Sick with a smile

Caleb seems to have gotten over RSV. He is still working on the pnemonia in his left lower lobe. He's been really sleepy for the past 2 weeks while his body works on getting better, but he always find a minute to wake up and give me a little smile.

Brows

Do Caleb's eyebrows remind you of anyone else?
He got my blue eyes and Daddy's brows.... I think it's a pretty cute combination myself!

Light

I think it's fitting
that my little boy who is so full of light
Loves light.
Caleb's vision teachers often uses a light box when she comes to visit. It's one of Caleb's favorite toys. It makes my heart happy to see him enjoying his senses in his own sweet way.

Love Pillow

Caleb can't help but feel loved

While he is resting on his special Valentine pillow.

Even though he isn't feeling well

It reminds him how loved he is by all of us

including one special lady

who sewed love into every stitch.

Thank you!

Thankful

It has been a whole year since we've been admitted to the hospital. One year ago we were just getting home from Caleb's g tube and nissin surgery. That surgery ended a long season of surgeries, pneumonias and hospital stays.

We came home with a ventilator so we could hook Caleb up to it at night and hopefully help his lungs improve. Bringing a ventilator home was an extremely difficult decision for me. I didn't want him to need it. I was worried that I'd eventually find myself in a place where he was needing it more and more, and I wouldn't know when enough was enough.

After praying about it, we decided to bring it home and use it as we saw fit. We felt like if it helped Caleb feel happy in his body, and if it helped us keep him at home rather than the hospital, then it would be worth it.

Now that it's been a whole year without a hospital stay, I would say it has been worth it. Especially now because Caleb has RSV. He has also developed pneumonia as a secondary infection. Because we have the ventilator so far we've been able to treat him at home. He's on antibiotics and is requiring extra oxygen through his ventilator- but he's HOME. He's been pretty sick, but we've been able to keep him stable. Today he even perked up long enough to give me a smile.

I still don't know what the future holds. I still don't always know how I feel about having a ventilator at home. I still don't want him to need it. But today....I'm thankful.

BYU vs UTAH

A couple of weeks ago we decided to venture out as a family one more time

to watch BYU play Utah!

Mitchell helped Caleb sing the fight song

And Matthew gave him lots of hugs.

Go Cougars!

Come to Jesus

The Hope bed

Up until now, Caleb has been in a crib. A crib has been the best place to keep him safe, and we've done our best to keep him cozy and comfortable. This past year it was quickly becoming evident that Caleb had no more room in his little bed. We knew it was time to think about getting something else. We were hoping to get a sleep safe bed. Our doctors wrote letters of medical necessity to our insurance company, and we were promptly...denied. However, our secondary insurance really made a case for it, and the day after Caleb's birthday we found out it had been approved! Getting medical equipment for Caleb has been a challenge at times. When his bed arrived, I was overcome. It is a bed that will last for years and years. For me, it has H.O.P.E written all over it.