Speaker 3 (00:00)

Hello, and thank you for the opportunity to present this talk today, which I'll probably rattle at lightning
speed. I'm Claire Price, and I'm talking about the challenges of using published research based on
healthcare data when adopting open research practices. First became aware of these problems in the early
stages of my PhD, which is focused on improving the early detection of pancreatic cancer. Pancreatic
cancer is a devastating disease, and one of the key symptoms is weight loss, which is often dramatic. So
my first step was to conduct a systematic review and meta-analysis to quantify what other researchers
have found the weight loss to be. This showed that most people lose about 6 kilograms of weight before
their pancreatic cancer diagnosis. While conducting this review, I adopted several open research practices,
including pre-registration of the protocol on Prospero using a reproducible search strategy and having a
Prisma flow chart to show which studies were included and from where they came. In the publication, to
aid reproducibility and transparency, I've also added the outcomes of the risk of bias assessments and the
table of excluded studies and why. This will also be disseminated as a preprint to improve the speed of
dissemination, as well being published open access.

In addition, all the data gathered during data extraction will be presented in a GitHub repo so anyone can
access it. There are also a lot of challenges when undertaking this project, principally the lack of
consistency between study types and units and how data was presented. There are also more directly open
research-related challenges, such as data only being presented graphically, selective reporting, and
researchers no longer having access to data sets. This last one is particularly related to problems with
healthcare research because data has to be handled so carefully due to privacy and ethical implications. To
try to improve this, we're adopting a different way of working for the rest of my PhD. This will be
focusing on validating an algorithm to predict pancreatic cancer using patient data. The way we're
working is very similar to how Open Safely works.
We will first be writing our code in an open way and sharing it on GitHub, so we're being as transparent
as possible. This will then be passed into a trusted research environment where authorized researchers run
the code on de-identified patient data. We have no direct access to the data, but in this way, we're trying to
be as open as possible while still respecting the ethical constraints of using people's private medical data
for research.
Speaker 3 (03:05)
So thank you. I'll be happy to answer questions after the other talks.

Speaker 4 (03:18)
Thank you, Claire. Our next lightning talk speaker is Pablo. Pablo will be talking about showering
smartly.

Speaker 2 (03:30)
Hello. It's working. Does that work? It's working. Can you hear me? Yeah, yours is working. Yeah? Okay,
good. Good morning, everyone. I'm going to talk about water conservation. Water scarcity is a challenge.
It's a global challenge, and England is not an exception. Okay, thank you. England is not an exception. In
fact, by 2050, England will be in a water deficit of 4,000 megaliters a day. This is like 1,600 Olympic
swimming pools. Half of it has to come through our own water consumption reduction. In other words,
we need to reduce our own water consumption from 150 liters per person per day to 110 liters per person
per day. Why showering? Showering is the highest water consumption activity at home and also beyond
home tourism accommodations, also residents, and so on. To address this problem, we developed
behavioral intervention using smart technology and persuasive messages. The smart technology that you
can see in the screen is able to detect showers in real-time and inform the users about their shower
duration. We developed experiments in the first study in seven tourism accommodations in the US, in UK,
Denmark, and Spain. And the second study was run here on campus in Halls of Residence.
Speaker 2 (05:09)
In both cases, the users were not aware of being part of an experiment and also were not motivated to
save to... We're not responsible to pay the water and energy bills. What we found is that the technology on
its own works, is effective in reducing sour in both contexts. However, when we combine technology and
a behavioral change, the effect increases. And the figure on the left shows the effect of our messages in
tourism accommodations. The most effective message achieved savings of 21% reduction. This is over a
minute. And the figure on the left reflects the effect of our intervention in ensuite rooms in household
residence. Around week 27, it's clear that our effect changed the showering pattern for both females and
males.
So what I'm very proud about this project is the open research practices that we included. For the first
study, we have a preprint. You have a QR code there if you want to learn more about the project. The
second study in Hounslow Residence has been pre-registered. We are going to have a preprint and all the
data will be available once the study is finished. The third study is coming. This is going to be the biggest
study done in households.

Speaker 2 (06:40)
We're going to install 10,000 devices across England and Wales over two years. We expect to collect like
50 million showers, and all this data will be available once the study is published. Thank you very much.
Thank you.

Speaker 4 (06:59)
Thank you. Okay, over to Tamala. Our third lightning talk today is from Tamala Anderson, talking about
starting the PhD journey from a good place. I think I've now established we need to use this microphone
and that microphone. I think it's both. Yeah. Thank you. Thanks.

Speaker 1 (07:22)
Hi, everyone. My name is Tamela, and I'm here because of this poster, which explored how open research
might support my project, trying to connect place attachment and environmental psychological research
with environmental design. I can't speak much from research experience yet, so I'd like to talk to you a
little bit about my open research journey so far, from the perspective of someone who spent her entire
career until recently, outside of research and academia. I'd especially like to talk to those of you in the
room who don't really understand why there might be at an open research event. You're not really sure this
is something you can commit to, and you don't really know what you might do next. Because if any of
that resonates with you, I can tell you from my experience that open research resources can really help. I
started with a few concerns about what to do next and some curiosity about how I might approach my
research problem and the methodology, and I found really helpful examples and support. The open
research resources that I've used have helped me ensure that the steps I take will have the integrity and
rigor so essential for the quality of research that we're hoping to aspire to.
Speaker 1 (08:40)
As for me, as I navigate my way through a new field without the comfort of prior experience, these
resources have helped me move forward. So what did I do? Which one do I do? What do I do? There we
go. I completed the open research training module. Here at Surrey I got my badge and my orchid number.
I attended some excellent online training sessions with the UK Data Service when I thought I might be
using secondary data. I also attended the inaugural Surrey Open Research Lecture last year, which was
really inspirational if any of you were here. For my first data management plan ever, I used the DMP
online tool to get started. And then I pivoted to the qualitative data repository out of Syracuse to ensure
that... They had a checklist so I could ensure I was covering everything that was necessary for qualitative
data that I was hoping to collect. I investigated pre-registration at the OSF Registries, which was
incredibly helpful while I prepared for my ethics application. I'm hoping to pre-register my study. I've
also participated in a few of the engagement training sessions by the ESRC that have been held here at
Surrey.