
culture today—an interesting and even intriguing one in
terms of discussions of HIV/AIDS media and culture.
R
C I love Zero Patience for its quirky weirdness! It’s
a little sad to hear you say you’d make it differently
given the chance to do it again, but I also get that
as artists it’s a rarity to be completely satisfied with
any work one makes. One thing I hope wouldn’t
change is Michael Callen’s cameo. He perfectly
plays Miss HIV in Zero Patience, but also makes an
appearance in Colman Jones’ contribution to TLWA,
The Cause of AIDS: Fact and Speculation, as well as
appearing alongside his a cappella group mates The
Flirtations in Philadelphia. Can you talk a little bit
about working with him since he was quite sick at the
time of the shoot and passed away shortly after Zero
Patience premiered?
R
C Exactly! I think we’re like most artists, who are by
definition dissatisfied with their work, we want to always
do it over, and thus I’m also a firm believer in the school
An Intergenerational Dialogue on HIV/AIDS Activist Video History
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John Greyson with Michael Callen
behind the scenes of Zero Patience (1993)
Michael Callen as Miss HIV
in Zero Patience (1993)
convert colours
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An Intergenerational Dialogue on HIV/AIDS Activist Video History
of thought that says once the work is released, it’s no
longer ours per se—we’ve got to let go. It becomes the
property of its audiences to make of it what they will. As
for Callen, he was a friend from ACT UP New York and I
wrote the part of Miss HIV specifically for him. We built
our shooting schedule around his own touring dates. If
memory serves, The Flirtations were on a national tour at
the time. In agreeing to be in the film, he had three conditions: he wanted to wear Barbra Streisand’s dress from
Funny Lady (1975), her wig from On a Clear Day You Can
See Forever (1970) and he wanted to hold a note longer
on screen than Barbra ever had. But then he came down
with pneumocystis and was hospitalized, and really only
had half a lung left. Of course we said, ‹No worries, we’ll
reschedule. We’ll do a pickup shoot in a month or two
when you’re better.’ But he said,’“No, you don’t understand, this is probably our only chance, and I really want
to do this.’ And so he arrived in Toronto from the hospital
with his half a lung. He went right to the recording studio
and did his prerecorded vocals. It was truly remarkable.
Then the next day we were shooting his scenes in the
swimming pool and he was flirting outrageously with all
the grips, and though quite weak, he was clearly having
the time of his life. And he was right because though he
lasted for eighteen more months, passing away in the last
days of 1993, Zero Patience was one of the last times he
was able to sing. We got him a copy of the film to watch
before he died, and, yes, he got his dress, his wig and his
longer-than-Barbra note!
R
C In closing, are there any other cast or crew
members that have passed since filming that you
would like to talk about in addition to Michael Callen?
J
So
many! Many of the background performers who
G
were AIDS activists and grassroots organizers were of
course lost to AIDS. They’re seen in activist demo scenes
and in the “butthole calisthenics” scene. Bunny Behrens
(Dr. Placebo), Dorothy Gardner (casting) and Dianne
Heatherington (Typhoid Mary), all passed away from
cancer. Glenn Brown, an extraordinary activist who was
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also in the background activist scenes, passed away quite
recently, in 2017. I’m working on a new film about him as
part of our Archive/Counter Archive AIDS activist case
study and our new Viral Interventions project where we
will be commissioning new short tapes about HIV/AIDS
today from a new generation of artists and activists. It’s
very much inspired by the TLWA model from thirty years
ago. One of the most satisfying things about this new
work, and our archival restoration of so many ‘lost’ videos, is reconstructing a collective picture of a community
of artists and activists working together to combat the
plague. We didn’t have enough time, money or experience, but we shared an urgent, collective conviction that
media could be instrumental in combatting AIDS. That
spirit shines through each and every tape and film.
John Greyson and Ryan Conrad, along with their case study partners at
Vtape and Trinity Square Video, are planning future screenings, intergenerational dialogues, exhibitions, and the commissioning of new
HIV/AIDS activist tapes over the next five years. To learn more about
this work, visit: counterarchive.ca
John Greyson is a Toronto video/film artist, whose titles include Fig
Trees, International Dawn Chorus Day, Covered, 14.3 Seconds, Lilies,
Proteus, Uncut, Zero Patience, The Making of Monsters, and Urinal.
Ryan Conrad is a queer artist, activist, and teacher living in the
Ottawa Valley. You can follow his work at faggtoz.org
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