Descriptive Autism Diversity

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Autism is a condition that affects how an individual communicates with, and relates to,

other people. It also affects how they make sense of the world around them.
Children and young people with autism vary enormously but they all share the two 'core'
features of autism:
- persistent difficulties with social communication and social interaction. For example,
they may find it hard to begin or carry on a conversation, they may not understand
social rules such as how far to stand from somebody else, or they may find it difficult to
make friends.
- Restricted, repetitive patterns of behaviour, interests, or activities. For example, they
may develop an overwhelming interest in something, they may follow inflexible routines
or rituals, they may make repetitive body movements, or they may be hypersensitive to
certain sounds.
Children and young people with autism also have significant strengths. These often
include reliability, a good eye for detail, producing highly accurate work, an excellent
memory for facts and figures, and the ability to thrive in a structured, well-organised
work environment.
World Autism Awareness Day - Thursday 2 April 2015

GENEVA (1st April 2015) Two United Nations human rights experts today called for
an end to discrimination against autistic persons and a celebration of diversity.
Speaking ahead of World Autism Awareness Day, the Special Rapporteurson the
rights of persons with disabilities, Catalina Devandas Aguilar, and on the right to health,
Dainius Pras, noted that about one per cent of the worlds population -some 70 million
people- is estimated to be on the autism spectrum worldwide.

As part of human diversity, autistic persons should be embraced, celebrated and


respected. However, discrimination against autistic children and adults is more the rule
rather than the exception.

In many countries, autistic persons lack access to services which would support, on an
equal basis with others, their right to health, education, employment, and living in the
community. When available, services are too often far from human rights friendly or
evidence-based.

Autistic persons are particularly exposed to professional approaches and medical


practices which are unacceptable from a human rights point of view. Such practices
justified many times as treatment or protection measures violate their basic rights,
undermine their dignity, and go against scientific evidence.

Autistic children and adults face the proliferation of medicalized approaches relying on
the over-prescription of psychotropic medications, their placement in psychiatric
hospitals and long-term care institutions, the use of physical or chemical restraint,
electro-impulsive therapy, etc. This may be particularly harmful and lead to the
deterioration of their condition. All too often, such practices amount to ill-treatment or
torture.

The autism spectrum should be understood from a broader perspective, including in


research. We call for caution about enthusiastic attempts to find the causes of autism
and ways to cure autism through sophisticated but not necessarily ethical research.
Autism as a condition is a critical challenge for modern health systems, in which we
need to ensure that the practice and science of medicine is never again used to cause
the suffering of people.
More investment is needed in services and research into removing societal barriers and
misconceptions about autism. Autistics persons should be recognized as the main
experts on autism and on their own needs, and funding should be allocated to peer-
support projects run by and for autistic persons.

It is about providing individuals and families with the necessary skills and support to
have choice and control over their lives. It is also about equal opportunities, access to
inclusive education and mainstream employment to achieve equality and rights
enjoyment by autistic persons. It is about promoting their independence and respecting
their dignity.

Autistic persons should be respected, accepted and valued in our societies, and this
can only be achieved by respecting, protecting and fulfilling their basic rights and
freedoms.

Ms. Catalina Devandas Aguilar (Costa Rica) was designated as the first Special
Rapporteur on the rights of persons with disabilities in December 2014 by the UN
Human Rights Council. Ms. Devandas Aguilar has worked extensively on disability
issues at the national, regional and international level with the Strategic Partnerships
with the Disability Rights Advocacy Fund, the UN unit responsible for the Convention on
the Rights of Persons with Disabilities and the World Bank. Her work has focused on
the rights of women with disabilities and the rights of indigenous peoples with
disabilities. Learn more, log on
to: http://www.ohchr.org/EN/Issues/Disability/SRDisabilities/Pages/SRDisabilitiesIndex.a
spx

Mr. Dainius Pras (Lithuania) was appointed as the Special Rapporteur on the right of
everyone to the enjoyment of the highest attainable standard of physical and mental
health by the UN Human Rights Council in June 2014. Mr Pras is a Professor and the
Head of the Centre for Child psychiatry social pediatrics at Vilnius University. He is also
a human rights advocate who has been actively involved during the last 30 years in the
process of transforming public health policies and services, with special focus on the
rights of children, persons with mental disabilities, and other vulnerable groups. Learn
more, visit: http://www.ohchr.org/EN/Issues/Health/Pages/SRRightHealthIndex.aspx

The UN Special Rapporteurs are part of what is known as the Special Procedures of
the Human Rights Council. Special Procedures, the largest body of independent experts
in the UN Human Rights system, is the general name of the Councils independent fact-
finding and monitoring mechanisms that address either specific country situations or
thematic issues in all parts of the world. Special Procedures experts work on a
voluntary basis; they are not UN staff and do not receive a salary for their work. They
are independent from any government or organization and serve in their individual
capacity.

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