Papers by Lesley Goodburn
Pancreatology, Dec 1, 2018
Health and social care delivery research, Aug 31, 2023
Health and Social Care Delivery Research
Background Family carers play a central role in supporting people at the end of life, but often s... more Background Family carers play a central role in supporting people at the end of life, but often suffer detrimental impacts on their own mental health as a result. This project conducted evidence synthesis of research into factors that may affect carers’ mental health to help identify ways of maintaining their mental health. It worked closely with a carer Review Advisory Panel to help ensure the findings made sense and were communicated meaningfully from the carers’ perspective. Aim To present: (1) principles and components that facilitated successful patient and public involvement in an evidence synthesis project to help inform patient and public involvement in similar projects; (2) recommendations for carer support that were instigated and produced by the Review Advisory Panel. Process and principles Nine Review Advisory Panel meetings including four to five carers, a lay Chair and three researchers were held. Solid ‘groundwork’ was invested in recruitment and relationship-building...
Significant social and healthcare inequalities exist in the provision and access to bereavement s... more Significant social and healthcare inequalities exist in the provision and access to bereavement services. An aging population and the deaths related to the Covid-19 pandemic mean that more people are experiencing bereavement. This has accelerated the need to address this crucial area of psychological, social and healthcare support. We aimed to analyse the experiences of those bereaved in the last five years by drawing on data from the UK Commission on Bereavement (UKCB) to explore how age, gender, ethnicity, and sexual orientation were perceived to impact on inequalities relating to access, effectiveness, satisfaction, and delivery of services. We carried out a qualitative thematic secondary analysis of free text data of 1,119 survey responses of adult members of the public who had been bereaved in the last five years, and of 130 survey responses from organisations and professionals working with bereaved people. Free text responses from the public adult survey were categorised by gr...
British Journal of Cancer
Introduction CONTACT is a national multidisciplinary study assessing the impact of the COVID-19 p... more Introduction CONTACT is a national multidisciplinary study assessing the impact of the COVID-19 pandemic upon diagnostic and treatment pathways among patients with pancreatic ductal adenocarcinoma (PDAC). Methods The treatment of consecutive patients with newly diagnosed PDAC from a pre-COVID-19 pandemic cohort (07/01/2019-03/03/2019) were compared to a cohort diagnosed during the first wave of the UK pandemic (‘COVID’ cohort, 16/03/2020-10/05/2020), with 12-month follow-up. Results Among 984 patients (pre-COVID: n = 483, COVID: n = 501), the COVID cohort was less likely to receive staging investigations other than CT scanning (29.5% vs. 37.2%, p = 0.010). Among patients treated with curative intent, there was a reduction in the proportion of patients recommended surgery (54.5% vs. 76.6%, p = 0.001) and increase in the proportion recommended upfront chemotherapy (45.5% vs. 23.4%, p = 0.002). Among patients on a non-curative pathway, fewer patients were recommended (47.4% vs. 57.3%, ...
Canadian Medical Association Journal, 2013
bout 1 in 79 Canadians will have pancreatic cancer in their lifetime, making it the 12th most com... more bout 1 in 79 Canadians will have pancreatic cancer in their lifetime, making it the 12th most common malignant disease and the 4th leading cause of death from cancer. 1,2 A family physician can expect to encounter 1 to 2 patients with pancreatic cancer each year, with increases in case volumes anticipated as the Canadian population grows and ages. 3 When considering all stages, the overall 5-year survival for pancreatic cancer is about 6% (Table 1), 4,5 making it one of the most fatal diseases. 1 In the clinical setting, and for the purpose of this article, we use the term pancreatic cancer to refer to the ductal adenocarcinoma subtype, which accounts for 90% of cases. 6 The aim of this article is to explore our current evidencebased understanding of pancreatic cancer (Box 1), focusing on diagnostic and treatment strategies relevant to the general clinician.
Service development, models and collaborative working
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Papers by Lesley Goodburn