Prevention and Care For HIV and Related Conditions: Purpose
Prevention and Care For HIV and Related Conditions: Purpose
Prevention and Care For HIV and Related Conditions: Purpose
Purpose
More than 1 million people in the U.S. are living with HIV.1 The Centers for Disease Control and Prevention
(CDC) estimates that around 15% of these individuals are not aware of their HIV status. Without diagnosis
and treatment, people with HIV are at risk of developing serious health conditions and transmitting HIV. In
2016, nearly 16,000 people who had an HIV diagnosis died.2 Though progress has been made in addressing
the epidemic, there are persistently high rates of people who have not been diagnosed or who are not in
care, presenting a significant challenge for public health and the health care system.
Nurses have been on the front lines since the early years of the HIV and AIDS epidemic, including times
when treatment options were limited or nonexistent, patients and caregivers needed significant care and
social supports, and the health care community was coming to terms with new challenges in infection
control and precaution. In and around 1992, in response to the many facets of the crisis, ANA courageously
adopted a series of policy positions and statements that addressed nurse health and safety while also
insisting on justice in access to care for all people living with HIV or AIDS (PLWHA).3
Since the first AIDS cases were reported in the early 1980s, the U.S. has seen enormous changes in the
epidemic, the national response, and the health care system. To name just two major developments
especially relevant for policy in 2019 and beyond: Lifesaving antiretroviral treatments (ARTs) are now
available, and more PLWHA have access to insurance coverage due to the Affordable Care Act (ACA). In
addition, treatments have been approved and recommended to stop HIV transmission pre- and post-
exposure (PrEP and PEP).
1 Centers for Disease Control and Prevention (CDC). HIV Surveillance Supplemental Report. Vol. 24, No. 1. Estimated HIV Incidence
and Prevalence in the United States 2010–2016. Accessible at https://www.cdc.gov/hiv/pdf/library/reports/surveillance/cdc-hiv-
surveillance-supplemental-report-vol-24-1.pdf
2 CDC. HIV Surveillance Report. Vol. 29, Diagnoses of HIV Infection in the United States and Dependent Areas, 2017. Accessible at
https://www.cdc.gov/hiv/pdf/library/reports/surveillance/cdc-hiv-surveillance-report-2017-vol-29.pdf
3 The acronym PLWHA will be used consistently throughout this document to refer to patients living with HIV or AIDS, recognizing
In 2019, federal officials signaled an interest in and potentially new commitments ending HIV by strategically
directing resources to communities and geographic areas with the greatest need.4 The availability of PrEP
and PEP treatments and the potential for financing prevention through health care coverage are clear
indications that game-changing opportunities do exist. At the same time, it must also be acknowledged that
other federal policy initiatives present significant threats to pursuing exciting new prospects to address HIV.
Specifically, efforts to cut back civil rights protections in health care threaten to undermine national
strategies to prevent HIV transmission in key populations, namely transgender women and women
accessing reproductive health care. ANA has addressed such initiatives in other public statements,
emphasizing areas of policy that are at odds with nursing ethics and standards.5
ANA stands ready to support nurses engaged in emerging HIV and AIDS care and prevention strategies. The
updated policy statements below express ANA’s positions on key public policies and approaches to practice,
borrowing heavily from the sustained and thoughtful policy leadership of our partner Association of Nurses
in AIDS Care (ANAC).
4 Department of Health & Human Services, Office of the Assistant Secretary for Health. Ending the HIV Epidemic: A Plan for America.
Fact Sheet. February 2019. Accessible at https://www.hhs.gov/sites/default/files/ending-the-hiv-epidemic-fact-sheet.pdf
5 See Letter to Department of Health and Human Services, Secretary Alex Azar, Regarding Nondiscrimination in Health and Health
ANA recognizes the authority and expertise of ANAC in giving specific expression to nursing values in its
Statements of Policy on a range of important HIV and AIDS issues.7 We are indebted to ANAC’s work in
setting priorities and developing policy for nurses in HIV and AIDS care. Our updated policy statements are
based on and intended to be wholly aligned with ANAC’s policies.
Background
In addition to established nursing ethics and values, ANA’s updated policies for HIV and AIDS are grounded
in national policy goals and priorities. ANA is mindful of the careful work and consideration of multiple
stakeholders and policy experts that are reflected in national policies and strategy. ANA has participated in
6The term systems of care, here and below, refers generally to system-level health care delivery and operations, particularly those
that are publicly accountable or publicly financed. Examples include Medicare and Medicaid (fee-for-service and contracting
organizations), health and hospital systems, accountable care organizations, and public health departments and partnerships.
ANA relies on the National HIV/AIDS Strategy (NHAS)8 as a basic blueprint of policies and priorities that must
be pursued to end HIV and AIDS, and care for PLWHA. The NHAS, a comprehensive approach to ending the
HIV and AIDS epidemic, was initially released in 2010. In 2015, following a period of stakeholder
participation and input, the strategy was revised as the NHAS Updated for 2020. Beginning in 2019, the
Office of National AIDS Policy within the White House initiated a subsequent update, estimated to be
released in 2020.
Consistent with the general framework of the NHAS Updated for 2020, ANA supports federal programs and
dedication of sufficient resources to treat and support PLWHA and to prevent HIV and AIDS once and for all.
Targeted federal responses include the Ryan White HIV/AIDS Program and HIV programs administered by
CDC. Medicaid, programs of the Substance Abuse and Mental Health Services Administration, and Title X
family planning grants also play significant parts in providing HIV and AIDS care and prevention.
For additional context, it is worth noting a few overarching health policy considerations that inform ANA’s
updated policy statements, as highlighted below.
The NHAS Updated for 2020 currently calls for access to ART and adherence supports as a prevention
strategy as well as a treatment protocol. ANA’s updated policy recognizes this treatment-as-prevention
approach, and further recognizes that nursing care is central to achieving HIV treatment and prevention
goals. Nurses play key roles in educating patients about HIV, providing support for treatment adherence,
and assisting with navigation of care delivery. APRNs, further, are positioned to provide ART directly,
consistent with their state practice authority. ANA updated policy supports full practice authority for APRNs
to more fully realize this potential.
8Office of National AIDS Policy, National HIV/AIDS Strategy for the United States, July 2015. Accessible at
https://www.hiv.gov/federal-response/national-hiv-aids-strategy/nhas-update
ANA’s policy supports access to PEP and PrEP as a prevention strategy, as well as access to PEP when
indicated for health care workers.9 ANA further recognizes a significant role for APRNs with prescriptive
authority in HIV treatment and prevention, and calls for full practice authority at the federal and state levels.
HIV and AIDS disparities have led to calls for policy responses that allocate resources more directly to need
and development of more targeted interventions and strategies to identify PLWHA and link them to
appropriate care, including supports for treatment adherence. Following ANAC’s lead, ANA’s updated
policies accordingly advocate for evidence-based approaches appropriate to key target populations, and
encourage nursing practice and leadership that promote culturally competent, non-stigmatizing care.
References
American Nurses Association.
Nursing Advocacy for LGBTQ+ Populations. 2018. Position Statement. Accessible at
https://www.nursingworld.org/practice-policy/nursing-excellence/official-position-
statements/id/nursing-advocacy-for-lgbtq-populations/
Code of Ethics for Nurses with Interpretive Statements. 2015: Second Edition.
Association of Nurses in AIDS Care (ANAC).
Centers for Disease Control and Prevention (CDC).
HIV Surveillance Report. Vol. 29, Diagnoses of HIV Infection in the United States and Dependent
Areas, 2017. Accessible at https://www.cdc.gov/hiv/pdf/library/reports/surveillance/cdc-hiv-
surveillance-report-2017-vol-29.pdf
HIV Surveillance Supplemental Report. Vol. 24, No. 1. Estimated HIV Incidence and Prevalence in the
United States 2010–2016. Accessible at
https://www.cdc.gov/hiv/pdf/library/reports/surveillance/cdc-hiv-surveillance-supplemental-
report-vol-24-1.pdf
9See also ANA Policy Statements on Bloodborne and Airborne Diseases: HIV Infection and Nursing Students; Personnel Policies and
HIV in the Workplace; Post-Exposure Programs in the Event of Occupational Exposure to HIV/HBC. Accessible at
https://www.nursingworld.org/practice-policy/nursing-excellence/official-position-statements
Recommendations
1. Full Practice Authority for APRNs
Policymakers, Payers, and Systems of Care
• In order to improve access to HIV treatment and prevention, state licensing authorities should
permit advanced practice registered nurses (APRNs) to practice and prescribe to the full extent of
their training and education.
Practice
• APRNs are responsible for recognizing the limits of their experience and training and will identify
when it is appropriate to refer patients or consult with a clinician with advanced or specialized
training in HIV and related care.
• APRNs, using a collaborative practice model, can lead interprofessional teams of HIV care providers.
Rationale
The NHAS Updated for 2020 prioritizes efforts to reduce new HIV infections. Among its strategies to reach
this goal, the NHAS Updated for 2020 calls for an increase in the number of available HIV providers, as well
as increased access to prevention services. Supporting full practice authority for APRNs would be an
effective step in the strategy, especially considering the paramount emphasis on access to medication for
prevention. APRN prescriptive authority is a particularly important tool in targeted programs to address HIV
in high-risk groups and high-prevalence geographic areas. In addition, APRNs are able to provide additional
care and lead care teams to support HIV prevention care plans.
References
Association of Nurses in AIDS Care. Advanced Practice Registered Nurses Full Practice Authority. Position
Statement. May 2014. Accessible at
https://www.nursesinaidscare.org/files/bb/ANAC_APRN_PositionStatement_552014.pdf
Office of National AIDS Policy, National HIV/AIDS Strategy for the United States, July 2015. Accessible at
https://files.hiv.gov/s3fs-public/nhas-update.pdf
2. Testing for HIV and Viral Hepatitis and Referral to Care, Including Access to Prevention
Policymakers, Payers, and Systems of Care
• Testing for HIV and testing for viral hepatitis, as recommended by the U.S. Preventive Services Task
Force, should be fully covered benefits in order to ensure access.
• Policymakers should fund development and implementation of innovative testing methods and
programs to increase HIV screening, with particular focus in communities and settings with elevated
risks of HIV transmission.
• Voluntary HIV testing should be part of all routine health care, accompanied by referral for follow-up
care and appropriate preventive services, including education and PrEP where indicated.
• Systems of care should ensure that voluntariness and informed consent for HIV testing are robust and
patient-centered, for instance at a minimum requiring the person ordering the test to inquire openly
about the patient’s individual understanding of and misconceptions about an HIV test.
• Systems of care should ensure that results of an HIV test are delivered confidentially in person so that
the patient understands the meaning of the test result, whether positive or negative.
• Policymakers and systems of care should ensure that all patients who receive HIV-positive test results
are linked to timely follow-up care, and offered prevention care and information to avoid further
transmission of the virus.
Practice
• Patient-centered prevention counseling is an important part of the testing process, and should always
be given in conjunction with HIV and viral hepatitis testing.
• Nurses should acquire updated training in evidence-based prevention strategies to best assist their
patients in developing a tailored plan to reduce risk/harm of HIV and viral hepatitis.
• Nurses should routinely assess patients for HIV, viral hepatitis, and at-risk sexual behavior and needle
use, regardless of whether the nurse perceives any risk.
• HIV and viral hepatitis must be tested for when patients engage in any form of high-risk behavior.
Meeting an annual minimum benchmark is not adequate for all persons at high risk, as high-risk
behavior can occur more than once a year.
• Plans of nursing care should include HIV and viral hepatitis prevention, including risk/harm reduction
education and interventions as appropriate.
• Nursing plans of care for PLWHA should include ongoing provision of prevention messages, education
regarding risk/harm reduction, and positive reinforcement of changes to safer behavior.
• Prior to testing, a patient must be specifically given information that an HIV test is being performed,
what an HIV test is, why it is necessary, and what test results mean. The provider should offer the
patient an information sheet that provides key information about an HIV test. The medical record should
indicate that HIV testing has been offered and discussed, and that the patient has at least verbally
consented to or declined testing.
Rationale
Voluntary counseling and testing, with referral, are appropriate mechanisms to screen for cases of HIV and
viral hepatitis, with the objective of providing appropriate and early care for those with HIV or viral hepatitis,
or at risk. Voluntary screening with informed consent enhances provider-patient communication and creates
opportunities to provide meaningful counseling and prevention messages. Policies that do not support
counseling and voluntariness can have an opposite effect at the expense of patient outcomes. Given the
continued stigma and potential for adverse consequences associated with HIV and viral hepatitis diagnoses,
patients’ rights to informed consent and confidentiality must be rigorously upheld by providers, payers,
systems of care, and policymakers. Referral to appropriate care and prevention is a necessary component of
testing and counseling encounters, based on assessment of risk.
References
Association of Nurses in AIDS Care. CDC Revised Recommendations for HIV Testing of Adults, Adolescents
and Pregnant Women in Health-Care Settings. Position Statement. August 2008. Accessible at
https://www.nursesinaidscare.org/files/public/PS_CDCRevisedGuidelines_Rev_8_2008.pdf
Centers for Disease Control and Prevention
HIV Testing in Clinical Settings. Web content. Accessible at
https://www.cdc.gov/hiv/testing/clinical/index.html
Preexposure Prophylaxis for the Prevention of HIV Infection in the United States – 2017 Update. A
Clinical Practice Guideline. 2017. Accessible at https://www.cdc.gov/hiv/pdf/risk/prep/cdc-hiv-prep-
guidelines-2017.pdf
Recommendations for HIV Screening of Gay, Bisexual, and Other Men Who Have Sex with Men —
United States. 2017. Accessible at https://www.cdc.gov/mmwr/volumes/66/wr/mm6631a3.htm
3. Access to Care
Policymakers, Payers, and Systems of Care
• Federal and state policymakers should protect and expand access to integrated, comprehensive health
care that meets the care and prevention needs of PLWHA and those at risk, especially people with low
incomes and people currently facing barriers to care. Policies should safeguard funding for the
Affordable Care Act, community health centers, public health departments, mental health care,
treatment for substance use disorders, other behavioral health care, and Title X reproductive health
providers.
• Implementation of policies to address mental health and substance use disorders should be fully aligned
with HIV prevention and treatment strategies and promote access to integrated care.
• Federal and state policymakers should prioritize enforcement of laws that protect patients from
discrimination in health care.
• Payers should be accountable for ensuring access to the full range of appropriate interventions to
prevent and treat HIV and viral hepatitis.
• Systems of care should be accountable for providing high-quality, evidence-based, culturally appropriate
HIV and HIV-related care, including linkages to mental health care, other behavioral health
interventions, and services addressing social determinants of health.
Practice
• Nurses should be educated about barriers to HIV care and prevention, and assume leadership roles
within systems of care to improve access, quality, and cultural competence.
References
Centers for Medicare and Medicaid Services. Opportunities to Improve HIV Prevention and Care Delivery to
Medicaid and CHIP Beneficiaries. Informational Bulletin. December 1, 2016. Accessible at
https://www.medicaid.gov/federal-policy-guidance/downloads/cib120116.pdf
Kaiser Family Foundation. What is at Stake in ACA Repeal and Replace for People with HIV? Issue Brief. May
2017. Accessible at https://www.kff.org/hivaids/issue-brief/what-is-at-stake-in-aca-repeal-and-replace-for-
people-with-hiv/
National Association of State and Territorial AIDS Directors. Ending the Epidemics: The Role of the
Affordable Care Act & Medicaid. Fact Sheet. May 2017. Accessible at
https://www.nastad.org/sites/default/files/Uploads/2017/nastad-fact-sheet-aca-12may2017.pdf
National Institute of Mental Health. HIV/AIDS and Mental Health. Web content. November 2016. Accessible
at https://www.nimh.nih.gov/health/topics/hiv-aids/index.shtml
Office of National AIDS Policy, National HIV/AIDS Strategy for the United States, July 2015. Accessible at
https://files.hiv.gov/s3fs-public/nhas-update.pdf
4. Care Coordination
Policymakers, Payers, and Systems of Care
• Policymakers should develop, implement, and incentivize high-quality, high-value care coordination
delivery models for PLWHA and those at risk for HIV. Models should support and encourage full practice
authority for APRNs and recognize and reward the role of RNs and APRNs in delivering high-value HIV
care.
• Payers and systems of care should be accountable for providing evidence-based, patient-centered care
coordination and care management to optimize physical and behavioral outcomes for PLWHA.
Practice
• Nurses are integral to HIV care coordination, to optimize patient outcomes. Nurses should be prepared
to lead interdisciplinary teams, supervising others involved in care coordination and stewarding the
efficient and effective use of health care resources.
• Nurses should take a leadership role in the design, implementation, and evaluation of successful team-
based care coordination processes and models for HIV care and prevention that integrate physical and
behavioral health.
References
American Nurses Association. Care Coordination and Registered Nurses’ Essential Role. Official Policy
Statement. June 2012. Accessible at
https://www.nursingworld.org/~4afbf2/globalassets/practiceandpolicy/health-policy/cnpe-care-coord-
position-statement-final--draft-6-12-2012.pdf
Centers for Medicare and Medicaid Services. Opportunities to Improve HIV Prevention and Care Delivery to
Medicaid and CHIP Beneficiaries. Informational Bulletin. December 1, 2016. Accessible at
https://www.medicaid.gov/federal-policy-guidance/downloads/cib120116.pdf
Journal of the Association of Nurses in AIDS Care. Updated Federal Recommendations for HIV Prevention
with Adults and Adolescents with HIV in the United States: The Pivotal Role of Nurses. January-February
2017. Accessible at https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5388027/
Practice
• Nurses should acknowledge that racism, homophobia, stigma, and sexual objectification all impact the
health care of Black/African-American and Hispanic/Latino MSMs, and nursing care of individuals
belonging to these groups must address these issues.
Rationale
HIV and AIDS continue to have high impacts in Black/African-American and Hispanic/Latino communities and
among gay and bisexual men and MSMs of all races and ethnicities. HIV policy experts and advocates further
recognize the especially high burden of HIV and AIDS and risks of infection among Black/African-American
and Hispanic/Latino MSMs in these groups. Multiple factors are at work. Particularly in the South, people in
these higher risk groups have historically encountered disparate access and outcomes in health and health
care delivery. It is incumbent on all health care stakeholders to address access barriers effectively, which
includes building an evidence base of targeted interventions, and promoting innovative approaches that
positively engage patients, partners, and communities.
Practice
• Nurses, including APRNs, should be educated in specific HIV risks and prevention approaches for
transgender patients, and should acknowledge the roles of stigma, interpersonal violence, racism,
and transphobia in elevating transgender persons’ HIV risks.
• Nurses should be educated in and equipped to meet the unique care needs of transgender patients
living with HIV.
References
AIDS United and ACT NOW: END AIDS. Ending the HIV Epidemic in the United States: A Roadmap for Federal
Action. November 2018. Accessible at https://www.aidsunited.org/resources/ending-the-hiv-epidemic-in-
the-us
AmfAR, the Foundation for AIDS Research. Trans Populations and HIV: Time to End the Neglect. Issue Brief.
April 2014. Accessible at
https://www.amfar.org/uploadedFiles/_amfarorg/Articles/On_The_Hill/2014/IB%20Trans%20Population%2
0040114%20final.pdf
ANA. Nursing Advocacy for LGBTQ+ Populations. 2018. Position Statement. Accessible at
https://www.nursingworld.org/practice-policy/nursing-excellence/official-position-statements/id/nursing-
advocacy-for-lgbtq-populations/
Centers for Disease Control and Prevention. HIV and Transgender People. Fact Sheet. April 2019. Accessible
at https://www.cdc.gov/hiv/pdf/group/gender/transgender/cdc-hiv-transgender-factsheet.pdf
Office of National AIDS Policy, National HIV/AIDS Strategy for the United States, July 2015. Accessible at
https://files.hiv.gov/s3fs-public/nhas-update.pdf
Practice
• Nurses, including APRNs, should be educated in specific HIV risks and prevention approaches for cis
and transgender women, and should acknowledge the roles of sexism, interpersonal violence,
racism, and transphobia in elevating women’s HIV risks.
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• Nurses in women’s health care, including APRNs, should be educated in and equipped to meet the
unique care needs of pregnant and post-partum women living with HIV.
Rationale
Women have unique HIV care and prevention needs, for instance in reproductive health care. Researchers
are continuing to investigate associations between HIV risk and contraceptive method to answer key
questions about preventing HIV in women. Decisions related to treatment and use of PrEP, however, must
also consider reproductive health implications. For instance, not all ARTs are appropriate for pregnant
women or for women using certain contraceptives. HIV in women may also be associated with higher risk of
interpersonal violence. New HIV diagnoses have decreased among women, including Black/African-
American women. However, Black/African-American women are still a disproportionately large group
affected by HIV. Further, transgender women who are Black/African-American have particularly elevated
risk for HIV. Black/African-American women experience historic racism as well as sexism in the health care
system. Transgender women experience additional burdens of stigma and discrimination, which reduce their
access to care. For these and other reasons, strategies to end HIV emphasize interventions that focus on the
unique needs of women with HIV risk, including strategies to address disparities based on race, sex, and
gender identity.
References
AIDS United and ACT NOW: END AIDS. Ending the HIV Epidemic in the United States: A Roadmap for Federal
Action. November 2018. Accessible at https://www.aidsunited.org/resources/ending-the-hiv-epidemic-in-
the-us
American College of Nurse-Midwives. HIV and AIDS. Position Statement. December 2017. Accessible at
http://www.midwife.org/acnm/files/ACNMLibraryData/UPLOADFILENAME/000000000071/PS-HIVandAIDs-
FINAL-Feb-2018.pdf
Centers for Disease Control and Prevention
HIV and Transgender People. Fact Sheet. April 2019. Accessible at
https://www.cdc.gov/hiv/pdf/group/gender/transgender/cdc-hiv-transgender-factsheet.pdf
HIV and Women. Fact Sheet. March 2019. Accessible at
https://www.cdc.gov/hiv/pdf/group/gender/women/cdc-hiv-women.pdf
Evidence for Contraceptive Options and HIV Outcomes (ECHO). The Evidence for Contraceptive Options and
HIV Outcomes (ECHO) Study. Q&A. August 2019. Accessible at http://echo-consortium.com/wp-
content/uploads/2019/08/ECHO_QA_2Aug2019-1.pdf
HIV.gov. HIV and Women’s Health Issues. Fact Sheet. April 2019. Accessible at
https://aidsinfo.nih.gov/understanding-hiv-aids/fact-sheets/25/69/hiv-and-women#
Kaiser Family Foundation. Black Americans and HIV/AIDS: The Basics. Fact Sheet. February 2019. Accessible
at https://www.kff.org/hivaids/fact-sheet/black-americans-and-hivaids-the-basics/
Office of National AIDS Policy, National HIV/AIDS Strategy for the United States, July 2015. Accessible at
https://files.hiv.gov/s3fs-public/nhas-update.pdf
Panel on Treatment of Pregnant Women with HIV Infection and Prevention of Perinatal Transmission.
Recommendations for Use of Antiretroviral Drugs in Transmission in the United States. Accessible at
http://aidsinfo.nih.gov/contentfiles/lvguidelines/PerinatalGL.pdf
Practice
Adolescents and youth should be screened for HIV as a part of routine health care, and referred to
appropriate, adolescent-centered follow-up care.
Rationale
Among all people with HIV, young people are least likely to be linked to care and virally suppressed.
According to CDC, HIV diagnoses decreased between 2010 and 2016 in youth (persons age 13-24) overall,
but variations exist across subgroups. For instance, diagnoses in young men remained stable, while
decreasing among young women. Significantly, diagnoses in young Hispanic/Latino MSMs rose by 17%, and
NHAS notes the high burden of HIV among young Black/African-American gay and bisexual men. Experts
point to the need for more culturally and age-appropriate prevention and care interventions to end HIV in
younger population groups.
References
AIDS United and ACT NOW: END AIDS. Ending the HIV Epidemic in the United States: A Roadmap for Federal
Action. November 2018. Accessible at https://www.aidsunited.org/resources/ending-the-hiv-epidemic-in-
the-us
Association of Nurses in AIDS Care. Adolescents and HIV Infection. Position Statement. September 2011.
Accessible at https://www.nursesinaidscare.org/files/public/PS_Adolescents_Rev_01_2011_FINAL.pdf
Community Preventive Services Task Force. CPSTF Findings for HIV/AIDS, STIs and Teen Pregnancy. The
Community Guide. Accessible at https://www.thecommunityguide.org/content/task-force-findings-hivaids-
stis-and-teen-pregnancy
Health Resources and Services Administration (HRSA). Youth and Young Adults and the Ryan White HIV/AIDS
Program. September 2015. Accessible at
https://hab.hrsa.gov/sites/default/files/hab/data/datareports/youthdatareport2015.pdf
Office of National AIDS Policy, National HIV/AIDS Strategy for the United States, July 2015. Accessible at
https://files.hiv.gov/s3fs-public/nhas-update.pdf
Practice
• Nurses should educate themselves about the impact of substance use on HIV and hepatitis risks, and
recognize that stigma and fear of criminalization can have a negative effect on care seeking.
• Syringe access sites and programs should be designed and equipped as viable settings for nursing
practice.
• Nursing and other medical education programs should teach their students about the health needs of
injection drug users, including the need for access to sterile syringes and the impact of stigma on
accessing care.
Rationale
SUDs can be associated with increased risk for HIV and viral hepatitis. Intravenous injection can directly
cause infections through shared needles and other equipment. Misuse of drugs and other substances such
as alcohol can lead to behaviors that increase risk of HIV and other sexually transmitted infections. CDC
reports that one in 10 HIV diagnoses are among people who inject drugs. Progress has been made in
reducing HIV and hepatitis transmission through unsafe use of IV supplies, attributed to increased
availability of syringe access programs. Prescribing syringes to injection drug users can prevent bloodborne
diseases. More comprehensive syringe access programs offer not only supplies for safe IV use, but also HIV
and hepatitis testing and education as well as SUD recovery supports. State and federal policies are needed
to support wider acceptance of safe syringe access. Policy options include reducing legal/administrative
barriers to safe syringe programs, increasing funding for supplies and evidence-based programming, and
piloting innovations such as safe injection facilities in the U.S., perhaps modeled on programs in other
countries.
References
AIDS United and ACT NOW: END AIDS. Ending the HIV Epidemic in the United States: A Roadmap for Federal
Action. November 2018. Accessible at https://www.aidsunited.org/resources/ending-the-hiv-epidemic-in-
the-us
Centers for Disease Control and Prevention
HIV and Injection Drug Use: Syringe Services Programs for HIV Prevention. Vital Signs. December
2016. Accessible at https://www.cdc.gov/vitalsigns/pdf/2016-12-vitalsigns.pdf
HIV and Substance Use in the United States. Accessible at
https://www.cdc.gov/hiv/risk/substanceuse.html
Practice
• Nurses, including APRNs, should be educated about the HIV care needs of older patient populations, and
provide appropriate care coordination to PLWHA to maximize their health and functioning as they age.
Rationale
Aging and HIV are linked in significant ways. Half of PLWHA are over age 50, and this proportion is expected
to grow. Access to ARTs has extended the lives and life expectancy of many PLWHA, contributing to this
growing age cohort. However, new HIV cases are also occurring among people over 50. In 2017, people over
50 made up 17% of new HIV diagnoses.
Compared with other older patients, older PLWHA may have more complex care needs, due to age-related
or treatment-related co-morbidities, and drug interactions. At the same time, older PLWHA may be more
likely to experience social isolation, and therefore need more support to remain in care and have optimal
health outcomes. Public policies are needed to close gaps in evidence-based care and interventions.
References
AIDS United and ACT NOW: END AIDS. Ending the HIV Epidemic in the United States: A Roadmap for Federal
Action. November 2018. Accessible at https://www.aidsunited.org/resources/ending-the-hiv-epidemic-in-
the-us
Centers for Disease Control and Prevention. HIV and Older Americans. September 2018. Fact Sheet.
Accessible at https://www.cdc.gov/hiv/group/age/olderamericans/index.html
HIV.gov. HIV and Older Adults. Fact Sheet. April 2019. Accessible at https://aidsinfo.nih.gov/understanding-
hiv-aids/fact-sheets/25/80/hiv-and-older-adults
Practice
Nursing care should acknowledge the relationship between culture and health. Nurses should:
• Recognize that a one-size-fits-all approach may not be adequate and provide care that is individualized
to meet each patient’s needs.
• Strive to create an environment based on trust and honesty to dialogue about differences and share
similarities.
• Assist in the mobilization of community resources, including promotion of local leaders to advisory
committees and boards where they can act as cultural brokers.
• Facilitate the design of programs that emphasize risk-reduction strategies that are culturally sensitive
and appropriate.
• Design and participate in comprehensive health screening for racial/ethnic minorities.
• Act as patient navigators, by assisting patients, families, and communities to access appropriate services.
Rationale
The burden of HIV and related conditions in the U.S. both reflects and perpetuates disparities in access to
care and health outcomes. HIV and AIDS continue to have a disproportionate impact on certain populations.
Addressing these disparities is a goal of the NHAS Updated for 2020. ANA supports this goal and further
recognizes that addressing HIV disparities requires commitment across the health care system to address all
disparities in health status and access to care. Nurses can play a critical role in efforts to expand access and
improve equity. However, policy changes are needed to drive systemic changes necessary to achieve health
equity goals.
References
AIDS United and ACT NOW: END AIDS. Ending the HIV Epidemic in the United States: A Roadmap for Federal
Action. November 2018. Accessible at https://www.aidsunited.org/resources/ending-the-hiv-epidemic-in-
the-us
Association of Nurses in AIDS Care. Health Disparities. Position Statement. January 2009. Accessible at
https://www.nursesinaidscare.org/files/public/PS_HealthDisparities_App_01_2009.pdf
Kelly, Robin L., U.S. House of Representatives. Health Disparities in America. 2015. Accessible at
https://robinkelly.house.gov/sites/robinkelly.house.gov/files/2015%20Kelly%20Report.pdf
Office of National AIDS Policy, National HIV/AIDS Strategy for the United States, July 2015. Accessible at
https://files.hiv.gov/s3fs-public/nhas-update.pdf
Practice
• Palliative care is part of the comprehensive care of all PLWHA and their loved ones. Consequently,
palliative care should be considered the standard of care for PLWHA and their families from the initial
diagnosis of HIV until death, including the provision of bereavement care for families and friends. HIV
clinicians should be able to provide primary palliative care while simultaneously providing antiretroviral
treatment or refer patients for specialty palliative care.
• Palliative care should be integrated into education about HIV and AIDS for all clinicians.
• Nurses must advocate for pain management for HIV-infected persons and should serve as integral
members of multidisciplinary pain management teams.
Rationale
Despite the availability of life-extending and lifesaving therapies for HIV, there is still a need for palliative
care, meaning patient-and-family-centered care focused on quality of life along the continuum of illness.
PLWHA, even those in successful ART treatment, encounter co-morbidities and conditions related to aging
with HIV. Nurses play an important role in team-based palliative care that includes addressing patients’
psychosocial concerns and helps manage symptoms.
References
Association of Nurses in AIDS Care. Pain Management for Persons Living with HIV/AIDS. Position Statement.
January 2009. Accessible at
https://www.nursesinaidscare.org/files/public/PS_Pain_Management_Rev_01_2009.pdf
Association of Nurses in AIDS Care. Palliative Care. Position Statement. September 2016. Accessible at
https://www.nursesinaidscare.org/i4a/pages/Index.cfm?pageID=3394
Merlin, Jessica, et al. The Role of Palliative Care in the Current HIV Treatment Era in Developed Countries.
Topics in Antiviral Medicine. February-March 2013. Accessible at
https://www.ncbi.nlm.nih.gov/pubmed/23596275
13. Criminalization
Policymakers
• State and federal policies, laws, regulations, and statutes should be updated to ensure that they are
based in scientifically accurate information regarding HIV transmission routes and risks.
• Punitive laws and legal consequences that single out HIV infection or any other communicable disease
and that include inappropriate or enhanced penalties for alleged nondisclosure, exposure, and
transmission should be repealed.
Practice
• Nurses should practice with an awareness and understanding of the negative clinical and public health
consequences of HIV criminalization, including perpetuation of HIV-related stigma and discrimination.
Criminalization laws perpetuate HIV stigma and discrimination, and may inhibit people from learning their
HIV status, seeking HIV-related care and prevention, or disclosing their HIV status. Enforcement of these
laws may also come between nurses and their patients, interfering with appropriate care delivery. In 2013
the President’s Advisory Council on HIV/AIDS called for comprehensive review of current laws and amending
them for consistency with science and legal principles supporting people with disabilities. ANA believes a
review of criminalization laws for fairness and scientific foundation would promote appropriate health-
seeking and support nurses in providing patient-centered HIV care and prevention.
References
Association of Nurses in AIDS Care. HIV Criminalization Laws and Policies Promote Discrimination and Must
be Reformed. Position Statement. November 2014. Accessible at
https://www.nursesinaidscare.org/files/bb/ANAC_PS_Criminalization_December22014_FinalforJANAC.pdf
CDC. HIV and STD Criminal Laws. Web content. Accessible at
https://www.cdc.gov/hiv/policies/law/states/exposure.html
Center for HIV Law and Policy. HIV Criminalization in the United States: A Sourcebook on State and Federal
HIV Criminal Law and Practice. 2017. Accessible at http://www.hivlawandpolicy.org/sourcebook
Lazzarini, Zita, et al. Criminalization of HIV Transmission and Exposure: Research and Policy Agenda.
Commentary. American Journal of Public Health. June 2014. Accessible at
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3966663/
Lehman, J. Stan, et al. Prevalence and Public Health Implications of State Laws that Criminalize Potential HIV
Exposure in the United States. AIDS and Behavior. June 2014. Accessible at
https://link.springer.com/article/10.1007/s10461-014-0724-0
President’s Advisory Council on HIV/AIDS. Resolution on Ending Federal and State HIV-Specific
Criminal Laws, Prosecutions, and Civil Commitments. 2013. Accessible at https://files.hiv.gov/s3fs-
public/feb-2013-criminalization-resolution.pdf
ANA acknowledges Tracy Hicks, DNP, APRN, FNP/PMHNP-BC, CARN-AP; Jeffrey Kwong, DNP, MPH, ANP-
BC, FAANP; and Carole Treston, RN, MPH, ACRN, FAAN, who reviewed and commented on earlier versions
of this document.