Teaching Reading Skillsto Learnerswith Down Syndrome
Teaching Reading Skillsto Learnerswith Down Syndrome
Teaching Reading Skillsto Learnerswith Down Syndrome
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Sandro Sehic1
1MVCC Education Opportunity Center, 524 Elizabeth St., Utica, NY, USA.
Abstract
1. Introduction
Learning is defined as the acquisition of new knowledge and skills. The learning process is not easy
especially when learners have been diagnosed with learning and intellectual disabilities. Students with special
needs learn differently from their peers of the same age. Their learning success (unfortunately) depends to a
great extent on the degree of their learning or intellectual disability. Learning disabilities and intellectual
disabilities are mental-cognitive barriers that disrupt learning process by preventing learners from acquiring
new information and skills in a desirable manner. A special brain has special needs and requires special
instructions to receive, process, and store certain information.
Over the centuries, many different educators, psychologists, and philosophers have attempted to solve the
mystery of the human comprehension process. Educators (teachers) agree that humans acquire knowledge in
many different ways depending on their learning styles, aptitudes for learning, and previous knowledge.
However, understanding the learning styles and needs of regular students is relatively easier than
understanding those of students with special needs. How a special brain acquires and processes new
information is still a great mystery, and educators and psychologists are constantly researching the subject. If
they understand how the special brain works, educators (teachers) can adopt (or prescribe) proper teaching
methods or therapies that will facilitate the learning process of students with special needs.
The purpose of this research paper is to explore teaching and learning styles that facilitate the
reading/learning process of learners who have been diagnosed with Down syndrome. Various intellectual and
physical disabilities that may severely disrupt the learning process impact learners with Down syndrome
unlike many learners with learning disabilities. Down syndrome and other conditions that cause intellectual
and physical disabilities require a special approach by educators. Such an approach enables them to determine
the learners’ cognitive and physical abilities in order to instruct them using proper teaching methods and
possibly place them in a special learning environment that will help them achieve the desired learning
objectives.
The purpose of this research paper is not to create new teaching methods or to find therapies that will
assist learners with Down syndrome. Rather, it is to explore learning and teaching methods that are
appropriate for learners with Down syndrome and can benefit teachers and learners equally.
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(Hildyard, 2003). That means that the number of chromosomes is greater in Down syndrome patients than in
people without the abnormality.
Normal people are born with 46 chromosomes, 23 inherited from each parent.
These chromosomes carry the genes, which are the chemical messages that
determine how we will develop. Some babies are born with an extra chromosome
known as trisomy 21. As a result, they develop abnormally in several ways.
(Hildyard, 2003)
Down syndrome results from the presence of extra chromosome known as trisomy 21. It is important for
all educators to know that it takes three forms: trisomy 21, the mosaic form, and translocation. Trisomy 21,
the most common form of Down syndrome, affects about 94% of all individuals with the disorder. “Trisomy 21
occurs following faulty chromosomal distribution in the formation of the sperm or egg prior to fertilization.
Specifically, non-dysjunction during meiosis results in either the sperm or the egg having an extra 21 st
chromosome” (Down, 2005).
In the mosaic form of Down syndrome, “non-dysjunction occurs after fertilization during one of the initial
cell divisions. When this takes place, the individual has a mixture of cells containing 46 and 47 chromosomes”
(Down, 2005). Moreover, translocation the third form of Down syndrome, “occurs when part of the 21 st
chromosome becomes detached from the rest of the chromosome during cell division and attaches to another
chromosome” (Down, 2005).
According to the National Down Syndrome Society, “one in 691 babies are born with Down syndrome.
There are more than 400,000 people living with Down syndrome in the United States” (National Down
Syndrome Society, 2011). Down syndrome is more common among males than females. According to the
Cambridge Encyclopedia of Childhood Development, “there are slightly more males born with DS than
females (1.3:1)” (Down, 2005). Also, according to Hanson (1987) “there are approximately 7,000 children with
Down syndrome born in the United States each year” (p. 19).
Down syndrome basically results from the presence of an extra (47th) chromosome. Scientists are still
debating the cause of its appearance. Studies show that the age of the mother may correlate with the
appearance of the extra chromosome and that Down syndrome is not tied to race and socioeconomic status.
Down syndrome occurs in approximately 1 in 600 to 650 live births and is associated with advanced
maternal age, particularly over 35 years of age. The incidence is as high as 1 in 80 for offspring of
women above 40 years of age. In cases caused by translocation, which is a genetic aberration that is
hereditary rather than a chromosomal aberration caused by nondisjunction during cell division, the
incidence is not associated with maternal age and the risk is low, about 1 in 5 if the mother is carrier
and 1 in 20 if the father is the carrier. (Down, 2009)
It is worth nothing that the majority of children with Down syndrome are born before their mothers
reach 35th birthday and a great majority of children whose mothers have Down syndrome inherit this
chromosomal abnormality.
Eighty percent of children with down syndrome are born to women under 35
years or age, but the incidence of Down syndrome births does increase with age.
Approximately 5% of cases are transmitted by the sperm. Amniocentesis or
chorionic villus sampling can be used to detect the disorder in the fetus. Children
born to women with Down syndrome have a 50% chance of having the disorder.
(Down, 2008)
Regardless of its form, individuals with Down syndrome manifest similar physical characteristics, making
them easily recognizable among other individuals. The main physical characteristics follow:
Large than normal anterior fontanelle (soft spot)
Slanting eyes with folds of skin at the inner corner (epicanthic folds)
White spots on the iris of the eye (Brushfield spots or stars in the eyes)
Small, unusual-looking ears
Tongue protrusion
Flat bridge of the nose
Short neck
Transverse palmer crease
Gap between the first and second toes
Poor muscle tone (Hanson, 1987)
Moreover, individuals with Down syndrome suffer from various medical deficiencies, which vary from
person to person. According to the National Down Syndrome Society (2011) various medical conditions,
including but not limited to “attention deficit hyperactivity disorder, heart defects, Alzheimer’s disease,
neurological defects, blood defects, endocrine conditions, gastrointestinal tract conditions, vision impairments,
autism, and atlantoaxial instability” (para. 1) may impact them.
Like their physical abilities, the learning styles of individuals with Down syndrome vary significantly
from one person to the next. Learning styles are “aspects of personality that will influence [the] learners’
achievement” (Borich, 2004). They are closely related to human intelligence and intellectual abilities. Studying
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the learning styles of individuals with Down syndrome necessities the examination of their intellectual
abilities since the conditions has a drastic impact on human intellectual and physical abilities. All individuals
with Down syndrome suffer from some type and extent of intellectual disability.
Almost all persons with DS exhibit some degree of intellectual impairment. There is, however, a
great deal of variability in intellectual ability within this group, with the degree of mental retardation
ranging from mild (IQs in the 55 to 70 range) to severe (IQs in the 25 to 40 range). In spite of this
variation, DS persons exhibit a unique pattern of ability-disability. For example, when compared to
other intellectually challenged persons, children with DS often have greater difficulty with cognitive
activities involving speech and language, but display superior visual-motor skill. Thus, when one
considers perceptual-motor and cognitive development in DS individuals, it is important to
distinguish between performance and learning patterns that can be attributed to the general level of
intellectual functioning, and the patterns associated with the syndrome (Down, 2005).
A research project to determine the extent to which intellectual abilities and IQs impacted the learning
styles and reading process of individuals with Down syndrome would reveal that researchers did not take
those factors into account. Rather, they tended to group all individuals with Down syndrome together
regardless of their IQs and intellectual and physical abilities. Due to the lack of research concerning individual
intellectual abilities and IQs, existing studies examine learning styles and approaches to the reading process at
the general level.
1 The term "mental retardation" is no longer used and is replaced with "intellectual disability."
2The term "mental retardation" is no longer used and is replaced with "intellectual disability."
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Furthermore, according to Nilholm (1999) “Children with Down syndrome appear to follow the same
sequence of development as children of average intellectual ability, but certain areas of development fall below
or above their mental age” (p. 265). Other scientists agree that children (individuals) with Down syndrome can
learn to read. According to Bird et al. (2000), “many children with Down syndrome (DS) are capable of
developing some reading and writing abilities” (p. 319). However, the extent to which they can learn to read is
still unclear: “Little data exists, however, regarding how many of these children learn to read and to what
extent reading is mastered” Bird et al. (2000).
Moreover, other researchers have found that children (individuals) with Down syndrome may learn to
read and develop “non-traditional” modes of learning similarly to their peers with regular learning abilities.
Studies show that, unlike regular readers, children (individuals) with Down syndrome may be capable of
learning to read without phonological awareness, which is one of the leading factors in the achievement of the
desired reading outcome.
Phonological awareness (PA) can be defined as the ability to focus consciously on
the sound structure of language. It is typically assessed in tasks that involve the
manipulation of phonological segments of language—for instance, breaking
words down into their constituent syllables or phonemes (segmentation) or
blending together sequences of individually uttered phonemes or syllables to form
words (blending). PA has long been associated with the acquisition of alphabetic
reading skills in children developing normally. (Cupples & Iacono, 2000)
This puts to question the belief that phonological awareness is a prerequisite for learning to read.
In the first study of its kind, Cossu, Rossini, and Marshall (1993) tested 10 Italian children with
Down syndrome group-matched to typically developing controls on a word-level
reading task (although the group with DS had lower mental ages). Real and
nonsense words, both regularly and irregularly stressed, were included in the test
of reading ability. Surprisingly, the children with DS read real and nonsense
words equally well. Phonological awareness was measured using phoneme
segmentation, deletion, synthesis, and oral spelling tasks. As a group, the children
with DS performed more poorly than their reading-matched controls on all of
these tasks. The authors interpreted their results to mean that "not all" children
depend on phonological awareness in order to learn to read (Bird et al., 2000).
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process. They include support from teachers, peers, and parents; teachers’ knowledge and expertise regarding
Down syndrome; and their ability to use proper teaching methods.
Emotional elements impact students personal feelings and may be beyond teachers' control. Learners have
to be motivated to learn to read and lose their will to reading if they do not receive positive reinforcement.
Understanding their feelings and their emotional intelligence is necessary for a successful learning process.
And physical elements may be the most important part of the learning process for learners with Down
syndrome. The learners need proper mobility, time to study, a specific time to take their lunch, and other
accommodations that enable them to feel comfortable during the learning process. Physical accommodations
may differ significantly depending on the severity of the learners’ disability.
By carefully examining all the variables that Dunn and Dunn's learning style recognizes, teachers can
ensure that all learners with Down syndrome are comfortable in their learning environment and that the
learning process remains undisturbed.
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are grouped with learners with whom they feel comfortable learning and who will inspire them to learn to
read.
5. Teaching Strategies for the Reading Process of Students with Down Syndrome
5.1. Letter/Number Recognition
This teaching strategy is primarily used to teach learners with Down syndrome to recognize letters of the
alphabet and numbers. The purpose of the reading process is to teach them to “read” letters as well as
numbers. That means that learners should be able to recognize the letters and the numbers at the first stage of
learning. Then they can move to the next stage, at which they will be able to read words and sentences. This
teaching strategy focuses on reflective observation and active experimentation, which are two learning modes
that the Kolb learning style recognizes.
The first step involves providing learners with cards (of any size). On each card, there should be a capital
letter, the corresponding lower-case letter, and a picture of an object whose name begins with that particular
letter. If numbers are the topic the teachers provide the learners with cards, each of which features a numbers
and an illustration that represents that number. An example follows: When teaching learners to recognize the
letter “A,” the card that the teachers use shows a capital “A,” a lower-case "a" and the picture of an automobile.
The teachers then repeat the sound of the letter until the learners can pronounce it on their own.
Once it is evident that the learners can pronounce a letter (or number) on their own, the teacher ask them
to pronounce it five times by giving them a verbal affirmation every time they do that. It is possible to repeat
this process as many times as is necessary until the learners learn to recognize and pronounce the letter or
number in question. The process may take the following form:
Teacher: What is this letter?
Students: A.
Teacher: Good! What it this letter again?
Student: A.
Teacher: Excellent! What is this letter one more time?
Student: A.
Teacher: Wonderful! What is this letter again?
Student: A.
Teacher: Amazing! And what is this letter one more time?
Student: A.
Teacher: Very good! You did an excellent job.
The teachers may design the sample letter/number cards or they use the ones in learning software
programs if the learners prefer to use the computer while learning. These are some samples of letter/number
cards that may be used for this teaching method.
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objects, including a “rug.” Learners would have to match the word “mug” with the word “rug” due to the
rhyme. However, the rhyming strategy would only apply to learners with advanced reading skills. The
following sample illustrates this teaching strategy.
Figure-3. Circle the object whose name begins with letter “F”.
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presenting a group of words that rhyme and asking the learners to single out one word. The teacher should
only used this when the learners have become familiar with letters and are fluent in word recognition.
This teaching method may not be successful with learners with Down syndrome who experience severe
intellectual disabilities. Such learners may need long-term practice and, unfortunately, may not achieve
satisfactory learning outcomes. The sample material for this teaching strategy appears on the following page.
Figure-6. Read the word on the left side and circle the picture that represents that word on the right side.
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Figure-8. Circle the sentence that describes the picture your see.
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Figure-9. Read each sentence and do what you are asked to do.
References
Bird, E. K., Cleave, P. L., & McConnell, L. (2000). Reading and phonological awareness in children with down syndrome: A
longitudinal study. American Journal of Speech-Language Pathology, 9(4), 319-330.
Borich, G. D. (2004). Effective teaching methods (5th ed.). Upper Saddle River, NJ: Pearson Education, Inc.
Conners, F. A. (1992). Reading instruction for students with moderate mental retardation : Review and analysis of
research. American Journal of Mental Deficiency, 96(6), 577-597.
Cossu, G., Rossini, F., & Marshall, J. C. (1993). When reading is acquired but phonemic awareness is not: A study of
literacy in Down syndrome. Cognition, 46(2), 129-138.
Cupples, L., & Iacono, T. (2000). Phonological awareness and oral reading skill in children with down syndrome. Journal of
Speech, Language, and Hearing Research, 43(3), 595-608.
Down, S. (2005). In Cambridge encyclopedia of child development. Retrieved from:
http://www.xreferplus.com.proxy1.ncu.edu/entry/cupchilddev/down_s_syndrome.
Down, S. (2008). In the Columbia encyclopedia. Retrieved from
http://www.xreferplus.com.proxy1.ncu.edu/topic/down_syndrome.
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Down, S. (2009). In Mosby’s dictionary of medicine, nursing, & health professions. Retrieved from
http://www.xreferplus.com.proxy1.ncu.edu/entry/ehsmosbymed/down_syndrome.
Hanson, M. J. (1987). Teaching the infant with down syndrome (2nd ed.). Austin: TX: PRO-ED, Inc.
Hildyard, A. (2003). Down syndrome. In encyclopedia of health. Tarrytown, NY: Marshall Cavendish Corporation, 5, 244-245.
Jonassen, D. H., & Grabowski, B. L. (1993). Handbook of individual differences, learning & instruction. Hillsdale, NJ: Lawrence
Erlbaum Associates, Inc.
National Down Syndrome Society. (2011). Retrieved from:
http://ndss.org/index.php?option=com_content&view=article&id=54&Itemid=74. [Accessed April 12, 2001].
Nilholm, C. (1999). The zone of proximal development: A comparison of children with down syndrome and typical
children. Journal of Intellectual & Developmental Disability, 24(3), 265-279.
Oelwein, P. L. (1995). Topics in Down syndrome: Teaching reading to children with down syndrome, a guide for parents and
teachers. Bethesda, MD: Woodbine.
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