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Phil Booth Profile picture
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11 Jun, 4 tweets, 5 min read
Hmm. Are you 100% certain about that, Dom? @NHSEngland's #PrivacyNotice for the #COVID19DataStore clearly states otherwise 👇

england.nhs.uk/contact-us/pri…

The #dashboards may(?) only show aggregate numbers, but those numbers were generated from individual-level data...
…i.e. from #PersonalData, as is also clearly stated in the #DPIA 👇

england.nhs.uk/wp-content/upl…

Indeed, it says the strategic dashboard "will display ... record level pseudonymised data” and (as a data expert) you will of course know that #pseudonymised data is #personal data…
...and has been *in law*, as well as in practice, since at least May 2018.

@ICOnews published some helpful (draft) guidance just last month that can point you in the right direction if there's any confusion:

ico.org.uk/media/about-th…
Oh, and the contract with @PalantirTech that describes what the #dashboards do (some of which your mates at @faculty_ai helped develop) mentions "#PersonalData" some *80 times*, including a 15-page Schedule on the stuff 👇

contractsfinder.service.gov.uk/Notice/Attachm…

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More from @EinsteinsAttic

Phil Booth Profile picture
10 Jun
The man's either lying or he's DANGEROUSLY ignorant / ill-informed.

Hancock can't have missed that Cummings' henchman Ben, who attended SAGE, was the brother of Marc Warner (CEO of Faculty Science Ltd, formerly ASI Data Science Ltd) that built the #dashboards Matty Moo-Moos...
...so loves, on top of @PalantirTech's Foundry "#DataPlatform" (remember those words!) that @NHSEngland has contracted for another 2 YEARS, to feed data from NHSE's ever-so-untransparent #DataStore.

But let's push it further - away from the now-defunct @CamAnalytica - in the...
...direction of the notoriously 👇👇👇 bullshitting:

artificialintelligence-news.com/2019/04/12/bab…

#AI company that also happens to be @MattHancock's GP:

blogs.bmj.com/bmj/2018/12/04…

A company Hancock appears to be pushing his @NHSX minions to use to replace #NHS111 triage...

pulsetoday.co.uk/news/technolog…
Read 6 tweets
Phil Booth Profile picture
10 Jun
Hi, @BHFDataScience! Please could you point me to a copy of your letter that is reported here:

theguardian.com/science/2021/j…

I've checked your website, but I can't seem to find a copy:

hdruk.ac.uk/helping-with-h…
Ah, no worries - I see it now. You tweeted a link to it, and I see it is on @HDR_UK's website:

hdruk.ac.uk/news/nhs-digit…

On reading your letter, @medConfidential would heartily agree with paragraphs 1, 3 and 5...
On paragraph 3, we very much agree that #trustworthy use of patient data for #ethically-approved #research is good.

But not ALL intended uses of #GPDPR *are* trustworthy, as @NHSDigital's own data release registers confirm:

theysolditanyway.com
Read 11 tweets
Phil Booth Profile picture
6 Jun
A '#Mythbusting' mayhem [Thread]:

Last Friday, 4 June, @NHSDigital removed the “Mythbusting social media posts” box from the top of its main #NationalDataOptOut page:

web.archive.org/web/diff/20210… < Web Archive diff showing 3 June vs 5 June

They also removed...
...the @NHSDigital call centre phone number and replaced it with text directing people to the #NHSapp. (If they tell us what changed, we’ll change our website too – but they’ve not yet asked.)

In the same time frame, they changed the...
...“Read NHS Digital's response to the false information about the national data opt-out” link link on:

nhs.uk/your-nhs-data-…

so that instead of going to the “Mythbusting social media posts about the national data opt-out” page...
Read 11 tweets
Phil Booth Profile picture
27 May
The Government has instructed your GP to hand over your lifelong medical history – your GP doesn’t have a choice, but YOU DO... until 23rd June.

If you don’t want your family’s #GPdata used & sold to Hancock’s cronies, send/give this letter to your GP:

medconfidential.org/wp-content/upl…
While @NHSDigital’s #OptingOut page* says a #Type1 “can only be recorded by your GPpractice” & doesn’t even link to the form, it’s worth noting #GeneralPractice is currently the busiest it’s ever been. Why is @DHSCgovuk putting even more work onto GPs?

* digital.nhs.uk/about-nhs-digi…
Decisions aren’t only made by @NHSDigital, of course -but it WILL give your data to others.

Like #CPRD, which gives it to companies to #identify specific patients’ #records; and #PHE, which gave #cancer patients’ data to a “causes of cancer” study run by a #tobacco company...
Read 6 tweets
Phil Booth Profile picture
15 May
I'm afraid not. For the 2021 #GPdata grab, to prevent your entire GP history being copied by @NHSDigital you must ask your GP to add a 'Type 1' opt-out to your GP record.

The official form to do that is here:
nhs-prod.global.ssl.fastly.net/binaries/conte…

Or you can use ours:
medconfidential.org/how-to-opt-out/
The GP Privacy Notice* issued by @NHSDigital is on first glance a bit confusing, suggesting you can do a #Type1 "or" a #NationalDataOptOut - but (as the Notice goes on to explain) the latter WILL NOT STOP your #GPdata from being taken...

__
*digital.nhs.uk/data-and-infor…
...and if you do not opt out using a #Type1 to your GP before data is first extracted (from 1 July 2021*) then your entire GP history will be taken on first upload - and will NEVER be deleted!

__
*Hence the 23 June 2021 deadline, so your opt-out form(s) can be processed in time.
Read 4 tweets
Phil Booth Profile picture
15 May
While I appreciate it won't have been everywhere, in my town GP practices have been doing flu jabs then COVID jabs round the clock *for months* while offering phone and F2F appointments, safely, when needed.

WTF does @NHSEngland think has been going on?

england.nhs.uk/wp-content/upl…
Powerful response from Local Medical Committee to @NHSEngland's tone-deaf letter:



Blaming GPs for *its own policies*
england.nhs.uk/gp/digital-fir…

which it clearly intends to pursue
gponline.com/nhs-england-pl…

...is the height of #hypocrisy.

But nothing new.
Also this 👇 and rest of [Thread]:



Too many forget that @NHSEngland is NOT 'the NHS in England' but rather the #NHS #CommissioningBoard - as the letter about its renaming in 2013 made crystal clear:

assets.publishing.service.gov.uk/government/upl… Image
Read 5 tweets

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