Methods for tracking Phe intake

It is important to do all you can to protect your brain from the toxic effects of high
or unstable phenylalanine (Phe). Tracking your daily Phe intake is a key part of how you
manage your PKU each and every day. There are a few different methods for you to track
Phe intake. Always work together with your dietitian to find the way that works best for you.

Counting milligrams (mg) of Phe

By using a PKU food reference guide, you can easily track your Phe intake using this method. If you do not have a PKU
food reference list handy, you can use this calculation as a reliable way to estimate the amount of Phe contained in a
food and beverage by using the protein amount and serving size listed on the label.

1 g Protein = 50 mg Phe (approximately)1,2

Be careful – all foods and beverages are not created equal. The actual Phe content can vary between brands of types
of food, so it is important to always refer to an approved PKU food reference guide or check with your dietitian.

It is also important to select one consistent PKU food reference guide and stick with it. Do not use multiple sources
to calculate your daily intake.

Counting exchanges of Phe

Tracking Phe intake by counting exchanges is another reliable way to monitor your intake, as most PKU food reference
guides will include exchange calculations.

1 g Protein = 50 mg Phe (approximately)1,2

15 mg Phe = 1 Exchange2,3
1 g Protein = 4 Exchanges (always round exchange calculations up)2,3

Counting exchanges is an accurate way to track your daily intake; however, it is important to select one consistent
PKU food reference guide. Phe exchange values can vary between food reference guides. Always check with your dietitian
if you have questions.

Counting grams (g) of protein

The total protein content for packaged foods and beverages will always
be included on the food label and is based on the serving size for that
specific package. Nutrition Facts
Serving Size 1 oz (28g/About 21 pieces)
This method is not the most accurate way to track your daily Phe Servings Per Container About 2

intake; however, it may be easier to do when counting milligrams Amount Per Serving
is too difficult. Calories 170 Calories from Fat 110
% Daily Value
If an item’s food label says:
Total Far 11g 17%
• 0 g of protein it can still contain up to 0.49 g per serving2,4 Saturated Fat 1.5g 8%
Trans Fat 0g
• 1 g of protein it can contain anywhere from 0.50 to 1.49 g per serving2,4
Cholesterol 0mg 0%
Sodium 250mg 10%
It is important to always double check information found on a food label Total Carbohydrate 14g 5%
against an approved PKU food reference guide or with your dietitian. Dietary Fiber less than 1g 2%
Pay attention to the serving sizes as these can vary between the same Sugars 0g
type of foods. Protein 2g
References: 1. MacDonald A, et al. Arch Dis Child. 1996;74(5):412-417. 2. Nutrition labeling of food. 101.9(c)(7). Electronic code of federal regulations.
http://www.ecfr.gov/cgi-bin/text-idxSID=cecc32db16c3273efb8b41ea93ad6be0&mc=true&node=pt21.2.101. Accessed December 27, 2016. 3. Singh RH, et al. Genet Med. Vitamin A 2% • Vitamin C 0%
2014;16(2):121-131. 4. National PKU Alliance. My PKU binder. http://npkua.org/portals/0/pdfs/pkubinder/PKU%20Binder%202011.pdf. Accessed December 27, 2016. Calcium 0% • Iron 4%
Vitamin E 6% • Thiamin 4%
Riboflavin 2% • Niacin 4%
 Tracking your Phe intake
Once you and your dietitian have determined which method will work best for you to track
your daily Phe intake, it’s important to find a way to work it into your daily life.

My method for tracking Phe/Protein is:

My daily Phe/Protein intake prescription is:

Tips and tools for tracking your Phe

Notes:

Keep it simple!
or use a
Keep a small notebook with you
rd your food
Smartphone application to reco
and beverages on the go.

Know your foods

each day.
Many people eat a similar diet
contained
Becoming familiar with the Phe
can make
in the foods you commonly eat
tracking easier.

Make it routine
how you track
Be consistent about when and
e so that it beco mes a part
your dietary intak
of your daily routine.

BioMarin Pharmaceutical Inc.

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