Presents...

Wednesday, April 25, 2018

10:45 a.m. - 12:00 p.m.
“Lessons From the Lion’s Den: A Legal/Parental
Perspective on Transition Planning”
Presented by Matt Cohen, J.D.
Matt will combine 30 plus years experience advocating for children and
adults with disabilities and as a parent will share insights into transition
planning, services and the real world challenges of parenting a young adult
with a disability.

Wednesday, April 25, 2018

1:30 - 2:40 p.m.
“Person Centered Planning and Systems Transformation”
Director Greg Fenton, DHS and Person Centered Planning Panel
Director Fenton will share the Division of Developmental Disabilities’ continued vision for person centered
planning. A panel consisting of an advocate, family member, service provider and an independent service
coordination agency will share their experiences and efforts to work together to fulfill the potential of the
person centered planning process. We will hear from the individual and family perspective how person
centered planning can help deliver the services people want and need. Q and A to follow.

2:40 - 3:40 p.m.

“State Medicaid Changes Impacting People with Disabilities”
Kristin Hartsaw and Sherri Schneider
Recently there have been a lot of changes to Medicaid processes happening at the state level, which are
affecting how individuals with disabilities and families are dealing with benefits. Listen to two experts,
Sherri Schneider, Family Benefits Solutions, and Kristin Hartsaw, DuPage Federation, discuss some of
the changes to Medicaid including redetermination processes, online portals, AABD vs ACA Medicaid
categories, Medicaid Managed Care and more. Learn how losing your child’s Medicaid could lose
waiver services!

Thursday, April 26, 2018

11:00 a.m. - 12:15 p.m.
“Living a Big Life, and the Power of Community”
Presented by Emily Colson
What happens when we choose to live a big life, even in the midst of significant
disability? Join Emily Colson, popular speaker and author of the award winning
book Dancing with Max, as she shares her journey with her son Max, who is
25 years old and diagnosed with autism. After years of isolation, held hostage
by autism, Emily made a decision that would change the direction of Max’s life, her own life, and
those in the community. Come and be inspired by the creative ways Emily has engaged both Max,
and the greater community. Emily is sure to make you laugh, let you cry, and ultimately help us
all live a big life!
 Art WEDNESDAY, APRIL 25, 2018 Reception
Exhibit 5:30-7:00 p.m.
REGISTRATION 8:00 A.M. - 4:00 P.M.
8:30 - Ronnie Cohn Brian Rubin, J.D. Debra Vines Bruce Handler Maura Anderson Marsie Frawley
10:00 Ligas Court Monitor Benji Rubin, J.D. The Answer, Inc. SIBS Joe Cantu Adam Swanson
Rubin Law, A Professional Nora Handler Ryan Crawford Cindi Swanson
Corporation The Arc of Illinois Board
JJ Hanley Kristy Saar
“Ligas Update by Illinois State Treasurer
Naperville Community “Toolbox for
School District #203 Employment:
the Court Monitor” Office
“Cops, Safety and Social Capital in
the Dignity of “Digital Leadership in Customized
The Monitor will Transition Programs:
provide an update Risk” Employment”
A Risk Worth Taking”
regarding the im-
plementation of Technology provides
the Ligas Consent a foundation for our
Decree, including students to transform.
discussion of her We will explore how
most recently we integrate multiple
issued Annual tech platforms at
Report. There will NCD203’s Connec-
be time for tions to create dynam-
questions from ic, impactful and
those attending. transformative learn-
ing experiences.

10:30 WELCOME: Terri Devine, Board President, The Arc of Illinois

10:45- KEYNOTE: “Lessons from the Lion’s Den: A Legal/Parental Perspective on Transition Planning”
12:00 Presented by Matt Cohen, J.D.
12:00 LUNCHEON GUEST SPEAKER: “Blessed Brothers” - Presented by Rob Johnson, CBS 2 Chicago News Anchor
1:30- KEYNOTES: “Person Centered Planning and Systems Transformation” and also
3:40 “State Medicaid Changes Impacting People with Disabilities”
4:00 - Lore Baker Sherri Schneider Paul Blobaum Matt Cohen, J.D. Barry Taylor
5:30 DHS Family Benefit Institute on Public Tara Conley Matt Cohen and
Solutions Policy for People with Associates
“Innovative Disabilities/HCBS Act Amy Halm Equip for Equality
Project “From Cradle to “Employment
S.I.B.S. Infinity and Beyond:
Updates From “SSDI, SSI, DHS, Rights Under
the Field” PUNS: Understanding Emily Bryan The Disability Life the ADA”
The Arc of Illinois Board
the Alphabet Soup of “Planning for the Cycle from Early
Government Life You Want!” “Changing Intervention to Adult “Learn how the
Benefits” Roles and Services” ADA can help
Siblinghood” individuals with I/
This session will DD in the work-
This interactive seminar discuss the status of Matt will share le- place and about
will cover the: who, the HCBS Rule gov- gal and personal Equip for Equali-
what, where and when erning community insights to capture ty’s Employment
of Government benefit services; how person key issues and Rights Helpline.
programs and waivers. centered planning is lessons for dealing We will discuss
We will discuss how working in Illinois and with early interven- the law, recent
benefits change over a strategies for getting cases, and com-
lifetime and how to en-
tion, special edu-
the most from your mon workplace
sure benefits are not cation and adult scenarios.”
personal plan. services for people
unnecessarily lost. End-
ing in a game of Benefit with disabilities.
BINGO, you will be
surprised how much
choice. you have learned.

5:30- Music performed by the “Naturals”

7:00 The Naturals is a Chicago-area band created by Craig and Kari Christiansen to promote the musical abilities of two young men
with autism. Featured on ABC7 News, The Naturals have become a household name in the autism community. Connecting
musically with a person with autism can be an exciting, profound and nearly inexplicable experience. “We want to share this
experience with others. Natural talents and musical gifts are pouring out of them; it is exciting to share with others.”

7:15- KELLY’S HOLLYWOOD MOVIE VIEWING - Kelly’s Hollywood (Showtime Networks) tells the intimate story of an
8:00 aspiring actor who brings his sister, born with Down syndrome, out to Los Angeles to pursue her dream of becoming a Hollywood diva.
As her health begins to fail and she becomes increasing jealous of his fiancée, he is forced to confront his co-dependent sibling
relationship and the threat it poses on his engagement.
 THURSDAY, April 26, 2018 REGISTRATION 8:00 A.M. - 12:00 P.M.
THE ARC OF ILLINOIS ANNUAL MEETING 7:30 - 8:30 A.M.
9:00 - Steve Hendricks Hannah Sheets Tara Ahern Karen Stefan
10:15 Tom Kenter Eric Enger Illinois Self Advocacy LaGrange Area
Richard Koenig Alliance Department of Special
Rubin Law, A Rebecca Jae Jin Pak
Family Aligned, LLC
Education
Lisa Lew Professional
Obuchowski
Consuelo Puente Corporation IL Imagines “Piecing Together
Community Choices
the Legal Puzzle of
“Alternatives to “Our Rights Right Special Needs
Guardianship” “The IN Project: Now! Empowering Planning”
Creating Influence Survivors with ”
Through Disabilities via the This session provides
Membership” IL Imagines” an overview of the Learn and confirm
Today’s community- legal options available the elements of plan-
This session will raise
based housing short- awareness of the to UNITE and ning requirements,
ages and the project- intersection between EMPOWER families timelines and the
ed need for housing disability and sexual to ACT and secure roles of the planning
alternatives demand violence to build financial stability for a partners. Review
creative approaches. capacity to support loved one or client todays best practices
Learn how individuals, survivors of sexual with special needs. and resources to
families, and agen- violence with
cies are collaborating guide the students
disabilities. Participants
and engaging com- will gain strategies on growth in achieving
munity resources how to support their picture of life
create new solutions. survivors. after high school.

10:45 WELCOME: Meg Cooch, Executive Director, The Arc of Illinois

11:00- KEYNOTE: “Living a Big Life, and the Power of Community”
12:15 Presented by Emily Colson, Author of “Dancing with Max”
12:30 LUNCHEON PRESENTATION: “The Many Faces of Self-Advocacy” - Presented by Self-Advocates in Illinois
2:15 - Adam Cooper Valerie Barich Nicole Foss Phil Milsk, J.D.
3:30 Donnie Edwards Family Benefit Solutions Maria Castillo Attorney
Missy Kichline Kathy Lyons Vincia Jones Susy Woods
“Government Jody Newmark IATP
Sam Kichline Benefits: What’s Mary Keen, MD
Consuelo Puente
Annie Niswander New, What’s True Ann Sickon
Nalini Manajan “Advocacy for
Michelle Spurlock Advanced” Marianjoy Rehabilitation All: How to be a
Great Advocate
“Supporting
“How We Live in “Diversity and Adolescents with
with the Skills
the Community” Inclusion Disabilities and Their You Have”
Initiatives Need to “Proud and Caregivers Through
Include Us!” Included” the Transition to This session will
Adulthood” focus on how and
When organizations This session will why advocacy is
engage in diversity and educate on the important and how
inclusion efforts, people need for access to to use the skills
with disabilities should each of us already
all things LGBTQ.
Discuss project have to help bring
Learn how
target goals, about changes in
organizations in 4
housing using diverse communities are barriers, and the system that will
home based support, building more inclusive successes. benefit all people.
CILA shared living cultures.
and more.
.
4:00 PICK UP AUCTION ITEMS
PROGRAM SUBJECT TO CHANGE Hilton Hotel
3003 Corporate West Dr.
NOTE Lisle, IL 60532
If you have any special needs, please contact The 630/505-0900
Arc of Illinois (815-464-1832). Notice of any special
accommodations is required TWO WEEKS prior The Hilton Hotel is located
to the event. just North of I 88. Exit I 88
at Naperville Rd. exit and
If financial restrictions prevent you from paying full go right at the stop light.
registration, you may contact the Consumer Then proceed to Warren-
Involvement Program at The Arc of Illinois (815- ville Rd and turn right. The
464-1832) for an application for a consumer Hilton is on the right. The Arc of Illinois has reserved a block of rooms
stipend. The stipends are limited and are available at the convention rate of $114/night single or double. The cut-off date
on a first-come, first-served basis, so you need to for the special rate is April 3, 2018 and the code is CTAI. If you need to
get your application in as soon as possible. know what public transportation is available to the hotel, call the RTA
at 836-7000.
 April 25-26,2018
The Arc of Illinois
Hilton Hotel
Presents
Lisle, IL
If financial restrictions prevent you from paying full registration, 3540
consumer stipends for self-advocates and families are available
through funding from the Illinois Council on Developmental
Disabilities by contacting The Arc of Illinois at 815-464-1832.
FULL REGISTRATION
(Per person - includes both days)

PROFESSIONALS ARC MEMBER $250.00 $

PROFESSIONALS NON-ARC MEMBER $290.00 $

SELF-ADVOCATES/FAMILY ARC MEMBER $195.00 $

SELF-ADVOCATES/FAMILY NON-ARC MEMBER $240.00 $

DAILY REGISTRATION
PROFESSIONALS ARC MEMBER PER DAY $160.00 $

PROFESSIONALS NON-ARC MEMBER PER DAY $190.00 $

SELF-ADVOCATES/FAMILY ARC MEMBER $140.00 $

SELF-ADVOCATES/FAMILY NON-ARC MEMBER $170.00 $

INDICATE WHICH DAYS YOU WILL ATTEND: ___WEDNESDAY ___THURSDAY

CPDU FEE FOR BOTH DAYS $10.00 $

INTRODUCTORY YEARLY MEMBERSHIP- NEW MEMBERS ONLY (available only for the convention)
____ YES, I WOULD LIKE TO JOIN THE ARC OF ILLINOIS FOR $20.00 $

TOTAL ENCLOSED: $

INSTRUCTIONS: Please print or type all information. Mail completed form to: The Arc of Illinois, 20901 S. LaGrange Rd.,
Suite 209, Frankfort, IL 60423. Make checks payable to The Arc of Illinois. You may fax this form to 815-464-5292 and
send the fee with the hard copy of this form in the mail. On-site registration will be available at the convention. YOUR
NAME AND CHAPTER/AGENCY WILL APPEAR ON YOUR NAME BADGE EXACTLY AS YOU INDICATE ON THIS FORM.
PLEASE PRINT CLEARLY.

FULL NAME:
ORGANIZATION (if applicable):
YOUR MAILING ADDRESS:
CITY: STATE ZIP PHONE

E-MAIL: NOTE: We must know of any special

needs, including dietary needs, at
least two weeks prior to the convention.
METHOD OF PAYMENT Please tell us your accommodation
Fax form and send check to The Arc of Illinois needed here:
Check enclosed payable to The Arc of Illinois
State Voucher or P.O. #
Charge to my Visa, Mastercard, Discover or American Express
Participants canceling their
registration at least 72 hours
Name as it appears on card: before the convention may be
Card Number: given a refund, less $50 admin-
istrative cost. No refund will be
Expiration Date: given for cancelation less than
Card holder’s signature:
72 hours before the convention.
 The Arc of Illinois 2018 Annual Convention
Children’s Program
Respite is available for children and adult children of convention attendees.
This service is provided by The Arc of Illinois at no extra cost.

Parent’s Name:
Participant’s Name & Age:
Nickname, if used:
Tell us about your child:

Medication (if any):

Special Diet Needs (if any):

Best way to communicate with your child:

Special needs or comments:

Does your child have seizures? YES _________ NO __________

Does your child require assistance with eating, walking, toileting or dressing? Please explain:

What day and time do you need the Respite Care?

Please sign the following waiver for The Arc of Illinois sponsored outings:
I hereby waive and release all claims for injuries my child might sustain arising out of the Children’s Respite Program
during The Arc of Illinois Annual Convention, April 25-26, 2018. I understand that every precaution is taken to
protect the safety of each participant in this program. I agree to assume the full risk and to waive, relinquish and
release all claims I and/or the participant may have against and indemnify and hold harmless The Arc of Illinois, their
officers and staff and volunteers from any such claims. I agree to emergency treatment by a physician or hospital in
the event I cannot be reached.
Signature of Parent/Guardian: Date:
 NONPROFIT ORG.
U.S. POSTAGE
PAID
HOMEWOOD, IL
PERMIT N0. 227

20901 S. LaGrange Rd, #209

Frankfort, IL 60423

Featuring the 17th

Annual
Art Exhibit
Call The Arc if you would like to participate!

CEU’s/CPDU’s/Training Hours
SILENT AUCTION AND EXHIBITS
Wednesday 8:00 a.m. - 5:00 p.m.
Thursday 8:00 a.m. - 2:30 p.m. Counselor, Clinical Social Worker,
Nursing Home Administrator, Social
LUNCH
and coffee breaks included with Worker, Occupational Therapist &
Convention registration.
13 Training Hours available for QIDPs.
CPDUs are available for Teachers.

SPONSORS:
PRESENTING SPONSOR
UBER
KEYNOTE SPONSORS:
Rubin Law, A Professional Corporation

Special Guest LUNCH SPONSORS:

Rob Johnson Comcast NBCUniversal
CBS News Anchor Easterseals Metropolitan Chicago
Wednesday Luncheon Speaker! Family Aligned LLC
Life’s Plan, Inc.
Mutual of America
BREAKFAST SPONSORS: Featuring
ACES$ The Naturals
Family Benefit Solutions, Inc.
Wednesday Reception!