Bulletin 166

Inclusion North Bulletin
Issue Number 166

6th August 2018
In this bulletin you will hear about some of the work Inclusion
North is doing and information about what is happening across
the country.
Inclusion North Survey

Our bulletin has changed quite a lot and we would like to know what you
think.
We have worked on making sure people with a learning disability,
commissioners, families, carers and other organisations, know what we
are doing at Inclusion North.
We would like you to complete our short survey.
There are 5 questions.
You can find the survey here
https://www.surveymonkey.co.uk/r/bulletin2018
If you would like a paper copy please call, the office on
0113 2444792
Or email [email protected]
Young Leaders course starts in Calderdale
This summer Inclusion North are working together with Lead the Way to
try out a new leadership course for young people with a learning
disability, autism or both. The course is based on Tomorrow’s Leaders
Nine young people aged 14-17 are working with us. They will be building
their skills and confidence, learning about their rights and leading and
working with others, and developing new friendships.
Our Young Leaders have already found out how awesome they all are
and talked about what they would like to be doing in five years’ time.
They’ve done work around decision making and inclusion, made food
together and tested their skills at archery.
A big hit was a great session led by Holly Lynch MP with Councillor
Adam Wilkinson that looked at what makes a good and bad leader.
We’re very grateful for all the fantastic support we’ve had, including from
the Community Foundation who have given funding to support us
running the course.
follow on Twitter @InclusionNorth and Instagram @ylcalderdale2018
Could you be an Inclusion North Director?
Inclusion North has a Board of Directors that makes sure the company is
run properly and that the work we do is high quality. Directors are
volunteers who give their time for free.
Our rules say that half of our Directors should be people with a learning
disability or autism, or family carers. Our Directors should also live in the
North East, Yorkshire or Humber.
We have vacancies on our Board for family carers who might want to
share their knowledge and expertise with us.
Directors are responsible for:
1. Running the Company well and following company rules
2. Managing the money and making sure it is spent well
3. Checking the work we do is good quality
4. Supporting the Chief Executive to run the company
5. Thinking about the future and what work we need to do
6. Making sure people know about Inclusion North
The Directors meet 6 times a year, usually in York. The meetings are
usually from 1pm to 3.15pm on a Friday. They also meet twice a year
with the Advisory Council and the staff team in a big meeting that brings
everyone together. These meeting are usually 10.30am to 3pm in York.
If you are interested, please contact the office for a role description and
an application form. Application forms should be returned by Monday
10th September 2018.
Call 0113 244 4792
Email [email protected]
Website http://bit.ly/directorsapplication
A response to the LeDeR Annual Report 2018
The LeDeR Programme is about stopping people with a learning
disability dying too young. The LeDeR Annual Report showed that life
expectancy for people with a learning disability had dropped even lower.
Now, women with a learning disability can die 29 years younger than
other women. Men with a learning disability can die 23 years younger
than other men.
This is wrong and has to change.
In the North East there is a Confirm and Challenge Group working with
the LeDeR Steering group. It is made up of people with a learning
disability and family carers.
They wrote this response to the LeDeR Annual Report.
We think it is shocking. The way that people perceive us, it just doesn’t
bear thinking about.
This is so hard to think about and talk about. Why should we expect to
live 23 years less, or 29 years less than someone without a learning
disability?
People need to see the person and not just talk about health. Take time
to listen to people. To know the person.
How much harder is it for a person with a learning disability to get an
accurate diagnosis?
People don’t get the same respect or time given. Sometimes we are
pushed to the back of the queue.
Equality for all is still a long way off.
People who have trained as self-advocates might have more chance to
speak up for themselves. It is so important to invest in this.
We hear about stress on the NHS because we are all living longer.
This doesn’t apply to us. https://t.co/QBWPVSWvQx
Making Payments to People who Receive Benefits
At Inclusion North we believe it is really good to pay people to get
involved in the work that we do.
We employ lots of different people and ask people to get involved in
different pieces of work.
Do you receive benefits and receive a payment for service user
involvement?
Do you pay people for service user involvement?
If so, it is important that you explain very clearly to the Department of
Work and Pensions what you are doing, how much you receive and how
often. A letter from the organisation you are involved in explaining this is
usually helpful.
It is very important to make sure that people get the right advice about
how being involved and being paid for their involvement might affect
them if they receive benefits.
There are lots of rules for different types of benefits.
The Social Care Institute for Excellence provides an excellent fact sheet
called “Paying People Who Receive Benefits – Co-production &
Participation” you can find this here: SCIE
If people don’t let the Department of Work and Pensions know about the
money they receive, or their change of circumstances they may risk
losing their benefits.
It is really important for people to get the right advice about their
benefits.
Citizens Advice provide a lot of information Citizens Advice

Scope also provide a helpline Scope
Your Invitation:
Working well so that people with a learning disability don’t
die too young
- Do you live in Yorkshire or Humber?
- Do you want to get together with others to share best practice and
find ways to improve the lives of people with a learning disability
locally?
- Do you want to understand more about the work that is being done
to prevent people with a learning disability dying at a young age?
- Would it be helpful to understand some of findings from the work
to date?
-
The sessions will bring together some of the findings from the Learning
Disabilities Mortality Review and provide a way for yourselves and
others to share your best practice ideas and challenges.
Please book at one event as all events are the same.
When and where?
6th September in York - you can book online at:
http://bit.ly/6thSeptemberYork
15th November in Leeds - you can book online at:
http://bit.ly/15thNovemberLeeds
10th January in Sheffield - you can book online at:
http://bit.ly/10thJanuarySheffield
7th March in Hull - you can book online at:
http://bit.ly/7thMarchHull
We will let you know the venue details when you sign up to come along.
You can claim your travel costs if you are a self-advocate or family
carer.
Or you can book a place, please contact:
[email protected] Telephone: 0113 244 4792
Cloverleaf Happy Healthy Relationship Project
Cloverleaf have a project about relationships, and sexual exploitation.
Sexual exploitation is abuse and is when a person is used for sex.
The abuser may try to make friends with you, be nice to you, buy you
nice things and take you out.
Then they may ask you to do things you don’t want them to do.
The group meets every Wednesday in Huddersfield for more information

Contact: [email protected]
Telephone: 07710 020235
Inclusion North Friendship Booklet

Inclusion North has a friendship booklet, made with help from
Middlesbrough 1 st, Skills for People and Tyne, Esk and Wear Valley
Reference Group.
How we make friends and keep these relationships is an important part
of who we are and how we get involved in the world around us.
This can often be more difficult for people with a learning disability.
The information in this booklet offers ideas about how you can develop
friendships.
It also suggests what support you could get if you need help with this.
You can find the booklet here http://bit.ly/2OBo3Uz

Learning Disability or Autism Leaders List 2018
Nominations
Learning Disability England, Dimensions, Voluntary Organisations
Disability Group and the Guardian are working together.
They are starting a list of people with a learning disability, autism or both
who are making a difference.
They know that there are a lot of people making a difference in their
area.
They are working together to celebrate and share the good work people
are doing.
They hope this will help change the attitudes and show people what
people with a learning disability, autism or both do every day to make
our communities and society better.
60 winning stories will be included in the Leaders List.
There are 4 categories
• Changing Communities
• Advocacy, policy and media
• Sports, arts and entertainment
• Work and education
You can nominate yourself or someone else or find out more information
here
http://bit.ly/2AzBykD
The closing date for nominations is the 27 th August

New book about people with a learning disability
‘Austerity’s Victims’ is a new book written by Neil Carpenter.
It’s about people with a learning disability. It shows how their lives have
changed since 2010.
The book looks at the lives of 5 men with a learning disability who live in
Cornwall.
It shows how much money they have to live on and what they spend it
on.
Neil found out these things:
1 They are poor.
2 Their support at home is being cut.
3 Their time at day centres is also being cut.
4 They often don’t have many friends and are very lonely.
Neil thinks they are not getting a good deal and thinks the government
can be blamed for how hard their lives are.
It’s available to buy on Amazon
http://www.amazon.co.uk/dp/1984977601
Connect in the North - Women Speak to Power

It is 100 years since women got the right to vote. Connect in the North
are going to have 2 events for women with a learning disability.
On October 11 th to learn how women got the vote, why it is important to
vote and writing questions to ask politicians
On October 12 th local members of parliament and councillors will be
there to answer your questions
If you want to know more
Telephone: 0113 2703233

Inclusion North Member Areas 2018 – 19
Yorkshire and the Humber

Barnsley
Bradford
Calderdale
Doncaster
Kirklees
Leeds
North Yorkshire
Sheffield
Wakefield
North East
Darlington
Durham
Gateshead
Hartlepool
Newcastle
North Tyneside
Northumberland
Redcar and Cleveland
South Tyneside
Stockton
Sunderland

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Inclusion North Bulletin

Issue Number 166

Inclusion North Survey

We would like you to complete our short survey.

There are 5 questions.

You can find the survey here

If you would like a paper copy please call, the office on

1. Running the Company well and following company rules

2. Managing the money and making sure it is spent well

3. Checking the work we do is good quality

4. Supporting the Chief Executive to run the company

5. Thinking about the future and what work we need to do

6. Making sure people know about Inclusion North

Citizens Advice provide a lot of information Citizens Advice

The group meets every Wednesday in Huddersfield for more information

Inclusion North Friendship Booklet

You can find the booklet here http://bit.ly/2OBo3Uz

60 winning stories will be included in the Leaders List.

There are 4 categories

The closing date for nominations is the 27 th August

Connect in the North - Women Speak to Power

Telephone: 0113 2703233

Yorkshire and the Humber

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