Francesco Orzi's abstract discusses palliative care and evidence-based medicine in neurology. Neurological diseases differ from traditional palliative care diseases like cancer in that they often have a long, progressive course rather than a relentless progression. This makes prognostication more difficult in neurology. Many neurological diseases that clearly have palliative care needs, such as ALS and dementia, have received relatively little attention from palliative care. Providing palliative care for patients with severe dementia involves assisting with activities of daily living and managing discomfort, but this person-centered approach must be balanced with maintaining evidence-based clinical outcomes.
Francesco Orzi's abstract discusses palliative care and evidence-based medicine in neurology. Neurological diseases differ from traditional palliative care diseases like cancer in that they often have a long, progressive course rather than a relentless progression. This makes prognostication more difficult in neurology. Many neurological diseases that clearly have palliative care needs, such as ALS and dementia, have received relatively little attention from palliative care. Providing palliative care for patients with severe dementia involves assisting with activities of daily living and managing discomfort, but this person-centered approach must be balanced with maintaining evidence-based clinical outcomes.
Francesco Orzi's abstract discusses palliative care and evidence-based medicine in neurology. Neurological diseases differ from traditional palliative care diseases like cancer in that they often have a long, progressive course rather than a relentless progression. This makes prognostication more difficult in neurology. Many neurological diseases that clearly have palliative care needs, such as ALS and dementia, have received relatively little attention from palliative care. Providing palliative care for patients with severe dementia involves assisting with activities of daily living and managing discomfort, but this person-centered approach must be balanced with maintaining evidence-based clinical outcomes.
Francesco Orzi's abstract discusses palliative care and evidence-based medicine in neurology. Neurological diseases differ from traditional palliative care diseases like cancer in that they often have a long, progressive course rather than a relentless progression. This makes prognostication more difficult in neurology. Many neurological diseases that clearly have palliative care needs, such as ALS and dementia, have received relatively little attention from palliative care. Providing palliative care for patients with severe dementia involves assisting with activities of daily living and managing discomfort, but this person-centered approach must be balanced with maintaining evidence-based clinical outcomes.
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Antea Worldwide Palliative Care Conference
Rome, 12-14 November 2008
ABSTRACT FORM
Presenting author Palliative care and evidence based medicine in Neurology
Francesco Orzi Authors (max 6, presenting author included): Francesco Orzi Email: [email protected] Palliative interventions in neurology are being covered by an emerging field, Phone which bridges neurology and palliative medicine into a new subspecialty. Neurologic diseases may differ from the traditional diseases cared for by palliative care physicians because of the often long progressive course, in Mobile phone contrast to the relentless progression seen in many cancers. Given these obstinate features, prognostication is much more difficult in neurology and prolonged periods of accumulating disability much more common. Many Please underline the most disease that clearly have palliative care needs, have been given relatively appropriate category for your little attention in the palliative care. These include muscular dystrophies, abstract Huntington disease, sequela of brain injury, and stroke, amyotrophic lateral sclerosis, cerebral neoplasms, HIV infection, and multiple sclerosis, and • Pain and other symptoms dementia. A person with dementia, for instance, challenges the neurologist • Palliative care for cancer patients with problems and needs traditionally not covered in academic trainings. The • Palliative care for non cancer care of people with severe dementia largely involves compensating for their patients diminishing ability to fulfill basic needs by providing assistance in areas such • Paediatric palliative care as activities of daily living, mobility, safety and function, toileting, mouth • Palliative care for the elderly care, and grooming. The prevention, management, or elimination of discomfort such as pain, constipation, skin deterioration, malnutrition, • The actors of palliative care physical exhaustion, and adverse drug reactions are also areas that are • Latest on drugs central to the provision of basic physical care. A person-oriented attitude, • Pain however, can come at the expense of a task oriented, objective and guided approach that is central to the evidence-based medicine. • Illness and suffering through Thus, while palliative approaches appropriately include phenomenological media perspectives, and stress the care for the person more than for the disease, a • Marginalisation and social stigma main question remains about how to measure and explore clinical outcomes at the end of life of neurological palliative care. Answering such a question would be functional • Palliative care advocacy projects to maintain both the benefit of a person-centered care and the quality of the • Prognosis and diagnosis scientific evidence. communication in different cultures • Communication between doctor- patient and patient- equipe • Religions and cultures versus suffering, death and bereavement • Public institution in the world: palliative care policies and law • Palliative care: from villages to metropolies
• Space, light and gardens for the terminally ill patient
• End-of-life ethics • Complementary therapies Session: Rehabilitation in palliative care • Education, training and research • Fund-raising and no-profit Chair of the session: Claudio Pellegrini • Bereavement support • Volunteering in palliative care • Rehabilitation in palliative care