Autism spectrum disorders (ASDs) encompass a wide spectrum of symptoms and levels of impairment in the social, communicative and behavioural domains. [1] There has been limited research with a focus on interprofessional collaboration...
moreAutism spectrum disorders (ASDs) encompass a wide spectrum of symptoms and levels of impairment in the social, communicative and behavioural domains. [1] There has been limited research with a focus on interprofessional collaboration regarding ASDs in the local context. The intention of the present research was to develop a support programme that would allow registered nurses in primary healthcare (PHC) to identify the characteristics of children with ASDs and to recognise possible risk factors. This practice would allow nurses to refer such children to appropriate healthcare services, and to provide parents with essential information when there is reason for concern. PHC is the first level of contact between the general population and the health system. [2] Patients are referred to healthcare services at secondary and tertiary hospitals. [3] Nurses in PHC often have to consult with the families of children with disabilities. [4] As registered nurses interact with mothers about the welfare of their children, and become aware of their concerns, they require unique knowledge, competencies and skills. [3] It is therefore important that nurses in PHC are made aware of the characteristics and risk factors associated with ASDs (e.g. social, communicative and behavioural problems, and learning characteristics) in order for them to refer children as soon as possible. [5] Early diagnosis provides an opportunity for early intervention, which improves the prognosis of the child in terms of linguistic, cognitive, social and motor abilities. [6] In rural contexts, ASDs are often only diagnosed many years after the onset of symptoms, or misdiagnosed, possibly as a result of a lack of knowledge. [7] Awareness and knowledge of autism is very limited among healthcare workers in sub-Saharan African countries; [6] early diagnosis and intervention occur more often in developed countries. [8] Because of this situation, the diagnosis and detection of ASDs often occurs too late. Valuable time is lost in which intervention and education could have occurred. In some African countries, the proportion of children with ASDs receiving an education can be as low as 1-3%. [9] Early identification is crucial for the development, education and functioning of the child, and should occur before the age of 3. [10] Registered nurses in PHC clinics spend most of their time treating and diagnosing common childhood diseases (e.g. diarrhoea, nutritional deficits, HIV/AIDS) that are related to the national burdens of disease, and are less focused on behavioural difficulties in young children. [3] In addition, registered nurses receive limited information on the topic of ASDs in their professional training. Lack of knowledge about ASDs presents barriers to early identification of and intervention for such children. [5] Previous research has shown that there is a critical need to train healthcare workers in recognising ASDs, especially in underserved communities. [7,11] Early intervention can significantly improve the quality of life of children with ASDs [3] and prevent further delays. [10] Registered nurses should be supported in order to become familiar with the characteristics and risk factors associated with ASDs, and to understand the impact of ASDs on children and their families. Signs of ASDs often appear at the age of 12-18 months. [12] Children are usually seen at clinics at regular intervals (6, 12, 18, 24 and 30 months) for immunisation, and on such occasions parents may want to discuss their concerns with the nurse. It is important that registered Background. Registered nurses in South Africa often work in community clinics in primary healthcare (PHC), where they are first in line to be consulted by families with children with disabilities. There has been limited research with a focus on interprofessional collaboration regarding autism spectrum disorders (ASDs) in the local context. A support programme was developed to inform registered nurses in PHC of the symptoms and characteristics of ASDs in order to increase the number of referrals to specialists for early diagnosis. Objectives. To determine the effectiveness of a support programme for registered nurses in PHC clinics, and to raise awareness of ASDs. Methods. Two PHC clinics in a semirural area in Gauteng Province, SA, were included in the study, in which 10 registered nurses participated. A descriptive, quantitative approach was used, and data were collected by means of self-administered questionnaires. Results. The results confirmed that the support was effective, as participants showed an increase in knowledge and understanding of ASDs. Poor attendance and the limited sample size affected the outcomes. Conclusion. A multidisciplinary approach to the early identification and referral of children with possible ASDs is important to improve the quality of life of these children and prevent further delays. Speech-language therapists should provide support to registered nurses in PHC, and training should be repeated on a continual basis to facilitate long-term retention and to accommodate shift changes within clinics.