Meaningful health outcomes for paediatric neurodisability: Stakeholder prioritisation and appropriateness of patient reported outcome measures (Q35774314)

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scientific article published on 25 June 2015

Language	Label	Description	Also known as
English	Meaningful health outcomes for paediatric neurodisability: Stakeholder prioritisation and appropriateness of patient reported outcome measures	scientific article published on 25 June 2015

Statements

scholarly article

1 reference

Europe PubMed Central

PubMed publication ID

10 August 2017

Meaningful health outcomes for paediatric neurodisability: Stakeholder prioritisation and appropriateness of patient reported outcome measures (English)

1 reference

Europe PubMed Central

PubMed publication ID

10 August 2017

1 reference

based on heuristic

inferred from title

Christopher Morris

1

1 reference

Europe PubMed Central

PMC publication ID

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:26108625%20AND%20SRC:MED&resulttype=core&format=json

13 June 2020

Astrid Janssens

2

1 reference

Europe PubMed Central

PMC publication ID

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:26108625%20AND%20SRC:MED&resulttype=core&format=json

13 June 2020

Jo Thompson Coon

8

1 reference

Europe PubMed Central

PMC publication ID

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:26108625%20AND%20SRC:MED&resulttype=core&format=json

13 June 2020

Morwenna Rogers

9

1 reference

Europe PubMed Central

PMC publication ID

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:26108625%20AND%20SRC:MED&resulttype=core&format=json

13 June 2020

13

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Europe PubMed Central

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https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:26108625%20AND%20SRC:MED&resulttype=core&format=json

13 June 2020

14

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Europe PubMed Central

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https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:26108625%20AND%20SRC:MED&resulttype=core&format=json

13 June 2020

author name string

Valerie Shilling

3

1 reference

Europe PubMed Central

PMC publication ID

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:26108625%20AND%20SRC:MED&resulttype=core&format=json

13 June 2020

Amanda Allard

4

1 reference

Europe PubMed Central

PMC publication ID

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:26108625%20AND%20SRC:MED&resulttype=core&format=json

13 June 2020

Andrew Fellowes

5

1 reference

Europe PubMed Central

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https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:26108625%20AND%20SRC:MED&resulttype=core&format=json

13 June 2020

Richard Tomlinson

6

1 reference

Europe PubMed Central

PMC publication ID

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:26108625%20AND%20SRC:MED&resulttype=core&format=json

13 June 2020

Jane Williams

7

1 reference

Europe PubMed Central

PMC publication ID

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:26108625%20AND%20SRC:MED&resulttype=core&format=json

13 June 2020

Bryony Beresford

10

1 reference

Europe PubMed Central

PMC publication ID

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:26108625%20AND%20SRC:MED&resulttype=core&format=json

13 June 2020

Colin Green

11

1 reference

Europe PubMed Central

PMC publication ID

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:26108625%20AND%20SRC:MED&resulttype=core&format=json

13 June 2020

Crispin Jenkinson

12

1 reference

Europe PubMed Central

PMC publication ID

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:26108625%20AND%20SRC:MED&resulttype=core&format=json

13 June 2020

publication date

25 June 2015

1 reference

Europe PubMed Central

PubMed publication ID

10 August 2017

Health and Quality of Life Outcomes

1 reference

Europe PubMed Central

PMC publication ID

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:26108625%20AND%20SRC:MED&resulttype=core&format=json

13 June 2020

13

1 reference

Europe PubMed Central

PMC publication ID

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:26108625%20AND%20SRC:MED&resulttype=core&format=json

13 June 2020

87

1 reference

Europe PubMed Central

PMC publication ID

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:26108625%20AND%20SRC:MED&resulttype=core&format=json

13 June 2020

copyright license

Creative Commons Attribution 4.0 International

25 June 2015

1 reference

April 2022 Public Data File from Crossref

copyright status

0 references

A systematic review of generic multidimensional patient-reported outcome measures for children, part II: evaluation of psychometric performance of English-language versions in a general population

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4478638

12 July 2018

A systematic review of generic multidimensional patient-reported outcome measures for children, part I: descriptive characteristics

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4478638

12 July 2018

Informing the NHS Outcomes Framework: evaluating meaningful health outcomes for children with neurodisability using multiple methods including systematic review, qualitative research, Delphi survey and consensus meeting

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4478638

12 July 2018

International Classification of Functioning, Disability and Health Core Sets for children and youth with cerebral palsy: a consensus meeting

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https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4478638

12 July 2018

Key health outcomes for children and young people with neurodisability: qualitative research with young people and parents.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4478638

12 July 2018

A guide on how to develop an International Classification of Functioning, Disability and Health Core Set.

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https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4478638

12 July 2018

Measuring pediatric patient-reported outcomes: good progress but a long way to go.

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https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4478638

12 July 2018

Pediatric patient-reported outcome instruments for research to support medical product labeling: report of the ISPOR PRO good research practices for the assessment of children and adolescents task force

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https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4478638

12 July 2018

Validation of the Focus on the Outcomes of Communication under Six outcome measure.

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12 July 2018

Developing core outcome sets for clinical trials: issues to consider

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12 July 2018

Guidance for industry: patient-reported outcome measures: use in medical product development to support labeling claims: draft guidance

1 reference

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12 July 2018

Desired outcomes for children and young people with complex health care needs, and children who do not use speech for communication

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4478638

12 July 2018

The Magical Number Seven, Plus or Minus Two

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12 July 2018

Patient reported outcome measures in practice

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https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4478638

25 September 2018

What needs to happen before an International Classification of Function, Disability and Health Core Set is ready for clinical use?

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https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4478638

25 September 2018

Health outcomes for children with neurodisability: what do professionals regard as primary targets?

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25 September 2018

Towards a definition of neurodisability: a Delphi survey

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25 September 2018

Why it is crucial to involve families in all stages of childhood disability research

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25 September 2018

Quality of life of adolescents with cerebral palsy: perspectives of adolescents and parents.

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25 September 2018

A qualitative study of the health-related quality of life of disabled children.

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25 September 2018

Factors affecting family-centred service delivery for children with disabilities.

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25 September 2018

Linking clinical variables with health-related quality of life. A conceptual model of patient outcomes

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25 September 2018

Consensus methods: characteristics and guidelines for use

1 reference

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12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Driving up the quality and relevance of research through the use of agreed core outcomes

1 reference

https://pubmed.ncbi.nlm.nih.gov/26108625

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Identifiers

10.1186/S12955-015-0284-7

1 reference

Europe PubMed Central

PMC publication ID

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:26108625%20AND%20SRC:MED&resulttype=core&format=json

13 June 2020

Dimensions Publication ID

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PMC publication ID

1 reference

Europe PubMed Central

PMC publication ID

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:26108625%20AND%20SRC:MED&resulttype=core&format=json

13 June 2020

PubMed publication ID

1 reference

Europe PubMed Central

PMC publication ID

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:26108625%20AND%20SRC:MED&resulttype=core&format=json

13 June 2020

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