MHealth Innovation in Asia-Emma Baulch
MHealth Innovation in Asia-Emma Baulch
MHealth Innovation in Asia-Emma Baulch
Emma Baulch
Jerry Watkins
Amina Tariq Editors
mHealth
Innovation
in Asia
Grassroots Challenges and Practical
Interventions
Mobile Communication in Asia: Local
Insights, Global Implications
Series editor
Sun Sun Lim, Head of Humanities, Arts and Social Sciences,
Singapore University of Technology and Design, Singapore
More information about this series at http://www.springer.com/series/13350
Emma Baulch Jerry Watkins
•
Amina Tariq
Editors
Jerry Watkins
School of Communication and Design
RMIT University Vietnam
Ho Chi Minh City
Vietnam
v
Editors and Contributors
Amina Tariq is Lecturer at the School of Public Health and Social Work, Faculty of Health,
Queensland University of Technology, Australia.
[email protected]
Contributors
Emma Baulch Creative Industries Faculty, Queensland University of Technology,
Brisbane, Australia
Shreya Bhatt Medic Mobile, Mumbai, India
Huan Chen College of Journalism and Communications, University of Florida,
Gainesville, USA
Arul Chib Nanyang Technological University, Singapore, Singapore
Sameera Durrani School of the Arts and Media, University of New South Wales,
Sydney, Australia
Mohan J. Dutta Faculty of Arts and Social Sciences, National University of
Singapore, Singapore, Singapore
Jay Evans Medic Mobile, Kathmandu, Nepal; Global Health Academy,
University of Edinburgh, Edinburgh, UK
vii
viii Editors and Contributors
ix
x Abbreviations
This book presents a range of studies into formal and informal mHealth initiatives
from across the Asia region. The need for the book is clear—current mobile phone
penetration in many Asian regions stands at well over 100% and in some cases has
increased by up to 150-fold in the last 10 years (ITU, 2016). In response to this
remarkable level of mobile adoption, the aim of the book is twofold: first, we wish
to highlight how social and cultural research must play a more prominent role in
understanding the impact of already existing, vernacular uses of mobile devices on
mHealth programs. Second, in so doing, we wish to advance the research agenda
for sociocultural approaches to mHealth by identifying key commonalities, chal-
lenges and points of variation manifest across the emerging body of mHealth work.
The chapters in this book seek to achieve this aim by underlining the need to plan
for the intricate social, institutional, political and communicative environments at
the user level of a mHealth initiative. Our contributors include both established and
emerging scholars as well as practitioners who have adopted sociocultural
approaches within the mHealth domain. Their research highlights how an under-
standing of context can enable mHealth practitioners and policy makers to antici-
pate barriers or to perceive hitherto unnoticed possibilities that can make or break
the successful use of personal mobile devices to achieve health outcomes.
Across the Asia region, mobile devices are firmly established as an essential
personal item even in many low-income regions. The mobile phone is no longer
considered a ‘new’ medium and we contend that the future of many mHealth
interventions in the Asia region will no longer be about trying to changing health
E. Baulch (&)
Creative Industries Faculty, Queensland University of Technology, Queensland, Australia
e-mail: [email protected]
J. Watkins
School of Communication and Design, RMIT University Vietnam,
Ho Chi Minh City, Vietnam
A. Tariq
School of Public Health and Social Work, Queensland University of Technology,
Queensland, Australia
Chapter 7 reflects some of these issues. Whereas Dutta et al. draw attention to
the creeping commercialisation of health services enabled in part by mobile phone
uptake and call for a return to community consultation, Chen’s chapter points to
developments that complicate a mHealth landscape already featuring an increas-
ingly powerful corporate sector. Chen studies middle-class urban Chinese fitness
app users who seek out opportunities to improve their health by engaging in the
privatised network of fitness app consumption and exchange. She shows how
mobile devices do much more than just mediate communications between and
1 Introduction: Social and Cultural Futures 5
among frontline health workers, clients and health bureaucracies in exciting new
ways; they also expand opportunities for private enterprises to commodify health
and to vie for prominence and validation as entities offering viable solutions to
public health problems. Chen also draws attention to how the corporate com-
modification of health gives rise to new kinds of networks and communities, as
fitness app users socialise with one another within structures afforded by app
design. This chapter alerts us to the need for mHealth scholarship to pay greater
heed to context not only by studying spatially bounded communities of health
seekers, but also online communities revolving around health-related activities and
exchanges and their inherent power relations.
In conclusion, this book recognises that mHealth initiatives cannot be executed
as technical programs in a vacuum, ignoring the complex social and cultural con-
texts in which they are implemented. This rapid proliferation of devices, platforms
and content means that mobiles are now a legacy system and any user-level
mHealth initiative which seeks to modify health behaviours—e.g. by decreasing
sugar intake, giving up smoking, practising safe sex—is increasingly likely to
require modification of entrenched patterns of mobile phone use. The collection
aims to highlight this reality. In doing so, not only do we respond to calls from
mHealth researchers and practitioners for the greater inclusion of social and cultural
research within the design, implementation and evaluation of mHealth programs.
We also seek to stress, this research must not be limited to the documenting of
‘pre-existing cultural contexts’—it should also seek to enhance understanding of
how dynamic patterns of mobile usage in particular sites reshape contexts and open
new possibilities and challenges for those who seek to employ mobile systems to
improve health. In order to achieve this inclusion, both cross-disciplinary approa-
ches and new conceptual frameworks derived from media and communications
studies will be essential in the development of the field of mHealth research (Chib,
2013).
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Chapter 2
One Size Does Not Fit All: The Importance
of Contextually Sensitive mHealth
Strategies for Frontline Female Health
Workers
Abstract mHealth solutions represent an exciting new frontier in the fight against
myriad health challenges faced in the developing world, where the use of mobile
phones has become pervasive across various socioeconomic boundaries. The
principal users of these solutions are frontline healthcare workers; mostly women,
often working at the lowest rung of health hierarchy. The distinctive value of this
workforce lies in its ability to successfully deliver health services whilst being
sensitive to the culture and context of their communities. Since these women are
from the client communities, they can speak to them in ways outsiders cannot.
Using a contextualized case study of lady health workers (LHWs) working in rural
areas of Pakistan, this chapter demonstrates how the potential represented by such
frontline health workers can be maximized. To this end, it draws upon in-depth
longitudinal qualitative accounts of eight LHWs involved in a 2-year pilot mHealth
project to improve antenatal health care. This chapter uncovers how sociocultural
barriers—such as prohibitive financial concerns and gender-based discrimination—
inhibit acceptance of mHealth solutions in Pakistan. The study found that these
barriers adversely impact both LHWs’ initial adoption of mobile devices as well
their inclination to continue using mHealth solutions. This chapter explores how
macro- and micro-level communication strategies can be used to ease these barriers.
It also explores how LHWs themselves can use mobile technology to better connect
with their client communities. If mHealth is to be the brave new frontier in the
domain of health innovations, we need to do more to understand the finer points of
its contextually sensitive applications. This chapter seeks to explore how this can
become a reality for rural areas of Pakistan.
A. Tariq (&)
School of Public Health and Social Work, Queensland University of Technology,
Queensland, Australia
e-mail: [email protected]
S. Durrani
School of the Arts and Media, University of New South Wales, Sydney, Australia
Keywords Lady health worker mHealth Pakistan Context sensitive
Communication strategy Mass media
2.1 Introduction
Community health workers (CHWs) in many low- and middle-income countries are
a fundamental part of the health service delivery structure (Haines et al., 2007;
Maes, Closser, Vorel, & Tesfaye, 2015; Perry, Zulliger, & Rogers, 2014). A 2014
review of the role and performance of CHWs ascertains that more than five million
frontline workers are active globally (Perry et al., 2014). CHWs can occupy the
lowest rung of health hierarchy, work on the frontline, come from the modest
social, economic, educational backgrounds, are often women, and are likely to
serve their own communities (Bhatia, 2014; Haines et al., 2007; Kane et al., 2016).
These frontline CHWs have been instrumental in providing a range of health ser-
vices ranging from provision of antenatal and postnatal care, safe childbirth,
counseling on breastfeeding, immunizations, management of uncomplicated
childhood illnesses, general health education and promotion on malaria, tubercu-
losis, HIV/AIDs, and facilitating access to healthcare services (Kok et al., 2015;
Lewis, 2010; Perry et al., 2014; Perry & Zulliger, 2012). CHWs in many cases are
the first point of healthcare contact in their communities and usually have high
school education (between year 8 and 10) which is supplemented with up to 3 years
para-professional training (Closser, 2015; Kok et al., 2015; Lewis, 2010).
Many recent reviews of the performance of frontline healthcare workers rec-
ognize that despite limitations in the quality of available evidence, these workers
have an important role in increasing coverage of essential interventions for child
survival and other health priorities (Kane et al., 2016; Kok et al., 2015; Lewis,
2010; Perry et al., 2014). One distinguishing characteristic of this frontline work-
force is its ability to provide healthcare services while being sensitive to the culture
and context of host communities (Bhatia, 2014; Maes et al., 2015; Mbuagbaw et al.,
2015; Mumtaz et al., 2013). This characteristic is part of the minimum guidelines
for CHW selection set by the World Health Organization: “CHWs should be
members of the communities where they work, should be selected by the commu-
nities, should be answerable to the communities for their activities, should be
supported by the health system but not necessarily a part of its organization, and
have shorter training than professional workers” (Lehmann & Sanders, 2007). As
recognized by Maryse et al. in their recent systematic review, retention and per-
formance is better in programs where selected CHWs are trusted members of the
community and better reflect the linguistic and cultural diversity of the population
served (Kok et al., 2015). This contextually sensitive healthcare service provided by
frontline female workers is particularly beneficial for maternal care in conservative
communities of the developing world (Hurt, Walker, Campbell, & Egede, 2016;
Mbuagbaw et al., 2015; Mumtaz et al., 2013). Female healthcare workers—as they
2 One Size Does Not Fit All 9
belong to the same community—have a comfort level with their patients, which is
not possible to establish for a healthcare professional from outside the community.
Acknowledging the instrumental role of frontline healthcare workforce, various
educational and technological interventions are being introduced with the intention
to improve the quality of care provided by CHWs (Howitt et al., 2012, p. 508).
There is growing interest in the use of mobile information and communication
technologies (commonly referred to as mHealth) to revolutionize the work of
CHWs in low-resource settings by providing them with efficient communication
and data collection systems (Akter & Ray, 2010; Buehler, Ruggiero, & Mehta,
2013; Chib, 2013; Hurt et al., 2016; Mechael, 2009; Tomlinson et al., 2009). Partly
as a result, there is a wide body of literature across many developing countries that
reports on mHealth interventions with CHWs as the primary users of the mHealth
technologies (Buehler et al., 2013; Chib, 2010; DeRenzi et al., 2011; Kumar et al.,
2015; Ramachandran, Canny, Das, & Cutrell, 2010). Possible mHealth applications
span different types of tasks performed by CHWs including data collection and
reporting, information and decision support applications, and communication with
healthcare professionals and patients (Chib, 2013; Hall, Fottrell, Wilkinson, &
Byass, 2014).
Despite the plethora of pilot mHealth projects initiated in developing countries
over the past decade, there is general agreement amongst researchers that existing
evidence is rather too limited to easily permit any “scaling-up” of mHealth initia-
tives (Aranda-Jan, Mohutsiwa-Dibe, & Loukanova, 2014; Chib, 2013; Hall et al.,
2014; Hurt et al., 2016; Källander et al., 2013; O’Donovan, Bersin, & O’Donovan,
2015; Tomlinson, Rotheram-Borus, Swartz, & Tsai, 2013). Appropriate consider-
ation of sociocultural factors in the design of mHealth interventions is identified as
one of the prerequisites to enable the much-needed shift from the pilot to a scalable
mHealth paradigm. Aranda-Jan et al. suggest in their review of mobile health
projects in Africa that even if pilot projects are perceived to be useful by one
particular community or set of users, there are still questions regarding the
acceptance of mHealth technologies by other communities, as receptiveness is
limited by socioeconomic and sociocultural factors (Aranda-Jan et al., 2014, p. 12).
This is further confirmed by a recent systematic review of factors effecting mHealth
adoption by healthcare professionals conducted by Gagnon et al. which included
mHealth adoption studies conducted both in developed and developing countries
(Gagnon, Ngangue, Payne-Gagnon, & Desmartis, 2016). This review observes that
along with some common factors (e.g., perceived usefulness of mHealth) across
developed and developing countries, studies in developing countries identified five
factors that were not mentioned in studies across developed world (Gagnon et al.,
2016). These factors included professional security, support and promotion of
mHealth by colleagues, additional tasks, material resources as well as communi-
cation and collaboration effort (Gagnon et al., 2016). Sociotechnical consideration
of mHealth requires going beyond basic evaluation of proving mHealth works to
examining the contextual conditions on what and how these solutions do or do not
work (Buehler et al., 2013; van Heerden, Tomlinson, & Swartz, 2012; PLOS
Medicine Editors, 2013; Tomlinson et al., 2013).
10 A. Tariq and S. Durrani
In 1993, the Government of Pakistan launched the National Program for Family
Planning and Primary Health Care (NPFP&PHC). This was done in order to fill the
2 One Size Does Not Fit All 11
gaps created by the ever-increasing population’s health needs and the deficient
facility-based care mechanisms at the primary level, as well as to reduce unnec-
essary workload on higher level centers. The program was launched with the slogan
of “Promoting health: Reducing poverty by bridging the gap between Health
Services and communities, we provide quality Integrated Health Services at the
doorstep of our communities” (Wazir, Shaikh, & Ahmed, 2013). The government
program is structured around rural health centers (RHCs) and basic health units
which are staffed by doctors, lady health visitors, lady health workers (LHWs), and
trained birth assistants (Aqil, 2012; Siddiqui, Shah, & Memon, 2010). The program
has gradually expanded since its inception and has involved more than 100,000
LHWs who provide preventive and basic curative services at the household level
throughout the country (Garwood, 2006). While the term “lady” may seem rather
old-fashioned to a native English language speaker, it is pertinent to note here the
prestige and respect it carries within the Pakistani context of its use. It is the closest
translation of the Urdu word khatoon, a title of respect used for an adult woman.
Using the English translation as a title for these workers may have been a way of
conferring further prestige and credibility onto their roles.
A LHW is eligible for employment if she has the minimal qualification of at least
5 and preferably 8 years of formal schooling. She has to be essentially a resident in
the locality where she is to be assigned. This hiring is done at the district level by
district health departments. The LHWs are linked with the Basic Health Units
(BHU) administratively, and for referral of patients. They report to the BHU on a
monthly basis and receive regular refresher training at the same venues (Garwood,
2006). Each LHW is designated to 150–200 households, or a population of about
1000. There are about 12–20 LHWs in the catchment area of each BHU (Closser &
Jooma, 2013; Garwood, 2006; Mumtaz et al., 2013).
The LHWs focus on promoting healthy behaviors during the maternal period,
through health education for risk of complications during pregnancy, safe practices
for delivery, nutritional advice, and appropriate breastfeeding practices. A LHW is
expected to: assess risk in pregnant woman based on maternal age, weight, height,
and past obstetrical history; record anemia and ankle oedema and fundal height
against gestational age each month; educate on the importance of tetanus toxoid
vaccinations during pregnancy and on fetal movement/kicking. The LHW is also
expected to refer women to higher levels of care (i.e., health facilities) if
pregnancy-related complications are observed during the routine monthly house-
hold visits or are reported by the pregnant woman.
LHWs are supervised by Lady Health Visitors (LHVs) who undergo a 2-year
training program that comprises 1 year of midwifery and a second year in paedi-
atrics and tropical diseases (Ariff et al., 2010). She is qualified to conduct deliveries
at household and facility level, and provides immediate newborn care. Each LHV
usually supervises 20–25 LHWs. A supervisor LHV is responsible for training
LHWs, and ensuring quality performance by LHWs by collecting monthly reports
from the LHWs which provide information on type of cases encountered and
relevant services provided (Rabbani et al., 2014, 2016).
12 A. Tariq and S. Durrani
To reflect on the lessons learned from the case study, the following subsections
provide some necessary project background. The complete proposal of the project is
available for open access from the National ICT R&D website www.ictrdf.org.pk/
(Rao, 2010).
The project under discussion was titled “Remote Patient Monitoring System with
Focus on Antenatal Care for Rural Population”, an innovative 14.8 million
(PKR) project funded by Pakistan’s National ICT R&D fund in 2008. National ICT
R&D is a government-affiliated organization which aims to “Transform Pakistan’s
economy into a knowledge based economy by promoting efficient, sustainable and
effective ICT initiatives through synergic development of industrial and academic
resources” (National Information Communication Technology Research &
Development [ICT R&D], 2017).
At the time, the project was one of very few mHealth projects initiated in
Pakistan. The primary objective of this 28-month pilot project was to develop a
reliable, efficient, and easily deployable remote patient monitoring system that can
play a vital role in providing basic health services to the remote village population
of Pakistan at their doorstep. The aim was to design a generic remote healthcare
system with a focus on antenatal care, and use ICT advancements to develop a
monitoring system that could enhance the quality of health care provided by the
LHWs.
In order to evaluate the performance of the project, the following performance
indicators were defined: (i) LHWs’ capacity, (ii) number of correct referrals,
(iii) reduction in complexities in birth process through timely preventive measures,
(iv) amount of correct information available during emergency cases, and (v) ulti-
mately a reduction in infant and maternal mortality ratios in the controlled popu-
lation group. The rationale of this approach was to provide a low-cost and reliable
solution to the problem of provision of expert health care to patients in remote areas
of Pakistan.
The proposed mHealth solution at the conception stage of the project incorporated
the use of a remote patient monitoring system, conceived as a system which allows
LHWs to fill in patient’s antenatal care-related information using a mobile device.
The proposed overall architecture of the system consisted of sensors for automatic
measurement of patient’s vital signs, a data gathering module (DGM) installed on a
2 One Size Does Not Fit All 13
mobile device which allows auto-collection of vital signs data and data entry by
LHWs, a clinical decision support system (CDSS) and an electronic medical record
(EMR) management system accessible on any web-enabled remote terminal (e.g., a
doctor’s laptop). The data entered by a LHW on the device was to be transferred in
real time to a doctor’s computer in a hospital. The CDSS component aimed to
provide timely alerts to the doctors on any data anomalies (e.g., very low Hb levels,
etc.). This would allow doctors to send their feedback to the respective LHW, who
would then treat the patient. Since Pakistan currently does not possess a centralized
EMR solution, this system was perceived to be an enabler for long-term manage-
ment of electronic data for patients, which can then facilitate longitudinal analysis
of patients’ health and also drive introduction of evidence-based interventions in the
public health domain, which are currently and were absent in Pakistan at the time of
the project. Figure 2.1 presents a pictorial view of the overall design of the pro-
posed mHealth solution. It is important to clarify that the first pilot phase of the
project, which this chapter revolves around, did not include implementation of
sensors, and focused primarily on developing data gathering module for LHWs. In
this phase, LHWs were responsible for manually entering the collected data into the
module on their devices.
Fig. 2.1 Design of proposed mHealth solution (Khalid, Akbar, Tanwani, Tariq, & Farooq, 2008)
14 A. Tariq and S. Durrani
In order to better realize the practical and applied context of the project, it was
essential to identify a suitable implementation setting for it. For this specific pur-
pose, a controlled population group of pregnant women was identified, along with
two expert doctors from a large teaching hospital which serves as the primary
hospital to deliver care to the patients. The implementation setting therefore
involved collaborative input from two key organizations: the Human Development
Fund (HDF)—which coordinated the antenatal care provided by LHWs in the test
region—and Rawalpindi General Hospital (RGH), a large teaching hospital
responsible for providing care to the patients.
For the scope of this project, the Community Health Centre (CHC) of HDF in
Islamabad rural region was targeted as it is the closest to the participating orga-
nizations in terms of geographical proximity (Fig. 2.2). This CHC is in control of
one unit (comprising of 1000 households) selected from the economically disad-
vantaged segment of the population from rural areas of Islamabad. It was decided
that the services of CHC staff (Doctor, LHV, TBA, and dispenser) would be
obtained as part of the project. In order to provide expert advice on antenatal care
issues, a consultant gynaecologist from RGH was also involved in the project. She
Fig. 2.2 Structure of the participating CHC site (Khalid et al., 2008)
2 One Size Does Not Fit All 15
provided assistance and expert opinion in the development of the overall mHealth
solution. The hospital’s approval was also obtained to enable transmission of the
data to the hospital’s main server, which was entered as input by the LHW using her
mobile device. It was decided as part of the project plan that the electronic medical
records of the patients in the study would be made available to the participating
CHC as well as the National Office of HDF. The communication among RGH,
CHC and National Office of HDF would be carried out through the Internet.
From the very beginning, it was clear that besides the infrastructure and associated
technical challenges (e.g., quality of mobile reception in rural areas), the primary
challenge of the project was to engage and train LHWs, the primary users of the
mHealth solution. To address this, an initial training plan was devised around a
user-centered design framework (Tariq, Tanwani, & Farooq, 2009), where a series
of workshops and site visits were planned to identify LHW requirements, under-
stand their real work context, and train them progressively as the data entry module
was developed further. In order to facilitate the understanding of the project out-
comes, the project journey from LHWs participation perspective can be divided into
three phases: (1) requirement gathering phase, (2) initial testing and user training
phase, and (3) postlaunch user feedback.
The first phase comprised the first 8 months from project commencement and
focused on user requirements gathering to inform system design. Requirements
gathering was conducted for different parts of the project, in parallel (Fig. 2.1). This
section focuses on requirement gathering for the data gathering module whose
primary users were LHWs. Four user workshops were conducted: two at the
16 A. Tariq and S. Durrani
participating community health center and two at the university hosting the project
implementation team—to which doctors were also invited.
Contextual interviews and field observation were used to gather data to under-
stand the context in which LHWs are situated. The age distribution of the eight
LHWs was quite broad—from 17 to 58 years and their work experience ranged
from 5 months to 4 years. Initial interviews revealed that seven of the eight LHWs
routinely used mobile phones for interacting with their family and friends via voice
calls or SMS. The LHWs’ mobiles were not smartphones and did not have a
camera, browser, or other more advanced functions. LHWs described very limited
use of mobile phones to interact with their patients, mostly confined to informing
the patient if they were late for a visit. This limited use was compounded by
whether the patient had access to a mobile device and was willing to be contacted
by the LHW.
A detailed task analysis identified that the main job of LHWs is to conduct
periodic checkups of patients and maintain medical records. These records are
documented on standard visit forms collated in a notebook primarily in English
language, with occasional translation of data field headings into Urdu. The
checkups are classified as “booking visit” or “routine visit”. During a booking visit,
the LHW logs the basic medical history of women in a new household. This history
is structured as personal information, past medical history, family history, social
history, previous pregnancies, gynaecological history, and general examination.
During a routine visit, LHWs physically examine antenatal patients to determine the
weeks of gestation, fundal height, presentation, edema, and anemia. Physiological
data are measured—blood pressure, temperature, and pulse. These patient data are
recorded in the paper-based register and reported back to a doctor in the nearest
health center. Each LHW visits approximately 14 different households every day,
meaning that a particular household is visited once a month. The average time spent
by a LHW with a patient is about 5–8 min.
Each LHW carries a 5 kg bag containing notebooks and basic medical instru-
ments. Observations and interviews revealed that LHWs were willing to adapt to a
new mHealth system if they were convinced that it would improve the efficiency of
their visiting schedule.
The outcome of the task analysis identified that a critical factor in selecting a
device is the user-friendliness of data entry. The LHWs in this study are compar-
ative novice mobile users and most of them used only voice and SMS features.
Hence, the use of the numeric keypad for data entry was unfamiliar to them. This
was further aggravated by the need to input 25–30 patient records daily. Therefore,
a stylus-based touchscreen device (i-mate JAMA) was selected for the data entry
module of the mHealth application (Fig. 2.3). Nine devices were purchased as part
of the project, one for each participating LHW and one for project testing. At the
time of project implementation the cost of each device was 12,000 PKR (approx.
110 USD).
2 One Size Does Not Fit All 17
Following requirements gathering, the project team initiated the development of the
data gathering module. The design of the legacy paper-based forms (in English)
was adjusted for the mobile interface (Fig. 2.3). Five user workshops were con-
ducted every 2 weeks with the LHWs. During the first two training workshops, the
LHWs mostly expressed satisfaction with the design of the form. All agreed that
plenty of data entry practice would be required before field trials. The CHC
coordinator and the LHV identified proposed that the LHWs enter at least 10–15
records daily for 2 months in order to gain confidence with the data entry module.
This introductory training period would also allow the implementation team to
iteratively test the mHealth application design.
For the third and fourth training workshops, the implementation team walked the
LHWs through the data entry process a few times and helped the LHWs to enter
data live while attending some patients (Fig. 2.4). The application required Internet
access for data upload and the weak connection at the CHC site and throughout the
rural region delayed real-time synchronization. LHWs clarified that only one of
them had Internet access at home and would either need to rely on 3G service
availability or visit a CHC site to upload data. The slow upload and inability to
recognize if data had been successfully uploaded increased anxiety among LHWs.
Based on this feedback, it was recognized that both offline storage capacity and data
upload confirmation messages should be added to the system.
Three LHWs reported that mobile data entry was much slower than the
paper-based entry to which they were accustomed. During the fourth training
workshop, the oldest LHW refused to enter more than three fields on the data entry
module as she found it very stressful and asked to be excused from the project. She
18 A. Tariq and S. Durrani
Fig. 2.4 LHW collecting patient data via mobile (Tariq et al., 2009)
was encouraged to persevere and seek help from her LHW colleagues as required.
After the fourth training workshop, the devices were left with at the CHC site for
LHWs to practice data entry.
At the commencement of the next workshop, it was announced that the oldest
LHW was very uncomfortable with the mHealth project and had left to join a
different site for work. Another LHW indicated that she intended to find another site
to work at as her father did not approves of her carrying a personalized smartphone
with a camera and Internet access. Four of the younger LHWs (<28 years) expressed
that they really liked using the mobile application for data entry but they had been
working overtime—almost four hours each day for the previous 2 weeks—to
practice data entry without any financial compensation. All LHWs were concerned
about being responsible for an expensive device worth almost twice their monthly
salary. Those LHWs married with young children—or attending patients with young
children—were worried that children’s playful activities might damage the device.
Others were concerned that members of their family with a substance addiction
might steal and sell the device to obtain money for drugs. In response, the project
investigators identified the need for an overtime budget for the LHWs; in terms of
device security it was suggested that the mobiles be collected and returned from the
CHC daily.
2 One Size Does Not Fit All 19
The final phase lasted about 7 months and centered upon full implementation
including real-time data entry by LHWs, data review by hospital-based doctors, and
the sharing of feedback between doctors, the LHV and LHWs. A technical support
line was established for LHWs in case of any issues with the mHealth application.
Most of the patient data collected via the mHealth application was received between
2:30–5:30 pm from which it was inferred that the LHWs were not using the
mHealth application for data input at the patient’s home as instructed, but were
retrospectively entering data from paper-based records toward end of the day.
The consultant made three visits to the CHC site to gain feedback from LHWs
and the LHV and to observe their use of the mHealth application. During these
visits the LHV identified that she retained one of the devices (left by the LHW who
left the group) for herself in case she needed to provide further training. Further
feedback from the LHV indicated that some of patients and their husbands were not
comfortable with LHWs using mobile devices while attending them during their
visits. Therefore, most LHWs preferred taking their paper registers with them and
entering the data electronically after completing their daily visits. Further discus-
sions with LHWs revealed that—despite promises from their supervisors—they had
not been financially compensated for overtime incurred on the project. One of the
LHWs stated that she would leave the site soon as she found it impossible to cope
with her increased workload without any extra compensation while being the sole
provider for her family. The LHWs shared the reluctance of some patients’ hus-
bands to let LHWs use the devices while attending their wives as they believed it to
be an inappropriate collection of private information. LHWs concerns about device
theft were reiterated and there was agreement that limited effort had been made by
the whole project team to create community awareness of the introduction of
mobile devices to improve patient care as well as reduce concerns about data
security.
Both mHealth research and practice can address so-called wicked sociotechnical
problem with no mechanistically deterministic resolution (Westbrook et al., 2007).
mHealth projects may be characterized by abrupt stop-and-start approaches
whereby a set of new measures is tested with insufficient consideration of how to
normalize these interventions as part of the social fabric at the test site. This section
looks at how communication practices can help to better enable sustainability with
reference to mHealth. Two practices are discussed: mobile communication as a tool
for enhancing the performance of LHWs, and mass communication as a facilitator
for ensuring that LHWs work in a favorable environment.
20 A. Tariq and S. Durrani
The case study above offers useful insights for the design a more proactive com-
munication strategy which accounts for the evolution of communication technology
in the country of implementation. The LHWs in this study did not possess smart-
phones—in Pakistan at this time, Nokia handsets dominated the market, smart-
phones were a novelty and gender was a significant factor on device accessibility
within the family unit. Ownership rates have since accelerated: 53% of the adult
Pakistani population now owns a cell phone, up from 5% in 2002 (Dawn News,
2015). Companies such as QMobile manufacture smartphones for the Pakistani
market starting from USD 58 and estimates put the number of smartphone users at
about 40 million (Baloch, 2015). There is also a generational shift: younger
women—and therefore younger mothers—are more likely to have a mobile device
(Qamar, 2009).
The rural/urban divide and socioeconomic disparity in this diverse customer base
means that different mHealth clients in different areas will have access to different
mobile devices. We argue that the concept of audience fragmentation—more
usually applied to mass media forums like television (Kosterich & Napoli, 2015)—
also applies to mHealth clients. In other words, mHealth project design and
implementation will vary according to the demographics of the specific audience
“fragment” at each different geographic site. For example, project designers may
prefer LHWS to use the same mobile devices that are already prevalent at the site: if
the target user has access to a phone that provides text messaging only, then it might
make sense for the LHW to communicate with the same device. Additionally, the
use of relatively inexpensive and commonly available devices mitigates the risk of
theft, with which the LHWs in the study were very concerned.
Within the context of device use, it is important to emphasize adoption of the
principle of progressive iterative familiarization in mHealth implementation. The
study noted that some LHWs struggled with some aspects of the devices provided
such as the touchscreen data entry keypads. An older LHW dropped out of the
project altogether, while some took to using the data entry modules in a way that
ran counter to project design. New technology can disrupt established social rou-
tines and so to ensure more harmonious diffusion, it is suggested that a future
project take such information overloads into account. First, the technological
devices being employed should be progressively rolled out so that problems
encountered by users can be documented and resolved by the implementation team.
Second, if the devices are similar to the type of phones that the LHWs already
possess, higher adoption rates may be more achievable.
2 One Size Does Not Fit All 21
Although our primary focus in this chapter remains on identifying the optimal
integration of communication into mHealth programs, it is vital to acknowledge that
multiple actors within the mHealth system (e.g., LHWs, regional coordinators,
doctors, nurses) will have to learn new skills. One prospective area of concern is the
issue raised concerning unpaid overtime for the human resources involved in these
projects. For instance, the LHWs included in the study noted that using data input
systems cost them more time, which was unpaid. Further incorporation of mobile
devices may raise similar issues, since mobile phones make it easy to work from
home. A working woman, such as a LHW, is still likely to be perceived as primarily
responsible for household tasks. If her work responsibilities are seen as interfering
in that domain, she may face more pressure from her family in terms of performing
her duties. If she is a given as a mobile device, it may contain a separate contact
SIM for work only, and the LHWs can be given the option of keeping these devices
on only between 9 and 5 if they wish to avoid overtime. Alternatively, the project
budget should contain provisions within it to pay for overtime. We would also like
to acknowledge that mHealth project owners may resist incorporating overtime
costs into budgets. The research and development organizations funding these pilot
projects therefore need to ensure project budgets are designed in a way that ensures
that the research participants in mHealth projects are not disadvantaged financially.
The previous section looks at how mobile communication can help LHWs connect
more effectively with their clients. This is a micro-level communication issue.
However, there is a pressing need to create narratives that can help LHWs connect
2 One Size Does Not Fit All 23
better with the larger society. This is a holistic, macro-level issue. The most
important resource within the LHW programs are the workers themselves—tech-
nology can help improve their performance, but if their ability to work is hampered
by broader social and economic frameworks, the impact of their work is diminished
significantly in holistic terms. This relates again to the notion of sustainability. If the
projects are to have lasting effect, the role of LHWs needs to be given more prestige
within society. If the technological devices that are given to them are to have a
measurable, consistent impact, their use needs to be normalized not just for the
LHWs, but for their clients. The clients need to understand that the unfamiliar
devices are implements intended to help them better. This kind of normalization
requires the use of mass media platforms.
Human beings often make sense of their world with the help of narratives
(O’Shaughnessy & Stadler, 2005). Narratives, or stories, always assign certain roles
more prestige than others. The roles that are more prioritized get more attention, and
are perceived as being more significant. It makes sense, therefore, for a commu-
nication or marketing campaign designer to structure narratives in a way that pri-
oritises the roles being promoted. This is something that the LHW campaign
designers did keep in mind. For culturally sensitive health issues such as birth
control, it was important to first create a broader narrative of acceptance within
society. As mentioned earlier, the term “Lady Health Worker” itself is an attempt to
create a label or brand that evokes prestige and respectability.
The original branding efforts for the program were confined to the mass media,
delivered via advertising, and television dramas. When launched in the 1990s, the
LHW program relied upon extensive TV commercials, which showed LHWs vis-
iting clients. This was an attempt to normalize a new concept: that a female worker
could come to one’s home, a private domain, and talk about health issues. The
brand image of a stereotypical LHW was a woman in her 30s, young enough to
seem modern, in traditional Pakistani garb (shalwar kameez, a long tunic with loose
trousers) with a dupatta (loose shawl) covering her head. The discourse, it is noted,
has been normalized enough that these ads are no longer seen as needing the same
kind of airtime. Conversely, this normalization has had an unintended side effect, as
LHWs have now been marginalized into the outer peripheries of media discourse
and their challenges relegated to the lower tiers of media agendas.
This relegation in importance has manifested itself in economic marginalization.
A string of print news reports from 2012–2016 reported on LHWs protesting about
the nonpayment of salaries (as these are nonauthorial reports, see references for a
list). In a 2010 episode of the talk show “News Night with Talat”, prominent talk
show host Talat Hussein hosted a program on the suicide of a LHW stemming from
issues of nonpayment (https://www.youtube.com/watch?v=LjN3LO7D1ws uploa-
ded 24 Nov 2010). This is an issue that highlights the importance of managing
human resources, the key factor upon which this program is structured. If a LHW is
impeded by finances and society from fulfilling her work, then the fundamentals on
which this project rests are at risk.
This is, once again, where a communication professional may be to provide
input at both the macro- and micro-level. As discussed, at the micro-level and in the
24 A. Tariq and S. Durrani
short run, they can help the team to design contextually sensitive communication
strategies for specific client communities. At the macro-level, they can help to
support a favorable societal attitude toward mHealth and its goals. These options
could relate to both traditional and social media. Access to mass audiences is
restricted to some extent by considerations of finance. Access to social media,
which is rapidly expanding in Pakistan, is much less restricted. For example,
UNICEF Pakistan has previously uploaded LHW promotional video to YouTube to
(https://www.youtube.com/watch?v=eeJTHlGM7Q0 uploaded 21 Nov 2010).
The organizations working with LHWs also need to develop better connections
within Pakistani media in order to generate more news stories—like the UNICEF
example above—within mainstream Pakistani channels. The change in discourse
has to come from within Pakistan, from Pakistani voices. It is possible to use a
two-stage process whereby blog stories written by project affiliates are picked up by
influential media outlets such as Dawn and Express. One such example is the Girls
can Code series, a collaboration between the technology forum TechJuice and
Dawn, one of Pakistan’s premier English language newspapers. A series of profile
features about pioneering women working within the IT industry was penned by
TechJuice writers and published on the Dawn website (see Rizwan, 2016a, b, c, d;
Dodhy, 2016a, b). The series received positive feedback from readers and provides
one template for a collaboration between a media outlet and a forum that seeks to
promote female empowerment.
The case study discussed above represents an example of female empowerment
within the urban context. We cite it as an example in which a human-interest angle
is used to generate awareness about issues surrounding female empowerment, as
well as an instance of the media partnering up with another organization to produce
stories. An angle that humanizes LHWs may be one approach suitable for stories
placed in the mainstream media. It should also be noted that rural health issues do
make it into mainstream news. For instance, stories about infant deaths in the
drought-impacted rural region of Tharparkar have dominated headlines in recent
years, with coverage from regional news channels eventually making its way into
mainstream Pakistani channels (Baloch, 2016). A communication strategy is
required whereby awareness can be raised at regional or national levels with a
contextually sensitive approach for that level, as devised by communication
experts. It is also worth noting here that aside from news, TV drama series popular
with Pakistani audiences represent another avenue to raise awareness about
women’s empowerment and their control over their reproductive rights (Haider,
2017).
The key point here, again, is that there needs to be a communication element to
mHealth programs, designed and implemented by people with relevant communi-
cation expertise. As the outcomes of the project illustrate, communication needs to
be improved on several fronts: between LHWs and project designers, between
LHWs and their clients, and between the LHWs and society as a whole. Optimizing
communication on these fronts is likely to maximize project outputs on a micro as
well as a holistic level. In the long run, these practices will contribute to sustainable
practices, the benefits of which will carry over successive projects. Overall our
2 One Size Does Not Fit All 25
2.4 Conclusion
This chapter brings together debates from two contiguous domains: mHealth and
communication. Health care is a domain that is intrinsically dependent on com-
munication: the ability of patients to communicate their issues, the ability of health
professionals to communicate relevant solutions, and the capacity of the overar-
ching system to effectively mediate the transmission of this information. This need
to drive communication is true of mHealth as well—perhaps even more so, given
that it is becoming an increasingly community-based domain. This community
aspect is what makes it important to examine communication strategies from a
contextual perspective. Evidence confirms that mHealth projects have difficulty
continuing beyond the pilot phase and the case study discussed in this chapter has
argued that contextual factors have a strong impact on project success.
mHealth projects are embedded within broader social structures, cultural and
political frames that mediate how power flows within a society, hence project
designs that ignore these contextual factors may be doomed. Health professionals
may believe that addressing these factors is time-consuming and costly yet the
eventual failure of a project is an even bigger waste of resource. This chapter seeks
to initiate a debate about possible solutions to such contextual issues through the
lever of communication to both identify and solve problems that imperil the sus-
tainability of mHealth projects. It is hoped that the solutions suggested here—while
far from perfect—will generate a much-needed discussion on the future design of
contextually sensitive mHealth projects.
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Chapter 3
The Path to Scale: Navigating Design,
Policy, and Infrastructure
Keywords Scale Policy Infrastructure Human-centered design
Cost-effectiveness Data security Integration Interoperability
3.1 Introduction
times such as working hours or in the middle of the night (World Bank, 2011). The
limited availability of electricity and its “usability”—e.g., the hours when a user can
actually charge their phone—is often cited as a challenge faced by mHealth users in
low-resource settings and should be considered carefully when selecting hardware
during the initial design of mHealth initiatives (Chang et al., 2011). Furthermore,
users may have only one or two available power outlets in their homes for all
household electrical devices and as a result, they have to compete for access to
these outlets with other devices and family members. In the event of limited access
to electricity, mHealth users have sought other means to charge their devices such
as traveling to local shops or small business, which incurs costs of travel and
charging fees (Thondoo et al., 2015). In response to these challenges of access and
affordability of power, users often voice a preference for devices that maximize
battery life even at the cost of foregoing more advanced and multifunctional devices
in favor of a simple phone (ibid.). Devices that can be easily charged within a few
hours and retain that charge for longer periods will most likely have greater uptake
and prove more successful in the long-term. Cheaper alternatives to charging
devices such as using car batteries or solar chargers have been shown to be effective
in various contexts and should be explored as potential solutions to the challenges
of limited electricity in low-resource settings (Chang et al., 2011; Thondoo et al.,
2015).
Our experience has shown the importance of identifying infrastructure-related
challenges and referring to them during the designing and implementation of
mHealth interventions. In the aftermath of the 7.8 Richter scale earthquake in Nepal
in April 2015, Medic Mobile in collaboration with the Ministry of Health in Nepal
deployed an mHealth intervention for daily reporting and suspected outbreak
reporting of epidemic-prone diseases. The intervention was deployed in hospitals in
both the urban Kathmandu valley and the heavily hit remote district of Dhading
(Nesbit, 2015). The infrastructure available in these sites are very different and
therefore, designing a “one-size-fits-all” mHealth tool would simply not work.
While Kathmandu is a major urban center with reliable mobile phone coverage,
adequate electricity for charging smartphones and easily accessible facilities for
maintenance and repair of smartphones, Dhading is fairly remote with limited
infrastructure. Moreover, the earthquake destroyed or severely damaged most
shelters—including health facilities—in Dhading district, where 85% of the facil-
ities were rendered non-functional according to Nepal’s Child Health Division
(Khanal Khanal & Lee, 2015). Road access to northern parts of the district was also
cut off (Adhikari, 2015). In light of these challenges, the intervention had to be
redesigned before implementation in Dhading, including the mHealth tool itself.
While the community health volunteers in Kathmandu valley were able to use an
Android application with internet connectivity, those in Dhading used basic phones
and structured SMS, which were all that could be supported by the
low-infrastructure settings of the district weakened even further by the earthquake.
Health facilities in the northern areas which did not have GSM or CDMA con-
nectivity following the earthquake submitted SMS-based reports using CDMA
landline phones. Moreover, the structure of the forms on the mobile devices was
3 The Path to Scale: Navigating Design, Policy, and Infrastructure 35
also designed in such a way that it required minimal training, as health workers
were trained remotely via phone calls due to the urgency of the situation and the
inaccessibility of many areas. Therefore access to reliable, stable electricity and
internet remain major obstacles to scale for mHealth tools that rely solely on higher
end smartphone and apps requiring frequent connectivity and greater infrastructural
support. Resolving these challenges requires careful design and selection of both
the hardware and software to be deployed.
The selection of hardware also shapes the future scale of mHealth interventions and
can pose a challenge for the long-term sustainability of projects if not planned and
executed well. Many times when launching an mHealth initiative, technological
wizardry or the “bells and whistles” of new and rapidly evolving technology shape
the deployment and implementation pathway rather than user needs and health
priorities (Shaw, 2012). Hardware selection can also become unduly influenced by
procurement and contracting guidelines created by staff unfamiliar with the limi-
tations of settings in LMICs (Bernhardsen, 1999). Not only are newer technologies
often unsupported by reliable access to network, internet, and electricity that evolve
at a slower pace, but oftentimes they are not context-appropriate. Hardware used by
health workers particularly in rural areas of the developing world is prone to
experience excessive wear and tear over time (Iluyemi & Briggs, 2008). Ensuring
the growth and long-term sustainability of mHealth initiatives then necessitates that
the chosen devices can be easily replaceable or repairable in the areas where they
are deployed. Corner cell phone shops or local kiosks that are ubiquitous in most
small villages and towns around the world typically serve as the first point of
contact for access to basic mobile hardware and repair services (Chang et al., 2011).
When considering hardware for deployment in an mHealth intervention, these
shops—and the devices they sell—should serve as a yardstick for the appropriate
selection of project hardware. When mHealth interventions employ devices that are
foreign or not easily available in local markets, they are by default harder to repair
or replace in the event of damage or loss and may cause a reduction in user
engagement. It is, therefore, crucial to use context-appropriate hardware that can be
easily procured and repaired close to where users are located to ensure the future
scale and sustainability of the intervention.
Hardware selection not only involves making decisions about the right tools for
the context, but also about whether to use devices already owned by the users or
provide new devices for the duration of the mHealth intervention (Ben-Zeev et. al.,
2015). Benefits of using existing phones owned by users include greater user
familiarity with the device and a higher likelihood that they will intuitively
understand how to use the tool. However, relying on existing devices also poses
several challenges. Phones owned by users may differ in their features, function-
alities, carriers, and data plans. They may also be ill-suited to the specific needs of
36 J. Evans et al.
the intervention. While providing new devices to users can help to standardize the
intervention across all users, it may also decrease the frequency with which the new
devices are used, cause negative user experiences from having to use multiple
devices for different purposes and require more user trainings, not to mention the
financial implications of purchasing devices at scale for hundreds or thousands of
users. New devices can also act as an incentive for users, particularly if they are
allowed to keep the device after completion of the intervention, however, this may
not always be feasible (ibid.).
Another factor that can influence this decision is the variance in mobile phone
ownership amongst users. Not all users such as care providers and patients own a
personal mobile device and often share mobile phones with family members or
access the phones available to them in their community (Chang et al., 2011;
Haberer, Kiwanuka, Nansera, Wilson & Bangsberg, 2010). Moreover, phone
ownership rates vary significantly based on gender particularly in the developing
world. There are 200 million fewer female mobile phone subscribers than male
subscribers in LMICs and many women in these settings only have partial access to
a mobile phone owned by male members of their family during nonbusiness hours
such as evenings (GSMA, 2015). These early decisions about hardware selection
based on phone ownership and suitability for context shape the mHealth inter-
vention and can have long-lasting implications on the uptake, success, and scale of
mHealth interventions.
The crucial components of infrastructure for mHealth scale and sustainability are
not just limited to the availability of context-appropriate hardware, a cell phone
tower, and an active power source but also include human resource infrastructure in
the form of a skilled health workforce. In many LMICs, the cadre of community
health workers (CHWs) may have achieved only basic literacy levels via formal
schooling and typically have no tertiary education (Lehmann & Sanders, 2007).
Health professionals need to be educated on the potential role of technology in
healthcare delivery in order to achieve and sustain mass adoption of mHealth
(Mechael et al., 2010). While CHWs in LMICs receive standard training on topics
such as general health and basic record-keeping, such training should not be
assumed to include indoctrination into mHealth (Lehmann & Sanders, 2007).
CHWs and other healthcare personnel may already own and be familiar with using
cell phones but they may not be well-versed with specific features and are often not
fully prepared or equipped to use those same devices for an mHealth project
(Ben-Zeev et al., 2015). In order for CHWs to start thinking of and using their
mobiles as communication and coordination tools for health activities that form part
of a ministry of health information system, they must have adequate and
context-relevant training in technology (Mechael et al., 2010). Given the variance in
skill sets and levels of literacy among CHWs, there is a need for continuous support
and training to maintain their effective contribution not only in their healthcare
knowledge but also in technology and its use (Lehmann & Sanders, 2007).
Refresher mHealth training for CHWs have been effective in addressing observed
technology usability gaps and improving impact during an intervention and can also
contribute significantly to long-term project sustainability and scale (Modi et al.,
2015; Haberer et al., 2010). mHealth training is not only essential for users such as
healthcare providers but also for other key actors in an mHealth ecosystem such as
38 J. Evans et al.
3.6 Policy
the mHealth systems in that country are more likely to be sustained (Aranda-Jan
et al., 2014; Lemaire, 2011). While a significant proportion of countries have
recognized this and more than half of WHO member states have already adopted a
broader eHealth strategy within which national mHealth programs can be
ensconced (World Health Organization, 2016) much more remains to be done. In a
recent WHO survey, the lack of legal regulation was cited as one of the top two
barriers to mHealth (ibid.). Much of the need for legal regulation around mHealth in
LMICs stems from data privacy and confidentiality concerns.
Traditional paper-based systems of healthcare inherently pose a data privacy risk
which can be mitigated by electronic health records and care coordination systems
such as mHealth. As a result, mHealth and the broader eHealth ecosystem are often
framed as “safe” mechanisms to facilitate and provide health service delivery.
However, governments must define and impose comprehensive legal provisions to
ensure that the storage and exchange of information over electronic methods are
truly safe, particularly, in LMICs where mHealth platforms are already beginning to
flourish. Legislation alone, however, is not the solution. Experience has shown that
even when mHealth legislation exists, public misinformation may, in fact, derail an
mHealth project (Eysenbach, 2009). Therefore, governments not only need to create
and implement appropriate legislation, but also put in place a regulatory authority or
body to monitor mHealth initiatives within a country. In the absence of both clearly
established legislation and a regulatory authority, the integrity and credibility of any
new mHealth tool may be jeopardized.
While government institutions have programmatic authority to evaluate mHealth
initiatives, the lack of legislative authority with the knowledge to execute fair
judgment may render their mHealth evaluations baseless and ineffective, hindering
the scale of such programs. Moreover, the interpretation of the newly passed reg-
ulations may face challenges in courts where judges presiding over such cases may
not have sufficient experience adjudicating cases related to technology (Timm,
2014). In such cases, a regulatory authority overseeing mHealth programs may be
able to lend their expertise and knowledge to bring such cases to a just culmination.
It is equally important to note that while some states have passed complete sets of
regulations that are intended to govern mHealth within their borders, there are many
times poor coordination among competing government ministries and agencies in
charge of the oversight and management of the mHealth space (Lemaire, 2011).
The same can be true among different departments managing various verticals
within a ministry of health. Given such challenges, the mHealth authority in the
country must also take on the coordination around policy and legislation among
relevant ministries and sectors (ibid.).
The mHealth landscape in a country is not only affected by its own policy and
regulatory environment, but also by the policy and regulatory settings of its
neighbors the surrounding region. Policies and legislation on mHealth in LMICs, as
well as developed countries, tend to vary a great deal. For example, regulations on
spam advertising to mobile phones and privacy policies for smartphone apps—as
well as what these policies are allowed to include—often vary significantly from
country to country even within the same region such as South Asia or East or West
40 J. Evans et al.
Africa. Significant variations exist in policies and regulations around mHealth even
in countries belonging to the same geographical region, which may negatively
affect mHealth scale across borders (World Health Organization, 2016). Moreover,
few standards exist for data confidentiality and sharing among countries within
geographical regions, which further hinders mHealth scale across borders (ibid.).
In an ideal scenario, all relevant mHealth-related policies are well-established
and institutionalized by the time an mHealth initiative is ready to scale. However,
the current reality is that many LMICs are still in the process of developing or
refining such policies, and the speed of maturity of mHealth initiatives and sup-
porting public policies do not match. Even if the framework legislation has been
established, the regulatory environment that must accompany laws on mHealth is
simply not present in many LMICs. Given this, mHealth systems must also, for the
time being, address such gaps. Aligning an mHealth tool to fit within the confines of
a nascent regulatory structure means that the tool must also be flexible enough to
change and adapt to new regulations as they emerge. At times this may mean
establishing the capacity for ongoing design evaluation during or after a successful
small-scale pilot of the tool. Deploying within a country where the regulatory
framework around mHealth may not be fully developed will also demand more time
dedicated to building and maintaining relationships with the Ministry of Health and
other ministries involved in the governance of digital health. Failure to actively
engage government ministries may result in projects being delayed, abandoned, or
outright banned (Eckman, Gorski & Mehta, 2016).
mHealth scale cannot be achieved in the absence of an effective policy and
regulatory environment and there are some immediate steps that can be taken to
achieve this. LMIC governments must adopt appropriate legislation and establish a
regulatory authority to create a framework within which mHealth initiatives can
flourish. Simultaneously—at the global community level—international efforts
must focus on identifying best policy practices that enable and promote mHealth
adoption and innovation particularly in low-resource settings (World Health
Organization, 2016).
Lack of funding is one of the top reasons for the premature discontinuation of
potentially valuable mHealth initiatives (World Health Organization, 2016).
Moreover, empirical evidence also suggests that health technology projects often
cost more than initially planned, imposing additional financial pressures during the
life of a project (Leon et al., 2012). In most countries, government funding com-
mitment to an mHealth initiative is critical to ensuring its continuity as an integrated
3 The Path to Scale: Navigating Design, Policy, and Infrastructure 41
Financing does not only imply assigning budgets for required line items. There are
various ways that a government might finance any mHealth initiative— getting
subsidies for SMS, data, and voice calls is one of the most relevant ways.
Government is usually the most appropriate agency to request MNOs in a given
country to provide subsidies for mHealth initiatives; such a request is easiest for
MNOs to process when it involves specific professional groups of health workers.
An example of this is the partnership between the Rwandan Ministry of Health and
MNOs that resulted in a ten-fold reduction in the cost per SMS for a mHealth pilot
to improve maternal and child health in the country, which was crucial in planning
for the project’s expansion and ensuring its long-term sustainability (Ngabo et al.,
2012).
Building components of mHealth foundational and continuing training into an
existing national curriculum for health workers can be an efficient way to finance a
major component of most mHealth initiatives. Operational costs such as personnel
salaries and initiatives, hardware and software maintenance or update can also be
absorbed into regular program budgets. In addition, buy-in and ownership of the
community that is most intimately impacted by the mHealth initiative may attract
some portion of direct funding as well as provide evidence of system uptake.
3.7.3 Cost-Effectiveness
focus on feasibility and user acceptance rather than cost. Where information on costs
is available, it can be limited and difficult to interpret due to subsidies in technology
(Zurovac et al., 2011; Leon et al., 2012). Designing for scale and sustainability
requires an understanding of the various elements that make up the total cost of an
mHealth intervention including developing and maintaining platforms, training and
retraining users, procuring and replacing hardware as well as ongoing data and SMS
costs. Opportunities exist in each of these elements to improve the overall
cost-effectiveness of an mHealth intervention, particularly at scale.
When it comes to developing systems, leveraging open-source platforms that are
freely available and reusable rather than proprietary systems help to lower costs
significantly, especially for future redesign, implementation, and scale (Rajput
et al., 2012). Hardware costs can be a particularly daunting challenge. While the
costs of smartphones in both developed and LMIC markets are rapidly declining
making advanced mobile devices more widely available to greater proportion of the
population (The Economist, 2014), procuring handsets at scale can pose a signifi-
cant initial investment and requires financial support and subsidies to enhance
cost-effectiveness of the intervention (Qiang et al., 2011). Moreover, mobile
devices are often prone to theft, loss or damage in LMIC settings and costs to repair
or replace devices at scale can be prohibitive (Chang et al., 2011). Strategies to curb
costs of purchasing new devices may include using locally available entry-level
phones (Leon et al., 2012), designing flexible, device-agnostic systems that can
work on a range of mobile devices and facilitate the selection of least expensive
hardware for future implementation (Rajput et al., 2012) or leveraging personal
phones of users, keeping in mind the potential shortcomings of such a choice. The
ongoing costs of mHealth intervention include data, voice, and SMS charges and
while these rates can be quite low in many LMICs, significant budgeting and
funding is required to meet these ongoing cost components at project scale where
thousands of users are required to send text messages or make calls on a daily basis.
Hence the importance of strategies which lower these ongoing costs such as pri-
vate–public partnerships between government and private MNOs as mentioned
earlier.
A frequent question concerns the cost-effectiveness of replacing existing
paper-based systems with expensive mHealth systems. Earlier research indicates
that standard paper-based systems can incur hidden costs in terms of staff time to
maintain and correct data entry errors and/or the storage of paper records that are
often overlooked when assessing cost-effectiveness (Tomlinson et al., 2009;
Holeman & Nesbit, 2010). Addressing this cost barrier to implementation and scale
calls for further evidence-based research into the cost-effectiveness of mHealth
interventions compared to traditional paper-based systems and/or hybrid systems
which combine electronic and paper-based systems. Establishing the
cost-effectiveness of mHealth implementation is indispensable to support the
argument for the scale and long-term sustainability of mHealth.
3 The Path to Scale: Navigating Design, Policy, and Infrastructure 43
Allotting time and resources to product and project design for mHealth initiatives
can yield positive results as the solution scales from a pilot project up to state,
district, or national level (Eckman et al., 2016). Technology is the only component of
this design challenge; attention must also be given to the end users of the system—
usually a health worker—and how a new tool will help them. Those mHealth pro-
jects that incorporate user-centered design principles from the outset can fare better
than those that did not (Eckman et al., 2016).
Medic Mobile has employed Human-Centered Design (HCD), a specific
user-centered design approach that emphasizes a deep understanding of human
capabilities, motivations, concerns, and values as they consistently surface in their
daily lives; the reliability of a new technology is determined by the routine actions
of users within the system (Bannon, 2011). HCD is more a way of thinking than a
defined procedure and can take various shapes based on the context and the
methods used to put this approach into practice (Kane, 2016).
44 J. Evans et al.
3.10 Impact
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Chapter 4
The Use of Mobile Phones in Rural
Javanese Villages: Knowledge Production
and Information Exchange Among Poor
Women with Diabetes
Dyah Pitaloka
Keywords Diabetes Self-management mHealth Culture-centered approach
Rural Javanese women Indonesia
4.1 Introduction
D. Pitaloka (&)
Department of Indonesian Studies, University of Sydney, Sydney, Australia
e-mail: [email protected]
(freedom-net Indonesia, 2015). This low service price allowed new consumer
segments with limited spending capacity to enter the market.
For rural people, a prepaid tariff (prabayar)—commonly known as buying
“pulsa” (prepaid mobile phones minutes)—is the most common mode of con-
necting to mobile networks. Pulsa is sold in the market, on the street and in grocery
shops in electronic form or as vouchers. In most cities, pulsa vendors are open
24 hour and apply only a small extra charge for their service. Pulsa can also be
purchased via ATMs, e-banking, and 24-hour convenience stores without extra
charge. In villages, people usually go to the market to buy pulsa or to their neighbor
who becomes an individual pulsa reseller.
The number of people suffering from diabetes is rising globally and impover-
ished rural populations are at higher risk of poor self-management and complica-
tions associated with the illness (Banerjee, Rathod, Konda, & Bhawalkar, 2014;
Hsu et al., 2012; Pujilestari, Ng, Hakimi, & Eriksson, 2014; Utz et al., 2008). 2013
data from RISKEDAS indicate that 10 million people have been diagnosed with
diabetes in Indonesia, with roughly equal figures for adult diabetes prevalence in
rural and urban areas (7 and 6.8%, respectively). This puts Indonesia among the top
five countries for diabetes prevalence (WHO, 2016) with most cases recorded on
the island of Java. More than 70% of the cases were undiagnosed and women are
reported as more susceptible than men.
Previous studies have found mHealth-based smartphone applications are
promising tools to help improve diabetes management and self-care (Cui, Wu, Mao,
Wang, & Nie, 2016; Shah & Garg, 2015). For instance, mobile phone interventions
for people with diabetes can improve healthcare outcomes by facilitating an indi-
vidual’s ability to control, monitor, and measure blood sugar level and thereby
adopt healthier behaviors (Kitsiou, Pare, Jaana, & Gerber, 2017; Krishna & Boren,
2008). Indeed patients’ adherence to self-management regimes is recognized as a
marker of success for mHealth intervention. However, rural populations are often
not smartphone-equipped and therefore cannot access diabetes management apps.
This study adopts the culture-centered approach (Dutta, 2008, 2011) to enquire
into the role of local women’s organizations and networks in encouraging rural
women’s use of mobile phones for sharing and disseminating information about
health and sugar disease. Central to the culture-centered approach is that health
communication involves “the negotiation of shared meanings embedded in socially
constructed identities, relationships, social norms, and structures” (Dutta, 2008: 55).
Therefore, the main target of diabetes communication interventions is culture.
Javanese women have been perceived as being tied to three domestic areas:
kitchen, bedroom, and washing area (well). Studies conducted on Javanese women
(Manderson, 1983; Sears, 1996; Sullivan, 1983, 1994; Wolf, 1994) suggested that
due to their long working hours, women have less time than men to socialize and be
involved in religious activities. However, this study found that women are actively
engaged in both social and religious activities including women’s rotating credit
associations or saving-and-loan activities (arisan) and Qur’an recitation groups
(pengajian), both of which serve as important forms for the promotion of women’s
health and well-being.
4 The Use of Mobile Phones in Rural Javanese Villages 51
My quest to understand how poor rural women manage diabetes took me to a late
afternoon conversation with mantri (local male health provider) with whom I have
been collaborating for this research. He discussed his concerns about the increasing
number of people, especially women, suffering diabetes in the villages. Most of the
time his patients had to be hospitalized because they do not know about the severity
of the disease and how to monitor their blood sugar level. According to mantri,
rural women work very hard to support their families and “because of their hard
life, these women get so tough. They won’t let anything interrupt their routines,
including illness. Therefore, it requires extra patience to talk to them about their
health issues.”
Traditional gender roles in rural areas in Java assigned women with managerial
positions both in domestic and public (societal) spheres. Rural women in both the
Kembangarum1 and Selojajar1 villages investigated in this study mostly work as
petty traders. In 2014, poor rural villagers in Central Java were estimated to earn
between US$20 and 40/month (BPS Jateng, 2014). Therefore, the villagers live on
less than US$2/day and must balance their everyday needs with the social costs
required to maintain harmonious interactions within the village. The work and the
money they earned gave these rural women a sense of self-reliance and of space to
negotiate their personal needs. For example, Wani (all participant names have been
replaced with pseudonyms) said:
Having a job, earning my own money, I can ‘move’ myself around a little bit (Neknyambut
damel, nyekel arta piyambak, kula saged ‘obah’ - obah or move literary means ‘a more
flexible condition that allows someone to make a decision amidst his/her limited resources).
Participants expressed that it is important for them to keep working and to earn
their own money, because by having their own income, these women could:
1
Pseudonyms used.
52 D. Pitaloka
(1) participate more in arisan, (2) fulfill personal needs (such as seeing a doctor or
mantri, purchasing medication, buying a mobile phone, or topping up phone credit),
(3) give pocket money to their children or grandchildren, and (4) donate to their
neighbors and social events in the villages.
The day starts at 4 am every morning for many of these women. After per-
forming early morning prayers, those who sell traditional snacks such as banana
and/or vegetable fritters must have all the food ready by 6 am. They then must
complete all chores and be ready to go to the market by 7.30 am. None of them
questioned this division of labor, which saw them responsible for both household
duties and working outside of the home. During interview, Parti said:
“To make sure that the house is clean and the food for my family is ready before I go to the
market is important to me. I feel guilty if I wake up late and leave the house in a messy
condition” [Javanese would say mboten ilok (taboo)].
None of the women lamented their health condition or complained about having
to work to support their family. Some of them walk as far as 15 km to the market
while carrying a 30 kg basket filled with merchandise. Others take public trans-
portation to do the trading in the next village. They usually return home at around
5 pm before magrib (after sunset) the fourth of five formal daily prayers for
Muslims, so they can join the mass prayer in the mosque with other villagers.
Their sense of self-reliance and the ability to perform domestic responsibilities
and maintain multiple roles within the household and the community is of central
importance to these women. As petty traders, the women do not earn big money.
But they do earn a degree of economic autonomy and an ability to manage and
control household spending.
I observed that by being petty traders, these women attain a strong sense of
self-reliance and bargaining power to take decisions regarding both household
matters and social affairs in the village more broadly. The women believe that the
ability to perform daily activities represents a core component of being a good
Javanese woman—self-reliant, strong, an effective manager of the household,
makes household financial decisions autonomously, and with the power to manage
social networks (Geertz, 1961; Jay, 1969; Koentjaraningrat, 1967; Pitaloka, 2014;
Pitaloka & Hsieh, 2015). Many of these women display a high degree of discipline
in their management of finances. While showing me an old wooden box full of
labeled envelopes, Restu explained her strategy for managing the family’s limited
income:
I’m poor, so I must manage the money we earned each day. This is to buy groceries, rice,
washing soap, shampoo. This is for my youngest son’s school fee, this is for the mosque,
and this is for other social events. These social events always give me headache, but it’s
important. This one envelope is actually for my personal needs, but it also serves as a secure
funding for me. I use the money from this envelope to buy my medicines or pulsa, but if I
received too many social events invitations, I will use it to cover the social events first.
4 The Use of Mobile Phones in Rural Javanese Villages 53
Understanding how these women perceive and negotiate their multiple roles is
crucial to grasping existing mHealth practices. Using the culture-centered approach,
this study located the cultural factors that influenced—and were influenced by—the
everyday narratives of health and well-being experienced by these rural Javanese
women. For instance, Tuti’s description of her mobile phone use demonstrated the
organic emergence of personal mHealth behaviors:
This is a cheap phone. I got it from the market. My son asked me to get one so he can
contact me if something urgent happens. I rarely use it…well, mostly for receiving calls.
Sometimes, I use it to call Pak2 mantri to have a health check, or to order some stuffs from
the city. Pak mantri send me texts and calls to make sure that I take my medicines and
attend the monthly health meeting at his house. He and his wife are very nice to me.
Some rural women in this study purchased mobile phones with money saved
through arisan saving-and-loan scheme, while others use their own savings to
purchase cheap mobile phones at the market. Some rural women in these villages
are still practicing a traditional saving method by keeping their money inside a
small envelope or in a wooden box, which they keep in a safe place at home. Some
of the older women participants were bought mobile phones by their children. As
mentioned, the phones enabled them to stay connected with their family members
(i.e., husband, children, and grandchildren), fellow traders, friends, and also with
mantri.
While the women perceived doctors as socially higher than them, and therefore
they feel sungkan (Javanese respectful behavior that means feeling of shame
without the feeling of doing something wrong) to call or text them, they perceived
mantri as part of their family. They felt they could contact mantri whenever they
needed his help or advice. “I usually visit my patients one by one…riding this
motorbike, going around the villages,” mantri explained. Living in the same
neighborhood as the women, mantri and his family are considered as kin.
Regardless of their resource-poor conditions, these women highly appreciated the
“inner peace” (ketenangan batin) that a mobile phone brought to their life. Samsiah
said:
I don’t really need a mobile phone, but one day I was very sick. I don’t know why, but I felt
weak and suddenly collapsed. When I woke up, I was already in the hospital. Pak mantri
told me, ‘Alhamdulillah (Thank God) my wife was already at your door when your sister
cried out for help.’ After I recovered, my son got me a used phone…He told me, ‘Mak
(mom), just in case. Pak mantri can check on you. If you refuse [to take the phone], I won’t
let you go to the market again’ Well, it’s hard for me to use it at first, but I feel ayem
(peace). I can work and my son won’t have to worry about me.
2
Pak is an abbreviation of Bapak, originally meaning ‘father’ but nowadays used to respectfully
address an adult male.
54 D. Pitaloka
Rural women of low education and socioeconomic status are important actors in
the informal sector (as market traders, factory workers, and housemaids) of the
economy, significant providers within their families (Kusujiarti, 1997; Tickamyer &
Kusujiarti, 2012; Wolf, 1994), and overrepresented in various indices of poor
health. Many of the women lack medical knowledge of diabetes symptoms, but
have developed their own language to articulate their experience of living with
diabetes. They perceive diabetes as less severe than cancer, asthma, heart disease,
and skin problems because their diabetes was asymptomatic and their condition is
relatively stable. As they say, they are “not stranded in bed” and are able to perform
everyday duties (Pitaloka, 2014). When their blood sugar level increases, these
women would express it as “they do not feel well” or “too much in mind” (kakehan
pikiran).
These vernacular understandings of the causes and symptoms of diabetes grow
up in context of several gaps left by top-down approaches to health care and the
exclusion of much of the rural population from web connectivity, increasingly
central to the ability to access professional medical information. Currently,
Indonesian health system still focuses more on battling infectious diseases such as
malaria, tuberculosis, diarrhea, and dengue fever. Resources have not been allo-
cated proportionally to the larger and increasingly threatening burden of chronic
noncommunicable diseases such as heart diseases, stroke, diabetes, cancer, and
hypertension (Ng et al., 2006). A yawning gap also exists between the promise of a
technologically determined health utopia and the reality of actual uses and access to
such technologies among poor and rural populations.
The rapid growth of mobile telephony is often held to create an opportunity for
the emergence of mHealth—the use of mobile communication devices for health
services and information, in improving the access and quality of health services,
and overall health outcomes in many parts of the world, including facilitating
diabetes self-management (Chib, 2010; Chib & Chen, 2011; Chigona,
Nyemba-Mudenda, & Metfula, 2013; Kratzke, Wilson, & Vilchis, 2013; Klasnja &
Pratt, 2012; Kreps & Neuhaser, 2010; Soegijoko, 2009). In Indonesia, mHealth
designers have produced apps such as Dokter Diabetes and Xanesha Diabetic
Analytic Console to encourage individuals with diabetes to self-manage their ill-
ness. A few mHealth apps developed by foreign companies were also available
such as Diabetes:M by Sirma Medical Systems, the Dario app by Dario Health,
OnTrack Diabetes and BlueStar Diabetes.
The enthusiastic development of health self-management apps so often proceeds
with disregard for the technical, socioeconomic, and cultural barriers that stand in
the way of poor, rural, and marginalized people using them (Kaplan, 2006). In
Indonesia, the available diabetes mHealth applications can only be accessed
through Android and iOS smartphones—use of which is largely restricted to middle
and upper social economic groups. The use of mix languages (English and
Indonesian) requires users to understand the terms used by the providers, such as
4 The Use of Mobile Phones in Rural Javanese Villages 55
As petty traders and income earners, these rural women do not rely on their hus-
bands’ wages to fulfill their personal needs. Nor do those who no longer have a
husband (by death or divorce) rely on their children’s support for their living. One
of them said, “As parents, we should be the one to help our children, not the one to
burden them.” This behavior is guided by the Javanese sense of “pekewuh”
(ashamed in the presence of one’s better), a feeling induced by asking your husband
or children for a favor. The maintenance of harmony, order, and self-mastery are
key tenets of Javanese social work (Immajati, 1996; Mulder, 1996; Pitaloka, 2014),
and this context is crucial to understanding rural women’s uses of mobile phones.
Cheap mobile phones are sold at the local phone shop or at the market with the
price for between Rp 150,000 ($15) and Rp 250,000 ($25). Such phones provide
basic mobile phone calling and SMS services that according to these women, “is
enough” (cukup) and “appropriate” (cocok, pas). The notion of cukup and pas
represent the Javanese cultural notions of appreciation and sincere acceptance that
forbid them from being greedy. Siti said:
Since I got diabetes, my children have been asking me to buy a phone so they can check on
my condition. I feel reluctant, because I could not use the household money just to buy a
mobile phone. I refused when my children want to get me one, because I know they also
have a hard life. I got this one when I got the arisan money. Just a cheap one…as long as
my children can contact me, it’s enough.
56 D. Pitaloka
Anti’s statement echoes the LIRNEasia (2011) data which indicates that bottom
of pyramid mobile users with irregular income use a prepaid card to limit their
phone credit spending (see Fig. 4.2).
In addition, this study found that a sense of pekewuh (feeling of reluctant or
uncomfortable from doing something that is considered as culturally inappropriate)
guided women’s use of mobile phones. These women do not want to be preoc-
Fig. 4.1 Mobile phone use by bottom of pyramid mobile owners (LIRNEasia, 2011)
4 The Use of Mobile Phones in Rural Javanese Villages 57
Fig. 4.2 Prepaid versus Postpaid use by bottom of pyramid mobile owners (LIRNEasia, 2011)
cupied with their phones when they are at home. Some of these women share the
house and kitchen with their children’s family. To maintain harmonious life, one of
them said, “Kudu njogo, ngerti wong liyo,” which can be translated as considering
and appreciating others (tepa selira). They used their phones in their ‘private
domains’ e.g. at the market, at arisan or at pengajian. Javanese society perceives
women as in control at the marketplace (Brenner, 1998) hence the women con-
sidered it appropriate to act as they chose in this domain.
Above, I have discussed how limited material resources excluded these poor
rural women from accessing and experiencing health and health care. The enthu-
siastic development of mHealth apps may well serve generously resourced urban
communities in Indonesia, but can fail to reach community members like the
women in this study. The texting activities I have described above address the local
58 D. Pitaloka
contexts that framed Javanese health beliefs and the complexity of the rural
women’s needs and priorities. They also provide an alternative communicative
space for these rural women to experience health and maintain their well-being.
As a progressive disease, type 2 diabetes may cause complications and disability
over time. The women in this study articulated their health condition by using these
words: semangat (spirit or energy) which symbolizes health, and lemes (weak) or
loyo (exhausted) which symbolizes illness (Ferzacca, 2001; Pitaloka, 2014). These
women believed that diabetes is caused by hard thoughts and a restless mind.
Therefore, balancing ones’ inner peace (ati tentrem) with outer/physical health
(awak penak) is perceived to be the main key to health. Participating in informal
local organizations, such as arisan and pengajian Quran is an occasion to relax and
to get-together with other women in the village. Sarni, for example, expressed her
participation in recitation as:
All of these burdens and hard thoughts are gone. I tried to come to recitation, at least once a
month to recharge myself. When I recite Quran together, I feel peace and calm. Gusti
(God) always listens to our prayer, right? The leader [of the recitation] is also very nice and
funny. The discussion is light, so I can understand [the context and application of the surah
(chapter) being recited].
Mantri relies on SMS to communicate with the women because it is cheaper than
calling, the user does not need to download separate application—texting comes as
a basic application with the mobile phone, and because texting does not require the
women to respond immediately. During the first year, mantri sent SMS mostly to
4 The Use of Mobile Phones in Rural Javanese Villages 59
remind his patients about posyandu activities and free monthly blood sugar check
sessions. When I came to mantri’s house to talk to him about this texting activity,
he had just sent an SMS to his patient to remind her to have blood sugar check in
the coming week,
Please don’t think too hard, Bu [Mrs] Sih. Calm your mind. Don’t forget the free blood
sugar check on Thursday.
A few minutes later, he received a phone call. Mantri told me, smiling, “I texted
my patient and she asked her son to call me and asked if she needs to do a test this
month because her glucose was 250 last month and she feels fine.” Although this
woman did not reply to mantri’s SMS in person, the call shows that she engages
with the message and the communication activity. Erna, one of the posyandu
volunteers and arisan coordinator who joined us that afternoon told me:
Now, I can use my phone to send health information to my friends. I don’t use it for casual
chatting with friends, I use it when there’s important issue we can help each other, by
reminding each other.
When I asked Erna what kind of information she and the other women discussed,
she said
Usually about…mmm…free blood sugar check session, or if there’s an information session
at Pak mantri’s house. I myself have diabetes for 5 years, and my two kids are still very
small. I’m stupid and poor, but giving information to my friends and getting advice on
keeping my physical condition fresh (seger = sehat = healthy) is good.
Tuti, the other volunteer, confirmed what Erna said about “reminding each
other.” In fact, arisan and pengajian, as well as posyandu, are forms of rural
women’s self-help that provide assistance in emergencies such as accidents, deaths,
and illnesses. Texting opens up opportunities for these rural women to communi-
cate about their condition, like text that mantri received after we broke the fast one
evening: Niki kula kok awake adem kabeh ndrodog, pripun pak? (I feel cold and
trembly, what should I do?). Without further due, mantri took his motorcycle and
went to this woman’s house. I rode with Dwi. It turned out that this woman did not
take her early breakfast properly and experience a hypoglycemic condition—low
blood sugar.
Negotiating Knowledge: Advice, as Erna said, is a form of “knowledge
negotiation” which refers to women’s active participation and involvement in
knowledge production via texting. Rather than acting as users, mantri and these
rural women act as the cocreators of knowledge in their texting. Diabetes knowl-
edge, as promoted by doctors, focused on three things: Food intake management,
regular consumption of medication, and exercise. This model of self-management
detached these women from their everyday values. As a top-down form of inter-
vention, this knowledge does not take into account the sociocultural, religious, and
economic aspects that framed these rural women’s concept of health, the dynamic
of interactions between the villagers, and Javanese traditional concept of gender
roles.
60 D. Pitaloka
Health, in these women’s perceptions lies within their heart and mind. Marni
explains that:
As long as your mind is calm, you’ll feel that you’re healthier. Fasting, attending Qur’an
recitation, helps ease your mind.
I had a chance to observe the daily activity of one of the older participants,
Prapti, who told me:
I asked pak mantri if people with sugar disease can fast or not?
She continued
He said I can, as long I don’t forget to take my medicines. I just texted my friend: you
should fast. I don’t feel weak and I can recite Qur’an till late at night.
On another occasion, I went to meet a mother and daughter who both had
diabetes. When I came to Lis’s (the mother’s) house, she told me that her daughter
Nani’s blood sugar level is constantly high and she was certain that her daughter’s
heavy thoughts triggered this condition. During the interview, Lis told me that she
just asked her youngest daughter to text Nani using her mobile phone: Ora kejeron
mikir. Ayem, sumeleh gusti kaya Ibuk, ben gulomu medhun (don’t think too much.
Stay calm and surrender to God and, like me, your glucose level will go down).
With her eye condition, Lis could not read small letters clearly.
Managing food intake/diet is a concept that some of these rural women find hard
to negotiate. With limited income, these women do not have many choices. For
them, food should sustain their physical strength in order to work all day. In
addition, because earning money is difficult, these women never throw away left-
over rice. Mantri’s wife told me that she received a text from one woman who said
that since she consumed sega wadhang (cold leftover rice), her glucose level
becomes stable. I asked mantri’s wife, “Is it true?” and Dwi said, “Most women
here believed that cold leftover rice cures diabetes, but I always tell them that they
can eat sega wadhang, but don’t forget to have some vegetables in their meal for
nutrition.”
Alternative medicine is another topic that these women talk about when texting.
Traditional home remedies known as jamu are very popular among rural people.
They perceived jamu as the first solution to illness and jamu is widely consumed to
maintain physical fitness. Abundant resources of herbal plantations are available
across the villages, such as ginger, turmeric, betel leaf, etc. I noted that one of the
reasons why some rural women choose to incorporate alternative medicines such as
traditional herbal drinks or jamu in their diabetes management was to find a
treatment that is appropriate (cocok) to their financial condition (Pitaloka, 2014).
During one arisan meeting, these women discussed jamu and Erna told me that she
received many texts about diabetes jamu recipes, such as soursop leaf drink, bitter
gourd drink, and turmeric drinks.
Fostering Women’s Consciousness about Health: A restless heart and heavy
thoughts are believed to be the cause of diabetes. While managing inner peace
becomes the women’s main attention, mantri’s role is to inform the women about
4 The Use of Mobile Phones in Rural Javanese Villages 61
the importance of maintaining their blood sugar level. Texting encourages these
women to become more conscious about their health. In one of the recitation
meetings that I attended, the women discussed why the Qur’an had to say with
respect to health. Preaching in Javanese, the leader of the recitation wrapped up the
session that night with this message:
Nothing is worse than someone who is overeating – filling her stomach with food that
exceeds its capacity. If you eat, do eat to make your body strong and straight (tegak). But
remember, you should allow 1/3 of your stomach for food, 1/3 for drinks, and 1/3 for
breath.
This closing provoked the women to discuss their eating habits. After the
recitation, Warni invited me to her house to break the fast. She came to the
recitation with her daughter who lives in a different village. That night her daughter
went back straight away since her infant had a slight fever. While preparing the
food, Warni talked about the reason she keeps working and about her daughter who
is always concerned about Warni’s health condition. Since she lives in a different
village, Warni’s daughter used a mobile phone to check on her mother’s condition.
She told me, “Niki, nembe mawon nyambel kok anake malah sms, ngeten niki to…”
(see, I just finished making sambal and my daughter had already texted me): Mak,
maeme dijogo (watch your meal mom). Laughing, Warni said, “Kula niki mung
wong ra nduwe, mangan sega sambel. Saka pasar ngelih….eh, ora entuk mangan
akeh” (I’m poor and I only eat sambal and rice. I feel hungry coming home from the
market and I can’t eat a bigger portion).
The concept of eating for Warni was not about the variety of food on the plate,
the price, or how healthy the food is. Eating was about the ability to enjoy food no
matter how simple it is. For her, the simple dish of warm rice and sambal (Javanese
chili with shrimp paste aroma) brings a joyful feeling. She could have finished two
plates of rice for herself, especially when she comes home from work tired and
hungry. A glass of sweet hot tea would accompany her meal. Of course, this diet
does not fit the concept of healthy eating for diabetes management but rice and
sambal are a source of happiness for Marni—an emotional condition that eases
other burdens in life. However, that night Marni only had a half plate of rice,
sambal, and three deep-fried tempe (soya bean cake).
The sermon also promoted mantri’s wife to send texts to two posyandu women
volunteers who had been working with her for years and had diabetes, highlighting
how the circulation of health information, texting and attendance, and discussions at
recitation meetings are all interrelated parts of a whole way of life.
Don’t forget to do your [noon] prayer. Eat properly, don’t eat too much to stay healthy.
Amiin.
The other topic that the women discussed was personal hygiene. After the
posyandu session, one woman told mantri that she prefers to go barefoot because
wearing shoes made her feel uncomfortable. She believed herself not to be at risk of
developing infection from a wound, stating that she only suffered dry diabetes.
Mantri responded, “It’s better to be careful. Wearing footwear is good for your
62 D. Pitaloka
cleanliness and health.” In an interview with Sri, who grows turmeric and other
herbs, I asked “Why don’t you wear footwear?” Sri responded:
We’re just villagers, I myself also love walking around barefoot, but I feel bad now because
Bu mantri said in her text: kebersihan niku bagian dari iman (cleanliness is part of faith).
Wearing footwear outside the house to prevent any cuts or wounds is a key tenet
of maintaining diabetic health because diabetics are at a high risk of cuts or wounds
becoming infected. Indeed, when one of the women’s family members had to
undergo amputation due to infection, mantri sent a text message to the two vol-
unteers Erna and Tuti so they could share the news with others:
Ampun lali ngagem sandal nek medhal ben mboten keno beling nopo paku sing saged
damel infeksi (don’t forget to wear footwear if you’re doing activities outside the house, so
your feet won’t get slashed and wounded in ways that may cause infection).
The other topic that engaged these rural women in texting was managing their
food intake at community social events. One text that mantri received was:
What should I eat if I have to attend a wedding or slametan (Javanese ritual meal)?
For rural Javanese, everyday life from birth to death revolves around ceremonies
and social celebrations and these events always involve feasting. Participating in
social events like slametan is very important for the rural people. Moreover, women
are responsible for preparing food for such events and this presents a challenge for
diabetics. One woman who used to help with cooking sent a message to Tuti: Nek
ora diicipi wedi ra enak, ning meh kabeh legi. Piye yo? (if I don’t taste the food,
I’m afraid that the taste is not quite right, but almost all are sweet, what should I
do?). Bu mantri who listened to this story from Tuti sent a text message: Ngicipi
nek sakjumput/saksesepan mboten nopo2, ampun sak enthong (tasting, if it’s a
pinch/a sip is ok, but don’t take a large soup spoon).
In my travels to the local market, I came across a drink called tetes—a thick red
sugary syrup that is popular among the locals because of its refreshing taste, electric
pink color, and cheap price. People usually mix tetes with water and ice to make es
tetes—an irresistibly refreshing drink for a hot day at the market. When I met
mantri later that evening, he told me that some of the women had been enquiring
about the health effects of the food they consume daily, including tetes. For
example, one of his patients texted him to ask: Nopo tetes saged nginggilaken
gendis? (Could tetes drink increase my blood sugar?). When I interviewed this
woman, Darni, she explained that her glucose level was constantly high and she
wanted to know whether her love for tetes caused this problem, “If you’re poor, it’s
a refreshing drink that poor people can afford, because it’s cheap. I can drink two
glasses especially during a long hot day at the market.” Mantri responded to Darni’s
text with simple suggestion:
Please try to drink water. It’s better not to overconsume anything. Please try to reduce your
tetes consumption.
4 The Use of Mobile Phones in Rural Javanese Villages 63
Knowing that these women may not be aware of the dangers of overconsuming
sugar, mantri raised issue at the monthly health information session. At that time,
there were at least 15 women with diabetes who joined both arisan and pengajian
group and five others who only joined pengajian. Tuti told me, “Mboten gampang
le ngandani, wong kula mawon remen tetes kok” (It’s not easy to tell the women
what to do, I personally also like tetes). If someone asked her about it, she for-
warded mantri’s SMS:
Water is good for your health. It’s refreshing and cheap.
It seems that “cheap” is the key word in this SMS because mantri received a
good response to it including short texts such as “leres” (true), “sae njih?” (oh, it’s
good?!), to longer questions: “is just ordinary boiled water OK or bottled water?” “I
can’t quit drinking coffee, is it bad?”
4.6 Conclusion
This study highlights the value of organic texting activity among the rural women
participants as a form of continuous reflection upon their health. The positive effects
of using SMS cannot just be attributed to technological affordance, which is where
the emphasis of mHealth discourse can often lie. It can also be attributed to the
dynamic interplay of culture—the shared values, practices, and meanings that are
negotiated in communities—and structure, understood as the system that enables or
constraints these women’s access to resources.
On one hand, texting provides an alternative communication space for these
women to discuss possible solutions to their health problems while reflecting their
cultural beliefs. The advice that these women receive from each other and from
mantri can be seen as a form of “knowledge negotiation”—which refers to
women’s active participation and involvement in knowledge production via texting.
Contrary to the dominant mHealth approach in which app providers act as
knowledge generators and mobile phone subscribers as users, mantri and these rural
women act as cocreators of knowledge related to their health. On the other hand,
texting provides a communicative space for these women to develop peer support
and the capacity for agency and autonomy. In the process of cocreating knowledge,
women and mantri negotiate living with diabetes in the context of everyday life.
Despite their poverty, these women still hold considerable power in the manage-
ment of both domestic and public affairs in the villages. Thus, the SMS exchanges
that occur between them and mantri reflect their need to balance these roles and
maintain harmonious social interactions.
Global discourses around diabetes management frame the failure of patients’
diabetes management as related to individual action or inaction (Aikins, Boyton, &
Atanga, 2010; McKee, Clarke, Kmetic, & Reading, 2009; Parry, Peel, Douglas, &
Lawton, 2006). This suggests that poor health occurs because individuals are
unable or unwilling to heed preventive messages or recommended treatment actions
64 D. Pitaloka
(Airhihenbuwa, Ford, & Iwenlunmor, 2014). Being poor and having diabetes, the
women in this study constantly negotiated their personal needs (including their
health needs) with those of their family and community. As a result, their
health-seeking behaviors must be compatible with the other elements of life, i.e., a
good “fit” (cocok) (Pitaloka, 2014).
From a culture-centered approach, texting is woven into these women’s expe-
rience of diabetes and how they negotiate their health-seeking behaviors. The
messages are not centralized or controlled by one person. Instead, messages flow
from SMS to discussion during arisan and pengajian, to health information ses-
sions during the posyandu meeting. Texting creates a self-empowerment process
that helps these women develop a strategy to maintain their multiple roles and sense
of self-reliance (Chib & Chen, 2011) while dealing with hardships at the same time.
Using common language, these women access the information they need and
negotiate it with mantri—their main health supporter—and with other diabetics. At
the same time, texting allowed these women to maintain their sense of self-reliance
and ability to tackle hardships.
The practice of texting among the rural village women in this study shows us
that health behaviors are rendered meaningful within cultural contexts, being
anchored in cultural values and beliefs (Dutta, 2008). This study provides an insight
into how a mobile phone can be used to help poor rural villagers or marginalized
community members participate in the knowledge production related to health and
illness. Recognition of local practices and traditions allowed these women’s voices
to be heard by mantri whom later elaborates on the health issues in his monthly
health meeting or with the help of women volunteers in arisan and pengajian
sessions. Culture, in the context of low-cost mobile texting, “emerges as the
strongest determinant of the context of life that shapes knowledge creation, sharing
of meanings, and behavior changes” (Dutta & Basu, 2007, p. 561).
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4 The Use of Mobile Phones in Rural Javanese Villages 67
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Chapter 5
Identifying Grassroots Opportunities
and Barriers to mHealth Design
for HIV/AIDS Using a Communicative
Ecologies Framework
Abstract The aim of this qualitative study was to test how social and cultural
research methods can be used to anticipate opportunities and barriers to the use of
consumer mobile devices by community health workers (CHWs) for HIV/AIDS
prevention, testing and treatment. An exploratory study was conducted with CHWs
(n = 19) at the regional capitals of Denpasar and Makassar in Indonesia in order to
build to a clearer picture of how the participants have integrated personal mobile
handsets into their daily professional and personal routine. A communicative
ecologies framework was applied to the research design which included a range of
qualitative methods including in-depth interviews, focus group discussions and
communicative ecology mapping. Our main findings revealed that there was no
bottom-up impetus for the introduction of a formal mHealth system to support
client interactions. Existing client data collection systems were locked into
paper-based systems to ensure compatibility with local government and/or funding
body administrative systems; hence, mobile device-based data collection would
require additional processes by the participants. Boundary issues were reported with
regard to out of hours contact by clients. Some CHWs sent SMS medication
reminders to clients but the strong preference indicated by all participating CHWs
was to meet clients face-to-face in order to build and maintain trust through the
in-person counselling process, rather than introduce mobile-mediated interaction.
J. Watkins (&)
School of Communication and Design, RMIT University Vietnam,
Ho Chi Minh City, Vietnam
e-mail: [email protected]
E. Baulch
Creative Industries Faculty, Queensland University of Technology, Brisbane, Australia
5.1 Introduction
In this context, the critical role of community health workers (CHWs) in supporting
PLWHA to adhere to antiretroviral therapy across the lifespan) is clear. We uphold
the discussion by Tariq and Durrani in Chap. 2 of this book regarding the critical
function provided by community health workers (CHWs) within public health
delivery (see also Perry, Zulliger, & Rogers, 2014). Our interest here is in exploring
CHWs’ everyday uses of mobile phones, and in considering such uses’ promise for
extending health services to marginalised groups.
72 J. Watkins and E. Baulch
chronic illness with low access to resources is increasingly recognised (e.g. Davis &
Calitz, 2016).
Despite the promise mobile technologies hold for extending outreach work for
PLWHA, significant challenges remain. Previous studies demonstrate that mobile
channels of health support are not necessarily adopted by PLWHA. From the
patient’s perspective, the receipt of regular SMS reminders—e.g. to encourage
adherence to a daily ART regime or to support abstinence—may not be appropriate
due to the perceived risk of ‘discovery’ by family, colleagues or others who may
not know that the client is a PLWHA. For instance, a pilot test of mobile phone
reminders (voice and text) to support adherence by 139 adult HIV patients at a
Bangladesh clinic found that although 90% of participants reported the medication
reminders as useful and did not perceive an intrusion of privacy, 87% reported a
preference for a voice call over SMS (Sidney et al., 2012). These participants were
largely urban-based and educated to at least a secondary level. A qualitative study
of PLWHA participants conducted in Lima, Peru (n = 26) expressed positive
perception of SMS reminders but with the significant proviso that the text replaced
sensitive words such as HIV or antiretroviral with codewords or codephrases
(Curioso et al., 2009). Furthermore, we should not assume that any SMS sent will
actually be received: a 2014 interview-based US study (Gonzales, Ems, & Suri,
2014) argued that the multiple barriers presented by out-of-credit mobiles or by
users who swap numbers regularly not only challenge simple communication
strategies such as voice calls from health staff or automated SMS, they can also
serve to further isolate the out-of-credit user from their wider online/mobile/social
communities of support.
Neither should we assume that mobile-enabled systems will be embraced by all
CHWs. A mixed-methods formative evaluation of an mHealth intervention at an
HIV/AIDS clinic in Uganda found that some CHWs believed that mobile tech-
nology would threaten their jobs; others were uncomfortable with the confiden-
tiality issues raised by having patient data on their mobile device, such as taking a
patient’s photo (Chang et al., 2013, p. 877). Also in Uganda, a study of a text
message campaign that disseminated and measured HIV/AIDS knowledge in at-risk
populations found that the design of the campaign ‘failed to address several
informational, economic, and sociocultural vulnerabilities’ and that
community-based research should be included as part of future campaign planning
(Chib, Wilkin, & Hoefman, 2013, p. 30).
Even where support services such as outpatient visitation and/or CHW support
are available, continuation of ART over the life course should not be expected. An
interview-based study of PLWHA in Bali who also use drugs found suboptimal
adherence behaviours in the participants despite comparatively good access to
health services. Amongst other factors, participants cited ART side-effects, low
74 J. Watkins and E. Baulch
viral load and apparent good health or ‘knowing friends who had stopped treatment
and were doing fine’ as reasons for suspending or stopping ART (McNally,
Mantara, Wulandari, & Lubis, 2013).
The aim of this study was to test how social and cultural research methods can be
used to anticipate opportunities and barriers to the use of consumer mobile devices
by community health workers in the area of HIV/AIDS. Specifically, we investi-
gated how CHWs have integrated mobile phones and social networking into their
daily professional and personal routine—not as a result of a formal mHealth
development initiative but rather through personal choice, organisational preference
and/or in response to localised factors.
A qualitative study was conducted with participants from two community health
NGOs in Indonesia. Participants were recruited from (a) the Yayasan Kesehatan
Bali NGO in Denpasar, Bali and (b) the Ballata HIV/AIDS drop-in centre in
Makassar, South Sulawesi. These two regional sites offered some useful compar-
isons for an exploratory study of this nature. First, both organisations were
accessible to the research team and shared a similar core mission to mediate
between local health departments and hard-to-reach, high-risk segments such as
commercial sex workers and intravenous drug users living with HIV/AIDS.
Second, the sites offered interesting contrasts: Denpasar (pop. 459 k at 20161) is
the capital city of Bali with a majority Hindu population. Denpasar is a rapidly
developing business and tourism hub which attracts domestic and international
tourists. Makassar (pop. 1.4 m at 20132) is the capital city of the South Sulawesi
region with a majority Muslim population. The city is a major commercial port.
Established in April 1999, Yayasan Kesehatan Bali (the Bali Health Foundation)
is an NGO known more widely by the abbreviation Yakeba. Focusing on drug and
alcohol addiction in and around Denpasar, Yakeba employs a team of field-based
CHWs to
• Support drug users and people living with HIV/AIDS (PLWHA),
• Provide information about drug abuse and HIV/AIDS to clients and
• Facilitate client referrals to health services (Yayasan Kesehatan Bali, 2014).
Ballata is a drop-in centre in the city of Makassar, South Sulawesi where CHWs
and outreach workers specialising in HIV/AIDS can share stories and information
with colleagues. Ballata was established in 2012 as a provincial government ini-
tiative but today is maintained by a group of PLWHA and IDUs with various
organisational affiliations.
1
http://bali.bps.go.id/linkTableDinamis/view/id/20 accessed 20 July 2016.
2
http://sulsel.bps.go.id/linkTabelStatis/view/id/115 accessed 20 July 2016.
5 Grassroots Opportunities and Barriers to mHealth Design 75
5.7.1 Usage
Based on the individual questionnaire, seven out of ten of the Yakeba participants
reported the mobile as their most important personal communication technology,
and all participants considered the mobile to be of ‘high importance’ in their lives.
5 Grassroots Opportunities and Barriers to mHealth Design 77
The core philosophy of the Yakeba organisation is that people who have lived with
drug or alcohol problems or who are HIV+ are best equipped to help clients with a
similar condition or experience (Yayasan Kesehatan Bali, 2014). Therefore, a
number of the Yakeba participants in this study were PLWHA and/or IDU, and a
key feature of the NGO’s culture was that co-workers should provide a mutual
community of support to their colleagues. As a result, one of the most significant
daily interactions reported by Yakeba participants was the daily in-person Narcotics
Anonymous morning meeting at the main office. The daily message of support
generated by this meeting was sent via SMS to staff unable to attend.
With respect to interaction between CHWs and clients, boundary issues were
reported by some participants since some clients would contact Yakeba CHWs at
78 J. Watkins and E. Baulch
antisocial hours, perhaps to ask for needles or for medication. Yakeba’s Director
had asked the CHW team to erect some boundaries in order to moderate such calls,
e.g. that clients should warn CHWs when their ART supply was getting low, rather
than waiting until their medication had run out to get in contact.
During the fieldwork for this project, the RIM BlackBerry was still the desired
mobile device for much of the Indonesian market (Lee, 2014; Safitri, 2011) and
partly as a consequence, the most popular network within the Yakeba organisation
was the BlackBerry Messenger (BBM) app (although the BlackBerry is now being
supplanted across Indonesia by the Android OS). The individual questionnaire
flagged a gender-based and/or urban/regional digital divide within the participants:
two female participants came from a regional area of Bali and had no BlackBerry,
and hence no engagement with the various Yakeba activities facilitated by BBM—
since BBM was only available on BlackBerry phones at this time.
This was confirmed another CHW who stressed that phone communication with
institutions, health departments or contractors was often inappropriate:
To get to know a client’s condition, I have to physically visit him… Furthermore, insti-
tutional meetings must be done face-to-face. (Translated response to group survey, 08 Sep
2013).
Those who did not work with PLWHA felt less need for face-to-face client
interaction. One respondent pointed out that although BBM was a popular platform
for internal communication, it did not extend to clients:
To communicate with clients, I use the telephone and text messages the most. I rarely use
BBM. Nowadays, clients rarely have or use BB. The intensity of my meeting with clients is
also high. (Translated response to group survey, 08 Sep 2013).
The communicative ecology mapping exercise revealed that some core organi-
sational interactions remained resolutely in-person. For example, the weekly team
planning meeting remained a largely analogue affair: the agenda was circulated on
paper, key weekly activities were written up on the whiteboard and staff members
took notes on paper. Once the main aims and objectives for the week were
5 Grassroots Opportunities and Barriers to mHealth Design 79
Focus groups revealed that as well as communication with clients and colleagues,
the mobile provided a social and emotional link to those Yakeba staff with family in
other parts of Bali or Indonesia. When asked in the group survey about the impact
of mobiles on their lives, some participants underlined the importance of their
mobile phone and their main social network in connecting them to their family
before discussing the use of the device for work. According to one team leader:
I use [BBM] to keep in contact with my family – many of my relatives live far away – but
also to coordinate my team at work, to communicate with peers and with stakeholders at
other agencies. (Translated response to group survey, 08 Sep 2013).
One CHW also spoke of the multiple ways in which she used BBM:
It’s really useful for communicating with family, keeping in contact with clients and peers.
I also use BBM to communicate with workers at the community health service. (Translated
response to group survey, 08 Sep 2013).
During focus group discussion, two participants described their phone as their
second wife/husband, suggesting a significant emotional dependence. Other social
networks used for work and personal communication included Facebook, Twitter,
WeChat and WhatsApp. Interaction with mailing lists was popular with one team
leader:
…other than participating in the office group on BB, I also join in many other groups too…
a high school group; my friends; my relatives; my extended family. For networking, I use
WhatsApp, it has a networking group of Indonesian friends of drugs victims… I have
joined many mailing lists. They can be accessed via my mobile phone. So, in one mailing
list owned by PKNI [a national network of drug user organisations] many teenagers with
HIV have joined in. A social-orientated NGO from Australia often posts comments there.
(Translated response to group survey, 08 Sep 2013).
80 J. Watkins and E. Baulch
Nine participants from the Ballata organisation based in the city of Makassar were
recruited for this study. Their occupations were as follows: field coordinator, project
manager, PLWHA buddy (3), community organiser and NGO activist (3).
5.8.1 Usage
Ballata participants reported the expenditure of between 100 and 300 K rupiah a
month on phone credit which was similar to the figures reported by the Yakeba
participants. All participants reported that their employer did not pay for or sub-
sidise their phone or online connection costs, although in some cases an employer
did provide a laptop for work tasks. Two participants owned multiple handsets.
Most of the participants used a low-cost access plan with cheap voice calls and in
two cases, separate plans were used across different handsets to source the best
price deals.
Comm organiser: Friends. Why friends? Because I think they are best able to
keep a secret.
NGO activist: Internet.
Facilitator: Why?
NGO activist: I don’t have a reason, I just trust it.
Activist: I trust colleagues, because they understand a lot of the
information. Yep, friends and colleagues. I am with my friends
every day. All the information that comes to me, I verify it on
the internet, but that doesn’t mean I get information from the
internet, and swallow it whole. I just use the internet
information to compare with what friends have said.
NGO activist: I believe the internet. If you get information off people, you
have to factor in human error.
Activist: Do you really think there is no room for human error on the
internet?! Who do you think puts this stuff on the internet?!
Sounds like you really believe the internet, then!
NGO activist: Yes, I believe the internet.
(Translated responses to group survey, 08 Dec 2013).
This exchange raises a number of important issues regarding health information
literacy which are further explored in the Discussion (Sect. 4.8).
Both the focus group discussions and communicative ecology mapping indicated a
common behaviour across participants:
• Voice calls were preferred for work conversations, e.g. with external organi-
sations and stakeholders.
• SMS was used for personal communication but rarely for work.
• No social network or platform was used for inter-organisation communication.
• Face-to-face meetings with clients were preferred; in some cases, these meets
were supported by voice calls to remind clients to take medication.
One Ballata CHW working with IDU clients suggested that face-to-face meet-
ings were essential, since some IDUs did not trust the motivations of CHWs:
Developing a relationship of trust with IDUs takes a lot of time, because most of them
assume that outreach workers are keen to move them into rehab, and many of them don’t
want to go to rehab. Many of them are scared of outreach workers for that reason. So
cultivating a good relationship with them is a long process. (Translated interview comment
by male community health worker, 08 Dec 2013).
For example, the Ballata project manager used email to coordinate frequent
meetings with health department officials, whereas one of the NGO activists who
82 J. Watkins and E. Baulch
NGO activist: I only have one phone. I’m the kind of person who doesn’t want to
be complicated. I don’t want to use a BlackBerry and I only have a
BlackBerry by coincidence. I used to have a Nokia but if they get
wet, Nokias are hopeless. BlackBerrys are good, strong. I have had
a Samsung for two years
Facilitator: Can it access the internet?
NGO activist: It can.
Facilitator: What have you installed on it?
NGO activist: Facebook and Twitter. But I don’t use them. I access Facebook
from my laptop. I just get notifications on my phone, so I can
control my phone use.
(Translated response to group survey, 08 Dec 2013).
As indicated by the response from the NGO activist, the use of multiple devices
by these CHWs cannot be understood using a simplistic segmentation such as the
use of separate devices or social networks for family versus work. Furthermore, a
multiple device environment also challenges the implementation of mHealth sys-
tems for CHW use. In principle, we could use a mobile web browser to facilitate
compatibility across multiple mobile phones, but this could cause problems when
the mobile cannot connect in low-/no-network reception areas which can be
expected in the field. In contrast, the use of front-end apps might make offline work
easier, but it may also require the implementation and maintenance of apps across
multiple platforms. Assuming that some PLWHA clients also maintain multiple
phones, the challenges multiply for even a simple system such as automated SMS
medication reminders—how can CHWs and health authorities be sure that remin-
ders are being sent to the correct device, that the device is in credit and is being
monitored by the user?
5.9 Conclusion
Thematic analysis of the qualitative data collected from participants at both sites
confirmed the ability of CHWs in both the Yakeba and Ballata organisations to
mediate between health departments and hard-to-reach, high-risk segments such as
commercial sex workers and intravenous drug users living with HIV/AIDS.
Furthermore, the analysis demonstrated that the mobile phone was an important tool
for CHWs at both organisations in terms of inter-organisation communication,
supplementing or supplanting face-to-face interaction with clients, and maintaining
important personal connections with friends and family. It has been suggested more
generally that the possible application of mobile phones, networks and apps to
community-level mHealth work ‘has intuitive appeal’ (Braun, Catalani, Wimbush,
84 J. Watkins and E. Baulch
& Israelski, 2013). However, this appeal must be weighed against some of the
barriers to informal mHealth adoption by CHWs revealed at the two sites of
investigation, to which other comparable organisations may be susceptible.
Building upon the thematic analysis, the barriers discussed in this section are as
follows:
• Health infrastructure,
• FSW client mobility and
• Information literacy.
A number of policy reports have highlighted the need for the integration of mHealth
solutions within a holistic healthcare delivery strategy (e.g. Lemaire, 2011). With
regard to CHWs, it has been suggested that:
End-to-end patient care systems and point-of-care support for health workers are needed
whereby mHealth applications are interoperable and integrated with provider systems
linking the most remote community health worker with the most appropriate sources of
information when and where it is needed (Mechael et al., 2010, p. 5).
A primary function of the CHWs at both the Yakeba and Ballata organisations was
to offer support and reliable health information to PLWHA from marginalised
groups who might not have access to authoritative health sources either physical or
online. For example, a qualitative study of newcomer FSWs working in Bali found
a lack of knowledge and self-efficacy about HIV prevention due to low levels of
86 J. Watkins and E. Baulch
5.10 Conclusion
The aim of this qualitative study was to test how social and cultural research
methods can be used to anticipate opportunities and barriers to the use of consumer
mobile devices by CHWs working in the area HIV/AIDS. Through the application
of the communicative ecologies framework and qualitative methods, we found no
5 Grassroots Opportunities and Barriers to mHealth Design 87
bottom-up impetus from either NGO for the introduction of a formal mHealth
system to support client interactions. Although mobile phones were used exten-
sively at both sites of investigation to support work-related functions, the clear
preference for CHWs at both the Yakeba and Ballata NGOs was to meet PLWHA
clients face-to-face in order to build trust and conduct an unobtrusive visual health
check. There was limited use of basic SMS medication reminders by some CHWs
but no organisation-wide automated systems to support ongoing adherence to
antiretroviral therapy were in place. Client data collection was conducted using
paper-based systems to ensure compatibility with local government and/or funding
body administrative systems. Some team leaders at the Yakeba organisation saw
little reason to replace the paper-based process with a more automated system
which would require substantial reformulation of and retraining in data protocols
not just by the NGO itself but also by local health departments and funding bodies.
As community health services may often operate on a minimal budget, it was
unlikely that any such reformulation and retraining would be available over the
medium-term. Furthermore, the priority placed on face-to-face client meetings by
CHWs at both the Yakeba and Ballata organisations would continue to physically
limit the number of clients that each CHW could handle as part of their daily
caseload, thereby limiting the possible efficiency gains via mHealth automation that
a policymaker or funding body might seek when considering how to increase the
financial sustainability of ART adherence and retention programmes.
One of the objectives of this book is to recognise that mHealth initiatives cannot
be executed as technical programmes in a vacuum, ignoring the complex social and
cultural contexts in which they are implemented. Our study supports this view to
some extent: by using a communicative ecologies framework to guide this study,
we found that CHWs at both sites of investigation saw no significant opportunities
for an mHealth intervention to improve their existing work processes or to more
closely support client interaction. This is not to say that no such scope exists: rather,
the significant organisational process changes that would be required by NGOs as
well as local, regional and national health departments in order to introduce and
maintain consistent mobile-friendly data collection, and security protocols would
require resources that are not available at this time.
5.10.1 Limitations
This qualitative study was based upon two site-specific localised contexts which
necessarily prevent any generalisation of the findings to a regional or national
platform. Rather, this study should be considered alongside larger-scale quantitative
reports such as the eHealth surveys conducted by the WHO Global Observatory for
eHealth (WHO, 2016). However, our findings do confirm that multiple soft
organisational and cultural barriers to adoption can be expected by any media
88 J. Watkins and E. Baulch
Acknowledgements We thank both the Yakeba and Ballata organisations for their full and open
participation in this study. This research was funded by the Australian Research Council Discovery
Project scheme Mobile Indonesians, DP130102990. Initial findings were presented both to the
International Communication Association regional conference, Brisbane 01–03 October 2014 and
the Workshop on Mobiles and Social Media in Southeast Asia and the Pacific, University of
Sydney, 12–13 November 2015. We thank the reviewers who have provided feedback to earlier
versions of this chapter.
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Open Access This chapter is licensed under the terms of the Creative Commons Attribution 4.0
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Chapter 6
mHealth, Health, and Mobility:
A Culture-Centered Interrogation
Abstract In this chapter, we examine the interplays of the symbolic and the
material in the constructions of mHealth. By attending to the key themes that play
out in discourses of mHealth, we examine critically the ways in which power plays
out in the structuring of mHealth solutions. The articulation of mHealth as
instrumental to generating positive health outcomes in communities across Asia
erases the contexts within which mobile technologies are constituted. mHealth
interventions reproduce the logics of the state and the market, reproducing com-
munities as homogeneous and monolithic sites of top-down interventions.
6.1 Introduction
Although mHealth in Asia has captured the interest and excitement of many
scholars (Labrique, Vasudevan, Chang, & Mehl, 2013), the extent of mHealth’s
contribution to health outcomes in the region has been a source of contention. On
6 mHealth, Health, and Mobility: A Culture-Centered Interrogation 93
to the other. Therefore, any mHealth effort must be tailored according to the culture
in which it is employed.
Despite substantial scholarly critiques, the mHealth industry is rife with claims
of miraculous effects, removed from the everyday lived experiences of communities
with the health effects of mHealth. Moreover, the framing of Asia as a site for
mHealth innovations paradoxically erases the cultural contexts that shape the
meanings people make of the technology and the ways in which they interact with
the technology in their lived experiences (Dutta-Bergman, 2005). In other words,
the story of mHealth crafted in the dominant sites of knowledge production (in-
ternational funders, academics in global organizations, mobile corporations, tech-
nology corporations, health corporations, civil society groups) on one hand
reproduce the empirically removed claims about the transformative power of the
technology, and on the other hand, obfuscate the cultural contexts within which the
technology is constituted in the daily lives of community members. In the next
section, we will interrogate the ways in which the concept of the community
emerges in articulations of mHealth.
The mobile phone has been studied as a tool that has the potential to narrow the
digital divide, specifically across communities that are typically disenfranchised and
resource poor. Community therefore emerges as a conceptual category in the
framing of mHealth. With the popularization of the mobile phone across the globe
and more specifically in Asia, the mobile phone today is available and affordable to
almost all strata and socioeconomic classes in many societies of Asia. This claim of
the ubiquity of mobile phones in Asia forms the bedrock of the knowledge claims
of mHealth. To illustrate, the mobile phone is used by a large proportion of the
Indian population, including 16.6 million rural users that consists of new sub-
scribers each month (Cumiskey & Hjorth, 2013). Similarly, in the Philippines,
connectivity of mobile phones in sparse and topographically challenging regions
are common, with prepaid mobile services more common among low-income users
(Zapata, 2016). Zapata (2016) thus, opines that “the pervasiveness of the mobile
phone even in remotest communities is noteworthy of attention” (p. 4).
The adoption of the mobile phone has led to the belief that mHealth interven-
tions can be potentially transformative for communities where healthcare services
may be relatively inaccessible (Cumiskey & Hjorth, 2013). Asia has seen a sig-
nificant number of mHealth interventions for the purposes of enacting behavior
modifications for better health outcomes (Gurman et al., 2012). mHealth has been
recognized as a technological advancement that has the potential to reshape the
ways in which health services can be consumed by different segments of popula-
tions and communities in Asia that are often demographically, socially, and cul-
turally, heterogeneous. This means having to provide a range of healthcare services
that meet a wide variety of needs across diverse spaces, including previously
96 M. J. Dutta et al.
contributed to the success of the technology in health outcomes, the study found
that success or failure depended on the role of the community healthcare workers’
involvement in mHealth as opposed to the design, interface, or specific qualities of
the technology itself. Additionally, in resource-constrained Asian countries that do
not have substantially trained healthcare providers, community healthcare workers
adopt mHealth technologies for instruction and guidance from experts such as
doctors and nurses when dealing with patients and their care. In many Asian
countries that make up the global south, mHealth projects are gaining traction as
mHealth technology is seen to empower workers situated in rural areas through
increasing knowledge, skills, and supervision, while integrating these workers in
the national healthcare system. They are also trained in assisting with patient
referrals and follow-up treatments (Khokhar, 2009; Watterson, Walsh, & Madeka,
2015).
Both community health workers and patients recognize that mHealth can alter
the quality of patient care positively, but studies in these areas have found signif-
icant challenges and barriers that impede the use of mobile technology in delivering
health services. These include inconsistencies in the kinds of smartphones used by
community healthcare workers that lead to poor imaging of the condition, which in
turn, causes difficulties in assessing and diagnosing patients (Asgary et al., 2016;
Free et al., 2013). Additionally, a systematic review of mHealth interventions on
community healthcare workers found that most interventions were overwhelmingly
focused on the context of the global North, with many of them having limited
success outside of that space (Free et al., 2013). Missing from these studies are the
cultural contexts, and more specifically, the cultural contexts of Asia. Bangladesh is
a popular example, since—with more than 20 current initiatives—mHealth is val-
ued as a potential supplement to an over-burdened healthcare infrastructure which
faces a significant shortage of healthcare workers (Khatun et al., 2016). In such
celebrations of mHealth among communities in Asia however, the very notion of
communities and their local contexts remain mostly absent.
mHealth technology has been used to mobilize health messages that range from
inducing knowledge to increasing participation in campaigns that involve screen-
ing, immunization, or counseling among hard-to-reach communities. Essential to
these articulations of mHealth technologies is the positioning of communities at the
margins as recipients of expert solutions, carried by mobile technologies. These
top-down, expert-designed health messages are meant to induce positive behavioral
modifications among communities that may typically not have knowledge or access
to such facilities, without institutionalized message dissemination (Kay et al.,
2011). Despite mHealth being implemented in a variety of communities battling
different medical challenges, studies on effectiveness and health outcomes have not
98 M. J. Dutta et al.
as inaccessibility and unfamiliarity with the technology and with the formal doctors
that were working with them through the call centers (Khan et al. 2015). Among
vulnerable communities, uncertainty of mHealth applications may further inhibit
use. Nachega et al. (2016) found HIV-infected pregnant mothers feared unintended
or accidental disclosure, and therefore had specific expectations, such as alerts and
reminders they wanted to be sent within specific hours of the day. The specificity of
timings regarding these alerts had to do with managing their privacy, so as to
prevent their status as HIV-infected pregnant mothers from being disclosed.
mHealth in Asia is also seen as a potential technology to overcome mental health
stigmas, where mental health and suicide are viewed negatively. Note in these
studies the absence of culture on the one hand, and the instrumental logics of
conceptualizing culture on the other hand. The cultural spaces of community life
and the meanings of health in these cultural spaces remain erased from the con-
figurations of mHealth, turned into targets for top-down, expert-driven
interventions.
Top-down understandings of how technology is used fail to account for the
nuances in mediation of technology use and its manifestations in communities that
have alternative ways of understanding and conceptualizing technology (Zapata,
2016; Chib, 2013). Jennings et al. (2016) therefore conclude that for mHealth
interventions to be successful, communities must be engaged right from the onset of
the intervention design, to fully understand the contextual and community com-
plexities in health barriers, before moving into the distribution of mHealth services.
As communities are largely shaped by these structural and cultural variances,
mHealth application must assess and locate these differences in order to success-
fully develop an intervention that is meaningful and viable for hard-to-reach
communities. Hall et al. (2014), after conducting a systematic review of mHealth
among middle- and low-income communities, posit that mHealth continues to show
positive signs for future interventions that are feasible for resource-poor commu-
nities. However, these claims of mHealth and their effectiveness in impacting
community health outcomes ought to be situated within broader discussions of
technology, state, and the market. Contemporary health discourses individualize
health responsibilities and unburden states from addressing health disparities,
depicting the overarching neoliberal ideology of organizing health (Dutta, 2015).
By adopting techno-optimist solutions, such as mHealth, as solutions to inequali-
ties, states can justify allocation of resources to the margins as inefficient, leaving
the broader structures of inequality intact (Dutta, 2015).
6.6 Conclusion
Articulations of mHealth in Asia are situated within the logics of health tied to
frameworks of global capital flows. In the conceptualizations of mHealth in Asia,
health emerges as a market-based commodity to be delivered through privatized
mobile technologies. The movement of health from the centers of knowledge
production to distant spaces in Asia through mobile technologies is constituted in
the erasure of culture and community as sites of meaning making. Expert knowl-
edge developed in networks of power is disseminated through mobile technologies
6 mHealth, Health, and Mobility: A Culture-Centered Interrogation 103
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Chapter 7
Smart Health Facilitator: Chinese
Consumers’ Perceptions
and Interpretations of Fitness Mobile Apps
Huan Chen
7.1 Introduction
According to eMarketer (Statista, 2016), there were more than 1 billion Chinese
mobile phone users in 2015. The number of Chinese mobile Internet users has
reached 695.3 million and 72.6% of the mobile Internet users in China live in cities
(CNNIC, 2017). Many such consumers—especially Chinese urban consumers—are
intentionally or unintentionally integrating their smartphones into their everyday
fitness and health routines by way of mobile fitness apps. For example, Keep, one
of the most popular fitness apps in China, has more than 30 million users (Dahl,
2016). Although data on mobile fitness apps use exists, to date no study has been
conducted to examine how Chinese consumers perceive and experience those apps,
and the broader social, and cultural changes these experiences may flag. Previous
qualitative research on mHealth in China has focused on health education, chronic
H. Chen (&)
College of Journalism and Communications, University of Florida, Gainesville, USA
e-mail: [email protected]
disease management and texting for health, but not on more recent developments,
such as smartphone-enabled health and fitness apps. Broader scholarship on fitness
apps has been primarily quantitative and positivist in nature; little of the existing
work on fitness apps explores their qualitative dimensions.
The current study is designed to fill this research gap. It not only extends existing
scholarship but also holds important implications for fitness app development and
for healthcare management. Its qualitative approach affords fitness apps developers
with useful insights needed to tailor their products to Chinese consumers. It also
holds the potential to inform Chinese healthcare organizations on how to use mobile
fitness apps to help their patients manage their health and wellbeing.
7.3 Methodology
The question I address in this study is how Chinese consumers interpret mobile
fitness apps as part of their everyday life. I used interpretative phenomenology
analysis (IPA) to explore this question. IPA is a qualitative research method aimed
at revealing the meanings a particular phenomenon holds for participants, and it
involves the researcher interpreting the participants as they themselves interpret
what is happening around them (Smith, Flowers, & Larkin, 2009). IPA has been
widely applied in health research to explore a variety of topics (Smith, 1996; Fade,
2004; Brocki & Wearden, 2006). It is considered as a useful and valuable research
method for understanding health care from the patient or service user perspective
(Biggerstaff & Thompson, 2008).
According to App Annie (2016), the top fitness and health mobile apps in China
include Keep, CoDoon, MiFit, Run, and Nike + Run Club, and indeed these apps
emerge from the current study as significant to participants’ fitness regimes. Since
the majority of the smartphone users are living in urban areas (CIW, 2015), the
study targeted Chinese urban consumers, of at least 18 years old, who owned a
smartphone, and were current fitness app users. Purposive sampling and snowball
sampling guided recruitment of participants. The criterion for sufficient sampling
is saturation, that is, the point at which no new concepts and themes emerge
112 H. Chen
(Corbin & Strauss, 2008). In total, 20 participants (eight males and twelve females)
were recruited and participated in the study. Their ages ranged from 18 to 70 years
and their experience with mobile fitness apps ranged from 2 months to 4 years
(Table 7.1).
In-depth interviews were used to collect data. The in-depth interview is the most
commonly used method in phenomenological investigation (Moustakas, 1994;
Thompson, Locander, & Pollio, 1990). It is a powerful qualitative method of
phenomenological investigation because it “gives us the opportunity to step into the
mind of another person, to see and experience the world as they do themselves”
(McCracken, 1988, p. 9). It only sets broad parameters for the discussion, leaving
participants free to tell their own stories. A loosely structured, discursive conver-
sation is a good way to access participants’ conscious experiences and allow their
realities to emerge. Specifically, online in-depth interviews via WeChat were used
to collect data. Previous research (Deakin & Wakefield, 2014) suggests that
although there are benefits and drawbacks, online interviewing via social media
messaging software can be useful to supplement face-to-face interviews. WeChat
has a video chatting function. All the in-depth interviewers were conducted using
video chatting. In this way, the researcher could interact with her participants and
notice their nonverbal cues, just as in offline face-to-face interview situations. Each
interview lasted approximately 30 min. To provide an accurate record of partici-
pants’ comments, all the interviews were audio recorded and professionally
transcribed.
Focused on the central phenomenon under investigation and broad research
question, an interview guide was developed to reveal the meanings the participants
constructed for mobile fitness apps and to initiate and facilitate conversations with
participants. The main topics discussed during the conversations include partici-
pants’ general workout routines, their selection and adoption of mobile fitness apps,
their usage and experiences of mobile fitness apps, advantages and disadvantages of
mobile fitness apps, and their suggestions for future improvement of mobile fitness
apps. Following the emergent design tradition in qualitative research (Creswell,
2013), I changed and adjusted specific questions during each in-depth interview
informed and guided by my participants’ responses.
Four major themes emerged from the data set, which I discuss below. One theme
refers to various ways in which the participants selected and adopted fitness apps,
during the process they made decisions on which mobile apps to download either
paid or free and to integrate them into their everyday workout routine. Such vari-
ations unfolded along the lines of singular use (use of one app) versus multiple use
(downloading and use of multiple apps). Another referred to the various ways apps
enabled people to control and order their lives. On the one hand, some participants
spoke of their use of apps to motivate a life-changing fitness regime. On the other,
others spoke of the limitations of apps’ amenability to a variety of fitness practices.
A third theme referred to people’s different perceptions about the apps’ capacities to
improve their quality of life. Some participants talked about how using fitness apps
improved their state of mind and general happiness, while others expressed con-
cerns over becoming too dependent on the apps. A final theme referred to the
7 Smart Health Facilitator 113
various capacities of apps to connect people to one another or, conversely, make
them feel lonely. Some participants stated that they felt fitness apps did little to
connect those seeking to take part in conventional team sports, such as basketball or
football. Others enjoyed the online socializing that took place among those using a
particular app.
The interviews reveal participants selected and adopted mobile fitness apps in
various ways. One group of people (n = 10) selected and downloaded one fitness
app and used just that one app. A second group of people (n = 3) selected and
downloaded multiple mobile fitness apps but used only one app; a third group
(n = 7) selected, downloaded, and used multiple mobile fitness apps. The partici-
pants’ fitness and health goals and knowledge of fitness and technology seemed to
play a role in this selection and adoption process. In general, people with clear
fitness goals have more knowledge of fitness and technology, and tended to choose
and use multiple mobile fitness apps. Participants’ level of comfort with mobile
technologies was also a factor determining the number of apps they used as the
following quotes from Sunny, Nancy, and Jean show:
I only use WeChat Health to track my steps, and I don’t use other mobile fitness apps.
(R: Why not?) I feel that other mobile fitness apps are complicated and I don’t have a strong
fitness goal such as losing weight like others. … I know iPhone has a health app. But it
requires too much personal information. I don’t want to input too much of my information.
I’m a little concerned. So I don’t use it either (Sunny, female, 53, accountant).
I tried a lot different mobile fitness apps. If I know there is a new app, I will download and
try it. If I don’t like it, I will then delete it. … The only app that I have been using for two
years is the period tracking app called “大姨妈” (big aunt) (Nancy, female, 23, graduate
student).
7 Smart Health Facilitator 115
I use multiple mobile fitness apps in my daily life. I’m using My Asics, Adidas Train &
Run, Connect, Run, and Codoon. You know, each of these apps performs different func-
tions for me. My Asics tells me all the statistics of my health, like my heartbeat, sleep
quality, my pulse, and so forth. Adidas Train & Run shows me all my running data. It not
only tells me how long I run and tracks my running path. It also informs me about other
specialized data such as my average pace, heart rate, average altitude and so forth (Jean,
female, 39, owner of a casual restaurant).
Previous research revealed some personal and social incentives that may moti-
vate consumers to use and experience fitness mobile apps (Chen & Pu, 2014;
Millington, 2014). For instance, Chen and Pu (2014) emphasized the social
incentives of competition and corporation while Millington (2014) focused on a
broader personal incentive of bettering the self. The current study uncovers another
important personal factor—the knowledge of fitness and technology as a possible
motivational incentive for consumers to adopt mobile fitness apps. Compared to
previous research (Chen & Pu, 2014; Millington, 2014), the incentive revealed in
the current study is more self-oriented and specific, which brings some implications
for both app developers and healthcare workers. One of the important implications
is that app developers and healthcare workers need to take into account the various
levels of technological literacy that exist among users when promoting and
encouraging people to use mobile fitness apps. For example, app developers may
design different versions of one mobile fitness app tailored to different user groups’
needs. For users with little knowledge about fitness or lacking specific fitness goals,
the version of the mobile app may embed more educational information of fitness
knowledge and fitness goals to enhance users’ literacy. Similarly, for users with rich
knowledge of fitness and having specific fitness goals, the version of the mobile app
may limit the educational content but add more advanced features and functions to
help those users to meet their fitness needs in a more effective and efficient way.
Healthcare workers should take patients’ technology comfort level into consider-
ation when recommending mobile fitness apps to their patients. For technology
aversion patients, healthcare workers may show some easy-to-use mobile fitness
apps to mitigate their stress and motivate them to try on those apps. By contrast, for
technology savvy patients, healthcare workers should recommend mobile apps that
better fit with their patients’ healthy goals without worrying too much about
technical issues they may encounter during their usage.
According to the participants, the usage of mobile fitness apps on one hand offers
them a sense of control; on the other hand, however, some participants felt that
certain physical and geographical constraints inhered in fitness apps, and prevented
them from using the apps in ways that fitted with their preferred fitness practices.
The sense of control means better care of their health condition and body image,
better time management, better knowledge of fitness, and ultimately a better life.
116 H. Chen
Many participants mentioned that mobile fitness apps helped them better track and
monitor their daily physical activities, such as numbers of steps and duration of
running time. Simply by seeing the numbers, they became more conscious of their
health condition and are more motivated to work out and achieve their health and
fitness goals. In addition, the participants also enjoyed the flexibility of mobile
fitness apps that fits their everyday busy schedule. The participants also mentioned
that mobile fitness apps helped to educate them about their health. Finally, they
claimed that the apps facilitated their behavior change and formed a healthy life
routine thus improving the quality of their lives. Henry, a 38-year-old IT technician,
told the researcher that his workout and mobile fitness apps improved the quality of
his life.
It’s a long story. You know, I’m an IT worker. I work long hours. It is a very stressful
career. After I had my second child, my wife quit her job and became stay-at-home mom.
I was the only bread winner. I felt much more stressed. That was a few years ago. At that
time, I felt that my health condition was not very good. I wanted to sleep all the time and
felt dizzy at 4 o’clock in the afternoon. I realized I have to change to make my life better.
So I downloaded Codoon and started running. I was an amateur runner back then. I had no
knowledge about running. I run a short distance every day and Codoon tracked my running
records. After running for a while, I felt that my condition improved. I joined the online
community of Codoon and know many running lovers there. We shared our running
experiences, communicated, and supported each other. My knowledge of running increased
through those online exchanges. With my friends’ encouragement, I decided to run a
marathon. I first ran a mini marathon, and then 5 km marathon to 10 km marathon. Now I
participate in marathon every year. During the process, I felt that I need more specialized
and professional app. Therefore I downloaded Nike Running and later bought Garmin
watch. … Running not only improved my health condition but also helped with my mind.
A few years ago, I didn’t read books. I felt that I read too slow and can never finish reading
a book. After my health condition is getting better, my brain seems improved as well. Now
I’m reading much faster and I try to read a book every month. Since I benefited from my
running experiences, I also encouraged my wife to run. Now, she runs an hour every
evening after putting our children into bed. … In summary, I’d say that running has
changed my life and improved the quality of my life (Henry, male, 38, IT technician).
As is evident from the above quote, mobile fitness apps afford users a sense of
control over their bodies and lives. Previous research suggests that one of the most
important claimed benefits of mobile fitness apps is enabling clear, quantifiable,
improvements in personal health (Millington, 2014). Findings of the current study
offered a detailed, rich, in-depth, and thick description of this claimed benefit from
consumers’ own perspective thus materializing and concretizing the concept in the
cultural context of China.
While some participants deemed mobile fitness apps to enable them to better
manage their lives, other spoke of apps’ limited capacity to fit with and enhance a
diverse range of fitness practices. Some participants mentioned that the mobile
fitness apps limited their outdoor activities. They pointed out that they have to
watch videos and follow instructors via certain mobile fitness apps. Therefore, they
can only exercise in indoor spaces such as their own houses or apartments. Other
participants indicated that their workouts were constrained by limited options on
mobile fitness apps. For example, some mobile fitness apps only offer a certain
7 Smart Health Facilitator 117
number of exercises videos and others can only track certain kinds of workouts.
Sam, a 21-year-old undergraduate student, and Wendy, a 19-year-old freshman
both talked about the limitations of mobile fitness apps.
I can only use mobile fitness apps in my house or my dorm. I have to follow the videos via
the apps. Sometimes, the videos require some equipment which I don’t have at home. …
How to say, I work out not just for exercise but also to relax and have fun which I believe
the mobile fitness app cannot offer to me (Sam, male, 21, undergraduate student).
I don’t like Keep. (R: Why?) When I use Keep, I can only use it at home by myself. I’d like
to go to gym. In gym, I can work out, talk to my friends, and listen to music. In addition,
there are also professional trainers in the gym to help me with my training, When I use
Keep, I can only figure out the skills by myself (Wendy, female, 19, undergraduate
student).
Similar to previous research, the current study found that the perceived useful-
ness and benefits (Deng, 2013) as well as facilitating conditions (Zhang et al., 2013)
are shaping Chinese consumers’ evaluation of mobile fitness apps. Specifically,
according to the participants, as revealed by the current study, the perceived use-
fulness and benefits means better care of their health condition and body image,
better time management, better knowledge of fitness, and ultimately a better life
while the facilitating condition refers to the overall affordance enabled by func-
tionality of mobile fitness apps. In addition, the current study further revealed
“control” as an essential factor that may facilitate Chinese consumers’ usage and
experience of mobile fitness apps. Thus, companies and healthcare workers should
try to enhance consumers’ sense or perceived sense of control when promoting and
encouraging people to use mobile fitness apps.
Participants not only spoke of how the usage of mobile fitness apps helped them to
lose weight, keep fit, and look better but also of the sense of empowerment that
came from the improvement of their quality of life. They claimed that using mobile
fitness apps challenged them, energized them, and helped them to gain mental
strength. They also talked about how mobile fitness apps facilitated new kinds of
social interactions. Leo, a 70-year-old retiree, discussed how exercise and mobile
fitness apps helped him to live a better life.
After I retired, I have much more time to exercise and to achieve some fitness goals. … Ten
years ago, when I went to Grand Canyon and walked two hours, I felt exhausted. Last year,
when I went to Los Glaciares National Park I walked the whole afternoon about 10 km and
didn’t feel very tired. … I downloaded Codoon a couple of years ago. I saw my friend
shared his walking statistics on WeChat moments. I was curious. So I asked him. He told
me it was a mobile fitness app. So I downloaded it as well. (R: How does Codoon perform a
role in your everyday workout routine?) You know, the Codoon could record the duration
of your walk and track the routes of your walk. You can share the information on your
WeChat. Since many of my friends are using Codoon, we monitor and support each other.
118 H. Chen
Sometimes, we will communicate with each other about our workout experiences on
WeChat. … Well, mobile fitness apps helped me to achieve my goal which is live a better
life every day (Leo, male, 70, retiree).
While applauding the advantages of mobile fitness apps, the participants also
showed concerns regarding the negative side of this new type of technology. In
particular, the participants expressed their concerns about the possibility of
overdependence on the mobile fitness app, and how that may limit their freewill and
hinder that independence.
You know, I had my daughter three months ago. I need to lose weight quickly. So I
downloaded Keep and used it everyday. Now I feel that I have to have Keep to guide my
workouts. Without using it, I don’t want to budge my body. So I’m wondering if I’m too
dependent on it (Mandy, female, 26).
Previous literature on both mHealth and mobile fitness apps mainly focuses on
analysis of services and apps (Conroy et al., 2014; West et al., 2012) or consumers’
cognitive and attitudinal evaluation of those services and apps (Deng, 2013; Zhang
et al., 2013). Although a couple of previous studies (Corpman, 2013; Li et al.,
2014) discussed some societal and environmental conditions of mHealth penetra-
tion in the context of China, the current study supplemented the previous literature
by uncovering the possible societal consequences of mobile fitness apps from the
perspectives of Chinese consumers.
By contrast, some participants believed that the mobile fitness apps provide a
portal for them to connect with like-minded consumers thus fostering a sense of
belongingness and togetherness. For instance, Jade, an editor in a publishing house,
vividly described how mobile fitness apps connect her with running mates and later
they formed a closed social media group to communicate and support each other.
I’m using TulipSports …Because I shared my running statistics on my WeChat moments
via TulipSports, one of my friends introduced me to a closed WeChat group formed by
running lovers. At the beginning, this WeChat group was established by a few Tsing Hua
university graduates. It is a closed social media group. You can join it only by invitation.
Because of this, the group members are relatively upscale. However, the group is very
active. People communicate and socialize online all the time. Basically, they use numbers
to socialize. You need to check in everyday by telling people how long you’ve run, swim,
or ride. Based on the statistics people submit, there is a daily rank on the first page of the
group. It is very interesting to see people compete with each other to be honored on the first
page (Jade, female, 35, editor).
Previous research on mHealth and mobile fitness apps investigated the role
mHealth services play in interventions to address mental illness (Li et al., 2014;
Stragier & Mechant, 2013; Chen & Pu, 2014). The current study engages this work
by highlighting some of the novel dimensions of the link between mobile tech-
nologies and mental wellbeing. Above we see how people not only perceive fitness
apps as technologies that enable or constrain their ability to maintain fit and healthy
bodies, but also affect their ability to be social. Some interviewees consider fitness
apps to impede on the social, but others consider them to enhance it. The social
aspect of fitness apps is important for apps developers and health services to take
into account. As these interviews with users show, the social affordances of fitness
apps depend on the user, highlighting the difficulty of ascertaining a known social
impact of any one fitness app. The various responses recorded above highlight the
importance of trialing particular fitness apps in any endeavor to provoke behavioral
change around fitness practices in a given population.
7.8 Conclusion
This study explored Chinese consumers’ understandings of mobile fitness apps. The
study uncovered four major themes with regard to the meanings that the participants
constructed for mobile fitness apps. The study has several important scholarly
implications. First, it revealed the selection and adoption of mobile fitness apps to
be a complex and dynamic process. Similar to the general adoption of mHealth
(Deng, 2013; Zhang et al., 2013), Chinese consumers’ selection and adoption seems
to be influenced by perceived usefulness and benefits, external cues, and subjective
norms. In addition, the study uncovered a number of individual factors that shape
the selection and adoption process such as fitness goals, fitness knowledge, tech-
nology knowledge, and comfortable level with technology.
120 H. Chen
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Open Access This chapter is licensed under the terms of the Creative Commons Attribution 4.0
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Chapter 8
Afterword: Reflections on a Decade
of mHealth Innovation in Asia
Arul Chib
A. Chib (&)
Nanyang Technological University, Singapore, Singapore
e-mail: [email protected]
structural inequalities. Despite claiming financial control, the women report being
bought phones by their male children, feeling pekewuh or discomfort when using
the phone due to perceived neglect of domestic duties, and feeling sungkan or
shame when contacting the mantri or doctor, perceived as having higher social
status. Such attitudes and behavior, both internalized and enacted, seem at odds
with diabetes self-management, a far from trivial concern. This is not the only
illustration—it is worth noting the active gender discrimination and low social
status of Pakistani lady healthcare workers reported by Tariq and Durrani (Chap. 2)
which inhibit the acceptance of mHealth solutions.
It would be interesting to analyze whether communicative behaviors merely
indicate inhibited agency and autonomy or whether these tools can simultaneously
produce resistance and negotiation in response to established sociocultural
inequalities (Nguyen et al., 2017). In Chap. 4, Pitaloka regards text messages as
communicative practices that create an alternative space for negotiation. This case
echoes the dialectic negotiations via mobile communicative practices (including
hiding and sharing) that midwives in Aceh Besar employed to develop a nascent
gender consciousness in relation to their social positionalities (Chib & Chen, 2011).
Like the Acehnese midwives, Javanese diabetics engaged in culturally appropriate
communicative practices of restraint in purchase and usage of mobile phones, often
mediating both these practices via males, allowing them to enact agency while
minimizing possible social repercussions by upholding the unequal social order.
This suggests that mHealth programs and practices then require evaluation beyond
the immediate objectives of improved health outcomes, to encompass the broader
range of social structural change that occurs simultaneously, particularly in the area
of power inequality.
A final note concerns the hegemonic practice of solely applying theories,
regardless of appropriate application, developed in, and in relation to, Western
frames and contexts, which does the cultural heritage of Asian communities, and
Asian researchers, a disservice. I discuss the importance of the development and
advancement of culturally contextualized theoretical frames for mHealth in Asia, as
Asian scholars find few opportunities to substantially contribute to original theory.
Certainly theory requires generalizability from specific contexts to others, but should
also shed light on and glean insights from them. As described earlier, the chapter by
Pitaloka (Chap. 4) provides us a range of sociocultural norms such as pekewuh and
sungkan that advance our understanding of the constraints facing Javanese women.
Given the spate of mHealth studies concentrating on SMS (see Cole-Lewis &
Kershaw, 2010; Deglise et al., 2012; Guy et al., 2012; Krishna, Boren, & Balas,
2009), it would be interesting to see how the Indonesian examples could inform
(generalize to) the broader field.
In Chap. 5, Watkins and Baulch find that participants prefer face-to-face
encounters to mediated communication by mobiles phones, as a means to build and
maintain trust. These communicative practices were hardly static, being highly
dependent on the situation, and importantly, the social position of the party
encountered. This case study is similar to that of barefoot doctors at the margins of
8 Afterword: Reflections on a Decade of mHealth Innovation in Asia 129
the healthcare system in China (Chib, Si, Hway, & Phuong, 2013), who utilized
mobile phones to negotiate professional relationships depending on the social
capital therein. While such a Western theory could well describe the phenomenon
encountered, the Chinese cultural concept of guanxi provides far greater explana-
tory power and deeper insights. We find that guanxi relations describe the power
hierarchies of rural barefoot doctors vis-à-vis their urban counterparts, who as the
insider network, have greater medical knowledge, access to health resources, and
comprise the formal healthcare information system (HIS). Rural doctors then utilize
mobile phones in a parallel guanxi system using their existing social networks. The
Chinese concept of social relations thus provides us insights into barriers faced in
implementation of HIS. Further, the concept can be incorporated into program
design for interventionary programs that minimize top-down centralized control in
favor of more participatory designs that give voice to the margins. The implications
from the cautionary tale of guanxi mimics the recommendations of Watkins and
Baulch (Chap. 4) to pay attention to the sociocultural contexts of mHealth
implementations.
In Chap. 7, Chen examines mHealth apps, having gained popularity in China
with the proliferation of smartphones, and finds that levels of app integration into
lifestyles and perceptions of the role of apps vary between users. Users have dif-
fering comfort levels and knowledge of how the apps work, leading to different
usage patterns. In the intrapersonal sphere, while some users appreciated how apps
gave them greater control over their health, others were worried about being
over-dependent on apps. In the social sphere, mHealth apps gave users a sense of
belonging to a larger community with similar health pursuits, but also caused some
to feel lonely as apps facilitated exercise conducted in isolation. Chen proposes that
app developers take into consideration how to empower users to feel in control of
their health regime, and integrate them into a larger health community through
social features in the app. Krömer (2016) argues that few mHealth projects have
applied the theoretical concept of empowerment, with existing theories relating to
either personal or psychological motivations. There is an opportunity to develop
culturally relevant theorizing to integrate empowerment with social influences from
a Chinese (Asian) perspective.
In conclusion, one might very well ask whether the ‘hard scholarly evidence’, the
lack of which our editors lament, has been indeed discovered. We would do well to
pause before making judgments about evidence of impact, given the range of
illustrations available, and the respective lenses that varied stakeholders will use to
examine the evidence base. The contribution of this volume is to argue for the
application of a sociocultural structural lens to issues of power within complex and
variegated societies which applies beyond that of the mHealth domain. This set of
empirical and conceptual contributions provides such a lens, allowing us to shift the
needle just that bit forward. This collection is exemplary in bringing a range of
(new) voices in mHealth in Asia to the fore. The discipline can only gain from the
increased research capacities and the growing body of sophisticated analysis and
evidence.
130 A. Chib
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Open Access This chapter is licensed under the terms of the Creative Commons Attribution 4.0
International License (http://creativecommons.org/licenses/by/4.0/), which permits use, sharing,
adaptation, distribution and reproduction in any medium or format, as long as you give appropriate
credit to the original author(s) and the source, provide a link to the Creative Commons license and
indicate if changes were made.
The images or other third party material in this chapter are included in the chapter’s Creative
Commons license, unless indicated otherwise in a credit line to the material. If material is not
included in the chapter’s Creative Commons license and your intended use is not permitted by
statutory regulation or exceeds the permitted use, you will need to obtain permission directly from
the copyright holder.