Fasd Information Handbook
Fasd Information Handbook
Fasd Information Handbook
on an approach and an attitude when working with individuals affected by FASD. If you have further questions about FASD or would like more information, please contact:
1.877.422.3672
This handbook was updated by Madeline Price Desktop Design by Brent Scout 2006 FNESC
TABLE OF CONTENTS
Talking About Special Education Volume
Inside:
Introduction.. What is FASD?... FASD Identification 2
3 4 5 8 9 10 11
Understanding People with FASD.. Basic Needs of Persons with FASD The Ideal Classroom.. Individual Education Plan (IEP) Paradigm Shifts and FASD... FASD in the Classroom. Teaching Students with FASD/FAE Design Concrete Measures of Time... The T Chart. Supporting Behavioural Changes.. Trying Differently....... Appendices ... A - An Example of an IEP B - Resources
12 13 14 15 16 17 19
Introduction
This is an updated handbook from the series of informational handbooks prepared by the First Nations Education Steering Committee (FNESC) and the First Nations Schools Association (FNSA). This handbook follows from the general discussion of special needs included in Talking About Special Education Volume I, which includes issues such as parental involvement, special needs identification, individual education plans, and advocacy. Several sources of information were used in the development of this publication. FNESC and the FNSA would like to gratefully acknowledge the following work as most of this information in this booklet comes from these sources: Trying Differently Rather Than Harder 2nd Edition Diane Malbin, M.S.W. Director of FASCETS (Fetal Alcohol Syndrome Consultation, Education and Training Services www.FASCETS.org Submissions from Deb Evenson Project FACTS http://fasalaska.com/links-html Aboriginal Nurses Association of Canada (ANAC). 1997. It Takes a Community. A Resource Manual for Community-Based Prevention of Fetal Alcohol Syndrome. Contact the ANAC at: 192 Bank Street, Ottawa, ON K2P 1W8, phone (613) 236 - 3373, e-mail [email protected] Proceedings of the 2005 FASD National Conference Fetal Alcohol Spectrum Disorder (FASD) is an umbrella term that refers to a range of birth defects caused by drinking during pregnancy. Fetal Alcohol Syndrome (FAS) is a medical diagnosis and has 4 key features:
prenatal exposure to alcohol growth deficiency certain facial characteristics brain damage
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(This larger group is now believed to be at greater risk for failure since they are often not seen as having a disability). People with ARND may have significant brain differences, yet their behaviours may be the only symptoms of their disability. ARND is often referred to as an invisible handicapping condition (Streissguth 1996).
FASD Identification
The diagnosis of Fetal Alcohol Syndrome requires the presence of measurable physical characteristics in addition to symptoms of brain damage and is generally made by a multidisciplinary team. It is the only alcoholrelated diagnosis that may be make in the absence of a confirmed maternal alcohol history. The majority of people prenatally exposed to alcohol have no external physical characteristics, since the facial features of FAS result from specific timing of prenatal alcohol exposure during days 18-21 of gestation. However, even though a person with FASD has no physical features, their brain dysfunction may be as severe as for full Fetal Alcohol Syndrome. Identification for this larger group with FASD is crucial since they are at greater risk for failure due to the greater invisibility of their disability (Clarren et al; 1998; Riley, 2003, Streissguth et al. 1996).
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Warm and accepting Consistent in behavioural expectations Frequent positive feedback based on realistic expectations Regular communications between parent and school An Individual Education Plan outlining strengths with realistic and achievable goals in place.
Emphasis on collaborative problem solving Emphasis on explicit teaching (make it as concrete as possible) Programs adaptations (example: more time allowed for completion of in-class Assignments - less written work, visual supports, use of a computer)
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From Personal Feelings of: Hopelessness Fear Chaos, confusion Power struggles Isolation Professional shifts from: Stopping behaviours Behaviour Modification Changing people
To Feelings of: Hope Understanding Organization, comprehension Working with Networking, collaboration To: Preventing Problems Modeling, using cues Changing environments
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The T Chart
T Charts can make rules more concrete and visual. This is an example of a T Chart for a high school student who could read but could not remember how to leave the breakfast area in the resource room clean. Rule: Breakfast area is clean after breakfast Looks like:
*Good Job!
Sounds like:
Knives, forks and spoons in tray Cereal put away in cupboard Bread bag has clip on it Bread is put in the cupboard Milk is in the fridge Counters are wiped and shiny Floor does not have anything on it
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Trying Differently Rather Than Harder Supporting Behavioural Changes by Recognizing Cognitive Differences
By Diane Malbin FACETS Inc. www.FASCETS.ORG (Taken from the 2005 Alcohol Spectrum Disorder
National Conference Equality of Access: Rights and the Right Thing To Do)
Parents and teachers tend to try harder, using good techniques, to change behaviours. Good techniques that work with other children may simply not work for people with FASD. Paradoxically, their behaviours change as a function of changes in the environment. In other words we can set these individuals up for success if we adapt the environment to ensure better outcomes.
1. Accept that the person has an invisible physical disability. Establish relationship. 2. Clarify your needs, feelings, resources and supports. 3. As with other more obvious physical handicapping conditions, evaluate environments for their goodness of fit and adapt /modify environments as appropriate to maximize potentials. Recognize which elements of environments may be posing undue challenges, chronic frustrations...or be inappropriate. Adjust accordingly. 4. Ask the what if questions and continue to explore 5. Identify strengths, interests, and work through these. 6. Create climates characterized by structure rather than control. 7. Control tends to be top-down, other-initiated, set up power struggles.
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8.
Structure is safe, respectful, invites participation, establishes a with not at relationship and values the persons input for developing solutions.
9. Our challenge in part is to recognize the articulate learning abilities we take for granted, i.e. Inferential learning, generalizing information, linking words with action, and to then clarify whether a discrepancy exists between apparent ability and actual ability. 10. Observe patterns; consciously rethink events. Recall that there may be a delayed reaction from the time of stressor and acting out behaviour. A behaviour at home that apparently occurs in response to a request to do a chore may actually relate to a frustration that occurred at school, or with friends. Think broader context, bigger picture. 11. Depersonalize. Reframe perceptions, shifting from thinking willful to considering organic component, or possible gaps in ability. Shift from thinking wont to understanding cant.
12. Work to 90% success. Break down tasks into small steps and check for completion and comprehension prior to adding more tasks. These may gradually be expanded with pattern development and maturity. 13. Recognize that individual needs may be at direct odds to environmental constraints. Difficult decisions may be necessary. 14. Consider: Theres always logic to the behaviour. Its our challenge to understand the context and recognize the potential role of brain damage. 15. Specifically include the person with FASD in the strategizing or problem solving process. Choose words such as show me or How rather than why to invite input. 16. Keep it concrete, specific, and simple. 17. Always consider the neurological potential. Think younger, and remember Fair is not same.
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ELEMENTARY SCHOOL
Phone: Fax:
A1
2003
Comments/
Recommendations
Comprehension needs to be supported by activities prior, during and Unit tests at Grade 6 after reading. Is level working in a remedial literacy class in the afternoons Informal teacher Assessment - Mastery unit tests Projects Enrolled in a Math Mastery Skills Program Excels in these classes (has 2 block of PE) One block is Physio working on weights
2003 2003
June 2005 Math Working at a Grade 3/4 level 2005 PE Woodwork Computer
Weschler Individual Achievement Test Reading SS 90 Math SS 70 Writing SS 96 Peabody Picture Vocabulary Test (Receptive Language) SS 79 Referral to Asante Centre for complete assessment
2003
************************* Requires rigid routine/TA Support, and accommodations in all areas ************************
2003
A2
A3
AREAS OF NEED
ACADEMIC Math Skills: money, time, accounting Reading for comprehension Practical Writing Skills BEHAVIOURAL Protocol for managing behaviour outbursts Strict routine to support success SOCIAL/EMOTIONAL Self Esteem Confidence LANGUAGE COMMUNICATION Build skills in receptive and expressive language PHYSICAL Bilateral Hearing Loss (FM Systems in place) LIFE SKILLS Work towards Communications 11 and 12 Math Essentials/Accounting Career Prep. And Job Support/ Work Experience LONG TERM GOALS/DREAMS/DESIRES To graduate Grade 12 and get a job. To play on the Mens Soccer Team after Grade 12 WHAT DO WE WANT KOBI TO ACCOMPLISH THIS YEAR? To complete and master all literacy units To complete Grade 4 Saxon Math Program To follow his outlined visual schedules To try to remember using polite words To use his color coded binders/bins in the resource room To put his breakfast food/dishes away in the resource room To continue to take weights class and PE Class To find his TA/Teacher when he feels he is losing it To use the Resource Room as a calm place to rest To try to stay in his classes until they are finished If he feels tired, to go ask to go to the resource Room Morning routine: 7:30 in Resource Room, makes own breakfast, cleans up afterwards.
A5
Strengths: Athletic (enjoys PE); likes to be helpful; enjoys music, art and woodwork; creative; likes to make things; can be independent with a visual schedule; enjoys structure and routine; loves computers Descriptors: Hard working; good sense of humour; can be volatile/anger triggers; likes to be independent but has trouble remembering; likes to have a concrete visual schedule; prints neatly; can be easily stimulated i.e. sensory system overloads, requires a consistent calming quiet place Learns Best When: Has visual schedules for timetable and routines; All program adaptations are in place; when feels respected; in a quiet environment; 1 on 1 for new concepts; has a Learning Assistance Block; When language is spoken slowly, clearly, concretely and with few words (get to the point) with personal feelings left out Medical History: Bilateral hearing loss; exposure to alcohol prenatally, chronic congestion; Overactive Sensory System (not on medication at this time) School History: K7 Pine Elementary
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GOAL CHART
Need (6 areas ) Goal: Student Kobi will: - Complete level 20 by next reporting time Oct. 28 - Use LA time to complete assignments if needed - Hand in all assignments into the RED IN BOX Work with TA to be on time Kobi will: - Use his calm down visual support when he feels upset/angry - Go directly to the Resource Room (RR) if he is not managing his behaviour well - Remember to use polite words/use journal Strategy and Team Responsibility CTs will: - Follow Kobis protocol for all classes - Use a concrete measure of time to help Kobi focus on assignments - Chart his progress so can visually see his work completed - Support all program adaptations, literacy strategies CTs will: - Direct Kobi to use his calm-down routines. - Allow him to leave the room if he chooses, must go directly to RR with TA - Use of concrete measure of time - Use the same language, remember your polite words - Follow protocol, use of T charts TA will meet Kobi at the first bell and walk with him to class in time for second bell CTs (and TAs) will: - Graph progress, Praise all efforts, liaise with RR Teachers, RR Teachers will Liaise with CTs for work completion and focus on task - Use concrete measures of time - Ensure all outlined program adaptations are in place: calculator, recipe cards, calculation process, 1 on 1 support to check understanding Measurement of Progress CT will: Graph Kobis progress unit by unit - Liaise with RR Teacher, to help Kobi bring assignments to RR for completion support - RR teacher will check in with Literacy Teacher and support when needed Anecdotal notes
Academic Literacy
demo/model processes/product feedback immediate/frequent practice guided/independent multisensory (oral/experiential/ written) memory (reduce/teach strategies) pace quick/slow short sessions/lessons teach key concepts/vocabulary other:
Behaviour
Behaviour Management
Visual attendance graph consequences clear/ consistent expectations/rules clear/ consistent home-school program outside agency support reinforcement (class/group/ individual) school counselling program student contract/goal setting teach/assignments at skill level teach & reinforce social skills other:
Kobi will: work with Behaviour his TA to get to Late for Class class on time Kobi will: - Complete up to level 14 by Oct. 28 - Attend all Math Classes
Math
A6
CT will: - Graph Kobis progress unit by unit - Liaise with RR Teacher to help Kobi bring assignments to RR for completion support - RR Teacher will check in with Literacy Teacher and support when needed - Home commun. once weekly to advise of progress
Teaching Strategies:
advance organizers/key visuals alternate content/skills
A7
revision (first draft, sharing, revising, 2nd draft, sharing 3rd draft, polishing;, final, publishing Have student write ideas on post it notes and then rearrange them to make an outline Teach keyboarding skills Use an outline and 2 column notes for paragraph and essay writing Use graphic organizers Use the dot procedure (work to the dot and get feedback) other: _________________
Mother/Father Teacher Principal Teacher Assistant (TA) Teacher/Hearing Imp. Classroom Teacher (CT) Classroom Teacher Classroom Teacher Classroom Teacher Resource Room Teacher (RR) Special Ed. Teacher
A9
Following Directions:
Provide only one or two directions at a time Restate directions in clear simple language Stand close to the student and gain eye contact before giving directions Provide visual support for directions (on students desk or on board
KEY:
A = ADAPTED (Regular Grade Learning Outcomes w/ Accomm./Adapt.) E/G = ENRICHED/GIFTED (i.e., Extended Learning Outcomes or Advanced Level) R = REGULAR (Grade Level Learning Outcomes: Content & Skills) M = MODIFIED ('Substantially Different" from Regular) A8
SAMPLE PROTOCOL
ATTENTION ALL TEACHERS: Date: _________ Student: Kobi Anderson Grade 8 Structure: Create a structured environment-includes choices and clear routines. Supervise: Carefully supervise so the behaviour does not escalate into a situation that becomes unworkable. Simplicity Use clear simple language - stated brieflyleave personal feelings out of the conversation-leave out any verbal justifications, explanations. Steps: Break down tasks into small steps, and teach each step through repetition, and social, verbal or appropriate Reward Context: Teach skills into the context in which the skills are to be used- be careful not to assume that the student will generalize from one concept to another, or understand in which contexts the behaviour is appropriate and when it is not. Kobi may not be able to translate information into action- understand cause and effect. Kobi may not be able to take information learned from one situation and apply it to another. To repeat instructions can sometimes help but does not ensure compliance or understanding.
GOAL REVIEW
TRANSITION PLAN
Transition to Grade 8 , Plan begins _______
Often problems are not behavioural, emotional, or environmental - they are neurological - damage to the brain. Situations need to be set up for a win-win as much as possible- confrontational or punitive actions will not support the student well or provide for an ongoing positive relationship. Sometimes Kobis behaviour may seem to be willful behaviour, however this may not be the case and in most circumstances is the result of a disability and therefore we need to set up situations that will ensure that structures and routines are in place and external supports are in place to ensure success and safety. Chronological Age 10-11 Developmental Age 6 in the areas of social skills, emotional maturity and concept development. Auditory memory is weak. Please support Kobi with as many visual supports in the classroom as possible. Homework written on the board, and in his planner. TA may need to ensure this is done at the end of each class.
Math Level 12
Please send Kobi to the Resource Room if he is having problems adjusting to changes in the classroom setting, or settling down. *** Kobi has a visual support for calming down-please prompt him to use this before he decides to leave the room. ***PLEASE LET KOBI OUT OF CLASS 2 MIN. BEFORE THE BELL. THIS WILL ENSURE A SAFE AND INCIDENT FREE TRAVEL TO THE RESOURCE ROOM TO CHANGE BINDERS AND BOOKS FOR NEXT CLASS. PLEASE CALL MADELINE POHLMANN FIRST CASE MANAGER/RESOURCE ROOM IF A SITUATION ARISES WHERE THE PRINCIPAL OR FAMILY ARE ASKED TO BE INVOLVED.
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Appendix B Resources
Slow cognitive pace Doesnt answer Difficulty generalizing get the piece, not the picture Dysmaturity: Developmentally younger than their age: 7.5 more like a 3 year old & 15 more like a 10 year old Memory problems on days/off days Sensory issues Over stimulated Overwhelmed, distractible
He/she doesnt care lazy, needs to try harder Not trying Pay attention Undisciplined Sit still Off task, Ignore distractions ADD Not trying, Lazy Easily fatigued Keep up Work Avoidant Try harder Unmotivated Impulsive Think ahead Willful inability to predict Plan Disobedient outcomes Set goals Inappropriate acts fastthinks slow Rein in impulses Doesnt care Concrete thinker Abstract, sit still pay Lazy, unmotivated Learns by doing attention, listen/learn and/or poor parenting Rigid, perseverance, Stop when told! Controlling, wants all difficulty stopping/ Dont resist the power, bossy, changing activities Oppositional
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Alcohol and Drug Information and Referral Service #202 - 3102 Main Street, Vancouver, B.C., V5T 3G7 Toll-free: 1 - 800 - 663 - 1441 phone: (604) 660 - 9382 fax: (604) 660 - 9415 Information and referral to treatment services and agencies for those who are seeking assistance with alcohol and other drug misuse. B.C. FAS Resource Society Sunny Hill Health Centre for Children 3644 Slocan Street, Vancouver, B.C., V5M 3E8 (604) 465 - 8204 Project Office: #302 - 11965 Fraser Street, Maple Ridge, B.C. V2X 8H7 phone: (604) 465 - 5211 Information about support and services to families, professionals and the broader community around prevention, intervention and treatment issues related to alcohol and other drug related developmental disabilities. BC Aboriginal Network on Disabilities Society 1179 Kosapsum Crescent Victoria, B.C. V8X 7K7 Toll free: 1 - 888 - 815 - 5511 or: (250) 381 - 7303 Resources are available to First Nations parents, groups and educators, including videos, manuals, displays and brochures dealing with FAS and the effects of alcohol on pregnancy.
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Prevention Source BC 2750 Commercial Drive, Vancouver, B.C. V5N 5P4 Toll free: 1 - 888 - 663 - 1880 phone: (604) 874 - 8452 Information service to residents of BC seeking information about prevention, organizations, programs, materials and research in the area of substance abuse. FAS/E Provincial Prevention Coordinator: (604) 875 - 2039 Womens Health Centre Room 501, 4500 Oak Street, Vancouver, B.C. V6H 3N1 phone: (604) 875 - 3599 Information on how to access information, resources, expertise and services related to FAS/E. Helps with networking among relevant agencies, and setting up community based initiatives. Society of Special Needs Adoptive Parents (SNAP) FAS/E Support Network (604) 589 - 8438 e-mail: [email protected] 151 - 10090 152nd Ave., Suite 187, Surrey, B.C. V3R 8X8 phone: (604) 589 - 1854 fax: (604) 687 - 3364 #1150 - 409 Granville Street, Vancouver, B.C. V6C 1T2 Toll-free: 1 - 800 - 663 - 7627 phone: (604) 687 - 3114 Information on support, consultation and advocacy services for individuals, families, professionals and the broader community around prevention, intervention and treatment issues. Assists special needs adoptive families through mutual support, information sharing
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and advocacy through support groups, one-on-one resource parents, and a lending library. FAS/E Information Service YWCA Crabtree Corner FAS/NAS Prevention Project (604) 689 - 5463 101 East Cordova Street, Vancouver, B.C. V6A 1K7 phone: (604) 689 - 2808 fax: (613) 235 - 8101 Canadian Centre on Substance Abuse #300 - 75 Albert Street, Ottawa, Ontario, K1P 5E7 Toll-free: 1 - 800 - 559 - 4514 or phone: (613) 235 - 4048 A national service that includes a list server for discussion with other individuals interested in FAS/E. E-mail message to [email protected] and type join fastlink in the message. Offers educational workshops, a resource lending library, a peer support group for moms with children with FAS/NAS and information and crisis counselling. Posters and pamphlets are available, as well as guides to prevention, caring for children and a guide to resources. FAS Early Intervention Consultant Aurora Centre 4500 Oak Street, 5th floor, Vancouver, B.C. V6H 3N1 phone: (604) 875 - 2017 Works with health/social providers on early intervention approaches with women at risk. Develops policy regarding treatment and disseminates information on early intervention.
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Copyright
The First Nations Education Steering Committee and The First Nations Schools Association 2006
For additional copies, please write to: Suite #113-100 Park Royal South West Vancouver, BC V7T 1A2 Email: [email protected]