To evaluate the effectiveness of a specific physical therapy treatment on stiffness, pain and qua... more To evaluate the effectiveness of a specific physical therapy treatment on stiffness, pain and quality of life (HRQL) in rheumatic patients. Experimental, prospective, longitudinal and intervention study. It involved 29 individuals with a mean age (SD) of 54.16 (11,9) years, belonging to the Salmantina Association of Rheumatoid Arthritis Patients, randomized into 2 groups: treatment (GT) and control (GC). The study analyzed the time in minutes of morning stiffness, pain -using the Downie Scale- and CVRS through the Nottingham Health Profile (NHP) and the Health Questionnaire SF-36 (SF-36). It carries out an individual treatment that includes mainly physiotherapy manual techniques in one or two sessions per week for six months. The time of early morning stiffness showed a mean (SD) 21.38 (29.99) minutes (GC=20,38, GT=22.19), increasing in GC (26.82) and decreasing in GT (12,5). Pain presented at the beginning a mean (SD) 3.6 (2.03) points (GC=2,85, GT=4.22) decreasing in GT (3.68) and increasing in GC (3.45). There was an improvement of CVRS in the GT with decreased scores on four dimensions of NHP (pain, sleep, physical mobility and emotional reactions) and increases in SF-36 (physical problems, social function, pain, function physics). In any case the results were statistically significant. The study cannot conclude the effectiveness of physiotherapy in the treatment of rheumatoid arthritis although the results show a decrease of morning stiffness and pain and increased CVRS, which is clinically interesting.
Guía con la última información sobre fibromialgia. Escrita por el comité científico de la Asociac... more Guía con la última información sobre fibromialgia. Escrita por el comité científico de la Asociación de Divulgación de Fibromialgia (ADFM) y dirigida a personas que debutan en la enfermedad. Idioma accesible al público general. Con fotografías de Eli Pinedo y Cristina Trillo.
R e v i s t a P o r t u g u e s a d e P n e u m o l o g i a 543 Vol XVI N.º 4 Julho/Agosto 2010 A... more R e v i s t a P o r t u g u e s a d e P n e u m o l o g i a 543 Vol XVI N.º 4 Julho/Agosto 2010 Artigo Original Original Article Resumo Objectivos: Comparar os efeitos da asma e da DPOC na qualidade de vida dos doentes avaliados pelo Saint George Respiratory Questionnaire (SGRQ) através de correlações entre as variáveis e os domínios e a pontuação total. Métodos: Estudo transversal entre Outubro de 2008 a Março de 2009 com 75 adultos das consultas de ambulatório do Hospital Universitário de Salamanca, Espanha. Depois de informar os objectivos do estudo e os aspectos éticos, foi preenchido um formulário com os dados clínicos e socio-Abstract Aims: To compare the effects of asthma and chronic obstructive pulmonary disease (COPD) on the quality of life of patients evaluated using the Saint George Respiratory Questionnaire (SGRQ) through correlating the variables, domains and total score. Methods: A cross-sectional study from October 2008 to March 2009 with 75 adult outpatients at the University Hospital of Salamanca, Spain. Patients provided their clinical and socio-demographical data after being informed of the study's aims and ethical aspects. The A qualidade de vida relacionada com a saúde de doentes com doença pulmonar obstrutiva crónica e asma avaliada pelo SGRQ The health-related quality of life of patients with chronic obstructive pulmonary disease and asthma evaluated by the SGRQ Recebido para publicação/received for publication: 09.10.29 Aceite para publicação/accepted for
This qualitative study explores the illness experiences, the efficacy of pulmonary rehabilitation... more This qualitative study explores the illness experiences, the efficacy of pulmonary rehabilitation as perceived by patients with chronic obstructive pulmonary disease (COPD) and their rationale for improvements in health. 23 patients participated in a daily, three-month home-based pulmonary rehabilitation. A pre-post self-perceived assessment of efficacy was conducted. Semi-structured interviews, illness narratives and participant-observation provided a "dense description" of patients' lived-experience before and after the program. Interviews and narratives were tape-recorded, transcribed and coded. Qualitative data was subjected to "thematic content analysis" and "contextualized semantic interpretation". Patients compare functional status before and after falling ill, experience loss, stigma and depression, describe health improvements and judge the pulmonary rehabilitation's efficacy. Giving voice to chronically-ill patients, as individuals, is needed. To reduce clinical conflicts, health professionals should encourage illness narratives and value their patients' lived-experience.
Journal of Cardiopulmonary Rehabilitation and Prevention, 2014
To evaluate the benefits of home-based pulmonary rehabilitation (PR) in patients with severe and ... more To evaluate the benefits of home-based pulmonary rehabilitation (PR) in patients with severe and very severe chronic obstructive pulmonary disease (COPD). Randomized clinical trial involving 58 patients. Pulmonary function, quality of life evaluated by the Saint George Respiratory Questionnaire, breathlessness evaluated by the London Chest Activity of Daily Living Scale, and exercise tolerance evaluated by 6-minute walk distance were assessed at baseline and at 12 weeks. The program consisted of 2 weekly visits by a physiotherapist in the first 2 weeks, followed by visits twice a month, as well as weekly telephone calls. Training included breathing and stretching exercises and strength exercises (upper and lower limbs), along with endurance training, including walking, stair climbing, cycling, and treadmill walking, depending on available patient resources. The treatment group (TG; n = 23) and control group (CG; n = 18) completed the study. Following the intervention, no statistically significant differences were found in pulmonary function in the TG and CG. The TG exhibited statistically significant differences in the activity domain (P = .008), impact domain (P < .001), and total scores of the Saint George Respiratory Questionnaire (P < .001). In addition, the TG demonstrated statistically significant differences in all domains of the London Chest Activity of Daily Living Scale and no differences were observed in the CG after 12 weeks. There was a statistically significant difference in the 6-Minute Walk Distance in the TG after rehabilitation (P = .008). This study offers evidence that home-based PR promotes benefits in the quality of life, breathlessness in activities of daily living, and exercise capacity in patients with severe and very severe COPD. Home-based PR must be considered as part of the treatment for patients who live far from hospitals even in severe COPD.
Acep: 14 -septiembre -2004) La infección por el VIH es considerada una enfermedad crónica. Los ob... more Acep: 14 -septiembre -2004) La infección por el VIH es considerada una enfermedad crónica. Los objetivos de este estudio de tipo "ex post facto" prospectivo factorial son comprobar si existen diferencias entre una muestra de pacientes con VIH/SIDA evaluada en calidad de vida relacionada con la salud en función del sexo, de la vía a través de la cual se infectaron y de algunos parámetros clínicos relacionados con la infección. Otro objetivo es comprobar si existen diferencias entre la muestra de pacientes con VIH/SIDA evaluada y el grupo normativo en calidad de vida relacionada con la salud. Participaron 100 pacientes con VIH/SIDA, de los cuales 63 eran varones y 37 eran mujeres. Los instrumentos de evaluación utilizados fueron un cuestionario sociodemográfico y el cuestionario MOS-HIV. Los resultados indicaron que existen diferencias estadísticamente significativas en calidad de vida relacionadas con la salud física en función de la vía de transmisión y del estadio de la infección. Los varones y las mujeres muestran niveles medios en calidad de vida relacionada con la salud. Se proponen las posibles explicaciones de estos resultados y se resalta la importancia de las intervenciones dirigidas al aumento de la calidad de vida en los pacientes con VIH. Palabras claves: Calidad de vida relacionada con la salud; virus de la inmunodeficiencia humana (VIH); síndrome de inmunodeficiencia adquirida (SIDA). HIV infection is considered a chronic illness. In the present "ex post facto" prospective factor study is verified if there are differences between the sample of patients with HIV/AIDS that has been evaluated in health-related quality of life according to gender, transmission way and some clinical parameter related to HIV infection. Another aim is verify if there are differences between the sample of patients with HIV/AIDS that has been evaluated and the normative group in health-related quality of life. In this study, 100 patients with HIV/AIDS participated and 63 were men and 37 were women. The instruments for the assessment were a social-demographic questionnaire and the MOS-HIV questionnaire. The results showed statistically significant differences in physical health-related quality of life according to the transmission way and the stage of HIV infection. Men and women showed a halfway point level in health-related quality of life. It is proposed the possible reasons of these results and it is emphasized the importance of the interventions which aims is to increase the quality of life of this population.
To evaluate the effectiveness of a specific physical therapy treatment on stiffness, pain and qua... more To evaluate the effectiveness of a specific physical therapy treatment on stiffness, pain and quality of life (HRQL) in rheumatic patients. Experimental, prospective, longitudinal and intervention study. It involved 29 individuals with a mean age (SD) of 54.16 (11,9) years, belonging to the Salmantina Association of Rheumatoid Arthritis Patients, randomized into 2 groups: treatment (GT) and control (GC). The study analyzed the time in minutes of morning stiffness, pain -using the Downie Scale- and CVRS through the Nottingham Health Profile (NHP) and the Health Questionnaire SF-36 (SF-36). It carries out an individual treatment that includes mainly physiotherapy manual techniques in one or two sessions per week for six months. The time of early morning stiffness showed a mean (SD) 21.38 (29.99) minutes (GC=20,38, GT=22.19), increasing in GC (26.82) and decreasing in GT (12,5). Pain presented at the beginning a mean (SD) 3.6 (2.03) points (GC=2,85, GT=4.22) decreasing in GT (3.68) and increasing in GC (3.45). There was an improvement of CVRS in the GT with decreased scores on four dimensions of NHP (pain, sleep, physical mobility and emotional reactions) and increases in SF-36 (physical problems, social function, pain, function physics). In any case the results were statistically significant. The study cannot conclude the effectiveness of physiotherapy in the treatment of rheumatoid arthritis although the results show a decrease of morning stiffness and pain and increased CVRS, which is clinically interesting.
Guía con la última información sobre fibromialgia. Escrita por el comité científico de la Asociac... more Guía con la última información sobre fibromialgia. Escrita por el comité científico de la Asociación de Divulgación de Fibromialgia (ADFM) y dirigida a personas que debutan en la enfermedad. Idioma accesible al público general. Con fotografías de Eli Pinedo y Cristina Trillo.
R e v i s t a P o r t u g u e s a d e P n e u m o l o g i a 543 Vol XVI N.º 4 Julho/Agosto 2010 A... more R e v i s t a P o r t u g u e s a d e P n e u m o l o g i a 543 Vol XVI N.º 4 Julho/Agosto 2010 Artigo Original Original Article Resumo Objectivos: Comparar os efeitos da asma e da DPOC na qualidade de vida dos doentes avaliados pelo Saint George Respiratory Questionnaire (SGRQ) através de correlações entre as variáveis e os domínios e a pontuação total. Métodos: Estudo transversal entre Outubro de 2008 a Março de 2009 com 75 adultos das consultas de ambulatório do Hospital Universitário de Salamanca, Espanha. Depois de informar os objectivos do estudo e os aspectos éticos, foi preenchido um formulário com os dados clínicos e socio-Abstract Aims: To compare the effects of asthma and chronic obstructive pulmonary disease (COPD) on the quality of life of patients evaluated using the Saint George Respiratory Questionnaire (SGRQ) through correlating the variables, domains and total score. Methods: A cross-sectional study from October 2008 to March 2009 with 75 adult outpatients at the University Hospital of Salamanca, Spain. Patients provided their clinical and socio-demographical data after being informed of the study's aims and ethical aspects. The A qualidade de vida relacionada com a saúde de doentes com doença pulmonar obstrutiva crónica e asma avaliada pelo SGRQ The health-related quality of life of patients with chronic obstructive pulmonary disease and asthma evaluated by the SGRQ Recebido para publicação/received for publication: 09.10.29 Aceite para publicação/accepted for
This qualitative study explores the illness experiences, the efficacy of pulmonary rehabilitation... more This qualitative study explores the illness experiences, the efficacy of pulmonary rehabilitation as perceived by patients with chronic obstructive pulmonary disease (COPD) and their rationale for improvements in health. 23 patients participated in a daily, three-month home-based pulmonary rehabilitation. A pre-post self-perceived assessment of efficacy was conducted. Semi-structured interviews, illness narratives and participant-observation provided a "dense description" of patients' lived-experience before and after the program. Interviews and narratives were tape-recorded, transcribed and coded. Qualitative data was subjected to "thematic content analysis" and "contextualized semantic interpretation". Patients compare functional status before and after falling ill, experience loss, stigma and depression, describe health improvements and judge the pulmonary rehabilitation's efficacy. Giving voice to chronically-ill patients, as individuals, is needed. To reduce clinical conflicts, health professionals should encourage illness narratives and value their patients' lived-experience.
Journal of Cardiopulmonary Rehabilitation and Prevention, 2014
To evaluate the benefits of home-based pulmonary rehabilitation (PR) in patients with severe and ... more To evaluate the benefits of home-based pulmonary rehabilitation (PR) in patients with severe and very severe chronic obstructive pulmonary disease (COPD). Randomized clinical trial involving 58 patients. Pulmonary function, quality of life evaluated by the Saint George Respiratory Questionnaire, breathlessness evaluated by the London Chest Activity of Daily Living Scale, and exercise tolerance evaluated by 6-minute walk distance were assessed at baseline and at 12 weeks. The program consisted of 2 weekly visits by a physiotherapist in the first 2 weeks, followed by visits twice a month, as well as weekly telephone calls. Training included breathing and stretching exercises and strength exercises (upper and lower limbs), along with endurance training, including walking, stair climbing, cycling, and treadmill walking, depending on available patient resources. The treatment group (TG; n = 23) and control group (CG; n = 18) completed the study. Following the intervention, no statistically significant differences were found in pulmonary function in the TG and CG. The TG exhibited statistically significant differences in the activity domain (P = .008), impact domain (P < .001), and total scores of the Saint George Respiratory Questionnaire (P < .001). In addition, the TG demonstrated statistically significant differences in all domains of the London Chest Activity of Daily Living Scale and no differences were observed in the CG after 12 weeks. There was a statistically significant difference in the 6-Minute Walk Distance in the TG after rehabilitation (P = .008). This study offers evidence that home-based PR promotes benefits in the quality of life, breathlessness in activities of daily living, and exercise capacity in patients with severe and very severe COPD. Home-based PR must be considered as part of the treatment for patients who live far from hospitals even in severe COPD.
Acep: 14 -septiembre -2004) La infección por el VIH es considerada una enfermedad crónica. Los ob... more Acep: 14 -septiembre -2004) La infección por el VIH es considerada una enfermedad crónica. Los objetivos de este estudio de tipo "ex post facto" prospectivo factorial son comprobar si existen diferencias entre una muestra de pacientes con VIH/SIDA evaluada en calidad de vida relacionada con la salud en función del sexo, de la vía a través de la cual se infectaron y de algunos parámetros clínicos relacionados con la infección. Otro objetivo es comprobar si existen diferencias entre la muestra de pacientes con VIH/SIDA evaluada y el grupo normativo en calidad de vida relacionada con la salud. Participaron 100 pacientes con VIH/SIDA, de los cuales 63 eran varones y 37 eran mujeres. Los instrumentos de evaluación utilizados fueron un cuestionario sociodemográfico y el cuestionario MOS-HIV. Los resultados indicaron que existen diferencias estadísticamente significativas en calidad de vida relacionadas con la salud física en función de la vía de transmisión y del estadio de la infección. Los varones y las mujeres muestran niveles medios en calidad de vida relacionada con la salud. Se proponen las posibles explicaciones de estos resultados y se resalta la importancia de las intervenciones dirigidas al aumento de la calidad de vida en los pacientes con VIH. Palabras claves: Calidad de vida relacionada con la salud; virus de la inmunodeficiencia humana (VIH); síndrome de inmunodeficiencia adquirida (SIDA). HIV infection is considered a chronic illness. In the present "ex post facto" prospective factor study is verified if there are differences between the sample of patients with HIV/AIDS that has been evaluated in health-related quality of life according to gender, transmission way and some clinical parameter related to HIV infection. Another aim is verify if there are differences between the sample of patients with HIV/AIDS that has been evaluated and the normative group in health-related quality of life. In this study, 100 patients with HIV/AIDS participated and 63 were men and 37 were women. The instruments for the assessment were a social-demographic questionnaire and the MOS-HIV questionnaire. The results showed statistically significant differences in physical health-related quality of life according to the transmission way and the stage of HIV infection. Men and women showed a halfway point level in health-related quality of life. It is proposed the possible reasons of these results and it is emphasized the importance of the interventions which aims is to increase the quality of life of this population.
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