Will Byrnes's Reviews > The Immortal Life of Henrietta Lacks
The Immortal Life of Henrietta Lacks
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by
Will Byrnes's review
bookshelves: biography, science, public-health, american-history, brain-candy
Nov 24, 2010
bookshelves: biography, science, public-health, american-history, brain-candy
On October 4, 1951, Henrietta Lacks, a thirty-one-year old black woman, died after a gruesome battle with a rapidly metastasizing cancer. During her treatment, the doctors at Johns Hopkins took some cells from her failing body and used them for research. This was not an unusual thing to have done in 1951. But the cells that came from Ms. Lacks’ body were unusual. They had qualities that made them uniquely valuable as research tools. Labeled “HeLa”, Henrietta’s cells were reproduced by the billions over the following sixty years and have been instrumental in experiments across a wide range of biological science. Today, HeLa cells are sold by the vial at impressive prices. Yet, Ms. Lacks’ family has seen not a penny of compensation from the work that has been made possible by their relative’s unique cells.
Rebecca Skloot - from Powell's
Rebecca Skloot, a science writer with articles published in many major outlets, spent years looking into the genesis of these cells. The Immortal Life of Henrietta Lacks tells four stories. First is the tale of HeLa cells, and the value they have been to science; second is the life of, arguably, the most important cell “donor” in history, and of her family; third is a look at the ethics of cell “donation” and the commercial and legal significance of rights involved; and fourth is the Visible Woman look at Skloot’s pursuit of the tales. Each story is significant.
The contribution of HeLa cells has been huge and it is important to know how these cells came to be so widely used, and what are the characteristics that make them so valuable. Skloot goes into a reasonable level of detail for those of us who do not make our living in a lab coat. She adds information on how cell cultures can become contaminated, and how that impacts completed research. She also offers a description of telomeres, strings of DNA at the end of chromosomes critical to longevity, and key to the immortality of HeLa cells. Fascinating stuff.
Henrietta Lacks - From Science And Film
Skloot constructs a biography of Henrietta, and patches together a portrait of the life of her family, from her ancestors to her children, siblings and other relations. It is with a source of pride, among other emotions, that her family regards Henrietta’s impact on the world. Skloot delves into these feelings, and the experiences the Lacks family members have had over the decades with people trying to write about Henrietta, and people trying to exploit their interest in Henrietta for dark purposes.
Rose Byrne as Rebecca Skloot and Oprah Winfrey as Deborah Lacks in “The Immortal Life of Henrietta Lacks.” - Credit...Quantrell Colbert/HBO
The author had to overcome considerable family resistance before she was able to get them to meet with and ultimately open up to her. She takes us through her process, showing who she talked with, when, and the result of those conversations, what institutions she contacted re locating and gaining access to information about Henrietta and some other family members. Most interesting, and at times frustrating, is her story of how she gained the trust of some, if not all, of the Lacks family. This is like presenting a how-to of her research process, a blow-by-blow description of the way research is done in the real world, and it is very enlightening.
The Immortal Tale of Henrietta Lacks has received considerable acclaim. It is all well-deserved. The book is an eye-opening window into a piece of our history that is mostly unknown. It presents science in a very manageable way and gives us plenty to think about the next time we have a blood test or any other medical procedure. This book may not be as immortal as Henrietta’s cells, but it will stay with you for a very long time.
The HBO film aired on April 22, 2017. It received a 69% rating on Rotten Tomatoes.
==============================EXTRA STUFF
8/8/13 - NY Times article - A Family Consents to a Medical Gift, 62 Years Later
3/29/17 - Washington Post - On the eve of an Oprah movie about Henrietta Lacks, an ugly feud consumes the family - by Steve Hendrix
1/3/23 - Smithsonian Magazine - Henrietta Lacks’ Virginia Hometown Will Build Statue in Her Honor, Replacing Robert E. Lee Monument by Molly Enking
Rebecca Skloot - from Powell's
Rebecca Skloot, a science writer with articles published in many major outlets, spent years looking into the genesis of these cells. The Immortal Life of Henrietta Lacks tells four stories. First is the tale of HeLa cells, and the value they have been to science; second is the life of, arguably, the most important cell “donor” in history, and of her family; third is a look at the ethics of cell “donation” and the commercial and legal significance of rights involved; and fourth is the Visible Woman look at Skloot’s pursuit of the tales. Each story is significant.
The contribution of HeLa cells has been huge and it is important to know how these cells came to be so widely used, and what are the characteristics that make them so valuable. Skloot goes into a reasonable level of detail for those of us who do not make our living in a lab coat. She adds information on how cell cultures can become contaminated, and how that impacts completed research. She also offers a description of telomeres, strings of DNA at the end of chromosomes critical to longevity, and key to the immortality of HeLa cells. Fascinating stuff.
Henrietta Lacks - From Science And Film
Skloot constructs a biography of Henrietta, and patches together a portrait of the life of her family, from her ancestors to her children, siblings and other relations. It is with a source of pride, among other emotions, that her family regards Henrietta’s impact on the world. Skloot delves into these feelings, and the experiences the Lacks family members have had over the decades with people trying to write about Henrietta, and people trying to exploit their interest in Henrietta for dark purposes.
Rose Byrne as Rebecca Skloot and Oprah Winfrey as Deborah Lacks in “The Immortal Life of Henrietta Lacks.” - Credit...Quantrell Colbert/HBO
The author had to overcome considerable family resistance before she was able to get them to meet with and ultimately open up to her. She takes us through her process, showing who she talked with, when, and the result of those conversations, what institutions she contacted re locating and gaining access to information about Henrietta and some other family members. Most interesting, and at times frustrating, is her story of how she gained the trust of some, if not all, of the Lacks family. This is like presenting a how-to of her research process, a blow-by-blow description of the way research is done in the real world, and it is very enlightening.
The Immortal Tale of Henrietta Lacks has received considerable acclaim. It is all well-deserved. The book is an eye-opening window into a piece of our history that is mostly unknown. It presents science in a very manageable way and gives us plenty to think about the next time we have a blood test or any other medical procedure. This book may not be as immortal as Henrietta’s cells, but it will stay with you for a very long time.
The HBO film aired on April 22, 2017. It received a 69% rating on Rotten Tomatoes.
==============================EXTRA STUFF
8/8/13 - NY Times article - A Family Consents to a Medical Gift, 62 Years Later
3/29/17 - Washington Post - On the eve of an Oprah movie about Henrietta Lacks, an ugly feud consumes the family - by Steve Hendrix
1/3/23 - Smithsonian Magazine - Henrietta Lacks’ Virginia Hometown Will Build Statue in Her Honor, Replacing Robert E. Lee Monument by Molly Enking
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Reading Progress
November 24, 2010
–
Started Reading
November 24, 2010
– Shelved
November 30, 2010
–
Finished Reading
December 4, 2010
– Shelved as:
biography
December 4, 2010
– Shelved as:
science
December 4, 2010
– Shelved as:
public-health
December 4, 2010
– Shelved as:
american-history
November 2, 2012
– Shelved as:
brain-candy
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Nancy
(last edited Dec 05, 2010 07:40AM)
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Dec 05, 2010 06:24AM
I remember listening to her story on NPR. Science books and reviews of them often make my eyes glaze over, but once again your thoughtful review has made me add another book to my shelf. I liked how you showed there are humane aspects to scientific research as well.
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Thanks, Nancy and Chris. It took a bit of persuading to get me to read this. I do like reading about science, but was not all that enthusiastic about Henrietta and put it off for quite a while. The fact that it received such widespread acclaim made a difference, and my sweetie kept telling me that I really should read it.
Skloot did a pretty good job of putting human faces on a crucial aspect of contemporary science. In a way, we have little real choice about the use of our cells for research. It's like software disclaimers. If you want to use pretty much any piece of software you did not write yourself you have to agree to yield up all possible legal rights. Of course you retain the freedom not to use the software. In the same way you retain the right, I suppose, not to get the results of your medical tests, leaving you free to pass on finding out whether that cute little biopsy chunk has nasties nibbling away at your lifespan.
Skloot did a pretty good job of putting human faces on a crucial aspect of contemporary science. In a way, we have little real choice about the use of our cells for research. It's like software disclaimers. If you want to use pretty much any piece of software you did not write yourself you have to agree to yield up all possible legal rights. Of course you retain the freedom not to use the software. In the same way you retain the right, I suppose, not to get the results of your medical tests, leaving you free to pass on finding out whether that cute little biopsy chunk has nasties nibbling away at your lifespan.
I tend not to write very involved reviews, but I dearly love when other people do. You'll be seeing more, I'm sure.
Will wrote: ". In a way, we have little real choice about the use of our cells for research. ..."
Seems a bit unfair, doesn't it? OTOH, what if people refused to have their cells used, and their cells could have provided a breakthrough? It's a tough issue.
Interesting, in-depth review as usual. :)
Seems a bit unfair, doesn't it? OTOH, what if people refused to have their cells used, and their cells could have provided a breakthrough? It's a tough issue.
Interesting, in-depth review as usual. :)
I saw a snippet for this article and meant to go back and read it, but forgot. Thanks for posting it here. I didn't know anything about this until I saw an old episode of Law and Order that featured a similar premise. I was surprised to learn later that it was actually a true case when I saw the summary for this book. It's fascinating story.
Terry wrote: "Here's something about Rebecca Skloot's father: https://www.poetryfoundation.org/poem..."
From Brooklyn! Cool. Skloot clearly comes by her writing talent naturally.
From Brooklyn! Cool. Skloot clearly comes by her writing talent naturally.
I just finished this today, Will, and loved it. I'm still digesting it. I really appreciate your review, especially how you broke this out to 4 distinct stories. At first Skloot's approach was a little disconcerting - it didn't feel like a coherent story. But it all came together in the end, much I think as it did for her. And when you understand the different threads, it's easier to flow with it. I listened to this one which made it very intimate, as if she were telling her story to just me. The audio included an interview with the author, which was enlightening as to her choices of how to structure the book and her intent for the reader. Thanks for including the Times article!
On April 22 HBO will broadcast the movie based on this book . . . in case you didn't know.
On April 22 HBO will broadcast the movie based on this book . . . in case you didn't know.
Wonderful review, and very interesting book. To me, the story about the HeLa-cells is new. And also thanks for the link to the NY Times article!
I might have to revise my rating. I read this book a few years ago now AND YET I am still thinking of it. I thought about it today before this popped up on my Goodreads feed. very powerful book.
Our Diversity in All Forms Book Club is reading this for December. We’d love to have you join the discussion on it. :) https://www.goodreads.com/topic/show/...
As Skloot documents, the Lacks family has not received any compensation for the cells that were taken from Henrietta despite the incredible amount of money that organization's have made from their use of those cells. Now that is about to change.
https://www.wsj.com/articles/henriett...
https://www.wsj.com/articles/henriett...
This book was truly an eye-opener. The author managed to write about a scientific topic with such humanity that it has become one of my favorites. Thanks for the brilliant review.
Great review Will. I still haven’t read this but I will at some point. As always, I love your extras.
Henrietta Lacks had her babies around the same time as my white mother and only a few miles apart from each other in segregated Baltimore city. And while it is true we have no say in our disregarded cells, Hopkins doctors went even further taking blood and tissue samples from Henrietta's children to further HeLa research without their informed consent and then published parts of her medical records without her family's knowledge or permission. So although HeLa cells have helped research greatly, for her family, I have a problem with that. They could only do this
because they were uninsured, poor and Black.
because they were uninsured, poor and Black.