UNC-DM Newsletter October 2011
UNC-DM Newsletter October 2011
UNC-DM Newsletter October 2011
VOLUME 3; ISSUE 3
The mission of UNC Dance Marathon is to unite the University, community and state in fostering emotional and financial support that improves the quality of life for the patients, families and staff of N.C. Children's Hospital.
OCTOBER 6 11 PM - 2 AM Listen to music and have some fun with UNC-DM and CWB.
Pantana Bobs.
[Zeroed In]
Where are they noW Page V
Read our blog post to find out how experiences with our organization have influenced graduates in their current jobs. Check out page II of the Newsletter for two-time Overall Committee member Kate Gilliams memory of UNC-DM. Learn about many of the events we put on throughout the year. In this issue, UNC-DM gets a little sweet and a little messy as committees compete in the first Vermonster of the year. Learn the ins and outs of one of the nine new grants that we have made possible for N.C. Childrens Hospital. This month we feature the palliative care unit, which provides counseling and treatment for seriously ill children and their families. Meet a UNC student who has been impacted by N.C. Childrens Hospital. This month, read about Emily Horton and her connection to N.C. Childrens Hospital.
[Mission 365]
a year-round effort Page V unC-dMs IMPaCt Page II
Page III & IV
We hosted our first hospital social, featuring an outer space theme. Kids participated in a moon rock hunt, decorated their own glow-in-the-dark stars and made spaceships and planets. Committee members helped serve hot meals to families every Tuesday during Parents Night Out, which is funded by our organization. As part of the Healthy Steps program, we read and played games with kids in the General Pediatric Clinic waiting room from 9 a.m.-5 p.m. every Monday, Wednesday and Friday. We volunteered in the hospitals Pediatric Playroom, where we played video games, climbed the jungle gym and drew pictures with the kids.
[Grant Rant]
[Hospital Inspiration]
for UNC-DM Dedication
Never send an adult "The difference between the impossible and the possible lies in a man's determination." to do a kid's job.
Tweet the movie this Quotation is from and well take your suggestion for the next spy movie Quotation we use! Tommy Lasorda, former Major League Baseball player since 1954, the longest non-continuous tenure anyone has had with the Brooklyn/Los Angeles Dodgers
| Dancers at Player's Dance Club anxiously wait for the Overall Committee to hold up the last sign, announcing the theme of the 2012 UNC Dance Marathon: Mission Possible.
photo by carolyn stotts
GRANT RANT
When Leisa and Jim Greathouse discovered their son Samuel had a rare blood disease known as Langerhans Cell Histiocytosis (LCH), they were determined to fight the disease as a family. Samuel underwent salvage treatment and learned his LCH was inactive. However, Samuel had a relapse and needed a bone marrow transplant. Shortly before Samuel was to receive his transplant, his bilirubin (a pigment formed in the liver) rose, disqualifying him from receiving the transplant. Leisa and Jim hoped Samuels bilirubin would lower, but also wanted to spend as much time at home as possible. At the time, a Pediatric Palliative Care Program was unavailable in the hospital, so they decided to go home where two-year-old Samuel passed away Sept. 17, 2007. [We] cant help but wonder how improved our quality of time would have been with a Palliative Care team walking the journey with us, Leisa and Jim said. With UNC Dance Marathons financial help, N.C. Childrens Hospitals Department of Pediatrics created a Pediatric Palliative Care Program (PPC). A committee of people interested in palliative care for children formed several years ago at the hospital. This committees hope was to create a service where people from many backgrounds would come together to enhance quality of life for patients. The program is made up of chaplains, therapists, nurses, physicians and psychologists who form a clinical consultation service. Nurse practictioner Diane Yorke said the committee would work together to provide information on goal setting, difficult conversations with patients and families, bereavement services and pain management for dying children. Before UNC-DM was available to help, the hospital did not have the financial support it needed
Pediatric Palliative care Program Megan Turner to create the program. In addition to helping with creation and training the committee, UNC-DM provides part of Yorkes salary, along with the partial salary of Physician and Program Co-Director and Medical Director Elisabeth Potts Dellon and Psychology Fellow Mary Beth Grimley. The program has a long-term goal to expand with childrens hospice programs across North Carolina. The clinical consultation service, which will consult with patients and families in the hospital, will open in January 2012. The key thing at this point is that the service wouldnt be possible without UNC-DM, Dellon said. Pediatric Palliative Care services are becoming a standard of care for patients that have life threatening conditions. It is extremely important to the well-being of the children. The program reflects UNC-DMs mission to improve the quality of life for the patients and families of N.C. Childrens Hospital. The goals of PPC include promoting hope and healing, two things that UNC-DM also strives to provide for these families, said UNC-DM Overall Coordinator Gracie Beard. UNC-DMs efforts give families the resources they need to ensure quality of life for their children. The Pediatric Palliative Care [Program] would have been a welcome resource in our situation. Whether it is two years or seventy-two years, it is the quality of those years shared between parents and their child[ren] that truly matter, Leisa and Jim said.
Megan Turner
operation
Emily Evans
Emily Horton, a senior from Raleigh who has been involved with UNC-DM since she was a first-year, found an extra connection to the cause when she learned that the girl she babysits three times each week, Asheton Ayotte, was helped by N.C. Childrens Hospital and UNC-DM as a baby. The Ayotte family continues to stay involved, and Asheton even served as one of the 24 Kid Co-Captains at last years marathon. Read below to find out how this inspires Horton, now a sub-chair for the Business Management committee, to keep on dancing: Q: Why did you decide to get involved with UnC-dM? A: I knew about it coming to Chapel Hill. I had some friends in high school who had actually danced. I did lots of volunteering in high school. I used to dance a lot, so I thought it sounded like a great way to get involved at Carolina, so I applied as a first-year. It was awesome, because you get to meet a ton of people and do all sorts of events around campus and around Chapel Hill, and so I kind of fell in love with it, and Ive done it every year since. Q: What committees have you served on? A: When I was a first-year, I was on the Campus Fundraising committee.
photo by emily evans | Asheton Ayotte takes a picture with her babysit, UNC Senior Emily Horton.
I was on Community Events sophomore year, junior year I was the Finance sub-chair for the Business Management committee, and this year Im the grants sub-chair for the Business Management committee. Q: What do you like best about being a sub-chair? A: Our Overall Committee members do so much, and are just so devoted, so its a really great way to take a step up from just being on the committee, and really get to do actual work that you see coming to fruition. Q: What can you tell me about
the Ayotte familys connection with UnC-dM? A: Asheton had a hole in her heart, and was born really premature she was in the NICU for a really long time. And her parents ... know thats really traumatic. So I think it really touches them. They had to live through it anything you can do to make that awful experience any better, theyre just really supportive of. Q: What does Asheton think about her role in UnC-dM? What does she think about your involvement? A: Asheton and her whole family
Q: What does UnC-dM mean to you? A: As a first-year, I think one of my favorite things was that I got to know so much more about how the University works as a whole. I loved that I got to meet so many people, and I just really enjoyed being a part of the UNC-DM network and communityits a very friendly community. Its cool as a first-year you dont really know anybody, and its incredible to meet all these people who are so excited about being your friend. And then from there, I found more of my favorite things falling in love with the cause, through Asheton, and getting to work one of the Parents Night Out dinners, and getting to go to the hospital and getting to play thats cool. To get to talk to the kids parents, who are so appreciative to just get out of their rooms for a hot meal one nightyou dont really think thats a big deal, but then you go there, and theyre literally living on hospital food. I just think that UNC-DM is nice in that its right here, on campus. Its not like we write a big check and then we send it away. We get to actually see it in action. It creates such a community for the campusI mean, you dont ever talk to anyone on campus who doesnt know what UNC-DM is.
Publicity sub-chairs Ashlyn Still and Rene Montpetit encourage UNC students to sign up to join a UNC-DM committee during its annual Committee Recruitment Week (CRW), this year held Sept. 6-9.
This month, learn about the ways in which UNC-DM has impacted two-time Overall Committee member Kate Gillam in her current post-Carolina experiences. Visit uncdm.wordpress.com to view this story or click the image to the left.
| Emily Tracy
A UNC-DM FLASHBACK
Theres the one feeling when you all learn together what the total is, like look what we did, but its even more incredible when you get to share it with everyone else. -Kate gillam, on finding out and revealing the grand total at the 2009 marathon. Gillam was UNC-DMs 2009 Alumni Relations chair and 2010 Publicity chair. Click here to read more about Kate.
Students connection to N.C. Childrens Hospital The grant for the Division of Genetics and Metabolism And another UNC-DM flashback
Its partnership is crucial to UNC-DM because it faithfully donates ice cream to our events throughout the year and regularly donates to the Hospital and to the marathon, Hieronymus said. Operations sub-chair and senior Katie Dight said a winning strategy lies in choosing the right toppings and ice cream flavors. The best advice is choosing things you do not have to chew like whipped cream or sprinkles.
Also, go for sorbets and lighter ice creams, said Dight. The next Vermonster is Sunday, Oct. 16. It only costs $3.50 to support N.C. Childrens Hospital and attempt to earn a chance to compete at the marathon. What could be better than the opportunity to compete against other committee teams in front of a thousand of your closest friends for one epic prize: bragging rights?, Hieronymus said.
If you have any questions, comments, concerns, please contact 2012 Publicity Chair Olivia Barrow at [email protected].