Ijerph 15 02165 v2
Ijerph 15 02165 v2
Ijerph 15 02165 v2
Environmental Research
and Public Health
Review
A Systematic Review of Access to Rehabilitation for
People with Disabilities in Low- and
Middle-Income Countries
Tess Bright * , Sarah Wallace and Hannah Kuper
International Centre for Evidence in Disability, London School of Hygiene & Tropical Medicine, London WC1
E7HT, UK; [email protected] (S.W.); [email protected] (H.K.)
* Correspondence: [email protected]
Received: 10 August 2018; Accepted: 27 September 2018; Published: 2 October 2018
Abstract: Rehabilitation seeks to optimize functioning of people with impairments and includes
a range of specific health services—diagnosis, treatment, surgery, assistive devices, and therapy.
Evidence on access to rehabilitation services for people with disabilities in low- and middle-income
countries (LMICs) is limited. A systematic review was conducted to examine this in depth.
In February 2017, six databases were searched for studies measuring access to rehabilitation among
people with disabilities in LMICs. Eligible measures of access to rehabilitation included: use of
assistive devices, use of specialist health services, and adherence to treatment. Two reviewers
independently screened titles, abstracts, and full texts. Data was extracted by one reviewer and
checked by a second. Of 13,048 screened studies, 77 were eligible for inclusion. These covered a broad
geographic area. 17% of studies measured access to hearing-specific services; 22% vision-specific;
31% physical impairment-specific; and 44% measured access to mental impairment-specific services.
A further 35% measured access to services for any disability. A diverse range of measures of disability
and access were used across studies making comparability difficult. However, there was some
evidence that access to rehabilitation is low among people with disabilities. No clear patterns were
seen in access by equity measures such as age, locality, socioeconomic status, or country income
group due to the limited number of studies measuring these indicators, and the range of measures
used. Access to rehabilitation services was highly variable and poorly measured within the studies in
the review, but generally shown to be low. Far better metrics are needed, including through clinical
assessment, before we have a true appreciation of the population level need for and coverage of
these services.
Keywords: access; health care; rehabilitation; people with disabilities; low- and middle-income
country; universal health coverage
1. Introduction
The World Health Organization (WHO) estimates that over one billion people, or 15% of the
global population, live with a disability, with 80% living in low- and middle-income countries
(LMICs) [1]. Disability, defined by the International Classification of Functioning, Disability and
Health (ICF), is an umbrella term for impairments, activity limitations, and participation restrictions [2].
People with disabilities experience an impairment (e.g., visual impairment) because of a health
condition (e.g., glaucoma). Contextual factors, both at the individual (e.g., age, sex) and wider societal
level (e.g., access to health services, attitudes towards disability), play a crucial role an individual’s
experience of the impairment.
People with disabilities often experience poorer levels of health than people without disabilities
for various reasons [1]. By definition, people with disabilities have an underlying health condition
Int. J. Environ. Res. Public Health 2018, 15, 2165; doi:10.3390/ijerph15102165 www.mdpi.com/journal/ijerph
Int. J. Environ. Res. Public Health 2018, 15, 2165 2 of 34
which causes greater health needs. For example, people with chronic health conditions such as arthritis
have regular ongoing health needs relating to the health condition and associated impairment [1].
People with disabilities may also be at risk of developing secondary health conditions such as
depression [3]. Furthermore, evidence from a range of settings, both high-income countries and LMIC,
suggests that people with disabilities face a multitude of barriers to accessing healthcare services.
Poverty and disability are linked in a cycle, whereby poverty can lead to disability, and disability to
poverty [4]; poverty and poor health are known to be linked through various mechanisms including
though poorer living conditions, lifestyle factors (e.g., diet, smoking), and access to health services.
People with disabilities have a need to access the same general health care services as people
without disabilities such as care-seeking when ill, vaccinations, and HIV treatment. In addition to
general health services, people with disabilities also may require specific health care services related
to their impairment, which includes rehabilitation. Rehabilitation is a broad term that encompasses
a set of interventions to address impairments—activity limitations, and participation restrictions,
as well as personal and environmental factors that have an impact on functioning [1]. Rehabilitation
seeks to optimize functioning of people experiencing disabilities. Therefore, it includes the range
of specific health services people with disabilities may require, from diagnosis, treatment, surgery,
assistive devices, and therapy.
Evidence on access to rehabilitation services is sparse; however, there is expected to be very
limited capacity to meet demand for these services in LMIC. The WHO estimates that there are
less than ten skilled rehabilitation practitioners per 1 million population in LMIC [5]. Furthermore,
the WHO estimates that between 5 and 15% of people in need for assistive devices in LMIC have
received them [6]. Even fewer are expected to have hearing aids, with less than 3% of hearing aid
need being met [7]. However, as is recognized in the WHO’s World Report on Disability, global data
on unmet need for rehabilitation services is extremely sparse [1]. Unmet need for rehabilitation has
a substantial impact on activity limitations, participation restrictions, and can result in poorer health
and quality of life [1].
Rehabilitation has previously received little attention from governments, which has contributed
to poor service availability and lack of co-ordination between services. Affordable and high-quality
services should be available to all those in need. This is the main premise behind Universal
Health Coverage (UHC), which is defined as, “ensuring all people have access to needed promotive,
preventive, curative, rehabilitative, and palliative services they need, of sufficient quality to be effective,
while ensuring that the use of these services does not expose the user to financial hardship” [8]. UHC is
recognized as a key target in Goal 3 of the Sustainable Development Goals (SDGs) (Ensure healthy
lives and promote well-being for all at all ages) [9], and so access to rehabilitation is essential in order
to reach the SDG goals and targets. Access to rehabilitation for people with disabilities is also a human
right, as stated in Article 26 of United Nations Convention for the Rights on People with Disabilities
(UNCRPD) [10].
Recent global initiatives such as the Global Co-operative on Assistive Health Technology (GATE)
strive for affordable and high-quality assistive technologies to be available for all those in need [11].
In February 2017, the WHO hosted a stakeholder meeting Rehabilitation 2030: A call to action,
highlighting the issue of the substantial unmet need for rehabilitation around the world, and the lack
of data on access to rehabilitation [5]. Considering the lack of data, we conducted a systematic review
which aimed to summarize the current literature on access to rehabilitation for people with disabilities
in LMIC, with a focus on health-related rehabilitation.
We conducted a narrative synthesis due to the variation in included study designs, measurement
of disability and outcomes which made meta-analysis impossible.
Assessment Criteria
• Study design, sampling method is appropriate to the study question
• Adequate sample size (>100 participants), or sample size calculations undertaken
• Response rate reported and acceptable (>70%)
• Disability/impairment measure is clearly defined and reliable
• Measure of access clearly defined and reliable
• Potential confounders taken into account in analysis (if necessary)
• Confidence intervals are presented
Overall Ratings
Low risk of bias: All or almost of the above criteria
++ were fulfilled, and those that were not fulfilled were
thought unlikely to alter the conclusions of the study
Medium risk of bias: Some of the above criteria were
+ fulfilled, and those not fulfilled were thought unlikely
to alter the conclusions of the study
High risk of bias: Few or no criteria were fulfilled,
−− and the conclusions of the study were thought likely
or very likely to alter with their inclusion
3. Results
3.2.
3.2. Study
Study Characteristics
Characteristics
Table
Table 22 summarizes
summarizes the the characteristics
characteristics ofof the
the studies
studies eligible
eligible for
for inclusion.
inclusion. ByBy region,
region, most
most
studies were conducted in sub-Saharan Africa (31%), followed by South Asia
studies were conducted in sub-Saharan Africa (31%), followed by South Asia (18%), Latin America (18%), Latin America
(16%),
(16%), East
East Asia
Asia (16%),
(16%), Middle
Middle East
East (9%),
(9%), and
and Europe
Europe (3%).
(3%). A A further
further 8%
8% were
were conducted
conducted in in multiple
multiple
countries.
countries. In terms of location, 49% were conducted in both urban and rural areas, with 18% in urban
In terms of location, 49% were conducted in both urban and rural areas, with 18% in urban
only
only and
and 13%
13% in in rural
rural only
only (location
(location unclear
unclear for
for 19%
19% of
of studies).
studies). Most
Most studies
studies (73%)
(73%) were
were conducted
conducted
at
at subnational
subnational (e.g.,
(e.g., district(s),
district(s), or
or provincial
provincial level),
level), with
with the
the remaining
remaining 27% 27% carrying
carrying out
out national
national
surveys. Over half of studies were conducted in 2010 or later (53%). The vast
surveys. Over half of studies were conducted in 2010 or later (53%). The vast majority of studies majority of studies
were
were cross-sectional surveys (82%) with the remaining studies using cohort
cross-sectional surveys (82%) with the remaining studies using cohort (5%), case control (10%)(5%), case control (10%)
or
or retrospective
retrospective longitudinal
longitudinal (3%)(3%) study
study designs.
designs. In terms
In terms of country
of country income
income group,
group, 33%
33% of of studies
studies were
were conducted
conducted in low in low income,
income, 28%28% in low-middle
in low-middle income,
income, 29%29% ininupper-middle
upper-middleincomeincomeandand 8%8% in
in
countries of varying income levels.
countries of varying income levels.
Int. J. Environ. Res. Public Health 2018, 15, 2165 6 of 34
Variable Number %
Region
Latin America/Caribbean 12 16%
East Asia/Pacific 12 16%
Sub-Saharan Africa 24 31%
Middle east 7 9%
South Asia 14 18%
Europe/Central Asia 2 3%
Various 6 8%
Country income group
Low 26 33%
Low-middle 22 28%
Upper-middle 23 29%
Various 6 8%
Location
Urban 14 18%
Rural 10 13%
Both 38 49%
Unclear 15 19%
Decade of publication
1990–1999 11 14%
2000–2009 25 32%
2010–current 41 53%
Age of participants
All ages 29 38%
Adults only 25 32%
Older adults 7 9%
Children only 11 14%
Unclear age/not presented 5 6%
Study design
Cross-sectional 63 82%
Retrospective longitudinal
2 3%
study
Case control study 8 10%
Cohort 4 5%
Disability domain
Hearing 13 17%
Vision 17 22%
Physical 24 31%
Mental 34 44%
Any disability 27 35%
Multiple domains 29 38%
3.3. Participants
Most studies included people of all ages (38%). 32% included adults only, 9% included older
adults (>40 years), and 14% included children only (<18 years). In 6% of studies the age group was
unclear. Considering disability domain, a large proportion of studies measured access outcomes
related to mental impairment (44%), which we defined according to the International Classification
of Diseases 10 (ICD10) “mental and behavioral disorders” included mental illnesses, intellectual
impairment, and developmental delay. Epilepsy, although a neurological condition according to ICD10
was also grouped under mental impairment for simplicity. The remainder considered services related
Int. J. Environ. Res. Public Health 2018, 15, 2165 7 of 34
to hearing impairment (17%) visual impairment (22%), physical impairment (31%) or disability in
general, across multiple domains (31%). The method of assessment of disability varied across studies,
with 33 using self-reported measures (11 used the Washington Group short or extended set), 31 studies
used clinical examination, four used a combination of reported and clinical measures, two used registry
data, in two studies assessment methods were unclear, and the remaining three studies used alternative
methods (e.g., community health worker report).
• Medical rehabilitation: including received treatment/surgery, received diagnosis, access to, or ever
received rehabilitation (any type), received therapy (physical, occupational, speech and language)
(48 studies, 62%)
• Assistive devices: including hearing aids, mobility aids, low vision devices, or any assistive device
(25 studies, 32%)
• Adherence: including adherence to treatment, treatment completion rate, and uptake of referral
(25 studies, 32%)
In addition, data on barriers to accessing rehabilitation for people with disabilities were extracted
as secondary outcomes in 23 studies (30%).
Table 3. Cont.
Uptake/compliance
with referral for
Bangladesh assistive device,
Nesbitt et al. Prospective Clinical
(Natore, SA Low income Both Population 1308 (100%) Children therapy, further - - 34 Low
(2012) [24] cohort study assessment
Sirajgani) investigation,
medicine, or
surgery
Visit for hearing
assessment
Omondi et al. Kenya Cross-sectional Deaf Clinical High: small sample
SSA Low income Both 33 (100%) Children (diagnosis); hearing 27 0 -
(2007) [25] (Kisumu) study schools assessment size
aid use (assistive
device)
Households of
children with
Use of Medium: small sample
Padmamohan Low-middle Cross-sectional disabilities were
India (Kerala) SA Rural Population 98 (100%) Children rehabilitation 16 - - size; unclear measure
et al. (2009) [26] income study identified with
treatment of disability
community
health workers
Had hearing test
Ribas et al. Brazil Upper-middle Cross-sectional Older Self-report (diagnosis); wore Low: unreliable
LA Rural Clinic 578 (32%) 28 16 -
(2015) [27] (Curibita) income study adults (bespoke tool) hearing aids measure of disability
(assistive device)
Coverage of
hearing aids
High: poor response
Tan et al. (2015) Malaysia Upper-middle Cross-sectional (assistive devices);
EAP Unclear Registry 305 (100%) Children Registry 62 66 - rate, and unreliable
[28] (Penang) income study proportion
measure of disability
accessing hearing
services)
SSA: sub-Saharan Africa, LA: Latin America, SA: South Asia, EAP: East Asia & Pacific.
Int. J. Environ. Res. Public Health 2018, 15, 2165 10 of 34
Table 4. Cont.
India (Assam,
Karnataka, Treatment
Medium: means of
Raban et al. Maharashtra, Cross-sectional Depression and Self-report coverage:
SA Low-middle Both Population 9994 (NS) Adults 12; 50 - assessing disability not
(2010) [37] Rajasthan, study schizophrenia (validated tool) depression;
reliable
Uttar Pradesh, schizophrenia
West Bengal)
Family report using
screening tool, and Ever
Padmavathi et India Low Cross-sectional All
SA Urban Population 261 (100%) Schizophrenia detailed received 71 - Low
al. (1998) [38] (Madras) income study ages
examination by a treatment
psychiatrist
Global burden of
Treatment
disease data for
coverage 11 (Low
prevalence of
Lora et al. 50 LMICs Cross-sectional (psychiatrist, income); 31
Various Various Unclear Various Unclear Adults Schizophrenia schizophrenia, and - Low
(2012) [39] (National) survey mental (Low-middle
number of people
health income)
who received care
professionals)
(facility level data)
Beijing: mild
China Sought 2; serious: 12
EAP Low-middle Urban 1628 (21%) - Low
(National) WHO composite treatment Shanghai:
international for serious: 0.5
Demyttenaere Cross-sectional
Population Adults Mental disorders diagnostic
et al. (2004) [40] Nigeria Low study condition in
SSA Urban 1682 (14%) interview (WMH, 10 - Low
(National) income the past 12
CIDI) months:
Mild 7
Ukraine mild;
EU Low-middle Both 1720 (56%) Moderate 17 - Low
(National) moderate;
Serious 19
serious
Mild 4.5
Lebanon
ME Upper-middle Both 1029 (47%) Moderate 10 - Low
(National)
Serious 15
Mild 8
Colombia
LA Low-middle Urban 2442 (33%) Moderate 12 - Low
(National)
Serious 24
Mild 10
Mexico
LA Upper-middle Urban 2362 (30%) Moderate 19 - Low
(National)
Serious 20
Received
specialty
WHO World
medical
Mental Health
care: any
Andrade et al. Brazil (Sao Case control Composite
LA Upper-middle Urban Population 1464 (27%) Adults Mental disorders disorder; 13; 23; 20; 10 - Low
(2002) [41] Paulo) study International
mood;
Diagnostic
anxiety;
Interview
substance
use
WHO World
Care
Mental Health Total
seeking for
Caraveo et al. Mexico Cross-sectional Mental health Composite proportion Medium: response rate
LA Upper-middle Urban Population 1937 (8.3%) Adults mental -
(1999) [42] (Mexico City) study condition International seeking help lower than 70%
health
Diagnostic < 50%
condition
Interview
Int. J. Environ. Res. Public Health 2018, 15, 2165 13 of 34
Table 4. Cont.
Ever
Loeb et al. Malawi Low Cross-sectional All Mental/emotional Self-report received
SSA Both Population 1574 (100%) 22 - Low
(2004) [43] (National) income study ages difficulties (bespoke tool) rehabilitation
(medical)
Ever
Difficulties
Eide et al. Zambia Low Cross-sectional All Washington Group received
SSA Both Population 2865 (100%) remembering, 30 - Low
(2006) [44] (National) income study ages short set rehabilitation
concentrating
(medical)
Any health
care
Questionnaire
Alhasnawi et al. Iraq Cross-sectional treatment
ME Low-middle Both Population 4332 (14.5%) Adults Mental disorders based on ICD10 3; 4; 17 - Low
(2009) [45] (National) study (mild;
and DSM-IV
moderate;
serious)
Self-report
Use of
(bespoke tool)
Li et al. (2013) China Cross-sectional All services:
EAP Upper-middle Both Population 2.6 million (0.6%) Mental disorders followed by clinical 1; 40 - Low
[46] (National) study ages rehabilitation;
examination and
medication
WHO DAS
Proportion
needing
Maart et al. South Africa Cross-sectional All Difficulties Washington Group
SSA Upper-middle Urban Population 151 (100%) treatment 68 - Low
(2013) [21] (Cape Town) study ages remembering short set
who
received
Attendance
Mental
Malta et al. Brazil Cross-sectional All Self-report at
LA Upper-middle Both Population 20,400 (6%) impairment 30 - Low
(2016) [23] (National) study ages (bespoke tool) rehabilitation
(unspecified)
services
Georgia Population Self-report Self-reported
Chikovani et al. (conflict Cross-sectional (conflict Mental (bespoke) and problem
EU Upper-middle Unclear 3600 (30%) Adults 39 - Low
(2015) [47] affected study affected impairment validated clinical and sought
areas) areas) tools care
Support High: low response
Trump et al. South Africa Cross-sectional group All Self-report Compliance rate, means of
SSA Upper-middle Both 331 (100%) Mental disorders - 32
(2006) [48] (National) study members, ages (bespoke tool) (self-report) assessing disability
leaders unreliable
6 LMICs
Treatment
(regional:
prevalence
Colombia,
by type of
Mexico, Self-report
Ormel et al. Cross-sectional impairment:
China; Various Various Both Population 73,441 (NS) Adults Mental disorders (Chronic disorders 8 - Low
(2008) [49] study mental
national: checklist)
disorders
Lebanon,
(visiting a
South Africa,
professional)
Ukraine)
World Health Sought
Organization treatment
Seedat et al. South Africa Cross-sectional (WHO) Composite for
SSA Low-middle Both Population 4317 (NS) Adults Mental disorders 25 - Low
(2009) [50] (National) study International condition in
Diagnostic the past 12
Interview months
Int. J. Environ. Res. Public Health 2018, 15, 2165 14 of 34
Table 4. Cont.
Adherence
Ma et al. (2012) China Population, Psychiatric
EAP Upper-middle Urban Cohort study 1386 (100%) Adults Clinical diagnosis to - 95 Low
[51] (Guangdong) hospitals disorders
medication
WHO World
Care
Mental Health
seeking for
Caraveo et al. Mexico Cross-sectional All Psychiatric Composite Medium: response rate
LA Upper-middle Urban Population 2857 (28.7%) mental 14 -
(1997) [52] (Mexico City) study ages disorders International lower than 70%
health
Diagnostic
condition
Interview
Mental
health
service use
in past 12
Brazil (North, months:
Validated tool
Paula et al. Northeast, Cross-sectional Psychiatric affective; 20; 17; 20; 9; 0;
LA Upper-middle Both Schools 1721 (12%) Children (KSADS-PL) based - Low
(2014) [53] Central, study disorders anxiety; 30
on caregiver report
Southeast) disruptive;
eating;
psychotic
disorder;
co-morbidity
Psychiatric
morbidity Compliance
Chadda et al. Low Retrospective All (schizophrenia, with High: small sample
India (Delhi) SA Not clear Clinic 80 (100%) Clinical diagnosis - 97
(2000) [54] income study ages bipolar, treatment size
unspecified regimen
psychosis)
WHO UNHCR
Treatment
Assessment
coverage
Schedule of Serious
Lebanon (Burj (received
Llosa et al. Cross-sectional Psychiatric Symptoms in Medium: Low
el-Barajneh ME Upper-middle Urban Population 194 (45%) Adults psychological 6 -
(2014) [55] study disorders Humanitarian response rate
refugee camp) or
Settings (WASSS),
psychiatric
followed by clinical
care)
exam
Results of studies measuring intellectual impairment
Households of
children with
Medium: small sample
Padmamohan Cross-sectional Intellectual disabilities were Treatment
India (Kerala) SA Low-middle Rural Population 98 (100%) Children 87 - size; unclear measure
et al. (2009) [26] study impairment identified by received
of disability
community health
workers
Met need
Intellectual
Ethiopia for
Dejene et al. Low Cross-sectional disability, autism
(Addis SSA Urban Clinic 102 (100%) Children Clinical diagnosis treatment 73 * - Low
(2016) [56] income study spectrum
Ababa) by health
disorder
professional
Int. J. Environ. Res. Public Health 2018, 15, 2165 15 of 34
Table 4. Cont.
Results of studies measuring epilepsy
Zimbabwe
(Uzumba Self-report
Receipt of
Allain et al. Maramba Low Cross-sectional Older (bespoke tool, Medium: unclear
SSA Both Population 278 (NS) Epilepsy anti-epileptic 0 -
(1997) [16] Pfungwe, income study adults method unclear), measure of disability
medication
Bindura, nurse observation
Marondera)
Screening Ever sought
questionnaire biomedical
Coleman et al. Gambia Low Cross-sectional All
SSA Rural Population 69 (100%) Epilepsy followed by treatment 52 - Low
(2002) [57] (Farafenni) income study ages
psychologist for epilepsy
review (medication)
Key
Bangladesh informant
Nesbitt et al. Low Took up
(Natore, SA Both method; Population 1308 (100%) Children Epilepsy Clinical diagnosis - 34 Low
(2012) [24] income referral
Sirajgani) prospective
cohort study
* Met need calculated as 100-unmet need (27.5% unmet need for treatment by health professional). SSA: sub-Saharan Africa, LA: Latin America, SA: South Asia, EAP: East Asia & Pacific,
ME: Middle East; EU: Europe.
Int. J. Environ. Res. Public Health 2018, 15, 2165 16 of 34
Table 5. Cont.
Ever received
Difficulties Self-report assistive devices;
Loeb et al. Malawi Low Cross-sectional 1574
SSA Both All ages Population walking (bespoke Ever received 31 25 - Low
(2004) [43] (National) income study (100%)
(WG) tool) rehabilitation
(medical)
Physical Self-report Attendance at
Malta et al. Brazil Cross-sectional 204,000
LA Upper-middle Both All ages Population impairment (bespoke rehabilitation 18 - - Low
(2016) [23] (National) study (NS)
(unspecified) tool) services
Difficulties Washington Medical
Maart et al. South Africa Cross-sectional 151
SSA Upper-middle Urban All ages Population walking Group rehabilitation 66 - - Low
(2013) [21] (Cape Town) study (100%)
(WG) short set coverage
India Low-middle 845 Difficulties Washington Coverage of: 26; 43; 87;
Mactaggart et SA Case control
(Mahbabnagar) income Unclear All ages Population (60%) - 58 - Low
al. (2015) [22] study walking Group Wheelchair;
Cameroon (WG) extended crutches;
(Fundong Low-middle 703 set walking stick; 41; 32; 93;
SSA
Health income (61%) standing frame 33
District)
Attendance at
Bangladesh
McConachie et Low 47 Cerebral Clinical 8–9 distance Medium: small
(location SA Both Children Cohort study Clinic - 29
al. (2000) [62] income (100%) Palsy diagnosis training package sample size
unclear)
sessions
Bangladesh Physical
Nesbitt et al. Low Cross-sectional 1308 Clinical
(Natore, SA Both Children Population impairment Took up referral - - 50 Low
(2012) [24] income study (100%) assessment
Sirajgani) (unspecified)
Musculoskeletal Chronic
Ormel et al. Various Not Cross-sectional 73,441 Treatment
Various Various Both Population impairment disorders 52 - - Low
(2008) [49] (National) presented study (NS) prevalence
(MSI) checklist
Medium: small
Community
Padmamohan Physical sample size;
Low-middle Cross-sectional 98 health Treatment
et al. (2009) India (Kerala) SA Rural Children Population impairment 47 - - unclear
income study (100%) workers received
[26] (unspecified) measure of
assessment
disability
India (Assam,
Karnataka, Medium:
Raban et al. Maharashtra, Low-middle Retrospective 9994 Self-report Treatment unreliable
SA Both Adults Population Arthritis 58 - -
(2010) [37] Rajasthan, income study (NS) (validated) coverage measure of
Uttar Pradesh, disability
West Bengal)
Proportion who High: unclear
Range:
received response rate;
Saleh et al. Jordan Cross-sectional 116 Cerebral Clinical 24–100%
ME Upper-middle Both Children Clinic treatment for a - - small sample
(2015) [63] (Amman) study (100%) palsy diagnosis (median:
range of size; selection
50%)
problems bias
High: unclear
Footwear
measure of
Schafer et al. Chad (Guera Low Cross-sectional 351 Clinical coverage;
SSA Unclear All ages Clinic Leprosy - 45 73 access;
(1998) [64] prefecture) income study (48%) diagnosis treatment
potential for
completion rate
selection bias
Int. J. Environ. Res. Public Health 2018, 15, 2165 19 of 34
Table 5. Cont.
Care sought
Medium:
Self-report from: qualified
Suman et al. India (West Low-middle Cross-sectional 43,999 unreliable
SA Both All ages Population Arthritis (bespoke provider 4; 3 - -
(2015) [65] Bengal) income study (1.3%) measure of
tool) (private),
disability
qualified (public)
Met need for:
Physical Mobility aid
Tan et al. (2015) Malaysia Cross-sectional 305 Medium: low
EAP Upper-middle Unclear Children Registry impairment Registry (e.g., 59 44 -
[28] (Penang) study (100%) response rate
(unspecified) wheelchair);
Physiotherapy
Proportion who
have access to
Thailand Medium:
Wanaratwichit Physical equipment;
(Phrae, Low-middle Cross-sectional 406 measure of
et al. (2008) EAP Unclear Adults Population impairment Unclear proportion who 67 55 -
Sukhothai, income study (100%) disability
[66] (unspecified) have access to
Chiang Rai) unclear
physical
rehabilitation
Medium:
China Received
unclear means
Zongjie et al. (Xincheng, Low-middle Cross-sectional Population, 460 Various rehabilitation in
EAP Unclear All ages Registry 27 - - of assessing
(2007) [67] Xuanwu, income study registry (100%) conditions the past 3
access and
Beijing) months
disability
SSA: sub-Saharan Africa, LA: Latin America, SA: South Asia, EAP: East Asia & Pacific, ME: Middle East; EU: Europe.
Int. J. Environ. Res. Public Health 2018, 15, 2165 20 of 34
Table 6. Cont.
Attendance at
Malta et al. Brazil Cross-sectional 204,000 Self-report
LA Upper-middle Both All ages Population rehabilitation 5 - - Low
(2016) [23] (National) study (NS) (bespoke tool)
services
Key
informant
method
Bangladesh
Nesbitt et al. initially; 1308 Clinical
(Natore, SA Low income Both Children Population Took up referral - - 31 Low
(2012) [24] then (100%) examination
Sirajgani)
prospective
cohort
study
Timor Leste Sought treatment
Palagyi et al. Low-middle Cross-sectional 1414 Visual acuity
(Dili, EAP Both Older adults Population from Western Style 29 - - Low
(2008) [74] income study (23%) assessment
Bobonaro) health services
India (Assam,
Karnataka,
Raban et al. Maharashtra, Low-middle Retrospective 9994 Self-report Medium: unreliable
SA Both Adults Population Treatment coverage 21 - -
(2010) [37] Rajasthan, income study (NS) (validated) measure of disability
Uttar Pradesh,
West Bengal)
Met need for: Medium: low response
Tan et al. (2015) Malaysia Cross-sectional 305
EAP Upper-middle Unclear Children Registry Registry Vision aids; Vision 52 47 - rate; unclear means of
[28] (Penang) study (100%)
related services assessing disability
Recruited
Previous eye check; High: unclear response
Udeh et al. Nigeria Cross-sectional 153 through
SSA Low income Unclear All ages Population Used low vision 82 0 - rate; unclear measure
(2014) [75] (Enugu state) study (100%) community
device of access
leaders
SSA: sub-Saharan Africa, LA: Latin America, SA: South Asia, EAP: East Asia & Pacific, ME: Middle East; EU: Europe.
Int. J. Environ. Res. Public Health 2018, 15, 2165 23 of 34
SSA: sub-Saharan Africa, LA: Latin America, SA: South Asia, EAP: East Asia & Pacific, ME: Middle East; EU: Europe.
Int. J. Environ. Res. Public Health 2018, 15, 2165 25 of 34
3.5.6. Barriers
Of the 77 included studies, 22 evaluated barriers to accessing rehabilitation as secondary outcomes.
Commonly reported barriers included logistical factors (distance to service, lack or cost of transport),
affordability (of services, treatment, lack of insurance), and knowledge and attitudinal factors
(including perceived need, fear, and lack of awareness about the service) (Table 9). Many of these
barriers identified are not unique to disability. However, particular barriers were disability-related,
including discrimination from the health provider, provider lacking skills, and communication barriers,
or potentially enhanced among people with disabilities (e.g., lack of affordability).
Barrier Reference
Geographic accessibility
Distance to service [19,21,26,28,31,47,69,71,72,74,93]
Transport problems [18,19,21,28,31,69,72,74,77,84,89,94]
Nobody to accompany [28,69,71,72,74,77,93]
Affordability
Unable to afford services [18–22,26,27,31,47,58,62,67,71,72,74,77,84,89]
Unable to afford treatment [19,47,60,70,75,93]
No insurance [47]
Acceptability
Do not know where to go for treatment [27,28,31,47,48,69,71,72,74,93]
Have not heard about service [75]
Thought nothing could be done [31,48,69–72,74]
Lack of perceived need [20,31,47,48,69–72,74,95]
Family do not perceive need [71]
Fear of seeking care [31,69–72,74]
No time/other priorities [28,47,69–72,74,84,93]
Other medical problems [60,71]
Shame [31,95]
Lack of trust in healthcare providers keeping confidentiality [31]
Availability
Waiting time at the clinic [31,74,77]
Not availability of drugs, services [21,28,60,75,84,93]
Quality
Discrimination/poor treatment from health provider [19,21,28,31,47,69]
Poor relationship with provider [70,71,95]
Provider refused care [28,84]
Communication barrier [21]
Provider lacks skills [28,67]
4. Discussion
(Korean National Health and Nutrition Examination Survey—KHANES) found that less than 10% of
people with depressive mood had used mental health services [101]. In the United Kingdom, analysis
of the European Health Interview Survey found that people with severe disability had higher odds of
facing unmet need for health care, with the largest gap for mental health care [102]. Although these
studies show high unmet need for services also exists in high-income contexts, access to rehabilitation
is likely to be much poorer in LMIC.
The WHO have commonly cited statistics on coverage of assistive devices. For instance, it is
estimated that hearing aid production meets less than 10% of the global need and less than 3% of
people who need hearing aids in LMIC actually receive them. Furthermore, previous WHO estimates
suggests that in many LMIC, 5–15% of people with disabilities have access to assistive devices [6].
Our review found wide variation in coverage of hearing aids and assistive devices but does agree
that coverage is generally low. Again, the range of measurements of both disability and access limit
comparability across studies.
There are also several strengths. This review was large, and adopted a systematic approach,
following Cochrane guidelines. We used a comprehensive list of search terms to capture the literature
available on this topic. It captured a broad range of disability types, and across a diverse range of
countries and published in different languages.
5. Conclusions
This systematic review on access to rehabilitation for people with disabilities found wide variation
in reported coverage across studies. In general, coverage appeared to be low for medical rehabilitation,
assistive devices, therapy, and adherence. However, the review has identified a need to develop
standard indicators for measuring coverage of rehabilitation to allow comparability. There is also
a need to use comparable measures of disability. Common measures will contribute towards a greater
understanding of the met and unmet needs for rehabilitation for people with disabilities and allow
planning of appropriate services.
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