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(All rights are reserved with the publisher)
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CONTENTS
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COURSE TEAM
Chairman Dr. Laeeq Mirza,
Ex. Direrctor,
National Institute of Special Education,
Islamabad.
Authors 1. Dr. Muhammad Javed Iqbal,
Assistant Professor,
Department of Distance and Non Formal Education,
AIOU, Islamabad.
2. Mrs. Shaista Majid
Assistant Professor,
Department of Special Education, AIOU, Islamabad
Members 1. Dr. K.A. Abbas,
Ex. Consultant Paediatrician,
Children Hospital,
Pakistan Institute of Medical Sciences,
Islamabad.
2. Col. Irfan Aziz
Ex. Director,
Directorate General of Special Education,
Islamabad.
3. Mr. Mubbashar Hussain,
Ex. Principal,
Al-Maktoom Centre for the Visually Handicapped,
Islamabad.
4. Syed Wadood Jilani
Ex. Director,
Directorate General of Special Education,
Islamabad.
5. Dr. Salma Maqbool (late)
Ex. Principal,
Darul-Azam, (Institute for Blind Adult Girls)
Rawalpindi.
6. Dr. S.A. Siddiqui,
Ex. Dean, Faculty of Education,
AIOU, Islamabad.
7. Dr. Zulkaif Ahmad,
Ex. Chairman,
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Department of Teacher Education, AIOU,
Islamabad.
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FOREWORD
The course “Handicapped Person in the Community” is an endeavour in
continuation of Allama Iqbal Open University’s efforts in teacher training
prgramme of Special Education.
This course covers most of the educational aspects and problems faced by
the handicapped persons in the community.
Handicap is a social deviation when environment is negatively
stigmatized; majority of the handicapped feel difficulty in adaption to the
environment. This course highlights strategies for psycho-social adjustment of
the handicapped persons.
Only few developing countries have adopted labour market policies
designed to encourage employment opportunities for disabled people. This course
provides all possible ways to train disabled youth for employment.
I take this opportunity to express my appreciation to the leadership of Dr.
Mahmood H. Butt, vice Chancellor, whose continuous inspiration and incentive
played a supportive role in the process of revision of the courses.
While appreciating the tiring efforts of the course team and faculty
members of the Department of Special Education, particularly Chairman, Dr.
Muhammad Mahmood Hussain Awan and course coordinator Mrs. Shaista Majid
who reviewed and updated the study guide in a detailed and exciting manner. I
am grateful to all those persons who extended their assistance in the preparation
of this study guide.
Like any other initial efforts of the university, the revised version of this
course is being offered on trail bases. Comments and suggestions from readers,
particularly course students and tutors would be appreciated and incorporated
whenever deamed suitable by the course team.
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PREFACE
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OBJECTIVES OF THE COURSE
It is hoped that after going through the course materials with the help of
this study-guide, the students should be able to:
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INTRODUCTION TO THE COURSE
This study-guide consists of nine units of the course "Handicapped Person
in the Community". These units deal with different areas concerning the
handicapped person. The main focus is on education, prevention and
rehabilitation of the handicapped.
Almost all the suggested material is extracted from foreign sources as this
is a pioneering effort and experience of its nature in Pakistan. You may not
sometimes find these in accordance with our own cultural context but it is
designed for providing understanding and competency in the field so as to enable
us to evolve our own set-up and sources.
Each instructional unit provides material for a two-week study.
Introduction of the unit gives a brief description of the unit followed by specific
objectives of the unit. Every sub-topic contains exercise while every unit is
summed up at the end by Self Assessment Questions to give you an overview the
whole content of the unit. Self evaluation is an integral part of distance teaching
and an important technique of learning. Self Assessment Questions are meant for
self judgment of your understanding of the concepts. If you feel difficulty you
should not get worried, take rest for a while, get fresh and have a second reading.
Reading material
Each sub-topic is provided with compulsory reading material. Brief
commentary/ theme of the reading material is given after referring to compulsory
reading. The compulsory readings are compiled into the allied material. It is
recommended that you should go through your "Reader/allied material” present
in your study packet and also available in the regional office of AIOU. This
activity will help you to attempt "Exercises and Self Assessment Questions" and
the assignments of this course.
Workshops
Workshops are compulsory component. Workshop for each course is held
by the regional offices of AIOU. In the workshop course concepts are taught by
the experts. You may find this opportunity the best to learn and exchange your
ideas with the teacher, coordinator and your classmates in the discussion sessions
of the workshop.
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Assignments
Assignments are the compulsory component of the course. Success in
assignments qualifies you to enter the examination hall. For this half credit
course, like other courses, you have to submit your assignments to your tutor
within due dates. Please remember, medium of instruction of this course as well
as of Assignments and Examination is English only.
Tutorial support
To complete your course successfully, tutorial support is provided. This
support is not in the form of lectures. This is an opportunity for you to discuss
your academic issues and difficulties with your tutors who are professionals.
Please be regular in your
Tutorial meetings at the proposed centre and seek necessary educational
guidance from your tutor. Tutor will also evaluate your assignments and return
the same with his/her remarks. These assessments will help you to improve your
understanding and the way of attempting examination questions.
Activities
This is a compulsory component of the course. This is the structure which
involves your understanding, and provokes your thoughts in planning for
practical situation so it provides you with an opportunity to apply the thoughts of
others and your own and then putting them to test situation. It is better to discuss
the activities with your fellow students, colleagues and tutors. This will enrich
your vision and plan.
Assessment
Students will be assessed in the following manner.
(i) Assignments: Students are required to score at least 40 per cent
marks in each assignment.
(ii) Final Examination: Final examination will cover the whole course
material (1-9 units). Students have to score at least 40 per cent
marks to qualify the examination.
These two components contribute 30:70 respectively in final grading of
the students. It seems necessary to mention here that students have to qualify
each component separately and to score at least 40 per cent marks of the total to
pass. Failure in any one component accounts for total failure in the course.
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Final grade will be determined as under:
40%. to 54% C
55 % to 69% B
70 % to 79% A
80% and above. A+
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UNIT NO. 1
HANDICAPPED PERSONS
AND
THEIR SPECIAL NEEDS
Written by
1. Muhammad Javed Iqbal
2. Mrs. Shaista Majid
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CONTENTS
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4
INTRODUCTION
Special education is a dynamic enterprise. It is basically individualized in
nature and aims to meet the potential of handicapped by constructive planning.
This planning may include special materials, techniques and services as a result
of which the handicapped can experience social respect and enjoy independent
lives to their maximum potential.
Needs of the disabled are relative in nature. They relate to the nature of
impairment and society's attitude towards impairment. Needs should be
diagnosed and assessed in an objective manner. Recognition of special needs will
assist the planner to re-shape the discipline of special education by coordinating
special services. Thus shift can make its way from survival and maintenance to
maximum nourishment of the potential.
Basic terminology is of pivotal nature in developing understanding of a
specific subject. It will be unrealistic to move further without having clear insight
in basic concepts as, "there is continuing debate over definition of some of the
most common handicapping conditions" (Hallahan & Kaufman, 1986). Some
terms are used interchangeably and can cause confusion and ambiguity. A refined
knowledge of the terms helps to have a clear view of problems related to specific
degree of needs of the handicapped growing up in a heterogeneous and complex
society like ours.
Objectives
5
Retrieved on 23.4.07 from Discrimination based on 1.1
http://uhrc.nic.in/publications/documents/ Disability
chapter4htm#ch41
1.1 Impairment
It is a basic concept of sub normality. It may base on medical, economic,
legal, physiological or any other ground. Many authors have analyzed and
defined the term “impairment” among these definite descriptions. We consult
World Health Organization (W.H.O.), whose definition is medical based and is
accepted and quoted world-wide.
"Impairment is any loss or abnormality psychological, physiological or,
anatomical loss of structure or function".
As social and psychological conditions remain always under change, so it
can be said that one who is impaired at a time may not be at another time.
1.2 Disability
Disability is linked with ,and based upon impairment. Like impairment, it
has multiple causes and each cause contributes towards disability. Before we
study this concept in depth, let us have again a definition of W.H.O. about
disability in the context of health experience: "disability is any restriction or lack
(resulting) from an impairment of ability to perform an activity in the manner or
within range considered normal for a human being". Further observation was
made in 1980's by W.H.O.
According to these:
(i) Impairment and disability may be visible or invisible, permanent
or temporary, progressive or regressive.
(ii) Impairment may not proceed to handicap via disability.
(iii) Social and environmental factors may increase or reduce the
handicapping stage.
The following pages describe ‘disability’ in an interesting way:
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Michael Oliver Social Work with Disabled People. 1.3
pp.33-39
Disability refers to culture, its structure and norms. It may have medical or
social root or both. Different cultures assign different values to disability.
Definitions of disability are based on:
(i) Static condition.
(ii) Functional Loss, clinical condition, functional limitation of
everyday activities, disability as deviance and disability as
disadvantage are five grounds for definitions noted by Townsend.
But functional assessment of disability has three dimensions (i) Impairment
(ii) Disablement (iii) Handicap, as referred by Harris Buckle in the light of
research conducted by the Ministry of Health, London.
Townsend criticized Harris' study on his limited definition and put forward
his operational definition on wider boundaries.
1.3 Handicap
Handicap is the result of impairment and disability. It is socialized
disadvantage as commented by David Thomas. Again we refer to W.H.O.
definition based on health experience i.e. a handicap is a disadvantage for a given
individual resulting from an impairment or disability, that limits or prevents the
fulfillment of a role that is normal (depending on age, sex, social and cultural
factors for that individual).
The meaning of the concept of handicap differs for children and adults. It
is the result of social-psychological interaction which is continuous, not continual
process evolved from impairment and it is important to note that cultural
diversity may assign different values to the people having same kind of disability
or impairment. Let us read the following reading for further enhancement of
knowledge.
North Carolina Division APPLICATION FOR HANDICAPPED 1.4
of Motor Vehicles PLACARD
1100 New Bern FOR PERMANENT DISABILITY
Avenue, Raleigh, N.C. REGISTRATION CARD
27697-0001
1.4 Definition of Handicapped Person
A person is said to be handicapped whose personality is severally affected
by prolonged influence of impairment or disability, which restricts activities.
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Jerry refers handicapped as "individuals who because of impairments and
disabilities are adversely affected psychologically, emotionally or socially".
Handicapped persons may function normally in some situations because their
handicapping condition is civic based more than anatomical & physiological.
There is no single agreed definition of a handicapped person. Every scholar
puts forward a definition according to what he assesses with his professional eye,
while handicapped persons have their own definition according to their own
views about themselves.
According to some authors handicap covers least size of population but
impairment covers largest. Impaired person is said to be handicapped when
others react to his impairment negatively and continuously. Let us read the
following reading for further clarification.
Retrieved on 17 March 2007 from Declaration on the Rights of Disabled 1.5
http://www.unhchr.ch/html/menu3/ Persons, Proclaimed by General
b/72.htm Assembly resolution 3447 (XXX) of 9
December 1975 Office of the High
commissioner for Human Rights
There are many systems of classification for the sub-normal but usually
medical base is practiced e.g. muscular dystrophy can be further divided on the
basis of causes and prognosis. Emotional, social, or mild disorder etc. is some
other causes besides medical grounds.
In this regard British Department of Special Education (DES) framed a
system based on educational needs and grouped the disabled as blind, partially
sighted, deaf, partially hearing, physically handicapped, educationally sub-
normal, epileptic, speech defected and autistic.
It is worthwhile to note that any other system can be evolved. Trend in practice
is to emphasize the classification on psychological and educational needs but
problem of such categorization of the handicapped is its subjectivity. Sometimes
these controversies cause difficulties in adjustment to school and society.
Having gone so far you may feel a need for reinforcement. Please attempt it.
Exercise
l. Some part of body missing refers to ________________
2. Functional inability refers to________________
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3. ________________is bases of reduced motor activities.
4. ________________is ultimate outcome of impairment.
5. Functional capacity is important to________________
6. ________________is the state when personality is affected.
7. Symptom to social role is________________
1.5 Growing up with Disability
As discussed in earlier pages disability and handicap is relative in its nature.
Their meaning and intensity is determined by the attitude of the society. The
worth allocation affects the adjustment, growth and life style of the disabled.
Society can make life pattern easier, happier by providing economic, social &
legal assistance and vice versa.
Earnest Siegel comments, "Many handicapped children including the
minimally brain injured, often enter school late, spend time at home or in an
inadequate setting awaiting proper class placement, and due to frustration,
misunderstanding and shortage of individualized supportive facilities, drop out of
school early".
For detailed discussion, please have an interesting reading.
Michael Oliver Social Work with Disability. 1.6
pp. 71-81
Disabled people enjoy less opportunities of public contact. They feel
difficulties while initiating social interaction with non-disabled persons.
Special schools are criticized for their efforts and out put. According to
Oliver's discussion lack of social interaction is a bi folded problem: (i)
prejudicing of people in reacting towards the disabled (ii) The disable do not
know how to act in a special situation.
By the advancement of age, necessity of marriage evolves. As marriage is
not only sexual function but it has allied problems also e.g. housing, mobility. If
husband is handicapped, problems may be of varied nature which affects the life
pattern of partners. Their lives become difficult. They have their own
expectations and people also have expectations from them without realizing the
reality of situation.
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Another different approach in this respect has been discussed in the pages
referred below:
David Thomas Social Psychology of Childhood Disability. 1.7
pp. 11-13
Behaviour of the handicapped is the result of interaction with the society.
This interaction is dual in its nature. Attitudes towards the handicap are not
consistent in their nature and vary from mild to drastic; media pressure groups or
economic factors influence the change in attitude.
Some writers view that when the social status of the handicapped is
considered: the social sub-culture as compared with the normal, naturally
restrictions is imposed on the disabled. These difficulties may be seen in seeking
education and job opportunities.
The society which is positive in its approach accelerates the process of
stabilization and social cohesion. In general each society categorizes disabled,
and behaviour has "defining value in respect of predictability to the stereotype".
Every disabled person has his own perception of his body, skills and
limitations. This perception draws a line between him and the non-disabled.
Greater the deviation, the greater the personal insecurity.
Following pages further highlights the concept:
Retrieved on 15 March 2007 Ohio State University Extension 1.8
from Fact Sheet: Family and Consumer
http://www.ohioline.osu.edu/hyg- Sciences
fact/5000/5210.html Campbell Hall 1787 Neil Avenue,
Columbus, Ohio 43210
I hope you have successfully gone through the suggested pages of David
Thomas. Please attempt the following to check your understanding..
Exercise
1. Mention some basis of social behaviour of the handicapped.
___________________________________
___________________________________
___________________________________
2. Some disabilities restrict reciprocal behaviour. Please mention the possible
reciprocal behaviour against each disability.
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Visual disability ___________________________________
___________________________________
Hearing disability ___________________________________
___________________________________
Physical disability ___________________________________
___________________________________
Mental retardation ___________________________________
1.6 Special Needs of the Handicapped
Impairment may be significant at the time of birth but many become
prominent at developmental norms for children. Parents especially with
impairment history should be conscious if any warning sign is observed in their
baby. Acceptance of impairment, disability leads our focus to recognize special
needs of the child, their needs should be "met with affection not with
smothering". The needs may be primary or secondary in nature. Maslaw has
reported some basic needs, psychological, safety, belongingness, esteem and self
actualization, while Judith and Felicity divided needs into three major classes,
medical, educational and social. Needs and services should be fussed together
with spirit of sympathy, stimulation, and hope.
Warnock Committee's report provided a turning point in this regard as it has
proved an axis for the special efforts.
Brennan has also contributed in this field. Surely these pages will provide
better understanding.
Barennan Curriculum for Special Needs 1.9
pp.28-35
According to Brennan it is very difficult to establish a single agreed
definition of special education needs as all pupils have special educational needs
of some kind. In this respect, Warnock Report, is a landmark. It has an advantage
of being "educational". After Warnock's Report, special educational needs based
on "learning difficulty" were clearly defined in the Education Act 1981. Now in
the field, two definitions are in function one is legal while other is educational.
Warnock's Report and the Act both accept that special educational needs
extend over a range of mild to severe but according to Warnock may not
necessary be permanent. Needs may differ in ratio also, single disability ,or a
combination of disabilities demand an operational definition so that it may fulfill
requirements of multi-aspects of need and this demand is met by Brennan in his
discussion.
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Discussion on special educational needs naturally gives rise to curriculum
requirements. Every curriculum is developed in accordance with aims. Aims for
all pupils are same but the degree of achievements of aims is largely varied.
Schools have to frame its activities curriculum in accord with the aims,
knowledge, skills and values.
The range of special needs varies even within specific group. Ten groups are
formed by National Bureau of Co-operation in child care while Guilford has
formed nine groups. Warnock's Report emphasize the "specific condition" within
the group. Mary Wilson is another contributor in this respect and puts forward
four group classifications, on the other hand it is commonly admitted that
multiply handicaps challenge the curriculum. Multiply handicaps have wide
range with in a group which implies complex relationship between severity of
disability and its effect on learning.
Exercise
1. Educational needs defined by Warnock Report are "Educational" How?
2. The common factors in Warnock's Report and Education Act 1981 (with
reference to educational needs) are:
__________________________________
__________________________________
__________________________________
3. Enlist implications of Warnock's Report for special educational needs:
1. __________________________________
b. __________________________________
c. __________________________________
d. __________________________________
4. Wide range of special needs gives rise to curriculum problems; Discuss with
reference to Pakistan.
5. Multiply disability generates more stress on curriculum. Quote examples
from your environment in support of the fact.
Activities
Observe a visually impaired person for a full day and note the difficulties he
faces in social interaction.
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Self Assessment Questions
Q. No. l Encircle T if true F if false
T F (i) Spina bifida is one of the major causes of mental retardation.
T F (ii) The Major classification of handicaps is based on medical approach.
T F (iii) When a person has more than one disabilities the minor is
emphasized.
T F (iv) Self is shaped by social interaction
T F (v) Broadly speaking, special educational needs are divided in three
categories.
T F (vi) The greater the deviance from normal, the least the disability.
T F (vii) Secondary deviation stems from community.
T F (viii) The behaviour of a handicapped person is reciprocal to others.
T F (ix) Minton divides disability role in five classes.
T F (x) Disability classified on medical approach is not vague in general.
Q. No.2 Choose right one
(a) Developmentally young is substitute term for
(i) Physically Handicapped (ii) Mentally retarded (iii) Visually impaired
(iv) Educationally handicapped.
(b) Affect on the handicapped of some factor of known origin is not always;
(i) Predictable (ii) Non-Predicable (iii) i & ii (iv) ambiguous to the
handicapped.
(c) Communication in educational process is
(i) Conscious (ii) Cooperation (iii) Non-Cooperative (iv) i & ii
(d) Reaction to continuous love shown by the handicapped is
(i) Non cooperation (ii) Cooperation (iii) Neutralization
(iv) Offensiveness.
(e) Handicap is said to be,
(i) Social disadvantage (ii) Social advantage (iii) Individual disadvantage
(iv) Personal efficiency.
Q. No.3 Construct a relationship between impairment, disability and handicap.
Q. No.4 Suggest five possible ways to meet the difficulties of visually impaired
and comment how a plan will meet them.
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Q. No. 5 A handicapped person has sub-normal pattern of life. Why?
Key
Exercise of readings
1.1, 1.2, 1.3, and 1.4
1. Impairment.
2. Disability.
3. Impairment.
4. Handicap
5. Self Care
6. Handicap
Self Assessment Questions
Q. No. 1 (i) F (ii) T (iii) F (iv) T (v) F (vi) F (vii) T (viii) T (ix) F (x) T
Q. No.2 (a) iv (b) i (c) iv (d) 11 (e) i
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UNIT NO. 2
Written by
1. Muhammad Javed Iqbal
2. Mrs. Shaista Majid
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CONTENTS
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INTRODUCTION
Usually handicap is a chronic state by its nature and lasts the whole life.
Proper management may reduce its severity but a complete remedy is not always
available: Responsibility of management of handicapped children mainly lies
with the parents. Their contribution towards betterment constructs the life pattern
of their handicapped child. Parents should be realistic in their love and help.
Their stress free rational role can help in developing constructive personality. So,
it is necessary to understand and accept the nature and degree of impairment.
Effectiveness of parent’s attitude can be seen in guilt free smooth social
interaction of the handicapped with family and society. It also carries value to say
that handicapped child in normal family alters the whole pattern of family life
both qualitatively and quantitatively.
Consistency in attitude towards the handicapped, whether positive or
negative, leads the child to perceive self picture. Parents are not the only ones
who shape the self image of the handicapped but socio-economic influences are
also important forces. Personality of the handicapped is joint reflection of
physical and social environment along with heredity.
Limited income of family surely imposes frustration on the whole family
and especially on the handicapped child. Security and social respect have hidden
association with economic factors. Economic pressure puts limits on social
relationship; it may increase social pressure on the family and the handicapped. It
also creates gap between the chronicle age of the handicapped and his relative
normal social development as noted by Thomas (1982).
Objectives
After completion of this unit you should be able to:
1. understand parents role on more scientific bases.
2. recognize the problems of over protection and negligence.
3. motivate the parents to help the child in gaining independence.
4. help the parents and the handicapped in better adjustment
5. assist the handicapped child in having positive self concept.
2.1 Normal Parent with Handicapped Child
Parents and nucleolus family is the first to come in contact with the
handicapped. Identification of disability at early stage is important but the way it
is conveyed to the parent is more important whether parents are told "skillfully or
clumsily". Sometimes a person out of family identifies the handicap first, parents
especially mother, is slow to recognize any disability in their child. On
recognition of having a handicapped child, parents may feel shame, anguish, loss
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of self-esteem, grief and shock, expected outcomes of these may also result in
maladjustment of both parents and the handicapped child. But there are
supportive services which can modify their cultural stereotype.
It is interesting to note that according to Thomas (1982) research has
emphasized on initial reaction of parents, not on the development of positive
attitude and relationship towards the handicapped child. If accurate information is
made available it can provide security and emotional assistance to the parents as
well as to the handicapped child. Cliff views supportive services as (i) visits (ii)
development of knowledge based on skill and (iii) weaning phase.
After introductory lines, study of these pages will be fruitful.
Brain Frasser The social Psychology 2.1
pp. 40-43, 45-47
David Thomas The Experience of Handicapped 2.2
pp. 92-103
Brain Frasser is of the view that parents, attitude is the reflection of norms
of the society, this may impose restriction on the handicapped and in this way
sub-normality is facilitated by society's attitude.
Allen and Person suggest social treatment to the handicapped child as
well as to the parents. Inadequate relationship between mother and her
handicapped child also magnifies the whole situation.
According to Thomas, abnormality is social and biological in its very
nature Stress on parents is natural on having a handicapped child. Hauerwes is
quite right in mentioning the two-fold nature of responsibilities of parents: (i)
fulfillment of basic needs (ii) protection from suffering.
Exercise
1. State two factors which shape the parental attitude towards their
handicapped children.
(i) _____________________________________
(ii) _____________________________________
2. Enlist some supportive measures for better adjustment of the
handicapped.
(i) _____________________________________
(ii) _____________________________________
3. Birth of a handicapped gives rise to stress. Mention some ways of
handling the stress.
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(i) _____________________________________
(ii) _____________________________________
(iii) _____________________________________
4. Discuss with some of your colleagues how family attitudes are formed.
Record four reasons.
(a) _____________________________________
(b) _____________________________________
(c) _____________________________________
(d) _____________________________________
5. The society produces following negative feelings in the parents of
handicapped child.
(i) _____________________________________
(ii) _____________________________________
Additional reading
John D. Kershaw Handicapped Child
Pp. 20-27
2.2 Neglect and Over Protection
The desire to be accepted and protected in early childhood is natural, this
support' and security is provided by the family. The relationship of child to
parents and siblings within home is thought to be a system or network of
interactions and this is the major group who consistently and consciously affects
the personality. It is also the primary institution through which a new born gets
the concept of the living world around him.
Care taking is biological and psychological in nature but patterns vary
according to culture. Mode and degree of care is not generally in line with actual
needs of the handicapped. Parents attitude may be of over protection or neglect;
this can cause deviation, the more the deviation the lesser the predictability of
social behaviour. Ross (1961) claims that parent's reaction to their child is related
to their own experiences of .childhood.
No intensive research has been conducted on the neglect of the
handicapped as narrated by Thomas (1982) but so far research shows that life for
neglected handicapped is rough, unsure and cruel.
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Warmth and positive attitude towards the handicapped is reflected in the
degree of adjustment of the disabled. Another significant study is of Luke Off as
referred by Thomas (1982). The parent's attitude of patronizing, over-protection
and being overly sentimental effects the independence more than it affects the
attitude of blind.
Brain feels that over protection is a relative individual term that may
eliminate the stress which is necessary for learning. The primary root of over
protection is at home and same is the factor behind the institutional over
protection. It also restricts cognitive and social activities.
Now let us read Rosemary in this connection.
Rosemary The Psychology of Handicapped. 2.3
Shakespeare pp.52-54
Rejection of the handicapped is rare, but acceptance and consideration of
special needs are two different aspects. Over optimistic attitude means not to
recognize the limits of the handicapped and it leads to frustration. Modes of
acceptance of child within family may vary, handicapped may be accepted as
baby, not at later stages because his care needs more attention:
Over protection limits the independence and skill. Over protection is a
term used when the handicapped is not allowed to have a part in activities which
are not safety threatening.
James M. Gaudin, Jr. Ph.D. April 1993, Child Neglect: A guide for 2.4
Retrieved on 13 April 2007 from Intervention
http://www.pantucek.com/cps/neglect.pdf.
22
3. Physical acceptance is less important than acceptance of limitation. Give
examples
__________________________________
__________________________________
4. Acceptance of handicapped child is permanent in its nature because of
__________________________________
__________________________________
5. Geberak criteria of over-protection includes
__________________________________
6. What are the results of over-protection as stated by Shakespeare?
__________________________________
2.3 Self Concept
Development of self concept in early childhood is reciprocal to family's
attitude towards the disablement. It is the depot of memory as commented by
Abrar Ahmad (1986) which filter's down the experience. If the handicapped feel
taking not giving, dependent not independent, rejected not accepted, anxiety and
frustration will arise.
Realization of handicap and continuous frustration. may lead the disabled
to develop the concept of guilt and self pity which is evolutionary and not
revolutionary process. Parents are not the only ones who contribute to develop
guilt and self pity, pears and other family members also have a share. Repeated
signals of depression and inferiority in the handicapped indicate the presence of
guilt as described by Thomas (1982).
Our prior discussion on over protection and neglect also has relationship
with self concept formation. The lack of self confidence about social competence,
personal appearance and adjustment to impairment also counts in framing self
concept. Low self-esteem may form guilt and self pity and may put limits on
normal activities, autonomy, courage and leadership in the view of Erikson (1983).
David Thomas The Social Psychology of Childhood Disability. 2.6
pp.87-90
Experience of the handicapped in early years form the basis of self
concept. At early age sensory motor development and their vocal development
contribute to self. Programming for the handicapped at early stage should be
made as close as possible to the normal. Self concept is also reflected in the
behaviour of children but adults show varied responses. It is mutual interaction
and perception.
23
According to Shakespeare, sick role is appropriate at early stages not at
later. Behavioral results of handicapped are not in accordance with expectations
but the life style along with disability shapes the behavior.
Pearlman and Scott Raising the Handicapped Child 2.7
pp. 11, 148 – 156
Self concept can be measured by self-report, observational and repertory
grid method but commonly used is self-report. As mentioned by David, research
results may be questionable due to the validity and reliability of problems in self
concept measures. Girls with mental retardation seem to have high self-concept
than boys. Garling House and Sharp's study indicates that family stress is "directly
related to bleeding irrespective of level of self concept" in hemophiliac children.
Laura Scott indicates a pathway towards independence with security and
safety. She discusses various components of independence. Assistance provided
by parents: basic unit of inspiration, counts much both quality wise and quantity
wise but quality a of prime importance. The parents should try to ignore the
interruptions made by handicapped, at dinner. make him feel accepted. This will
prove an enjoyable time for all of the participants. Self concept based on
confidence gives rise to success in life but confidence in the handicapped is
proportional to the trust fused in him.
Exercise
1. If a disabled person is not able to narrate himself, he is assessed as
__________________________________
2. Realization of handicap by the handicapped at early stage many result
deterioration in his personality. Suggest some steps to avoid this.
3. Self concept is bifacial because of the following reasons.
(i) _____________________________________
(ii) _____________________________________
(iii) _____________________________________
4. Please indicate the persons other than parents who contribute
tremendously towards the amelioration of the disabled.
24
Additional reading
Kohaska and Brollin Career Education for Handicapped Individuals.
pp. 130-136
25
Retrieved on 23.04.07 from Special Needs Learned 2.9
http://specialneedsparenting.suite101.com/ Helplessness
articles-efm/special_needs_learned_
helplessness
26
the society. Components of these norms exert pressure which carries economic
aspect as well.
Economy of family has a prominent role in developing personality and
life pattern of the handicapped. Money is a major contributing factor which alters
the life style of family and ultimately effects the handicapped because money can
not buy health but means to, health.
Handicapped persons from low-socio-economic groups suffer with much
more difficulties in their adjustment as compared with well to do families. The
primary care taker has to arrange the facilities for the handicapped and delivery
of all such provisions depends upon the resources of parent’s primary care taker.
Let us go through the following pages to have a good peep into causes
and effects of socio-economic pressures on the handicap.
27
2. Suggest some measures which can contribute towards better adjustment of the
handicapped who is member of low socio-economic segment of the society.
(a) _____________________________________
(b) _____________________________________
(c) _____________________________________
3. The broad social factors creating deviant behaviour in the handicapped in
Pakistan are
(a) _____________________________________
(b) _____________________________________
(c) _____________________________________
4. Mostly employers hesitate in providing job to the handicapped due to:
(a) _____________________________________
(b) _____________________________________
(c) _____________________________________
Self Assessment Questions
Q. No. l Encircle T if the statement is true, F if it is false.
T F (i) Parents' Attitude forwards handicapped children is not biased in general.
T F (ii) Attitude of parents always magnifies the degree of severity of handicap.
T F (iii) Support for disability should be provided to the whole family.
T F (iv) For parents of visually handicapped, feeling of grief are immediate at birth.
T F (v) Employment under limitations, is known as open employment
T F (vi) Depression may be a result of guilt.
T F (vii) Over protection increases flexibility.
T F (viii) Cognition is the factor which constitutes the persons' attitude towards
himself.
T F (ix) Continuity of memory and experience produces the awareness of self in
children.
Q. No.2 Choose correct one.
(i) In self development of children who contributes longer
(a) teacher (b) parents (c) siblings (d) none of these
(ii) Rejection to handicap depends upon
(a) subjective severity (b) objective severity (c) acceptance (d) level of
expectation.
(iii) Positive self respect will be propagated in the handicapped if they enjoy.
(a) love (b) rejection (c) shock (d) over protection
28
(iv) Feeling-of incompleteness at the birth of the impaired child may lead
parents to loose.
(a) self respect (b) self integrity (c) a and b (d) none of the these
(v). Over protection of handicapped child is relative to
(a) age (b) level (c) race (d) a and b
Q.No.3 What measures can be suggested for the parents to protect the
handicapped? How can avoid over protection?
Q.No.4 "Dreams scatter when parents come to know of having a handicapped
child" Please comment.
Q.No.5 Construct a relationship between restriction and dependency.
Q.No.6 Give some examples of negative social pressure.
Q.No.7 If socio-economic- pressure is canalized in a proper way, what will be its
effects on the handicapped.
Activity
1. Select a family-with a handicapped child record their feelings about the
handicapped.
2. Observe the life of a handicapped person for day, note down the attitude
of handicapped towards himself and others.
Key to Self Assessment Questions
Q. No. 1 (i) T (ii) F (iii) T (iv) T (v) F (vi) T (vii) F (viii) T (ix) T Q. No. -2 (i) b
(ii) a (iii) a (iv) c (v) d
29
30
UNIT NO. 3
Written by
1. Muhammad Javed Iqbal
2. Mrs. Shaista Majid
32
CONTENTS
S. No. Subject Page No.
1 Introduction 35
2 Objectives 35
3 3.1 Categories of Disabilities 36
4 3.2 Visual impairment (definitions, classification) 36
5 3.3 Hearing Impairment (definitions, classification) 37
6 3.4 Mental Retardation (definitions, classification) 38
7 3.5 Physical Handicap (definitions, classification) 39
8 3.6 Diagnosis and Diseases 40
33
34
INTRODUCTION
Parents have so many questions in their mind about their disabled children on
their first visit to clinic. These questions are usually about causes, nature, and
treatment of the impairment and implications imposed by the impairment on the
present and future life pattern of their disabled children. Although new surgical
methods, increased knowledge of etiology, advancement in chemotherapy,
preventive measures, application of electronics to diagnoses and management have
made great contribution to the treatment and management of the handicapped yet
limitation of medical profession are still there as a doctor cannot grow limbs or
manufacture a lens for eye, cannot alter genetically outcome at post-natal stage.
When handicapped child is in clinic, emphasis is laid on diagnosis and
maintenance of residual function organ. Diagnosis should be sought through
physical examination or clinical investigations. It should be made accurate and
comprehensive up to the maximum but the possibility lies that diagnosis once
made may be inappropriate at another time. For complete assessment, history of
the family of the disabled should also be considered, as the handicap is inseparable
component of his environment and heredity. It also helps to have a more stable
picture of the disability.
Careful history record generally supplements the information gained by
clinical tests. Clinical tests may be applied when screening the causes and
confirmation of diagnosis is required. For treatment purpose handicapped child
may be referred to physician, surgeon, therapist etc.
The treatment and prognosis may be short term, long term or life long.
Expert's opinion, 2nd opinion even 3rd opinion may be sought before confirming
any cause and determining the line of action.
In the treatment process, human factor may hinder or facilitate the
management of disabled child. Child's first visit is of vital importance especially
for the mentally retarded. Physician should be sympathetic even emphatic in his
behaviour. The initial contact should be/made in an attractive atmosphere e.g.
room may have beautiful cartoons, pictures etc. Physician should not only examine
the handicapped but also look into the future of the handicapped. It is not always
possible to develop a remote goal or plan for the handicapped at early stages.
Physician may not have full picture of impairment in spite of his dedication in
observation and depth of professional insight and skill.
Objectives
After successful completion of this unit you should be able. to:
1. Explain causes of impairment.
2. Describe genetical disorder.
35
3. Refer the handicapped to the possible concerned specialist.
4. Appraise diagnosis and assessment procedure method.
5. Appreciate the contribution made by medical services to the handicapped.
3.1 Categories of Disabilities
A widely used system of classifying disabilities was drawn by Dr. Agerholm.
It was designed to improve the quality of statistical information collected by the
Department of Employment. The main division of the classifying system was as
under:
1. Location Handicap Mobility, poster, manipulation
2. Visceral Handicap indigestion, excretion
3. Visual Handicap loss of sight, partial loss, perceptual
disorder
4. Communicative Handicap receptive, expressive
5. Intellectual Handicap retardation, memory impairment
6. Emotional Handicap psychoses, behavioral disorders,
drug addiction
7. Invisible Handicap metabolic disorders, epilepsy
8. Visible Handicap skin disorders, scar (David Thomas)
36
W.L Heward and Exceptional Children 3.2
M.D Orlensky pp. 333 – 341
Snellen's chart is a tool for measuring visual acuity in general. For example
20/ 200 means that an object which can be seen at distance of 200 ft. clearly by
normal eye is only seen at the distance of 20 ft by the eye with low vision.
Kauffman, Hallahan classify the visual impairment into legal and educational.
Legal definition is used by law people and medical experts which is pertinent to
our discussion but educational definition is of no less value. Partially sighted are
those whose vision falls below 20 / 70.
Before moving ahead let us have some check.
1. A blind person is that whose visual acuity is less than
2. 20 / 200 means partially sighted. Person with this acuity can see the object
at a distance of
3. With 20 / 70 visual acuity a person is said to be
4. Central of vision can cause loss of central vision.
5. Eye and camera are visually
Suggested additional reading
Patton et-al Exceptional Children in Focus.
pp. 114-118
3.3 Hearing Impairment
Man is differentiated from animal because of his developed communication.
Ear is also one of the major sensory organs through which perception of world is
attained.
According to Alice "Children with hearing lose from 20-26 decibels as
measured by pure-tone or speech audiometry are generally classified as hard of
hearing". Children with hearing impairment can be identified only as they come in
contact with others, otherwise seem to be normal. Ear is medium effecting on the
brain giving sense of hearing. For detailed study please go through the pages
suggested below:
W.L Heward and Exceptional Children 3.3
M.D Orlensky pp. 280- 297
37
Exercise
1. ____________ hearing impairment cannot be treated.
2. Middle ear diseases can cause ______________
3. Classification on the basis of amount of hearing deficit is _____________
4. Congenitally deaf means ______________
5. 26-54 db loss refers to ________________
6. Explain conductive deafness.
7. In classroom causes of functional deafness may be
(i) ________________________________________
(ii) ________________________________________
(iii) ________________________________________
3.4 Mental Retardation
Every disease causes emotional disturbance. This instability is much more
significant in the diseases falling in the category of mental retardation. This
abnormality may be organic or functional.
Mental retardation may be by birth or gained afterwards. AAMD classify as
mild, moderate, severe and profound while American educators divide as educable,
moderate, severe and profound while American educators divide as educable,
trainable and custodial. Mild mental retardation is not identifiable apparently and
needs not be helped for very long but others require assistance for a long time.
Need of help is directly proportional to the degree of severity.
Exogenous and Endogenous is another classification. Exogenous: due to brain
injury and Endogenous refers to heredity and environmental factors.
Let us see how this concept is described in the following reference.
W.L Heward and M.D Orlensky Exceptional Children 3.4
pp. 85- 112
Mental retardation is commonly and usually seen as subnormal mental ability.
The changes in the concept of mental retardation are complex in their nature as
causes are not fully known yet.
Experts form different disciplines have put forward their definitions on
mental retardation. Each definition, classification hits the mental retardation in a
different but specific way. Cantor has bifacial criterion for assessing this abstract
concept. While definitions of mental retardation made by AAMD cover adaptive
behaviour and intelligence both. This is adopted by American Psychiatric
Association also.
38
Incidence and prevalence are two somewhat basic terms used but often
confused in mental retardation. Incidence means occurrence of new cases in a
specific period (usually one year) while prevalence includes cases which fall under
category of incidence and also cases already in picture. Usual occurrence of mental
retardation is said to be 1-3 percent of total population. Occurrence of mental
retardation varies with age level but highest rate of incidence is during 5-18 years.
While defining mental retardation, one has to decide the parameter of
definition. AAMD definition includes both mental retardation, a developmental
framework and adaptive behaviour but choice of parameter is most difficult i.e.
what to include and what to exclude some parameters are common in more than
one definition. Drew et-al mentioned six parameters which are common in
classification.
Symptom etiology is basic parameter used in mental retardation. AAMD
classified mental retardation into ten divisions. Mental retardation associated with
other conditions occurs more frequently and about 75-88 percent of total of
mentally retarded population fall into these divisions. It also means that only a
small percentage falls in other categories.
Adaptive Behaviour
In classification of mental retardation made on adaptive behaviour, many
difficulties occur. When adaptive behaviour is based as parameter, it has no prefect
correlation with intelligence while measurement of adaptive behaviour is not
always valid or reliable hence it cannot be standardized.
Adaptive behaviour depends upon age, environment, culture, previous
opportunities of learning. Medical professionals also "frequently employ
classification on syndrome description", Syndrome titles are usually after the
names of pioneer expert of technical, clinical terminology employed in diagnosis.
Additional reading
Patten et-al The Exceptional Children in Focus.
pp. 52-55
3.5 Physical Handicap
Physique plays an important role in life, any check even by non-sensory
disability on a child puts limitation on its development. Physical handicaps
deshape the body, being very much visible disability goes to handicap easily as it is
a social stigma in its nature.
39
Before we move to 2nd part of this Block, please go through the following
pages.
W.L Heward and M.D Orlensky Exceptional Children 3.5
pp. 376 – 398
Physical handicap is the result of born with or attained defects. Causes before
and after birth are so many which lead to physical handicap. Occurrence of
physical handicap is greater than any other impairment and much more diversified.
And no narrow classification has yet been reached though non-sensory element is
common in all definition/classification.
It is generally a visible handicap although hidden ones are also present such
as tuberculosis, congenital defects of heart etc. Beside these, others are muscular
dystrophy, accidents, after affects of poliomyelitis, bone. Muscle and joints
problems, some physical losses are age related handicap become severe with the
advancement of age.
Now please check your understanding.
1. ________ is an example of combined physical and mental retardation.
2. When physical handicapped is _________ education can make difference.
3. Congenital heart damage is an example of __________ and ________.
3.6 Diagnosis and Diseases
3.6.1 Visual Impairment (Diagnosis, Diseases)
Written by
Muhammad Javed Iqbal
Reviewed by
Dr. Tariq Rashid Toosy
Eye is one of the main media of perception. Any defect in vision can cause
hindrance in smooth living and learning.
"Most of the visual impairments in school-age children are a result of event
occurring prior to, during or shortly after birth (Hatfield, 1963). A significant
portion of visually impaired children have cataracts (clouded lens) or retro lent-al
fibroplasias (caused by excessive oxygen given to infants). Many severely visually
impaired children have eye problems caused by a condition that also affected
another biophysical system. Consequently, for a significant portion of these
children, the visual impairment is just one of several impairments caused by a
single prenatal disorder or pathogenic agent (e.g. rubella)" (Payne et-al, 1983).
40
Classical causes of blindness can be eradicated while congenital and
developmental causes cannot be cured as our knowledge of field of genetics is still
limited irrespective of rapid progress made in the field of genetics.
Partial impairment and low vision are generally caused by myopia is among
the most common diseases and grows with the growing of age. Weakness caused
by myopia is arrested from growing further when body height is fully developed
Irreversible nature of blindness requires greater attention. If blindness is
there, focus should be made on attainment of confidence and development of other
special senses.
Treatment by medicines like antibiotics does not contribute in congenital
diseases whereas surgery has come to play a greater role. In congenital cataract, the
removal of lens in the first month of life and correction with glasses has become
common where as in children the intact ocular lens implantation is the treatment of
choice. Medical treatment like antiglaucoma drugs can help a congenital glaucoma.
Most children are longsighted at the time of birth. If not hereditary, proper
and regular visit to ophthalmologist can prevent the child to fall in the group of low
vision.
According to them acuteness of vision can be discussed in three categories
while test of low vision falls into four. These tests may be administered
individually or collectively. Discussion has been made on distant vision. Low
vision test includes reading of different prints, contrast sensitivity-vision, colour
perception and field of vision.
Myopia is the most common eye disease in which rays of light make a blurred
focus in front of retina. In high myopia research has shown that short sightedness
grows even after adulthood and the image is constructed by rays in front of retina.
Concave lens (−) can be helpful in the correction of myopia vision while
hypermetropia can be corrected with the help of convex lens (+)
Astigmatism
In this ailment the radii of curvature of cornea are different and rays passing -
through lens form a blurred image on retina thus transmitting depressed image to
brain. Astigmatism can be treated with cylindrical lenses. It is worth while to note
that now remedy for severely affected is also available (contact lenses, radial
keratotomy).
Albinism and Aniridia are inherited diseases and their treatment is poor
41
Glaucoma is another threat to vision. It may cause serious impairment. It is
caused by inadequate aqueous drainage. It can have association with other age
problems. It results in irreversible damage to retina, optic nerve and fields of
vision.
Hemianopia
In this condition vision is only in one half on each retina. It is due to some
diseases in visual pathway and macula is not involved in this disorder. It may
appear at any time in life. Squnit may supplement already existing visual problem.
Nystagmus
Nystagmus is an involuntary deviation of the gaze followed by a return of the
eyes to their original position.
It may be the principal sign of a vestibular disturbance or paralysis of certain
ocular muscles especially the external rectus. Ocular nystagmus may be irregular
where as vestibular is rhythmic, never lasts more than three weeks and is always
accompanied by vertigo or dizziness.
Macular degeneration
Reduction of central vision caused by a syndrome which affects fovea and
macula.
Optic atrophy
A disease of optic nerve which is medium of transmission of electric impulses
to visual cortex of brain. It has multiple affects and linkages.
Retinitis pigmentosa
It is progressive impairment, may result in tunnel vision and night blindness.
Its progress may be high in adolescence. Vitamin A can be helpful in night
blindness.
Squints
It is a disease in which eyes do not focus on the object simultaneously and
cannot fuse the separate images of eyes in one. It may be due to paralysis of extra
occular muscle or may be congenital in nature.
Self Assessment Questions
Q.No.I Encircle T if true F if false
T F (i) The most common loss of colour vision is red yellow
T F (ii) Aniridia: absence of iris
T F (iii) Hemianopia originates in visual path ways.
42
T F (iv) When image is formed beyond macula the condition is known as myopia.
T F (v) Disturbed image refers to astigmatism
T F (vi) Albino: lack of colour pigment.
T F (vii) Child with squints does have difficulties in focusing.
Q.No.2. How squint is assessed?
Q. No.3 Describe some subjective ophthalmic examinations?
Q. No.4 Write a brief note on (a) Myopia (b) Optic Atrophy.
Q. No.5 Discuss the common causes of total and partial blindness.
Activity
Please visit a home of visually impaired child. Discuss with his parents about the
measures they have taken for the maintenance and improvement of vision. If
necessary guide them according to your sub-unit.
Key
(i) F (ii) T (iii) T (iv) F (v) T (vi) T (vii) T
3.6.2 Hearing Impairment (Causes, Conditions)
Written by
Muhammad Javed Iqbal
Revised by
Dr. Tanweer Sarwar
Every organ has its own role to play which makes it unique. Ear is no
directional sensory organ which performs three functions. First is to detect rational
movements of the head, second is to maintain balance while third is to detect sound
waves of specific frequencies and then transmit these to brain .for interpretation.
Ear is mainly divided into three parts, external, middle, and internal. Every
part is complex in its formation but middle and internal are complex in their
function also. For hearing purpose, each element is important. Disorder. of any part
may cause hearing impairment i.e. disturbance in transmission or interpretation. It
is invisible impairment as compared with others.
A normal person can identify the waves of frequencies ranging 20-20,000.
Ear is more sensitive to 1000-3000 Hertz but 125-8000 Hz are more important as
this is speech sound range.
Causes of deafness are not yet fully known, some may be meningitis,
inherited, German measles in early pregnancy, brain damage during labor, jaundice
and certain drugs.
43
Medical and surgical treatment carry a little sign of profit to the severely
impaired (congenital and nerve damage). Main focus of treatment is on the
infection of ear. Care and management supplement each other in auditory training.
It has been proved that early detection of handicap makes it minimum.
Screening and diagnostic tests are two major classification of the test. Mostly' used
screening tests are sound field test, and behavioural test. Neo-natal Screening test
is based on changes caused by sudden sound in heart rate, respiration rate, head
movement, body activity, muscle tone, head jerk & eye blink.
Tests can be administered only by expert and long duration may be required
to note reflex responses. Autopalpebral reflex (eye blink response) is most
common in sound responses and efforts have been made to make it objective.
Micro-process-based-systems can be applied at neo-natal stage, crib-o-gram,
audiotry response cradle while high risk registry is an alternative method of
identification of babies at hearing risk.
The PAM responses are carried out routinely in all children who attend health
clinics. Important of these is distraction test, it has value both as screening and
diagnostic test. In spite of all these, tests have some problems and pitfalls.
Pathological conditions causing conductive deafness in children.
1. Eustachian Tube Dysfunction: It is due to negative mid ear pressure.
2. Middle Ear Fluid: Fluid in middle ear can cause impairment by stiffness.
3. Ossicular Discontinuity: v: Scarred or Flaccid tympanic membrane ossicles
high than normal, even free movements of tympanic membrane and ossicles
become the cause.
4. Otosclerosis: Middle ear pressure is normal but the movement of the stapes is
below normal.
5. Tympanic Membrane Perforation: Perforation may be accidental as a result
of some insertion. If there is no air pressure difference across tympanic
membrane, there will be no vibration in the tympanic which results in
deafness.
Exercise
1. Function of hearing test is ________________________________________
2. In screening test error may be up to ________________________________
3. Physical responses to sudden sounds in new-born are:
(a) ________________________________
(b) ________________________________
(c) ________________________________
44
(d) ________________________________
(e) ________________________________
(g) ________________________________
4. Post-Auricular Myogenic Response refers to ____________________
5. Sleeping babies response on PAM as __________________________
6. Signal based on smell not on sound is known as _________________
7. Child can act according to signal heard at the age of ______________
Activity
Discover a student who is partially hearing impaired. Try to locate the
disorder by observation and simple techniques.
45
jobs not requiring abstract thought, though the individual is poor in academic
achievements. Such individuals constitute about 85-90o of the total. While in
moderate mental retardation (trainable). the individuals usually identified in the
early life because of delayed development of milestones and may have physical
defects also. The individual may look after himself and may be employed in a
sheltered type of occupation. Such type of individual constitute about 5 - 10 e of
the total
The severe mentally retarded and profound mentally retarded individuals are
usually dependent on others for care and may have multiple disabilities requiring
specialized medical care. Such individual constitute about So.
In general, in the preschool age, the child may have distractibility, short
attention span, hyperactivity, easy stimuli and sleep disorders etc.
Etiology of Mental Retradation
l. Prenatal causes
It is the period which ranges from the fertilization of the ovum to the delivery
of the baby and any adverse effect on the fetus will affect tile intellectual level of
tile child.
(a) If maternal and fetal infections like rubella, syphilis, toxoplasmosis occur
during pregnancy especially in the 1st trimester then the changes of defects
in the child are far more.
(b) Fetal irradiation (exposure of mother to radiation e.g. X-Ray)
(c) Kernicterus (Bilirubin encephalopathy). It commonly happens when the
mother has a negative blood group and the fetus has positive. (The antibodies
develop against fetal red blood cell and destroy them leading to severe
jaundice due to high level of bilirubin and this bilirubin gets deposited in
brain cells causing severe damage.
(d) Pre-natal indefinite causes associated with placental insufficiency like
toxemia of pregnancy. maternal medication, maternal smoking and taking
alcohol, nutritional deficiency, trauma etc.
(e) Genetically associated causes.
(i) Chromosomal abnormalities like Down's Syndrome, Klinefelter
Syndrome, Turner's Syndrome, Cri-Du-Chat Syndrome.
(ii) Disorders of metabolism due to lack off certain enzymes involved
in protein, carbohydrate and fat metabolism like phenylketonuria
galactosaemia cerebral lipidosis etc.
(iii) Cranial anomalies like micro-cephalic, congenital hydrocephalus.
(iv) Cerebral demyelinating diseases.
(v) Cretinism, metabolic disorder due to thyroid hormone deficiency.
46
2. Natal causes
This period constitutes the process of delivery. It is a very critical period and
an\, mishandling will affect the future life: During this period more common
causes can b c listed as below
(a). Birth injuries
(b) Increased duration of labor (prolonged labor) either due to maternal
defects or position of baby.
(c) Hemorrhage (bleeding)
(d) Anoxia (lack of oxygen supply) due to any reason.
47
start depositing in the brain resulting in mental sub normality, ranging from
moderate to severe along with schizophrenic behaviour. The child may have blue
eyes, must odor along some skin lesion.
As the phenylalanine appears in the urine early detection and management is
possible by simple test of urine. Thus mental retardation can be prevented by
avoiding taking milk and foods containing this amino acid.
3. Cretinism
It is condition which results from deficiency of thyroxin, a hormone secreted by
the thyroid gland. During and after birth up to 2-3 months of age, the symptoms are
not visible but gradually as the growth proceeds on due to the lack- of hormone
result in physical and mental retardation. The child may have puffy eyes with a
protruded tongue and a large belly and small hands and feet. They usually have
umbilical hernia. Mental retardation ranges from moderate to severe.
4. Epilepsy
Epilepsy or fits or convulsions due to abnormal electrical discharge in the
brain may occur alone or in combination with mental retardation. The convulsions
may be generalized from the onset when discharges occur simultaneously through
out, the cerebral cortex or focal, remain localized. Convulsions are common during
infancy and more common causes include acute infection, cerebral malformation,
acquired lesion of brain and it may be idiopathic (cause unidentified), generalized
epilepsy manifests itself by jerky movements of the whole body with loss of
consciousness which remains for a period of 3 minutes. There may be tongue bite
and urinary incontinence. The child may sustain injury. If the tits occur repeatedly
in succession, the condition is called status epileptics.
There may be petit-mal epilepsy in which the attack consists of transient loss
of consciousness of very short duration in which the child neither falls nor shows
toxic spasm though slight rhythmic movements of head or eyelids may occur. The
E.E.G. shows characteristic pattern of waves. Many other types of epilepsy occur.
Seizure may be focal, characterized by localized movements limited to limbs or by
auto-matism like smacking of lips.
When the epileptic tits start in early life and are not controlled by drugs, there
may be progressive mental retardation. So when a child presents with such fits,
every possible effort should be made to identify the cause before the diagnosis of
idiopathic epilepsy is made.
48
Certainly prevention of development of mental retardation should be the first
item on this list. The most important aspects in the prevention of mental retardation
are centered in pre-conception and pre-natal factors. Many disorders related to
mental retardation are associated with chromosomal abnormalities and are
identifiable. Similarly many metabolic disorders are of genetic origin for example.
(i) As the incidence of Down's syndrome increases with the increase in
maternal age, so physicians and social workers can encourage the
couples to have their children at early age.
(ii) similarly certain metabolic disorders like phenylketonuria and
galactosaemia may he diagnosed at an early age by routine screening.
Mental -retardation resulting from such disorders can also be diagnosed
earlier.
(iii) Appropriate use of immunologic agents to prevent infection and
contagious diseases, careful and specialized management of labor and
early intervention in the lives of mentally and other handicapped
children would eliminate many instances of mental retardation.
(iv) In cases of Rh- incompatibility between mother and fetus, as the affected
fetus may have high level of bilirubin in their blood which can lead to
mental retardation. as explained earlier, exchange transfusion
immediately after birth may prove helpful. Intra uterine transfusion of
blood is also possible to avoid this complication in future. Rh-
immunoglobulin (desensitizing drug) should be injected within 72 hours
of delivery to the mother so that she may not develop antibodies against
future pregnancies.
Thus one of the most important contributions that can be made in the
prevention of mental retardation is early identification of mothers and
infants at risk and their specialized management.
49
Self Assessment Questions
Q.No.1 Mark True or False
(i) Mild mental retardation ranges from 50-70o of total mentally retarded. T F
(ii) The period between fertilization of ovum to the delivery of the baby is T F
the safest period.
(iii) Maternal smoking and alcohol intake leave a bad effect on the growth T F
of the fetus.
(iv) Incidence of Down's syndrome increases with the increase in the age of T F
mother.
(v) Slight mistake in managing the labour may hamper the growth of the T F
system of newborn.
(vi) Down's syndrome has certain physical features which characterize this T F
condition.
(vii) Down's syndrome is a treatable disease. TF
(viii) Phenylketonuria, the main reason for mental retardation is disruption of T F
nervous tissue by phenylalanine.
(ix) Phenylketonuria can be diagnosed at an early age by different tests. TF
(x) Cretinism is a treatable condition if diagnosed in early life. TF
(xi) Epilepsy is a common cause of mental retardation. TF
Q. No. 2 Development during the prenatal period and the time immediately after
the birth is the most critical period in the life. What are your comments on
this statement?
Q. No. 3 Enumerate the genetic causes of mental retardation. Discuss in detail any
two of them.
Q. No. 4 What is the role of preventive measures in decreasing the incidence and
severity of mental retardation.
Q. No. 5 Discuss in detail the role of community in the management of mental
retardation.
Assessment/activity
There may be some mentally retarded individuals in your locality. Please
record the clinical picture of such an individual and suggest various possible steps
for improving the life pattern of the affected individual.
50
Additional reading
Bartman Cerebral Dysfunction
pp. 127-142
Drew et-al Mental retardation
pp. 160-182
Key
Q.No. 1 (i) T (ii) F (iii) (iv) T (v) T (vi) T (vii) F (viii) T (ix) T
3.8 Physical Handicaps (Causes, Conditions)
Written by
Muhammad Javed lqbal
Revised and Improved by
Dr. Shahid Safdar
51
In this section we will deal with physical handicap as primary dysfunction
and will not discuss other allied secondary problems such as visual impairment and
hearing defects associated with a physical handicap.
A normal I.Q. can be facilitated by sound body to get the maximum potential.
But physical impairment may put hindrance in developmental process ultimately
forcing one to live subnormal life both economically & socially.
Cerebral Palsy: Cerebral palsy can be defined as persistent but not
unchanging disorder of movement and posture appearing in early years of life
caused by a nonprogressive disorder of the brain.
Incidence: 2-2.5/ 1000 of childhood. There is greater occurrence of disease in
children of mothers with low socio-economic status.
Etiology: The group as a whole has no common etiology. Cause of the
disease may be in pre-natal, natal or post natal period. In majority of cases the
abnormality originates at or before birth; pre-natal anoxia represents the most
important single factor though pre-natal infection and birth trauma may play a role.
In approximately 10-15ro of cases, condition is acquired after the birth. Cerebral
palsy is more common in males and a high proportion of cases are in the first born.
Classification
Classification of acquired cerebral palsy depends on limb involvement and
inadequacy of motor function. Denhoff summarizes the whole situation as
hemiplegia, diplegia, quadriplegia, paraplegia, monoplegia, triplegia and double
hemiplegia.
Cerebral palsy due to motor disorder is of three main types.
Spastic (80) athetoid and ataxic (20): Research has proved it to be a
complicated developing disability. Hearing defects, visual impairment, speech
impairment and mental retardation are the common disabilities associated with
cerebral palsy,
The prognosis as regards life, depends largely on the extent and nature of the
cerebral damage, the onset of symptoms, the degree of mental development, the
quality of home-management and the occurrence of intercurrent infection. The
most severely affected patients are likely to die in infancy while many others
survive to adult life. Prognosis as regards functional improvement is largely
52
governed by the intelligence of the patient and the age at which intensive
rehabilitation and education are commenced.
Little improvement can be expected in patients with severe mental sub
normality, where as in those with normal or superior intelligence, prolonged
training may render them as useful members of the -community even where the
initial physical disability is great.
Spina bifida: It is a congenital defect resulting form failure of closure at the
lower end of the neural tube. Spina bifida may occur at any level but is most
common in the Lumbo-region. It is frequently associated with hydrocephalus.
"When the spinal cord involved in the defect, the nerve supply to the lower limbs
and sphincters is affected and varying degree of paralysis and loss of sensations
result." Spina bifida alone does not affect the intelligence. Treatment lies in the
surgical repair of the defect.
Poliomyelitis (Infantile paralysis): It is a viral disease, affecting the anterior
horn cells of the spinal cord particularly the lumbar and cranial region and motor
nuclei of the cranial nerves.
This results in gradually increasing weakness of the muscles of extremities,
particularly of the lower limbs. Intelligence of the child is not disturbed. The
incidence of the disease has decreased in the areas where mass vaccination has
been practiced.
Muscular dystrophy: This group of heredofamilial disorders of the skeletal
muscles is characterized by progressive weakness and wasting of various groups of
muscles.
The conditions are usually familiar but sporadic cases are not very un-
common. Various clinical types are described but one set of muscular dystrophy is
very insidious and symptoms commonly appear before the 10th year of life.
Although muscular dystrophy is compatible with life a proportion of cases die
due to cardiac failure or respiratory infections.
No form of treatment has been found effective but regular exercise is
desirable and occupational therapy and education are of great help in rendering the
child's increasing disability more tolerable.
Arthritis: Pain in or around the joints or both is referred as arthritis. It is
supposed to be a disability of adulthood and older people but any one of any age
53
group may fall victim to this disease. Rheumatoid arthritis is the most common
disease of joints and muscles affecting children. The condition occurs in both sexes
but with a slightly increased incidence in the girls. It may start at any stage of
infancy but the peak age of onset is between 2-5 years. The disease is marked by
repeated exacerbations and remissions. As a general rule the child is more
seriously incapacitated following each attack and with more joints involved.
Under the umbrella of congenital malformations are club foot, scoliosis,
perthes disease, arthrogryposis, and osteogenesis imperfecta are important. These
may render minor to major disabilities from impairment to handicapping. As we
are living vehicle life, accidents are the other factors which cause physical
handicap. Asthma, rheumatic fever, tuberculosis, hemophilia, cancer and even
adolescent may contribute towards physical handicap.
Acquired cardiac defects: Developments in medicine & medical technology
has reduced the frequency of occurrence of acquired defects. Recovery may be
attained if disease-damage is not irreversible, but education and maintenance may
lead child to live close to normal.
Asthma: It is caused by allergy, emotional disturbance or infection. The
cause may be combination of the three. Asthma attacks may disturb schooling of
the child on change of season. Before administration of any treatment, it is better to
investigate specific factor responsible for asthma. Emotional factor is very
complicated.
Diabetes: It is an endocrine disturbance. It can be controlled by small
quantity of insulin with controlled diet but it will require heavy doses of insulin if
diet is not controlled. Diet quality and quantity depends upon family finance also.
Self Assessment Questions
Q. No. l Fill in the blanks:
(i) The most common type of C.P is ___________________________________
(ii) oxygen deprivation includes _______________________________________
(iii) Extreme bitterness of bones is called ________________________________
(iv) Entrance of virus is generally through _______________________________
(v) A child with cerebral palsy can have good adjustment if his/her______ is
good.
(vi) In poliomyelitis, neural damage is due to _____________________________.
Q. No.2 Discuss cerebral palsy?
54
Q. No.3 Enlist psychological and educational disturbance caused by accidents.
Q. No.4 Spina bifida is an important cause of physical disability. How?
Q. No.5 Musculo-skeltal conditions may lead towards physical handicap. Make a
commentary with examples.
Activity
Visit an orthopedic ward, calculate the percentage of impairment caused by
accidents at that time and then classify them into mild and severe.
Key
Q.No. l (i) Spastic (ii) Anoxia & hypoxia (iii) Osteogenesis imperfecta (iv)
Oropharyrgeal route (v) Intelligence level (vi) Direct virus multiplication.
55
56
UNIT NO. 4
PSYCHO-SOCIAL ADJUSTMENT OF
THE HANDICAPPED
Written by
1. Muhammad Javed Iqbal
2. Mrs. Shaista Majid
58
CONTENTS
.
.
59
60
INTRODUCTION
"Behaviour is the movement of an organism or of its parts in a frame of
reference provided by the organism or by various external objects or fields"
(Skinner, 1938). Another conceptually sound and comprehensive definition of the
concept is put forwarded by Johnston and Penny Peeker (1980): According to
them; "Behaviour of an organism is that portion of the organism's interaction with
its environment that is characterized by detectable displacements in space through
time, of some part of the organism that results in a measurable change in at Mast
one aspect of the environment".
Behaviour is a continuous process which moves through these developmental
stages with time.
(i) Continuous and orderly
(ii) Results in long lasting changes.
(iii) Results in more advanced, superior type of functions.
Every growth is similar but also unique while socializer's reinforcement,
punishment and modeling also share in psycho-social adjustment. Society approves
some types of behaviour while it also condemns some other types of behaviour. In
developing behaviour patterns, chemical actions in brain join with rearing
practices, teaching etc.
Greek physician saw behaviour as a result of four bodily fluids in human-
blood, phelgm, yellow, bile choler, and black bile Alberto (melancholy).
Another valuable study is of Thomas, Chess and Brich (1968) who divided
behaviour into nine categories; i.e. activity, rythimicity, approach to withdrawal,
adaptability intensity of reaction and threshold of responsiveness, quality of 'mood,
distractibility, attention span and persistence.
Human-behaviour remains extremely difficult subject matter (Skinner, 1969)
while research has proved that study of abnormal behaviour is much more difficult
and it may be due to some disorder of chemical or structural balance of body i.e.
biochemical, bio-physical. Many explanations of behaviour pattern may be found
in Sigmund Freud's stage theory, stage theory of Piaget, Kohlberg and Turiel's
theory of mood development. So adaptive and maladaptive behaviour pattern are
learned and learning is result of consecutive events.
Behaviour assessment as defined by Linehan "is to figure out the clients'
problems and how to change it for the better. While assessment, in the opinion of
Hawkins et-al
61
(1979) and Cone and Hawkins (1977), proceeds through these stages.
1. "Screening and general description
2. Definition and general quantification of problems or desired achievement.
3. Pin pointing target behaviours to be treated.
4. Monitoring progress. 5. Follow Up',
Analysis of behaviour is an aspect which ultimately counts in adjustment,
analysis may be carried out before, in or -after assessment. It is a debate of
psychiatrists, psychologists, social workers, teachers, judges, legislators and
handicapped themselves. All of these are concerned with appropriate behaviour
development. While planning for appropriate behaviour one should distinguish
between facts and opinions. If for a moment, we ignore all psychological and
social aspects, man emerges as a machine. A machine with impairment cannot
function to its full capacity so an engineer is required to maintain and repair it. In
this way disabled persons also need rehabilitation. Human body has different
systems which function rhythmically. Any disturbance in function needs to be
tackled on wider front. Expansion in scientific and technological boundaries has
developed new horizons of services for the handicapped. A multidisciplinary,
community based rehabilitation design can bring desirable results because of its
flexibility.
Objectives .
After successful completion of this unit you should be able to:-
1. observe behaviour pattern of the disabled objectively.
2. compare various assessment techniques.
3. help the handicapped children in attaining target behaviour.
4. recognize the need of community based rehabilitation programme.
5. discuss the role of different experts in rehabilitation.
6. identify, the link between the services of different rehabilitation experts.
4.1 Normal and Exceptional Pattern of Behavior
"Every structure has a foundation. The modern science of child behaviour is
built upon bricks of history, theory and methodology" (White, Hurst and Vasta,
1977)
Patterns of child rearing practices vary from family to family, from
generation to generation. Consistency in these help to promote behaviour growth,
which is the function of interaction between organism and environment. The
biological aspect determine various stages of appearance of behaviour at
appropriate developmental levels while the environment provides stimulation for
behaviour development.
62
Many of the behaviour disorders are due to serious faults in the emotional
aspect of rearing. It is believed that emotional aspect is partly a biological process.
It also has physiological basis. Aggression, dependency and prejudice precipitate
behaviour disorder because human behaviour is interdependent with other people.
Children usually learn to behave the same way as adults interact with them. The
perception gained in this regard is an important factor in the development of
behaviour. ,
Every child grows in his own culture. Behaviour which is appropriate in one
culture may not be acceptable in another culture. It may be normal or abnormal in
accordance to the cultural pattern because each culture has its own set of beliefs
and behavioural. We may look into various styles of growth as there is variability
in behavioural manifestation of human nature.
Stimulation and deprivation have their specific effects. Positive stimulation
may have a positive response while deprivation may cause a negative one. While
making provision for stimulation, timing and duration of its administration may be
considered. Effects of positive reinforcement are deep, tender and rewarding in its
nature.
Body conditions such as strength, energy, state of senses have relationship
with efficacy of different modes of behaviour, learning and adjustment i.e.
physique associated behaviour.
In particular variations in physical energy and body sensitivity appear as
important links between physique, structure and general behaviour.
The handicapped may show inferiority in feelings, self consciousness, lack of
self confidence, fearfulness and depression as noted by Hewett and Froness (1984).
Now let us study Kauffman (1985) who has analyzed the factors which influence
child’s behaviour. Surely it will provide you a basis for better understanding of the
topic.
kauffman Characteristic of Children Behaviour Disorder. 4.1
pp.93-97, 114-115
According to Kauffman, family structure provides a basis for behaviour
analysis of the child. Role of father or mother and role assigned to child are
complex. Father's absence and any other instability towards home structure,
produces disorder in children's behaviour negatively, but all the factors that
contribute towards disorder are not known yet.
Kauffman has discussed conceptual models of family influence on behaviour
analysis of family interaction.
63
Let us have another reading in this regard.
Hewett & Froness Education of Exceptional 4.2
Learner.
pp. 172-181, 183-188
Mary Anne Winslow Disorders in Emotional 4.3
Retrieved on 23.4.07 from Behavior
http://ezineartides.com/?disorders-in-
emotional-behavior&id=313754
Behaviour pattern is judged by primary criteria. The criteria established by
Hewett and Froness have three components. Man is basically a social creature in
his nature but quite a large number of elements affect him.
Visually impaired children: Visually impaired persons use their hearing
capacity in social contacts but their social contacts remain uncertain and frustrated.
They feel rejected. If blind are praised, their academic score rises. A study also
suggests that suffering is due to social pressure not because of blindness. Studies
on behaviour of the blind show that blindness does not cause psychological or
developmental disturbance but the disturbance depends upon the experience the
blind person has of his environment.
Hearing handicapped individual: The higher the loss, the higher the degree of
difficulty of interaction. The behaviour of the hearing impaired is the result of
isolation because of difficulty in conceiving emotions of their peers, hence deaf
lack maturity of social interaction Deafness from early childhood produces stress,
the influence of which can be seen in his behaviour.
Orthopaedically impaired child: Difference between aspiration level of
orthopaedically impaired child and his actual capacity creates social problems. if
orthopaedic problem is visible, the negative effect is more prominent on the child.
Seizure disorder may produce irritability, temper outbursts and aggressiveness
along with emotional change and ability (keating, 1961).
Diseases just like asthma and heart diseases produce psychological and social
problems. A long duration of illness or hospitalization may result in low-self
esteem.
Emotionally disturbed: Problems of the emotionally disturbed increase with
the increase in number of people around them. They feel comfortable within a
small group. They cannot establish reasonable, adequate social relations with
people. This fear of competition is based on previous experiences. If others do not
make contacts with' emotionally disturbed children the severity of detachment
increases and they usually lack in role taking ability as compared to normal
persons.
64
Speech handicapped persons: The behaviour of the speech handicapped is
usually aggressive or of withdrawal. They are said to be nervous or fearful and shy
or insecure. They usually have psychiatric disorder which is much more severe.
The physical appearance of mentally retarded person
Stigmatization, discrimination and rejection are result of mental retardation as
concluded by Alioa et-al. The social conduct of mildly mentally retarded is
immature but not anti-social. Over-protection may lead to dependency. As
mentally retarded are slow in recognition of right and lack in internal control which
results in an inappropriate behaviour outcome. They face more difficulties, more
frustration and more disorder in behaviour. The retarded from low socio-economic
or broken homes have low chances of social development. Retardation also effects
capacity of friendship and decision making.
Exercise
Nuclear family is central factor in early development of child due to
(a) ________________________
(b) ________________________
(c) ________________________
2. The assumption of learning model is _______________________________
3. Shortcomings of learning model are _______________________________
4. Inter-actional perspective model elaborate the learning model in the following
way ________________________________________________
5. Abnormal features of mentally retarded may lead to
____________________________________________________________
6. Negative effects of placing retarded child in regular class may be
____________________________________________________________
7. Multi handicapping condition increases the degree of maladjustment. How?
4.2 Psycho-Social Adjustment and Handicapped
Disability is experience objectified in its nature while handicap is experience
socialized (Philip and Duck Worth, 1985). So therefore, handicap is a social
deviation when environment is negatively stigmatized; majority of the handicapped
feel difficulty in adaptation to the environment.
In Pakistan social structure is mainly based on economic and cultural factors.
Our socio-economic system has various classes; moreover lack of education in
rearing of children is also accompanied by want of information about the
management of disabled persons. Social; educational and psychological patterns
are at present in a transitional stage. This process of change has implications for
the rearing practices regarding the disabled which have become less helpful than in
earlier times.
As normal children can develop emotionally and socially in a satisfactory
way but handicapped children may show signs of maladjustment in their attitude,
continuous maladjustment can cause defective moral development. Support and
65
positive attitude will help the handicapped in developing constructive approach to
situations because any situation is the result of so many interlinked factors.
The most favorable situation for adjustment for the disabled is the home-
where disabled can gain optimum psycho-social adjustment. Family has received
world wide recognition as the primary socio-cultural institution. The first contact
of an impaired child is with his parents who provide biological and cultural
heritage for adjustment. Close and warm interaction tends to provide stability and
maturity adjustment. Living in society, cannot be free of tolerance without
withdrawal and aggression. When a disabled person comes in contact with others,
he is never sure what aspect of him will be used (Breachin et-al 1983). Either they
will treat him as an object of pity, shame, holy innocent, sick; object of ridicule
may concentrate on disability by imparting sympathetic response which gives
psychological and social meaning to the adjustment of handicapped. For better
adjustment, gentle, loving, consistent conditions are required. As a result of this
psychological integration a rational personality evolves: sum total of thoughts,
feeling and actions that a person habitually has in his future life (Linn, 1980). Linn
summarizes the adjustment in a circle given below:
66
The following references will provide you more understanding of the topic
Retrieved on 23.4.07 from Discrimination based on 4.4
http://uhrc.nic.in/publications/docum Disability: Psycho-social
ents/chapter4htm#ch41 implication of Disability
Kirk Educating Exceptional Children 4.5
pp. 372-377
Barker, "Study on Physically Disabled" concludes that maladjustment is
common. The degree of maladjustment is greater, than that in normal persons,
overall result of physical handicap. Degree of maladjustment is directly
proportional to the longevity of handicap, but if crippling occurs at adult life, it
does not affect the personality. Attitudes of parents affect physically handicapped
children more than their normal peers.
Motivations: All children have some kind of aspirations. However,
handicapped may have different or inadequate means of satisfying these, the gap
between these can be bridged by proper motivation.
Affection and recognition: The urge to get one's worth determined by others
is a natural instinct. Recognition of physical beauty, strength and ability occupy a
prominent role in the social acceptance. When stress is on physical qualities,
physically handicapped may feel depressed, but love for physically handicapped as
a unique individual will help to eliminate this distress.
Self realization: Body image and self realization are interlinked. If crippled
person is negative about his body, he should be helped to regain faith in 'his
physical competence to enhance his body image.
Security: There are many types of security. If physically handicapped is
provided with more security than required at home, then teacher should-adopt an
appropriate attitude to balance it.
Frustration: As there is limitation associated with impairment the ways to
fulfill the aspirations which are similar to normal children becomes limited.
Response to frustration is aggression, physically handicapped may response in one
or several ways as enlisted by Kirk.
The role of school: Studies have been conducted by experts whether it is
possible to produce better adjustment in special schools or in normal schools. Both
have their own advantages and limitations. It-is better to adopt a policy of
integration to achieve good adjustment.
67
Exercise
1. Characteristics of physically handicapped as a group are
________________________________
________________________________
________________________________
2. The findings of study of Bark et-al are
________________________________
________________________________
________________________________
3. Grade some types of security required by the handicapped in your locality.
________________________________
________________________________
________________________________
Additional reading
Millard Daily Living with a handicapped Child.
pp-87-89
Thomas The social Psychology of Childhood Disability
Chap-5
4.3 Assessment of Strengths and Weaknesses
Assessment of strengths and weaknesses of human behaviour aims to provide
helps in most satisfying and effective living. Human behaviour is emergence of '
individual within culture. When we assess the individual we only assess the pattern
through which an individual has reacted to the environment. The process of
organization of experience and reaction to the situation is dynamic and continuous
in its nature.
Assessment provides a view of individual identifies and evaluates his
difficulties and traces alternative ways of action. It is not a single-area-based-
process; psychologist should look for help from social worker, educator,
psychiatrist and parents. There are many factors which operate together in the
process of assessment which is collection, interpretation of information about a
person and his situation. Another definition describes assessment as "description,
explanation and prediction of behaviour of individuals in their natural situation."
Clinician is a man who is not biased, he is objective in. his approach and well
informed about assessment techniques. In clinical setting usually projective
techniques -are employed. Decision based on assessment helps the clinician to
chalk out appropriate kind of treatment. The assessment also assists in decision
68
making of specific value e.g. entering in the institution, occupation entrance,
marriage etc. Helpful "general aspects of decision theory, as mentioned by
Sundberg, Tylor are:
1. "Emphasis should be on payn off or outcomes not on specific techniques.
2. Questions of validity of tests or other assessment activities should be
considered as problem of improving on existing procedure rather than
improving on chance.
3. Strategies of assessment or whole sequences should be object of concern. One
asks about the contribution of both test and non-test procedures.
4. Examination of values is fundamental to assessment; decisions are made
that will maximize movement towards goals".
Assessment should be administered positively and with ethical responsibility.
Here is Hogg & Sebbaa's work for your reference.
Hogg & Sebba Profound Retardation Multiple Impairment 4.6
pp- 148-165, 178
Impairment may affect the developmental task of an individual. Hogg and
Sebba in these pages have discussed some techniques of assessment.
Intelligent Quotient (I.Q) or Developmental Quotient (D.Q) is the term used
in traditional ways employed to measure intelligence but in measuring cognitive
function. We have to adopt a different approach when we are considering mentally
retarded. Psychometric tests have no concern with the developmental stages of
child and do not give any clue how behaviour changes from one level of mental
development to another level.
Inhelder's approach was extended to children who are profoundly retarded
and whose sensorimotor development is delayed. Dunst pointed out differences
between Piagetion tests and traditional psychometric tests both in terms of
composition and style of administration.
SENSORIMOTOR ASSESSMENT
Uzgiris and Hurt's ordinal scales of psychological development: These
were designed to eradicate the shortcoming of traditional psychometric tests and to
tackle theoretical issue. Both psychologists argue that "Piagetion position is as yet
unproven". That is, "achievement of same stage in different sensorimotor domains
at the some time has not been demonstrated" while the Uzgiris-Hurt Scale is free of
C.A. And Piagetion stage placement, high reliabilities were established for these
scales.
Dunst's clinical and educational manual for use with Uzgirs and Hunt
scales of infant development: In these, 73 items are spread over 7 sensorimotor
69
domain with 53 experiments. These are administered in more flexible manner.
Information is collected on prescribed forms but Dunst gives details how these
scales should be administered and how report should be established. These scales
carry value for non-handicapped, retarded, multi-retarded and profound retarded.
Woodward's assessment of sensorimotor development: As noted by the
authors there is bifacial grounds of interest for Woodward's work. She took two
problems from each stage, iv, v, vi. Procedure for administration is made flexible
while assessment procedure is on experimental basis. It is self explanatory in its
nature and does not claim standardization.
Gourin Decarie scale of object permanence: This is basically designed for
thalidomide children. Child is placed into one of sequential stages mainly of
"Visual Manual Items".
The Corman Escalona scales of sensorimotor development: It is
developed on the Piaget's observation. The scales developed are prehension, object
permanence and spatial relations.
Preoperational assessment: Research in preoperational period is not as
intensive as in sensorimotor development. Design of scales is more comprehensive
when increasing differentiation of functions becomes prominent at the end of
sensorimotor period and the beginning of preoperational period.
Let us read the following reading for further elaboration:
Retrieved on23.4.07 from Practical Assessment; 4.7
http://pareonline.net/getvn.asp?v=2&n=4
Research and
evaluation,2(4)
Exercise
1. Differences between Piagetion tests and Traditional psychometric tests are
1. ____________________
2. ____________________
3. ____________________
2. Limitations of D.Q. and D.Q. are
____________________
____________________
____________________
70
Addtional Reading
Anastasi Psychological Testing, 5th Edition
pp.264-297
4.4 Multidisciplinary Approach Towards Rehabilitation of the Handicapped
Rehabilitation includes all measures aimed at
1. Reducing the occurance of impairment (first-level prevention).
2. Limiting or reversing disability caused by impairment (second level prevention).
3. Preventing the transition of disability into handicap (third level prevention)
(Disability prevention and rehabilitation, 1981)
As this process involves many fields, it seems necessary to look into the
guiding principles of disability prevention and rehabilitation before we study actual
material.
An International Undertaking to bring about changes and improvements
should be based on the following principles:
Expanded and more effective efforts to prevent childhood impairment are
essential. They should be, for the most part, components of more general
programmes for the development of health, nutrition, welfare and education.
Primary attention must be given to the preservation of the normal process of
child development to the greatest extent possible. The validity of any intervention
with an impaired child must always be measured by its relevance to normal child
development.
The family is the most important instrument for the preservation of the
normal child development process, and its capabilities to deal with the problems of
impairment must be strengthened and supported.
Community-level resources and action, if motivated and fed with improved
information can provide most of the support needed by families to overcome the
difficulties resulting from 'childhood disability.
Relevant aspects of existing doctrines should serve as the foundation for such
an undertaking.
-- accepted principles of child development;
-- the UNICEF concept of basic services for all children;
-- the concept of primary health care (PHC) as elaborated by the International
Conference on primary health care in Alma-Ata in 1970, and similar approaches to
the delivery of basic services for education, social development and vocational
preparation. The application of the PHC concept to the health aspects of disability
71
is well described in the policy on this subject approved by the World health
Assembly in 1976 (WHO, Geneva, A29 INF.DOC 1, 28 April 1976)*
-- concepts of technical cooperation among developing countries (TCDC).
______________________________________________
(Extract taken from Assignment Children Spring, 1981).
Although valuable initial work has been done by N.G.O's, medical profession is
also playing its role. However, efforts in the area need enrichment and expansion
to cover a wider spectrum. Approaches to rehabilitation may be evolved on better
health services, better nutritional practices, provision of basic and family
education, strengthening of families and communities.
The poverty is one of the principal root causes of disability especially in rural
areas of developing countries and it needs to be strongly emphasized. Poverty
influences nutrition and child rearing practices also.
Let us study the Golden Sons' work.
Golden Son Rehabilitation Professional 4.8
pp.716-727, 730-734, 749-751, 758-761
In this reference, traditional professional fields and newly evolved areas have
been discussed. GoldenSon divides professionals into medicals, non-medical and
para medical categories. Fields which are relatively more important for Pakistan
are included in the pack. Psychiatrist, radiologist, neurologists, ophthalmologist,
pathologist, fall under the umbrella of medical specialists, while non-medical
specialists comprise of rehabilitation psychologist, social worker, rehabilitation
nurse, special educator, optometrist, speech pathologist, audiologist, orientation
mobility instructor, and volunteer worker.
Another category of rehabilitation professionals comprises of allied medical
and pharmaceutical professionals, genetic counselors, bio-medical engineers,
osteorhaphy physician, orthotist and prosthetist, laboratory technicians.
Some of the rehabilitation professions may be new to our country but their
important role cannot be neglected while rehabilitation, maintenance and
prevention measures are being planned.
Self Assessment Questions
1. Family physician plays a key role in the rehabilitation process. Please
comments if you agree. If not, then give reasons for disagreement.
2. Discuss the importance of pathologist and radiologist process.
in the rehabilitation
72
3. Can you differentiate between the functions of a psychologist and
psychiatrist?
4. The services of speech pathologist and audiologist can replace each other.
How?
5. Optometrist and Ophthalmologist both deal with eye problems. Mention the
differences in their function.
6. Discuss the role of para-medical staff in the rehabilitation process.
Additional reading
NICEF Assignment Children
pp. 43-55
73
World wide, there is no single. accepted rehabilitation programme. It is better,
even necessary, to develop our own plan according to our cultural needs. The most
prominent hurdle is non-availability of trained manpower, next constraint is the
gap between identified national resources and requirement of rehabilitation
programme. While planning, these two factors should be considered, specialized
professionals are needed to be trained as co-workers at different levels of
competencies. These may be family members of the disabled.
Decentralization of services and facilities may put wheels to the process of
rehabilitation. Developing small community rehabilitation centers at small and
remote places, utilization of locally available resources can help a common man to
understand basic principles of rehabilitation. Depth in understanding of principles
may make them to adapt the principles according to the situation being faced by
co-workers.
The aim of rehabilitation process is to make the disabled functional. See child
as child, abilities of disabled which are usually ignored should be given more
importance than the disabilities. Basic focus should be on the child not on
disability while planning for a community based rehabilitation programme.
Concept of community based rehabilitation has been discussed in an
interesting and impressive manner in these pages.
Werner Disabled Village Children 4.9
pp.405-412
Community based rehabilitation programme is of two types, Top-down and
Bottom up. Top-down programme is designed by governments and high authorities
and people of the locality have to participate as directed by these agencies. In this
programme decision are not made by community itself the responsibility of
designing the programme lies with high authorities. In bottom up programme,
community makes the plan i.e. according to the local needs of the disabled. They
can adapt this from other communities; each of the programme has its own benefits
and drawbacks.
Top-down programmes is easy to access as it is well organized by the
government In this programme local community centre staff is usually not very
popular as it lacks in leadership qualities. They may not be able to fulfill the
objectives due to nonflexibility of plan.
In bottom-up approach when a decision is agreed upon, the plan becomes
more interesting, meaningful and useful for the disabled. It may be highly flexible
and can be adapted to every new situation.
74
The aims of rehabilitation programmes should be based on the needs of the
disabled person and society's requirement. The programmes should attempt to
integrate the disabled and non-disabled in the community. First involvement must
be between disabled and their families. The rehabilitation programme should start-
from the aspect which is most critical. Any person who is willing to, take a start in
a rehabilitation work, is known as an agent of change Warner suggests that an
agent of change should behave as "Counselor not as Boss". It will open up new
horizons if we let the disabled provide leadership themselves in community based
programmes.
A better scheme of rehabilitation can be planned as chain e.g. small villages
should be linked with towns and then towns with resources and research centers.
Any rehabilitation process should start from what is most important and in this
respect; popular demands may also be considered.
Exercise
1. Enlist group activities which in your opinion can helpful in the progress of
rehabilitation in villages of our country.
2. Rehabilitation centers have their own attraction for the disabled. Give four
reasons.
3. A rehabilitation centre in a small community is fruitful because of _________
________________________
________________________
________________________
4. Goals of rehabilitation are
______________________________________________________________
______________________________________________________________
______________________________________________________________
5. Following are the characteristics of bottom up programme of rehabilitation.
______________________________________________________________
______________________________________________________________
______________________________________________________________
6. Features of top-down programme are
______________________________________________________________
______________________________________________________________
______________________________________________________________
Self Assessment Questions
1. Fill in the blanks:
(i) Observational learning is an example of modeling and
______________________________________________________________
75
(ii) ___________ has an important role in utilizing phenylalanine
(iii) Encephalitis can result in permanent damage of ________________________
(iv) Loss of 85 decibels or more results in ________________________________
(v) Exceptional is a __________________ term.
(vi) Teacher's expectations affect student's _______________________________
______________________________________________________________
(vii) ______________________________________________________________
Consists of visual-manual items.
2. Discuss the role of educational therapist in rehabilitation.
3. Discuss Scale 1: the Development of Visual Pursuit and the Permanence of
Objects.
4. Mention some measures which can help in social adjustment of physically
handicapped persons.
5. Economically disadvantaged handicapped children face much more hurdles in
psycho-social adjustment. How?
Activity
1. Please suggest some activities as can win the involvement of common man in
a rehabilitation programme of the disabled of the community.
2. Visit the centers of handicapped in your town, record the activities which
involve community in rehabilitation process.
Key
Q.No.I (i) Imitation (ii) Phenylalanine Hydroxyls (iii) Brain (iv) Deafness
(v) Relative (vi) Behavior (vii) Gouin Decarie's Scale of object Permanence.
76
UNIT NO. 5
Written by
Muhammad Javed Iqbal
Revised by
Mrs. Shaista Mjid
78
CONTENTS
79
80
INTRODUCTION
Prevalence of economic imbalance in the family and society is often due to
meager resources which is a further set-back to the handicapped. The shadow of
disability narrows down the career opportunity and adversely affects the working,
efficiency and productivity to a considerable degree. More funds are required to
maintain the physical and social status of the handicapped even by the primary
caretaker. Vocational choice of services may be required for a limited period or
may need to expand to a relatively longer period. These services focus on the
working potential of the handicapped in such a way that minimization of
discrepancies between" work potential and the labor market may be achieved.
Education, age, health condition, work experiences and socio-economic conditions
are variables of job determination. If the disabled are given an appropriate chance
of work, potential will reduce the disability and promote rehabilitation.
For a productive and effective pattern of work, a career plan must be
developed skillfully; perhaps vocational test should be utilized. Training may begin
after specific academic achievement or both academic and vocational programme
can be carried out together.
Vocational placement of the handicapped can contribute a lot to the national
economy, as they constitute about 10 percent; 11.7 million (Economic Survey
1991-92) of our total population. An astonishing and interesting result is indicated
by the research that in terms of quality and quantity, the out put of the handicapped
is, in general, better than those of their normal colleagues.
Objectives
After studying this unit you should be able to:
1. appreciate the significance of suitable available employment.
2. understand the difficulties caused by handicap in connection with work.
3. identify the hardships to the persons becoming impaired in adult life.
4. help the handicapped in transition from school to the labour market.
5. complement the efforts of the handicapped in vocational rehabilitation.
6. help to establish restore self confidence in the disabled person.
Total population 117.32 millions on January 1, 1992. (Economic Survey 1991-92)
81
5.1 The Pattern of Disablement in Relation to Work
Vocational participation reduces economic worries and frustration of the disabled
but the inappropriate selection of a vocation hinders efficiency rate, lowers down
output-ratio, so that human dignity and respect lose their value. Emphasis should
be both on collaboration of the Government and private sectors, the more there is
coordination, the greater the maintenance, improvement and promotion of
employment opportunities.
Disability adversely affects a person in seeking employment and in maintaining
employment. For some types of severe handicap, there is hardly any opportunity
for employment.
Parker & Hanson Rehabilitation and Counseling. 5.1
pp. 180-86
Baxt describes that the pattern of disability affects the selection of work. The
constant nature of disability may mean confirmed limitation of the type of work as
in case of blindness.
Early and timely provision of services for the handicapped has a positive relationship
with recovery and adjustment. The longer the span of treatment and rehabilitation
(both qualitative and quantitative) the wider the opportunities in labor market. Delay
in normal development also postpones the learning of work skills.
Due to disability "millions of man hours" are wasted fruitless. The employer's
attitude that does not employ a person with a handicap is not the only hindrance in
job performance. Attitudinal, physical conditions and procedural requirements also
act as barriers towards employment of the disabled.
Digest a supplementary reading:
Golden Son (Edit.) Disability & Rehabilitation Handbook. 5.2
pp.67-71, 85-99.
According to GoldenSon rehabilitation generally means to achieve self-
sufficiency. A person can be in need of any of the 12 services listed in these pages.
When a handicapped person is accepted for rehabilitation we have to decide the
duration and scope of services to be rendered for him. While working on jobs, the
handicapped are generally thought to be maladjusted even if they do not seem so.
In this stereotype behaviour, the employer also contributes his share.
Self-employment is one of the suitable forms of employment which can be adopted
at home. Self-employment has its own benefits of saving money and traveling
82
time, protection and safety. To find suitable and profitable work to be carried out at
home is difficult in the beginning.
Sheltered workshop is a transitional employment for the disabled. Besides
employment, it provides -opportunity for the disabled for having social contacts.
Physical conditions of the plant should be considered carefully and workshop
programme should be evolved through five stages as mentioned by Golden Son.
In the last, the operational aspect of a sheltered workshop should be based on a
business pattern irrespective of the nature of employment.
Now have a check
Q.No.1 What is result of "No" (Be ship)? _________________________________
__________________________________________________________________
Q. No.2 Procedural barriers can be changed by ____________________________
__________________________________________________________________
Q. No.3 Factors which influence individual's accommodation at the work are
(i) _________________ (ii) _________________ (iii) _________________
Q.No.4 Stereotype attitude is _______________________ attitude.
Q.No.5 Hydrophobia is an example of _______________________________
Q.No.6 Disability is ___________ in nature and should be dealt ______________.
Q.No.7 List the stages of a sheltered workshop programme.
(i) _______ (ii) ________ (iii) ________ (iv) _________ (v) _________
Q.No.8 How can financial problems be solved by the handicapped? Mention some
types.
(i) _______ (ii) ________ (iii) ________ (iv) _________ (v) _________
Q.No.9 Follow up is the path to the nourishment to any plan. Make comments on it.
Q. No. 10 From where can a disabled person get referral services in Pakistan?
For further reading:
Rosemary The psychology of Handicapped
pp.31-36
Warnock Special Educational Needs
pp. 184-192
83
5.2. The Need for Employment of the Disabled Person
The need of being respected is an intrinsic need of the adolescent age, the basic
need of economic independence grows and disabled are more conscious of their
economic independence. Their care and management cost much, causing disturbance
to their mini budget particularly and to the family budget generally. To cope with
this they need paid work if their handicap is not severe. Through their paid work,
they earn their own income, so they can get rid of the over protective patronizing and
generally unfavorable negative attitude of the public. He can modify and improve
their self concept leading to a better social adjustment. The work needs of the
disabled are recognized by every one but neglected in most cases.
For study in detail, go through these referred pages.
Hasan Vocational Training for the Handicapped Children & 5.3
Training Required. pp.15-17
Personal identity depends upon personal learning. This is also true of the
handicapped persons as the handicapped persons are normal with some limitations.
Acceptance of these limitations makes the handicapped persons productive
members of society.
Mental retardation is a field which needs a full concentration of evaluation
process. A typical programme should be established according to their mental
retardation level. It is worth while to note that all efforts should be made in
collaboration with all concerned professionals.
Exercise
1. Emotionally established handicap can find its way towards (p.16)
2. Emotional support is is its nature.
3. ________and _______ converts into handicap.
4. The deaf can choose every vocation except ________________
5. A child with minor physical disability can be placed in normal structure
keeping in view his _______________________________________
6. Mental retarded is the group which is more _____________ in the attainment
of vocation.
5.3 From School to the World of Work
Services provided at home are enriched and upgraded at school. Schools
develop the abilities of the handicapped in accordance with national objectives and
their aptitude and needs.
84
However, keeping in view the facts it is commonly observed that disabled
students leave the schools with lower level of general education and occupational
competencies. But following steps may facilitate the transition from school to the
world of work.
1. "leaching them to survey the `help wanted' section of the newspaper
2. preparing them to complete job application
3. explaining and discussing the necessity of applying to several employers
4. helping them to evaluate the various job possibilities through the use of the
telephone
5. assisting them to recognize the necessity of appropriate dress in applying for jobs
6. providing training in communication skills necessary for job interviews with
a potential employer
7. providing training and experience in working with fellow employees on the job
8. acquainting them with the necessity of arriving on time for job interiews and
work
9. acquainting them with various methods employers may use to pay their
employees, ranging from daily to monthly salaries
10. providing information on the deductions from pay that can be expected
including state and federal income tax, social security, and any health and
retirement benefits
11. instructing them on ways of banking and budgeting one's salary". (Miller and
Scholess 1982)
For detailed reading get help of your reader. Its emphasis is on the U.S.A. but
it provides a comprehensive picture of the topic.
Kokaska & Brolin Career Education for Handicapped Individuals. 5.4
PP. 286-295
In the above stated reference, discussion has been made on vocational
assessment which is essential before we plan and provide vocation for the
handicapped. It starts from school and may continue even in the employment
period. Assessment begins in the early years of schooling. Brolin constructs a very
useful ladder, for work assessment throughout the schooling, based on clinical
assessment. This is a logical foundation for the whole scheme but supplementary
factors may also be kept in consideration. Work evaluation has four faces while
work adjustment aims at providing more satisfaction to the employee and an
increase in accuracy and complexity.
Job-site evaluation is an important factor before conducting vocational training as
the work environment also controls the success of vocation.
For the severely handicapped, success in standardized vocational assessment tests
is very low, as for hearing impairment, visual impairment, mental retardation also.
Modification in the tests can be made in these but it gives rise to validity questions
as each impairment has its own limitation and assessment problems.
85
Self Check
1. Vocational Assessment Techniques are necessary to identify _____________
2. Psychological consideration means _________________________________
3. Test on job is also called __________________________________________
4. To modify a hand driven machine into foot driven is an example of ________
5. Proper job try outs may result in ____________________________________
For additional reading
Healy Career Development Counselling Through Life Stages.
pp. 392-393
Warnock Special Educational Needs
pp. 164-168
5.4 Aims and Scope of Vocational Rehabilitation
The constitution of Islamic Republic of Pakistan aims to "provide basic
necessities of life such as food, clothing, housing, educational and medical relief
for citizens, irrespective of sex, caste creed or race as permanently or temporarily
unable to earn their livelihood on account of infirmity, sickness or unemployment".
The aims of vocational rehabilitation if provided by the state, makes blueprint
for rehabilitation services. Vocational rehabilitation is an aspect of rehabilitation
which according to W.H.O. includes all the measures aimed at reducing the impact
of disability and handicap to achieve social integration.
Every concerned corner i.e. family, government, private sector and
community as a whole has to play its role effectively if vocational rehabilitation is
to be achieved. In this connection we shall go through a valuable paper because of
its reference to Pakistan.
Sardar Hadiayt Ullah Mokel Vocational Preparation for the Integration 5.5
of Disabled Persons. pp. 23-29
In Pakistan it is mainly the private sector which has paid attention to
vocational rehabilitation, no planned effort was made up to 1984 by the
Government.
Vocational rehabilitation involves multidisciplinary aspects focusing on
secure and suitable employment. Vocational rehabilitation services should not be
limited. It should be available to all the needy, irrespective of their age, race, caste,
86
nature and degree of disability. Vocational rehabilitation should be made an
integral part of psycho-social rehabilitation and the national economy.
It is worthwhile mentioning that the handicapped person is a better worker if
provided with stimulating training and if safety conditions are observed during
work.
After studying the position in Pakistan, let us have a paper on vocational
rehabilitation from "International Labor Conference" with special emphasis on
women with disabilities.
STACE Vocational Rehabilitation for Disabled Women. 5.6
Pp. 308-314
According to STACE, the process of vocational rehabilitation started with the
end of World War II. It was those with physical impairment who provided a base
for this process. It aims to make handicapped person productive and self-sufficient.
Disabled women are disadvantaged further in developing countries due to negative
stereo-type attitudes. They are not supposed to be married but rehabilitation
services should encourage the situation, so to enable them achieve financial
independence. In developing countries, social security is low and disabled persons
have to depend on their families for financial assistance.
It is time when vocational rehabilitation of the disabled should be recognized
as a human right. While planning a rehabilitation programme, the social and
financial needs of the disabled along with those of society have to be kept in mind.
As we have studied such a rich paper, it will be necessary to check the insight
you have gained.
1. What do you think is the difference between definitions of vocational
rehabilitation of I.L.O. and LL.C.?
2. (i) __________ (ii) _________ are the major aims of vocational rehabilitation.
3. In monetary terms, justification of investment on vocational rehabilitation is
their_________________________________________________________
4. ____________________ are given little attention by ERC.
5. Why do reserved seats in different organizations for disabled lie vacant?
6. Vocational guidance means matching of vocational aptitude with __________
7. ___________ is the theme of future vocational rehabilitation.
8. In Pakistan, which group of disabled women need more attention __________
87
5.5 Becoming Impaired in Adult Life
There are many causes which ultimately result in impairment, progressive
biological disorder and accidents are very important in this regard. To meet the
situation of strain, rejection, segregation and emotional disturbance caused by fall
of impairment at adult life, it may be necessary to re-develop life plan.
The first impact of impairment is psychological which results naturally in the
loss of confidence. The period of loss may be little or profound. It also disturbs the
adjustment independence and self-reliance.
An adult also wishes to maintain his vocational activities in his remaining
life. for this he may change his employment to sheltered home employment. His
residual capacity may lead to non employment. When open employment is not
feasible, sheltered home employment may stimulate positive living as every
disabled person is willing to get employment that his age and impairment allows
(Doubree and Boulter, 1982)
Counselors, administrators, rehabilitation workers, psychologists, business
bosses must get involved along with their spouses and fellow workers of the
disabled. Vocational rehabilitation vocational guidance becomes a process of sharing
of responsibility among home, institution and community. These agencies have to
explore new job opportunities if required and prepare the disabled for it and help in
placement. There must be a follow-up study. A follow-up study gives information
about a specific person, it may also provide guide lines for future planning.
There must be some financial adjustment along with social adjustment. One
can adopt different strategies for this, even some specialized instruction is required
for reentrance into the job-market. The new job may or may not be according to his
plan which was developed prior to the impairment e.g. a medical student who
becomes blind is not likely to earn a degree in surgery.
The employment of disabled person does not always require specialized
techniques. The attitude of the employer's or his willingness to organize is very
important. Active involvement of different agencies is also a vehicle through
which the economic, social and personal potential can be fulfilled.
According to Brolin and Kakaska (1985), the development of skills is
important for the people who want to live independently. Some of these carry
equal importance for disabled also.
1. Managing family finances
2. Selecting, managing and maintaining a home
3. Caring for personal needs.
4. Raising children and family living.
5. Buying and preparing food.
6. Buying and caring for clothes.
88
7. Engaging in civic activities.
8. Utilization of recreation and leisure.
9. Getting around in the community.
However, these can be re-shaped, modified according to our own needs and
culture.
The demands of adult of earning a living, running a home, raising a family
are just as important to a person with a disability. Employment opportunities
should be better located in local market. Before selection of a specific job, one has
to obtain occupational competency by virtue of training. When matching is made
betwen impairment and vocational market, there is no handicap. It is further
mentioned that there is not single remedy for all types and levels of impairment so
a variety of vocational assessment procedures and services may be developed.
Please have a reading which will add to the above.
ACTION Employment of Disabled Persons: Where We are going? 5.7
pp. 1-8
The theme of international year for the disabled was "Full Participation and
Quality". It is true in all areas but it can not be met without creating productive
gainful employment. If we fail to achieve this, it will not only have adverse
influences on individuals but also on the community. In many situations vocational
employment is shadowed by misinformation, traditional stereo-type and in-
accurate suppositions. If these are not considered objectively when a particular
function has been effected by impairment, e.g. a visual impairment, then
subjectivity may reduce the opportunities of employment.
Why is it necessary to get employment? It has four aspects as mentioned by
ACTION: (i) need of income both for the handicapped and his family; (ii) honor
associated with employment, (iii) vocational rehabilitation; (vi) regularization of life
pattern of the handicapped. While discussing our present situation, the author is of
the view that employment with normal people is most appreciated because while
working with able people, disability may cease. Quota system may also be helpful.
In developing countries I.L.O is providing help in extending vocational
training and establishing placement programmes for the disabled. The whole
situation is influenced by increasing unemployment and under employment as
disabled are given the last chance of employment but loose their job first.
Longevity in life has increased the chances of becoming disabled and the older the
man, the lesser the chance of employment. It is also influenced by the strain on the
social support system which is also heavily over burdened. Usually impairment
89
reduces the mobility and job opportunities for the disabled but advancement in
technology has increased the chances of employment, even for the disabled.
The urbanization and decline in the role of the family may create limitations
to the whole process of rehabilitation and employment.
Warnock Help for Disabled People 5.8
Exercise
l. Encircle the most appropriate answer:
(i) Theme of 1 Y D P (198 l ) was
(a) equality (b) priority (c) 30 per cent (d) less participation.
(ii) (a) 10 per cent (b) 20 per cent (c) 30 per cent (d) 40 per cent of
labor force is wasted if disabled are not given employment.
(iii) Ideal solution for disabled employment is
(a) normal factory (b) Sheltered workshop (c) home employment (d) none
(iv) Sheltered work may be seen as:
(a) Transition (b) ultimate (c) adequate employment
(d) normal employment
(v) Job opportunity is decreased for the disabled because of,
(a) Quota system (b) nature of work (c) competition (d) technology.
Q.No.2 How does employment build the confidence of the disabled person?
Q.No.3 Outline present employment situation for the disabled in Pakistan?
Q.No.4 Give some examples of change of work when disability occurs.
Q.No.5 Urbanization may have positive effects on disabled people with reference
to Pakistan. Do you agree how? Give reasons.
Self Assessment Questions
Q.No.1 Encircle T if True and F if False
T F (i) Progressive disability improves vocational choice.
T F (ii) Stable state of mental retardation is one of the factors which help to
maintain stable vocation.
T F (iii) Deaf people do not have any work limitation.
T F (iv) Adaptive building facilitates the working conditions.
T F (v) Every child is not in need of support.
T F (vi) Development of vocational profile is necessary for vocational guidance.
90
T F (vii) Tests play a limited role in vocational planning for severely
disabled persons.
T F (viii) Women for women is a rehabilitation programme of Pakistan.
Q.No.2 Construct a relationship between disability and work.
Q.No.3 Discuss so called "Spread Effect".
Q.No.4 How can the sheltered workshop concept be introduced successfully in
Pakistan.
Q.No.5 what are the features of L.C.C.E. approach.
Q.No.6 Vocational rehabilitation enriches national economy. Please elaborate.
Q.No.7 Why do disabled women face more difficulties in vocational rehabilitation
than men?
Activity
1. Please visit a disabled person in your neighborhood who is employed. Record
the difficulties faced by him in gaining employment.
2. Plan a sheltered workshop for a person mildly retarded by impairment.
Key
5.1
2. Institutional,
3. (i) severity (ii) to what extent body is involved?
4. Biased,
5. Short term disability,
6. Personal, individually
5.2
1. Vocation,
2. Cultural,
3. Frustration, anxiety, disability,
4. Physical disability
5. Please mention area,
6. Restrictive
91
5.3
1. Vocational potential,
3. Situational,
4. Engineering approach,
5. Job satisfaction
5.4
2. (i) Financial independence ,
3 (ii) Self respect,
4. Flexible work pattern
5.5
Q.N o. l (i) a (ii) a (iii) a (iv) a (v) c
Self Assessment Questions
Q.No.1 (i) F (ii) T (iii) F (iv) T (v) F.(vi) T (vii) T (viii) F
92
UNIT NO. 6
PHYSICAL ENVIRONMENT,
OUTDOOR MOBILITY AND ACCESS
Written by
Muhammad Javed Iqbal
Revised by
Mrs. Shaista Majid
94
CONTENTS
95
96
INTRODUCTION
It is human to struggle for a better standard of living. Developments in
technology have provided a great help to the handicapped persons. This assistance
can be seen in the style of architecture and aids and support provided to the
handicapped persons.
Architecture for the handicapped means to plan the buildings in such a way
that they are constructed to accommodate their special needs of the handicapped,
especially the mobility factors. Buildings must be constructed strictly in
accordance with high safety standards. For example, technology has helped in the
design of wheel chairs for the physically handicapped. In turn, the design of
building has to consider access for these wheel chairs. Technology has also
provided hearing impaired people with better aids for hearing and the visually
handicapped with aids for better vision.
Any handicap generally means that there is an additional cost of caring for the
family in terms of medical treatment, purchase of mobility aids etc. Special
agencies may be located from where the handicapped person may receive aid on
low cost or free of cost.
Recreation is a process of socialization which is greatly helped by mobility
training. A recreating programme may be designed on the basis of services which
are actually available and not on theoretical assumptions. Recreation accelerates
the therapy also. It provides a chance for the handicapped to develop a close
relationship with the world around him and also enriches his personal experience.
It also provides opportunities for the handicapped person to use his residual vision,
which then helps to improve his functioning.
Objectives
By the end of this unit you should be able to:
1. visualize the difficulties faced by handicapped people in achieving access to
buildings.
2. understand the architectural requirements of the handicapped.
3. assist the architecture in designing the most suitable environment.
4. develop an understanding of the relationship between mobility and recreation.
5. render help towards the handicapped in the process of mainstreaming.
97
A comprehensive model of structure designed to suit the needs of all categories
of disable people is an ideal. It is very difficult to prepare a design which is
applicable to all type of handicaps. Architecture for the handicapped persons is not a
new branch; it is just the adaptation of normal architecture to consider special needs
of the handicapped. It is the vision of the architect which can integrate the structure,
materials, space and special needs into a single design for the ultimate benefit of the
disabled. The needs of the disabled are to be recognized at all levels then their
participation in every walk of life must be encouraged by minimizing the hazards
and hurdles in the buildings. In this way the physical manifestation of our attitudes
towards disabilities are translated into architecture. Provision for the handicapped
should be made in all public places, no public plan scheme/should be approved by
housing authorities without this provision.
The current normal style of buildings in Pakistan is an obstacle by its nature
to mobility for the visually handicapped person. It does not meet the demands of
blindness and low vision and usually does not cater for the needs of the hearing
impaired. The needs of the mentally retarded require separate reading for this
purpose. Please go through this reference.
Drew et-al Mental Retardation 6.1
pp. 324-329
Nirja was the first to present the idea of normalization. This concept is
dynamic in nature as Drew et-al have quoted on pp. 324. The decision to place a
mentally retarded person in a home or institution is taken by parents, guardians and
administrators while mentally retarded persons have not veto say in this regard.
Group homes are of two types; small and large. These houses have trained staff.
Group homes are financed by the Government and the fees paid by their residents.
The availability of a place in the home is subject to the severity of impairment.
Foster family care aims to provide integration within a family setting but such a
plan should consider the factor of "Over protection" because of its negative affects
as discussed in unit 2. Another plan is of "Sheltered Village". In this, mentally
retarded persons are isolated from normal society to avoid the negative demands
and aspiration of the normal persons.
For more and comprehensive study of the view please see this one.
Chiara & Cellander Housing for Handicapped 6.2
pp.96-106
Our physical interaction with building starts when we enter into them. The
entrance should be wide enough for easy access, revolving doors should be
avoided. For partially sighted persons bright but contrasting colours are advisable.
98
Hand rails with bright colours should be installed in the galleries. Hurdles should
be avoided for the sake of visual and physical impairment.
Elevators should be designed to meet the needs of the visually and physically
impaired. For the physically handicapped, provision for space for wheel chairs is
necessary, consideration should be given to the height of chair when planning for
taps, basins and light switches.
Safety is the most important factor especially in the bathrooms. Adequate
space is required for turning wheel chairs, sharp projections should be avoided and
floors should have a non-slip surface.
Exercise
I. What is the general basis for site selection for the handicapped
_____________________________________________________________
2. Enlist the services which do not fall into primary services in our culture.
3. For low vision people, list the arrangements which can facilitate their access
when they are already using visual aids.
(a) _________________ (b) _________________ (c) _________________
4. For physical handicap, what is the range of spaces required while parking?
5. Cardiopulmonary disorder falls into ________________________________
6. Lower frequency signals are useful in _______________________________
6.2 Outdoor Mobility for Handicapped Persons
The development of mobility skills of all handicapped people are of crucial
importance in the rehabilitation process. Skills in mobility means independence for
them but problems may exist in terms of environmental hazards.
Mobility is fundamental to life and movements of a new born baby mirror this
but competency is obtained latter on. Economic factors also affect the utilization of
mobility aids. Families of the handicapped do not find it always possible to
purchase aids e.g. wheel chairs. Government and non-governmental agencies
should arrange for the provision of mobility aids at a nominal price or free of cost.
Mobility and orientation programme should be planned on individualized basis in
the light of psychological and social needs of handicapped person and should start
in the school and home.
Let us read some pages.
Kauffman & Hallhan Exceptional Children 6.3
pp.349-351
According to Kauffman and Hallhan mobility is the most difficult and most
important skill for adjusting to a normal life. According to Warren and Kocon,
some studies show more negative attitude of the persons having low vision than
99
those of blind towards mobility. When one loses vision at adult life, one faces
much more difficulties in adjustment but with motivation, visually impaired person
can benefit from experiences gained before onset of the impairment.
Echo sense can be developed by the blind and sighted. According to referred
pages, all visually impaired people have the potential to develop this sense.
Another valuable reading awaits you.
University of Self Help Skills, Independence and Mobility; Unit X 6.4
Birmingham PP. 1-8
Mobility has a wider relationship with education. Mobility training in
children requires more effect than in adults who have lost their vision in later life.
According to Tooze, as quoted in the unit, the mobility skills for the congenital
blind are more difficult than any other category of vision loss. It is through sound
that they build some relationship with objects. Dodds also supplement these
results. Residual vision and other senses should be developed as early as possible
but progress depends upon motivation, personality, intelligence and opportunities
they have. Motivation should be immediate not remote. A high I.Q. score may
facilitate the mobility process if a large number of opportunities, experiences are
provided. In this, a vital role can be played by mobility instructors.
Grow through check
1. ________ makes adult blind more mobile.
2. ________ has greater adjustment problem than who is blind by birth
3. Hand has no ___________
4. Doppler effect refers to __________
5. Flight of __________ at night is due to her _________ Property
6. Differentiate between ability and skill _______________
7. Mention the institutions where basic practice of mobility can be carried safely.
(i)____________ (ii) _______________ (iii) _________________
8. Teachers and parents sometimes face hurdle in the mobility training of visual
impaired. How?
6.3 Access to the Building
As accessibility is a component of architectural designing, reading at 5.1 is fruitful
in this reference especially pages 96 and 97. In order to supplement our knowledge
already gained, study Servedo and Mc & Load's work.
100
Servedo & Mc Load Problems of Accessibility 6.5
pp. 118-119
Accessibility to a building is part of overall requirements of a recreational and
rehabilitation programme for the handicapped. Facilities to reach the building are
the basic need to be considered while planning. Signs should be designed in a
clear, contrasting manner, in accordance with the visual requirement. Ramps
should be constructed in such a way that entrance for wheel chair is easy. The
ramps should be provided with hand rails while the handle of doors at the end of
ramps may need to be protected from the direction of sun.
Inside, toilet facilities especially for the physically handicapped are very
important but generally ignored. The design needs to be tailored with the need for
privacy in mind. Drinking points, telephone points etc, should not be out of reach
of handicapped persons even for those who are using wheel chairs.
Reynold & Mann Encylopaedia of Special Education. 6.6
pp.110-121
Physical barriers for access to building for the handicapped are so many e.g.
ill entrances, poor parking places, inadequate restrooms, non-sufficient light.
Accessibility should be barrier free. The design of every component of architecture
is the modification of the normal with the aim of provision towards assisting
disabled persons. It is very difficult to construct a plan which meets the
requirements of all' handicapped persons but it is possible to incorporate good deal
of these. In USA it is mandatory by state law to provide accessibility for physically
handicapped persons in every public place and necessary funding for this is
provided.
Now let us have an exercise.
1. What is the basis for site selection for handicapped persons?
2. Why should steep ramps not be used?
3. Separate provision for parking is required for handicapped persons. Why?
4. Mention the types of doors needed to be installed in toilets for the
handicapped.
5. Discuss types of hurdles physical impairment imposes on mobility?
6. How can a telephone be modified for hearing impaired persons?
101
Additional reading
Chapman & Stone The Visually Handicapped Child in Your Classroom.
pp.43-47
102
3. Commitment to colleagues and "some other professionals" expedite mobility
training, Mention "some other professionals" who contribute towards
mobility.
4. What is the theme of commitment to the community?
5. Peripathologist teacher is a teacher who _________________________
6.5 Recreation
Recreation is the most neglected field in the low socio-economic families.
This is true even for the middle classes. The value of recreation cannot be ignored
when it is correlated with learning and training tasks. Recreation planning for the
disabled means the application of principles and techniques of recreation to special
needs. It is therapeutic in nature and aims at gaining self motivation and
independence. Recreation can fill the handicapped child with an incentive for life
through fun and joy as joy is the basic need of childhood. It acquires a special
value with the increasing stress of work in later life.
Recreation can bring learned skills into practice and provide opportunities to
explore new competencies and potential. It can also facilitate the rehabilitation
process so that handicapped persons may become integrated members of the
normal society.
Now a detailed reading awaits you.
Kelley Recreation Programming for Visually Handicapped Children 6.8
pp. 63-77
According to Kelley recreation and leisure are used interchangeably and also
independently. Recreation has no definite description. It varies from person to
person and from cu1ture to culture.
Now-a-days, recreation is seen as a basic need of all visually impaired people
but while planning such programmes, one has to be aware of the problems of
financing such programme especially for people from x low socio-economic status.
The author suggests seven points for recreation programmes starting from
assessment to revision of the programme. The objectives of the programme are
important but their reflection in activities is more important. The evaluation study
of programme is, in a sense a process of development. It also provides a check list,
"barrier list to recreation specialist" and leads to better management of recreation
programme.
103
Now attempt a re-enforcement.
1. Before planning a programme of recreation what factors should be considered?
(i) ___________ (ii) _____________ (iii) ___________ (iv) __________ etc.
2. Mention new trends in recreation programming.
3. Write down the steps which form the framework for recreation specialist.
4. Give some suggestions to make a recreation programme suitable when
visually impaired are accompanied by a number of normal children.
5. How can recreation specialist collect information when plan is in operation?
6. Revision of recreation programme aims at
1. _________ 2. ___________ 3. ____________
7. What is the main focus of a creative recreational programme?
1. ____________ 2. ______________ 3. _______________
Self Assessment Questions
Q. No. 1 Encircle correct one
T F (i) Kaufman's study shows that intensive care results in dependency.
T F (ii) Building for mentally retarded should only give a feeling of beauty
and balance.
T F (iii) Buildings have emotional and psychological aspects.
T F (iv) Floor mats facilitate the mobility of the blind.
T F (v) It is better to provide kitchen facilities adjacent to recreation room.
T F (vi) Mobility progress is related to intelligence level.
T F (vii) Design of architecture for the disabled depends upon type of disability.
T F (viii) Commitment to the profession is the basic component which makes
special education effective.
T F (ix) Goals are foundation of planning model of recreation.
Q.No.2 Spatial environment is therapeutically helpful, give comments on this.
Q No.3 What are the minimum consideration required for architecture mode while
planning for physically and visually impaired people.
Q.No.4 Blindness by birth puts limit to the social relations. Suggest some points
related to mobility to minimize these limitations.
Q.No.5 How does a mobility expert's attitude help in attaining independence.
Q.No.6 How are motor sensory abilities nourished in recreational programme?
Activity: Plan a day long recreation programme for a multi -
handicapped group e.g. deaf-blind or mentally retarded -
physically handicapped.
104
Key
6.1
1. Accessibility, 4. Preferably 12inch, 5. Physical Handicap, 6. Old age
6.2
1. Motivation 2. Adult blind 3. Obstacle sense 4. Bat, echo
7. (i) School (ii) Home
105
106
UNIT NO. 7
Written by
1. Muhammad Javed Iqbal
2. Mrs. Shaista Majid
108
CONTENTS
109
110
INTRODUCTION
There is no person who is independent of his community. Greatest influence
is exerted on infants and children by their first community i.e. home and
neighborhood. If a disabled child is isolated, his behaviour is likely to be
subnormal, his response towards himself and community may lag behind and his
physical, emotional, intellectual and verbal development may suffer. It is
worthwhile to mention that most of personal behaviour of the disabled is derived
from the community life itself. Human behaviour not only depends upon instinct
but also on social and cultural environment.
The effectiveness of kinship and community is related to their ideas and
experiences about handicap. Kinship is a "mini community" and is the immediate
group capable of providing a sense of we-ness. It is highly personal in nature.
When a handicapped child is very young, he is generally accepted by other fellows
but as the handicapped child grows, the degree of rejection also increases. For this
rejection, many factors can be held responsible but a good deal of effort is needed
to counter-act the influence of these factors.
The parents of handicapped child may also feel uncomfortable and unequal
members of the community. They cannot enjoy many of the experiences like their
other fellow begins with normal children. This uneasiness gradually gives rise to the
thought of binding themselves into an organization to gain a voice for their needs.
Objectives
After studying this unit you should be able to:
1. understand `community'
2. get insight into various structures of community
3. acknowledge the significant role of siblings on the behavior of a handicapped
child.
4. appreciate the contribution of N.G.Os and professional in the welfare of the
handicapped.
7.1 Community
The development of social contacts with others is a human necessity. If
anyone is raised in isolation, an abnormal personality will most likely be the
outcome. Because of contacts, with others, a child shares experience's and
develops understanding which helps personal growth.
A community is a big unit in the social order. It carries some hidden meaning
which can be seen in the actions of individuals. Community study is a social
phenomenon but is not easy to inquire into it because it involves the study of complex
111
behaviour of man while a community is more than its members. The community
influences the handicapped as a force to which he responds in his unique way.
David Dresslor Sociology 7.1
pp.407-412
The idea of community is evolved when the interests and needs of people of
an area overlap. There is not a single agreed definition of community but two
factors i.e. area and social interactions are common in most of the definitions.
Dressler elaborates these two into four sections.
A community has space and residents who interact directly and indirectly.
This relationship may be due to face-to-face contacts as in the small villages or
contact may be through media. Every member of the community may feel his
membership and existence iv the community, while the concept of space has
diversified our concept of community from room to state or even beyond the state.
Another valuable reading is awaiting you.
Retrieved on 23.4.07 from Community 7.2
http://www.communitydance.org/metadot/index.pl
?id=24762&isa=dbrow&op=show&dbviewid=17860
The community is small focal point where basic services for living can be
provided and maintained. It is the oldest form of social community. It also acts as a
guardian of tradition. Members have common ground to share. An ideal
community is intellectual but industrialization had changed its limits. Many types
of community have emerged as a result of modernization e.g. cultural,
professionals, political community etc.
A community as an ecological approach undergoes continuous changes but there
are some factors which do not vary. A community can be identified on the basis of
species and there is a chain of dependency between living and non-living organisms.
Exercise
1. George comprehended the factors of community after analyzing.
(a) 94 definitions (b) 45 definition (c) 70 definitions (d) 100 definitions
2. My living in Pakistan shows specially a sense of
(a) existence (b) area (c) social interaction (d) all of above
3. "My homeland" is
(a) merely geographical statement (b) community (c) historical development
(d) spatial pattern (p.409).
4. Community provides people with
(a) factories (b) homes (c) mosques (d) all of these
112
5. Pact of establishing relationship between two countries is an example of:
(a) national level of community relation (b) provincial level of community
relations (c) international level of community relations (d) universal level of
community relations.
7.2 Types of Community
There are many social structures which are said to be type of community.
These are based on common interest, common goals, common enmities or on
common destiny. These dependent factors vary with social changes. They may
work on unifying forces or as a threat to the existing set up, changes may also be
due to geo-economic factors. They are interlinked with human development, both
material and spiritual. These help in the mobilization of community resources.
Difficulties in maintaining proper living standards, motivation and bringing about
effective changes may be the factors which lie behind mobilization process. It is a
process of moving ahead and it is necessary to establish a new equilibrium, the
result of which makes the community more operational.
Please go through the following.
Dressler Sociology 7.3
pp. 412-427
Communities are classified in several ways but it is difficult to establish types
in such a style that one should understand clearer individualistic characteristics of a
community in a sharp way. Some sociologists categorize communities as Urban
and Rural. A metropolitan community includes suburbs which extend the
geographic area of a metropolitan community. Besides these, there are three types
of communities, regional, national and global.
Communities like professionals e.g. doctors, scientists fall into the worldwide
community as the whole globe may be said to be one community. It includes all
the people living on earth; United Nations is an example of worldwide community
where membership is not personal but collective.
The definition of community is the reflection of the corner from which it is
forwarded. Community is usually seen as collectiveness or social relationship.
These are bonding ties between members of community.
Common grounds provide a sense of belonging. These grounds may be based
on territorial and non-territorial considerations. Scientific development in media
and mass communication has converted a non-territorial community into a force.
113
Familiarity between members is directly related to the size of the community.
The smaller the boundaries, the greater the familiarity among the members.
Warron suggests some functions which should be performed by the community
and assistance can be sought ii this respect from a specific section of the
community.
When the community is large enough, it can have its own developed system
e.g. government, education.
Exercise
1. Ferdinand Tonnies uses the term "Gemeinschat". What do you understand by it?
2. How does Schnore view metropolitan community?
3. What are the bases of composite regions?
4. Self contained community is only possible if we ______________________
5. When does a community emerge?
6. United nations has to deal with ________________________
7. A legal philosopher frames his definitions on the following bases.
8. Give an example of non-territorial community and list the important features
of its organisation.
Additional reading
Bates & Harvay The Structure of Social Problem. pp.196-210
114
Thomas views handicap as a social problem, parents along with siblings are
also effected. Siblings may have psychological disturbances.
In this regard, the size of the family and sex of the child may play an
important role in the psychological disturbance.
A book of interest awaits you;
David Thomas The Experience of Handicapped. 7.4
pp. 109-111
There are two opposite views in this regard. First one is; more realistic more
mature, more considerate and more understanding, while the other view is of being
jealous, unhappy. A handicapped member of the family may restrict the social
mobility of their normal brothers and sisters, thereby adversely effecting their
social integration. Greater attention towards the handicapped child sometimes
accelerate the independence process in normal siblings for the reason that they are
paid less attention.
For further study:
Pearlman & Scott Raising the Handicapped Child. 7.5
pp. 15-29
Proper adjustment is mainly the result of kinship and of the support received
from the immediate community. Having a handicapped brother or sister affect the
other children, their place in the family and the development of their personality.
Every child needs individual attention, but it should be provided as a routine and
not as a special case. Handicapped children should be given proper time and
attention, greater degree of involvement with relatives results in a greater share of
the caring for the handicapped child.
An "open approach" is a favorable method in accepting and encouraging the
handicapped. In order to create a cheerful climate and a healthy balance one should
be honest towards people. One's words about one's handicapped child are not the
only contributing factor but the manner of expression also counts.
Exercise
1. What is result of study of Martino & Newman?
2. Stress is related to the size of family. How?
3. What is the basic condition imposed on dialogue between mother and the
handicapped child?
4. Mention factors which affect the sibling of the handicapped?
5. Honest sharing about the handicapped results in _______________
115
6. What is the result of open approach towards distant relationship?
7.4 Socialization
Stewart & Ghynn (1985) define "socialization" as the process by which
people acquire their beliefs, attitudes, and values of their culture. It also involves
the development of a distinctive personality for each individual because the traits
of the group are never observed precisely the same way by all people.
Socialization is not attained in isolation. It is gained through human
interaction. As a result of socialization one may learn one's rights, duties,
obligations, approved styles of life etc.
Institutionalization of the disabled is giving way to mainstreaming
(integration into the community). Support in favor of this trend is gaining more and
more strength. Socialization as integration of disabled with community is being
promoted especially by the mass media, N.G.O's and social workers. In Pakistan
these provide the specialized services for the disabled which were previously only
available at an institution. Provision is not only made for special children but also
for their social needs.
Mass media shapes the general attitude towards socialization as "agreed
approval" of attitude. With proper adjustment, a disabled person can attain his own
income source through self help, if the disability allows. Here is a compulsory
reading for in depth study.
David Thomas The Social Psychology of Childhood Disability 7.6
pp.91-107
Socialization is a process of acceptance. The performance of a social role
allotted to an individual and the result of socialization is social stability and
continuity in stability with accuracy.
Warmness of relations between model and imitators accelerate the process of
socialization even if it is speeded up when model occupies strong position:
However, it is necessary to mention that all socialization is not model centered. It
involves many factors; prominent among these are the family, school, peer group,
religious groups and occupational groups. Socialization of the disabled is also
different from socialization of non-disabled people. Its deviation from normal
depends upon type and severity of disability, attitudes towards disability and
socialization practices. For a severe handicap, the time required for socialization is
longer than normal. It is even true for mental retardation. When sub-normality is
permanent the socialization process may be life long and may not even then
achieve its goals. Current approaches of mainstreaming also contribute towards
116
socialization although a handicapped person may not be able to participate fully in
the social order. The greater the deviation, the greater the difficulty in the process
of socialization.
Exercise
1. Mayer refers socialization as: __________________________
2. What do you understand by ‘Globe’s pattern of behaviour’?
3. What is the "Vernacular System"? Define "human" with reference to our
culture?
4. Enlist components of cultural context (Blyth's views).
5. For the blind, Scott suggests the following role of socialization.
______________________________________________________________
6. Child dependency in early life accelerates independence. What do you think
about sub-normal child's dependency?
117
3. What do you understand by reciprocal care?
(i) _________________ (ii) _________________
4. Administrative set up focuses on the coordination of
(i) _________________ (ii) __________________
5. Enlist four levels of community care
(i) _________________ (ii) _________________
(iii) _________________ (iv) _________________
118
Apart from love, need of economic growth is also required to be fulfilled. It is
very difficult to face interrogations put by citizens on input and output of
professional services. The modernized concept of need relates it to the age factor
also and divides age into seven stages. In addition to the needs of the disabled, the
needs of professionals and the system in which they are serving are also of an
important nature.
Let us study Michael Oliver.
Michael Oliver Social Work with Disabled People 7.9
pp. l 1-13
In the pages referred above role of professional trained workers has been
discussed social workers should have to provide social help to the handicapped and
their families; to assess the needs of handicapped persons and their families; to
provide help in the process of rehabilitation; to contribute to the professional
growth of social service staff and to coordinate the services of all the concerned
disciplines.
The Barely Committee noted an interesting observation; the senior social
workers take on more cases of child care with mental illness and families with
multiple problems while junior social workers take on more cases of physically
handicapped children and older persons.
Exercise
1. What is the theme behind the consumer, producer etc. in the modern society?
2. "Service is to care" make brief comments.
3. Mention the requirements of a servicing system?
4. Enlist the four factors to be considered if an effective service system is to be
developed?
5. Enlist the three disabling components of professional assumption of need.
(i) ___________ (ii) _______________ (iii) ______________
6. What are the main assumptions of professional help?
7. Parsloe and Stevenson concluded that
119
Additional reading
Oliver Michael Social Work with Disabled People
pp. 1 19-137
120
Self help groups
Self help group is another style of volunteer organization. The authors have
identified seven characteristics of self help groups. It is better if the self help
groups are run by the disabled themselves. These groups can initiate and stimulate
different agencies to enrich the services provided for the disabled persons.
Now for Pakistan, let us study a leaf from Special Education Journal.
Shahid Role of Non-Governmental Organizations 7.11
pp.63
Shahid developed his paper on the teaching of Islam and human nature. To be
social is human. Man always searches for common grounds for interaction. Islam
has emphasized the sense of good interactions. Islam puts a check on misconduct
and condemns this kind of attitude towards any persons especially towards the
needy, the orphans and the disabled.
Islam has advocated equal rights for man and woman and expects similar
contributions from each of them for the welfare of the society. This is followed by
Muslims all over the world and charitable institutions were established by Muslims
of India as well. From its emergence Pakistan has taken its inheritance of Islamic
traditions seriously in spite of numerous problems. Most of the initial work for the
handicapped was done in the country by N.G.O's. In the first 30 years, Madrassas,
hospitals, orphanages, poor houses were established and run by different trusts.
The author emphasizes the work done especially for the blind.
The blind people are being helped to become Hafiz-e-Quran by memorizing
the Holy book in far and remote areas of Pakistan. It reflects the society's emphasis
on the education through religious institutions.
N.G.O's have projected the disabled as having the potential of being
independent and self-sufficient citizens. Achievement of this goal is the most
important contribution towards rehabilitation. N.G.O's have the advantage of being
flexible in approach. As N.G.O.'s are in the centre of the real situation medical,
social and educational needs are better identified. In this connection N.G.O's do not
require to follow up necessary rules.
Attempt the Questionnaire
1. ________ overlaps with social and emotional disability.
2. Following are the basic groups which constitute N.G.O
(i) _________________ (ii) _____________
121
3. Mention main causes of illness in Pakistan.
1. _____________ 2. _____________
4. Mention the main advantages N.G.O's have over governmental institutions.
5. Give an example of education of visually impaired children?
6. What is the most important contribution made by N.G.O's?
7. Discuss the disadvantages of self-help groups.
8. Parsloe and Stevenson concluded that
Additional reading
Oliver Michael Social Work with Disabled People
pp. 119-137
Key
7.1 (1) a (2) a (3) d (4) d (5) c
122
UNIT NO. 8
Written by
1. Muhammad Javed Iqbal
2. Mrs. Shaista Majid
124
CONTENTS
125
126
INTRODUCTION
The focus of special education is assistance for self-help and independent
living. Assistance provided through special education is not merely a mechanical
process but also based on humanitarian approach.
All sorts of aids extend help towards the disabled in living smoothly but aids
cannot replace human feelings that make the use of aids freely helpful. Role of aids
is effective only when they are selected according to the needs of the disabled.
Aids selected on these grounds provide opportunities for gaining both sensory and
non sensory experiences to break the isolation caused by impairment. Without
sympathetic attitude on the part of others, disabled persons cannot have self-
realization and self stimulation. Efforts based on individual needs can shift the
status of the disabled from a passive one to a dynamic one. It is desirable to join
hands with other professionals for maximizing the usefulness of aids and
supportive services.
Disabled and normal members of the family are interlinked and
interdependent. No doubt primary caretakers are parents. Their emotional
involvement leads to special commitment towards independence and rehabilitation.
Use of aids is not an ultimate goal in itself. This is only a means towards the
goal. The environment, where aids have to function is also of considerable
importance, therefore home, town, road planning and traffic management have
great relevance to the usefulness of aids. Assessment prior to administration of aids
and follow up is a very significant factor. Assessment once made is not final. It is a
continuous process. Disabled persons should be assessed after regular intervals to
see whether they are still in need of aids. This is also necessary to evaluate the
degree of need which may increase or fall.
OBJECTIVES
After successful completion of this unit, it is hoped that you should be able to:
1. recognize the therapeutic value of aids.
2. acknowledge educational value of aids.
3. develop a relationship between aids support and smooth living.
8.1 Disability and Assistance
Disability is a result of impairment. The parents especially of disabled
children are always interested in making their kids independent, whether they are
physically handicapped, mentally retarded, visually impaired or hearing impaired.
Every step taken towards independence is appreciated by parents of the
handicapped more than any other parents.
127
Time and money spent on the handicapped helps in gaining independence in
home and in classroom. Assistance which is consistent and continuous in nature,
aims to provide such environment. This assistance may be in mobility training,
language development and maintenance of residual organ etc.
Man is a unique creation of Almighty Allah and cannot be sub-divided into
separate segments e.g. physical, social and intellectual. One aspect of personality is
interwoven with the others.
Aids and support is conscious contribution by technical institutions to
promote rehabilitation of disabled persons. Credit of aids assistance does not go to
any of these exclusively but jointly to all of them. Provision of aids should be
made with love, warmth, comfort and encouragement. No equipment however
costly or sophisticated, can replace human factor.
Self-employment is the most contributing factor in providing independence in
adult life as already discussed in unit no.5. Vocational guidance counselor may be
helpful in making choices of career which is congruent with abilities and
aspirations. Vocational guidance counselor should be free of negative stereotype
tendencies.
Discussion already carried out under the title of Human Help and Mobility
will supplement this sub-unit and revision of these may extend the range of
understanding.
Retrieved on 23.4.07 from Discrimination based on 8.1
http://uhrc.nic.in/publications/documents/ Disability: Awareness about
chapter4htm#ch41 Assistive Devices
128
print symbols by touch. There are also "talking calculators" and many types of
"obstacle detectors" on the market.
Compulsory Reading.
Dobree & Bolter Blindness and Visual Handicap 8.2
pp. 174-183
Blindness reduces one's efficiency in the activities of life but this effect can
be minimized by rehabilitation workers and counselors.
In writing Braille a wide range of devices from small pocket frame and stylus
to braille machine is in use. Braille writing machine helps in writing with greater
speed than that with stylus. The Stains by Braille machine was originally designed
in Britain and differs in some aspects from Perkins Brailler.
Short-hand notes are read by touch while Braille shorthand is also available.
Many devices and hand writing guides have been developed for those visually
impaired who still want to practice but face difficulty in keeping lines straight.
Time is an important factor in life. a special watch has been designed so that a
blind person may feel the time by running his figures on the arms: A button type
watch is also available which tells the time by pushing button. Aids in homes use
are designed on the touch audible bases.
For blind students physical, political maps etc. are designed while calculator
is replaced by calculating machine which uses synthesis speech. In market, there
are many substitutes for sight apparatus. Mobility is an important factor in life,
long cane is the most common aid for mobility but the basic function of short cane
is to get help from sighted. If a person is going with cane which bears red band on
white, be careful, he has severe hearing defect along with blindness. Now
ultrasonic devices are changing the scene. Even one can see these in the hands or
on the chests of the blind. These work on echo system enabling blind to be careful
about hurdles of the way, although these are costly, but it is hoped that research
will cut down their prices.
Kurzweil reading machine is the first invention which can readout books etc.
at the required speed. But machines of these types cannot read properly the carbon
copies and bad print.
Kurzweil Data entry Machine helps in the printing of Braille. It converts
ordinary print into Braille with the help of computers through a number of steps.
Optacon is the product which enables blind to read the print under his fingers.
129
Diabetic retinopathy is one of the causes of blindness. For sugar level check,
a stick is used which gives audible signals.
Low vision aids include magnifying aids, improving lighting conditions or
contrast. For distance vision, binocular, monocular, either hand held or fixed to
spectacle frames is used. While considering aids for low vision, it is important to
think over the nature of work and degree of involvement of the handicapped so that
proper L.V.A. may be selected. Spectacle magnifiers have their advantages in the
condition of deteriorating vision while closed circuit television can provide highest
magnification but it is costly.
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130
is sensitive to some of the frequencies. a man with severe deafness cannot get
benefit from hearing aids. A good hearing aid should fulfill the following
requirements.
1. "It should watch the frequency response to the type of hearing loss as
measured by audiometer ie., it should provide maximum amplification to
frequencies with maximum loss etc.
2. 2.It should have high amplification.
3. 3.it should reproduce sounds with great fidelity.
4. It should be small in size and light in weight,
5. it should have low power consumption.
6. 6.It should have insert type receiver.
7. 7.It should be easy to handle, manage and repair.
8. It should be cheap".
After basic understanding please go through a valuable reading.
Fran and Purcell et al The Hearing Aid. 8.4
pp. 120-124
According to the author, conventional hearing. aids are widely used but the
modern personal hearing aids have brought a revolution. Only moderately and
severely hearing impaired persons are taught in special schools while mildly
impaired have made their way to the normal schools. Computerized hearing aids
are under intensive experimentation. It is hoped that by the passage of time, it will
be possible to make these more practical and low priced. The basic advantage of
digital aid is that it can be programmed according to individual needs.
Proper use of conventional aids can bring better results but a severe limitation
with conventional hearing aid is that it does not amplify more than 5 khz.
131
but there is increase in trend towards use of electronic speech aids. Children face
difficulty while using electronic speech aids because these cannot be worn while
children can only perform well when their hands are free. Autocue and eyeglass-
speech-reading-aids are basically designed to assist in speech reception. These aids
are acting as catalyst for bringing aids into classroom to improve teaching learning
process.
Here is another reference for our consideration.
Anne (Co-ordinator) Ways and Means and Hearing Impairment 8.5
pp.85,86,90
An appropriate choice of hearing aid and its proper use is very important in
order to achieve the desired objectives. Aids usually amplify sounds of human
speech.
Effectiveness of hearing aids has been improved in the recent years.
Group hearing aids are usually of class size versions. Components are the
same as individual aid system, but slight difference is due to specification of
manufacturing plant which makes aids in accordance with the needs of specific
group but there are severe difficulties in their use
Self-Assessment Questions
1. (a) Man's first hearing aid is:
(i) amplifier (ii) cupped hand (iii) microphone (iv) megaphone
(b) Principal parts of electronic hearing aid are
(i) _________ (ii) _________ (iii) ________ (iv) ____________
(c) Basic type of hearing aid is
(i) body worn (ii) post aural (iii) none (iv) i plus ii
132
(d) The greater disadvantage of -conventional aid is that it cannot provide
amplification above:
(i) 5 KHZ (ii) 10 KHZ (iii) 20 KHZ (iv) 25 KHZ
Q.No.2 Discuss the advantages of computer based hearing aids.
Q.No.3 Construct a relationship between hearing aids and speech acquisition for deaf.
Q.No.4 Discuss group hearing aids.
Q.No.5 Electronic communication of written language has opened a new chapter to
hearing impaired students. How?
Q.No.6 Elaborate salient features of digital hearing aid?
For further reading:
Welsh & Blash Fundamentals of Orientation and Mobility.
pp. 172-180
133
Now let us study Siegel's book to enrich our insight.
Siegel Siegel Helpng Brain Injured Child 8.7
pp.93-116
Phonics can be developed on the vocabulary of 50-100 words with the help of
relationship of sound and photographs. In this connection, keep in view that
spelling are not very important. When proper association is developed, this process
can be reversed and after this process, flash cards can be used to check the
understanding. The quality of result depends upon the length of time for which the
card is displayed. This process can be facilitated by pasting pictures on the page.
Phonic wheel is a manual device which can help in developing power of grasping
words and reading both sense and non-sense syllables. Here sound discrimination
can be beneficial.
Verbal comprehension is basic in language development. Read for disabled
child, ask him about understanding he has developed. After this exercise, writing
can be initiated with the re-enforcement of audio-visual association.
In writing, direction is also important which is relative to the language
development. This can be facilitated by putting one's hand on the hand of mentally
retarded child. This will help him in copying and making connections of the words.
Writing may be started by writing on sand and soil.
Counting is essential in life. This can be taught by feeling objects,
discriminating between different sizes and child will slowly move towards addition
and subtraction. Touch can help in sensory training.
Sounds are helpful in perceiving things. Training in the recognition of simple
sounds can be helpful in identifying loud, soft, rhythmic and noise sounds.
Memory is a depot which helps in recognition, recall and association. This can be
tested by placing simple objects in a box and then taking some or one out of it and
asking mentally retarded what is missing.
Television may hinder the living of hyper-active mentally retarded by its
violence. Television also intermingles the dimensions as it has as yet only two
dimensions but it may help him to sit still.
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Self-Assessment Questions
Q.No.1 Choose most appropriate answer:
(i) Rehabilitation of polio victims is mainly dependent upon
(a) psychotherapy (b) physiotherapy (c) sociotherapy (d) medication
134
(ii) The best recommended class strength for mentally retarded is
(a) 4 children (b) 6 children (c) 8 children (d) 10 children
(iii) Early detection of mental retardation will be able to place the child in
(a) isolation (b) special class (c) normal class (d) sheltered workshop
(iv) Teachers of mentally retarded children should have
(a) patience (b) insight (c) skill (d) all of these
Q.No.2 Why soil writing is useful in our country?
Q.No.3 Discuss some aspects of sensory training.
Q.No.4 How much significance the phonic wheel has for Urdu reading for brain
injured children.
Q.No.5 Tracing words is an important style in teaching writing for mentally
retarded children. Why?
8.5 Aids/support to the Physically Handicapped
Physical impairment is most wide-ranging in its nature. It imposes limitations
and stress on functional capacity of the physically handicapped. Physically
handicapped is usually at serious disadvantage when he interacts with others.
Emotional contact mostly depends upon mobility which is back bone of social
adjustment. Any hindrance in mobility puts restrictions on enriching ones
experiences. This may lead to a belief that ordinary or extraordinary physical
activities can never be performed by the physically handicapped. This may not be
true in most of the cases as many of them achieve excellence in physical as well as
in other activities.
Pless and Douglas (1971) suggest the following questions to be considered,
type of disability along with duration of disability and severity of disability:
(a) Does impairment affect the individual "motorically"? .
(b) Does the impairment involve sensory problems such as restricted vision or
hearing?
(c) Does the impairment constitute a disfigurement which is visible to others?
If physically handicapped have some other disability, selection of aids may be
made in consultation with the experts in other disabilities. With the passage of time
it is assumed that disabled persons may become familiar with the use of aids. This
will also facilitate their taking up vocations. The environment where physically
handicapped persons are to function is of considerable importance. Transportation
and other accessories as discussed in Unit 6 also fall under aids and supportive
services. Some cases may require physical help in clothing, bathing, getting in and
out of wheel chairs.
135
A brief picture of aids is drawn in the following pages
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Physical handicap involves largely services of members of medical profession
such as physiotherapists, surgeons etc. Sometimes co-ordination of these
professionals is required prosthetics and orthotics are persons who manufacture
artificial limbs and allied materials to help the physically disabled.
Adaptive devices are not commonly used for ordinary purposes but residual
limb function is much more emphasized because it helps in becoming independent
of devices, more over, it is economical.
Modern technology has its own limitations. Reconstructive and plastic
surgeons are also improving the appearance and function of the physically
handicapped as modern technology has made technical aids simple, reliable and
practical.
Now study following reference:
Colhoun and Teaching and Learning Strategies for Physically 8.10
Howisher Handicapped Students.
pp. 158-172
According to Colhoun and Howisher, it is attitude of teacher which can make
classroom setting mirror of the curriculum by making necessary alterations in
classroom. Furniture, equipment can be designed in accordance with the demand of
safety.
Technological aids used for the physically handicapped are simple as well as
complex. Usually complex aids are operated by adopting simple techniques and for
selecting teaching aids Haskell has provided a guide line.
Mobility is the basic and fundamental problem of the physically handicapped.
For these persons, there are several mobility techniques available but selection of
proper techniques promotes co-ordination between eyes I and limbs. Skill in
mobility facilitates recreation process which promotes academic and daily living
activities. They also help to gain better physical and perceptual control.
Self-Assessment Questions
Q.No.1 Elaborate most important principles which are to be kept in mind while
selecting aids for physically handicapped children?
136
Q.No.2 Prosthetics and orthotics occupy an important role in the range of aids for
the physically handicapped. How?
Q.No.3 Discuss teacher's responsibilities in teaching to physically handicapped
children?
Q.No.4 Physical environment has implications for teaching learning process. How?
Q.No.5 Classroom safety should be given top priority. Why?
Q.No.6 What is the importance of guidelines recommended by Haskell for
selecting
Teaching Machines for physically handicapped children.
Key
8.2
Q.No. 1 (i) F (ii) T (iii) T (iv) T (v) F (vi) T (vii) T (viii) T (ix) F (x) T
8.3 Q.No.1 (a) ii (e) iv (d) i
8.4 Q.No.1 (i) b (ii) b (iii) c (iv) a
137
138
UNIT NO. 9
NATIONAL RESOURCES,
EDUCATION AND COST OF
CARE
Written by
Muhammad Javed Iqbal
Revised by
Mrs. Shaista Majid
140
CONTENTS
141
142
INTRODUCTION
The investment of human efforts, material resources on the health of disabled
persons, care and education may secure returns for the individual disabled person,
community and nation. This also helps in improving the personal standard of living
which results in self respect and self confidence.
This output does not depend only upon how much investment is made but
also how efficiently it is utilized, as there is always scarcity of resources, budgetary
constraints and willingness of high output. The efficiency may be in physical and
economic terms. In physical efficiency, the quantitative relationship between
output and input is important while economic efficiency relates with the cost of
input. The knowledge of the cost of alternative courses of actions is the key to the
planning. The planner has to decide whether he has to add more scarce resources to
the existing facilities or to locate alternative means in future. By developing a deep
understanding of cost analysis, its output, one can make provision on a practical
basis. Planner may face difficulties which are result of lack of basic Data-Variation
in price that effects the achievement of objectives.
It is better to plan for long term as once a policy is launched in the field of
work, it is difficult to reverse it. While developing plans for care and education we
have to decide where we are and where we want to be in the future. Effectiveness
of planning for disabled persons is largely dependent upon their access to
professionals, services and physical environment. .
Social integration is the theme of the day. Behaviour modification and
learning cannot be attained in isolation. To minimize the stress of isolation,
mainstreaming may lead to a restrictive environment. It aims to modify the
negative attitude of the community towards the handicapped persons and involves
the total faculty of the community. Mainstreaming has three components (1)
Integration (2) planning and programming (3) classification of responsibilities.
Objectives
It is hoped that after successful completion of this unit you should be able to:
1. visualize different factors that count towards the cost of care.
2. understand what is meant by mainstreaming.
3. know the problems in planning for special education.
4. help the disabled in being active, productive members of the society.
143
9.1 Use of Scarce National Resources
Planning for disabled persons is complex and is a concern of various
agencies. The more we invest in terms of finance in developing welfare services,
the more we achieve in national development. The educational planning in its
modern approach has attracted experts from many disciplines and various
professionals have learned to work as a multidisciplinary team. Education and
rehabilitation of the disabled is not generally supplied with adequate resources.
With the increase in the degree of the disability, the expenditure on education and
rehabilitation also goes up while income is most likely to decrease or at least
remain constant.
When society and individuals both have difficulties the economical use of the
resources requires planning in an order of priority. These choices also mirror our
present special needs alongwith future consideration. Resources cannot meet all
requests at the same time and to the desired degree. While planning services,
questions concerning manpower, financial resources, mode of utilization are of vital
nature. Coordination of needs and expenditure is a process which must be mentally
rehearsed before implementation. Objectives may be stated in general but one must
keep in sharp focus the requirements which are considered to be most important.
There must be some strategies to determine the priorities in the use of
resources as there is an inverse relationship between demands and resources.
Planning strategies for disabled persons are Top-down (centralized) and Bottom-up
(decentralized).
Top-down is framed at a high level outside of the local community i.e. by
government, international organizations where local people have to comply with
the direction indicated there in. This may be of a standardized nature, easy to
utilize national resources, easy to administer, easy to seek involvement of other
agencies and external experts but the rehabilitation segment is usually feeble as
this aspect demands more dedication and love in its implementation.
"Bottom up" is those activities which are organized and administered by the
local community by itself. Finances are generated and collected locally, although
support may be sought from the government.
The achievement of the target is largely dependent upon the participation of
people: "their goodwill friendliness and feeling of shared pleasure" (Thomas,
1982). The output factor is not only measured by evaluation but also by "smile
factor". Either planning is based on government finances or local funding.
Government funds may have red-tape restrictions, delays and promises. Local
resources may be developed by fees or contributions from the families to be
served, services, in kind or with work, income producing activities, repair services,
an auxiliary fund to help poor families, zakat etc.
144
The planning situation can be viewed in the following manner.
1. Infinite demand
2. Scarce resources
3. Choices of priorities from various demands
4. Alternative means of achieving priorities
5. Evaluation of alternative project choices
6. Implementation
After making priorities, related factors are to be considered in detail i.e.
administration of the plan and its development through different levels.
Planning for the disabled should also consult Manpower Division as there is
no comprehensive scheme on for job-education in Pakistan although provision of
one percent employment exists in this regard. The varied and complex nature of
planning requires greater per capita expenditure both capital and recurrent, for
those of formal education.
There is no specific school entry age for disabled children which results in semi
open ended school leaving age.
While planning possible changes in the cost of running institutional services,
material resources along with the increasing possibility of identification of the
disabled, need to be considered.
Best choices lead to the achievement of priorities with the lowest cost.
Grading of objectives are the first phase after this, principles of action are to be
laid down. These involve both men and materials. Funds are required for this
purpose. Materials include land, buildings equipments, machines and consumable
materials. Allocation of resources is important but of more significance is the
policy through which these are utilized. When the plan is implemented in terms of
priorities and in accordance with the guidelines, then need of evaluation arises
which results in reshaping and improvement of plan as required.
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9.2 Personal Income
If various factors affecting the role of the handicapped person in the
community are analyzed the financial demand comes up as the most influential.
The meeting of treatment needs and other requirements of daily living will depend
on personal income. In recent years public pressure has been building up for the
145
adequate provision of medical care and other necessary facilities for the
handicapped. Although measures are being adopted to cope with these without
degrading the efficacy of services, these resources are not easily available.
"Economic policies are designed to improve the material condition of human
existence, not as end in itself but as a means to create a good or better society"
(Pakistan Economic Survey, 1985). Self employment is a major contributor to the
self development leading to a better environment. It provides a basis for the growth
of self respect and confidence.
The process of industrialization during the last few decades has brought several
changes in the concept of employment. The job opportunities and level of wages
have a significant correlation with demand and supply. Personal insecurity and
hardship caused by impairment has also influenced the employment policy. "In any
strategy of economic development the highest priority must be attached to improving
the quality of educational system" (Pakistan Economic Survey 1984-1985).
The Government of Pakistan is struggling to implement, consciously the
policy of equal opportunities which also applies to disabled persons. High level of
job security, employee sharing in production, emphasis on employee growth and
development are factors in this regard to be considered.
Personal income expands life experiences. These experiences help to fulfill
also recreational needs along with financial support to self care and maintenance.
Thus it helps to develop a sound body and mind. It gives courage to take initiative
in performance to modify environment and helps to put an end to anxiety and
strain caused by impairment. It eradicates the disintegration and negative feelings
in the handicapped. According to Brolin and other researchers self earning helps in
(i) developing personal independence (ii) developing personal autonomy (iii)
supplements social skills (iv) developing ability to cope with the daily routine (v)
identifying career interest (vi) identifying jobs not within the students skill or
interest range (vii) improving self concept.
Self employment means to work for one's self and not for any one else. Self
employment also results in social, psychological and emotional stability. It also
modifies the attitude of the community in the positive manner and raises the per
capita income when a handicapped community is a contributing member. He can
share in developing future plans for himself and his family. Earning an income has
implications for the handicapped both in social and economic context. Isolation is
unhealthy in its nature and in most cases it results in distorting the personality of
the handicapped.
146
9. 3 Relative Cost of Care
The increasing emphasis on the care of the handicapped means increased
pressure on the economy of both family and nation. We are in that era where better
health and care of the disabled has become a national and international goal.
Increased care will
reduce the mortality rate and this investment will result in economic growth.
Investment on care is a representation of efforts we are expending on the welfare
of disabled children in the form of specialized services.
Lack of proper information effects progress towards our goal. It is the cost of
care which determines the feasibility of planning and implementation of
programme. High cost of care and education may result in a collapse of services.
Hence calculation of cost for a specific programme is of fundamental nature. These
factors may be considered.
1. "Sustainability"
2. Community participation especially by poorer or more vulnerable
members of community.
3. An equitable distribution of benefits of a project or programme (jolly,
1988).
The cost of care is largely changeable. It depends upon the type and degree of
impairment and also on the conditions prevailing in the country. If the cost is in
accordance with the resources, it becomes easy to gain specific targets. There is no
single method to calculate the relative cost of care of any disabled person or group
of disabled. It may also have relationship with per capita income.
Due to the complex nature of the topic, studies done in this area are few. For
background knowledge and to develop a basic understanding, a paper is waiting for
you.
David M. Boswell and The Handicapped Person in the Community 9.2
Janet M.Wingrove pp.49-60
The care of the marginalized population is usually made at home but hospital
and institutional care is there to assist them when required. Usually middle class
patients are discharged earlier as they have advantage of being looked after by their
family residing at home. Home care also lowers down the cost while hospital care
is expensive in its nature.
Home care costs can be subdivided into hotel and medical care cost. It also
includes cost of services of the general practitioner, transport and the time factor.
147
Medical costs cannot be calculated easily as it depends upon the individual
patient's condition. Besides Medical care, costs and treatment expenses i.e. ward
cost, house costs have also to be met. In a hospital, the cost of care may rise due to
maintenance.
Patients of diseases of the central nervous system require more care than
patients of other kinds of impairment, when continuity of services is required, cost
of hospital administration may be added to the whole of cost.
For cases of a deteriorating nature, care may slow down the rate of
degeneration and improve standard of living.
Self Assessment Questions
Q.No.1 What are the bases of cost of analysis in this article?
Q.No.2 Explain the most important factor underlying marginality.
Q.No.3 What do you understand by the term "Capital Cost"'?
Q.No.4 Enlist some ways in which voluntary bodies can be managed by the
handicapped.
Q.No.5 Why is home care cheaper in our society than institutional care?
9.4 Education and Care
The instant the impairment is registered by the parents of the handicapped,
the need for care and education arises. If the feelings about the handicapped are
positive and are fused in the educational system then it will contribute towards the
achievement of national objectives which includes promotion of literacy also.
Acceptance of impairment by the community provides opportunities for
organizations to arrange multidisciplinary programmes of help, care and education.
Ophthalmologists, orthopedists, neurologists, cardiologists, endocrinologists,
educationists, economists, architects etc. are professionals involved in the process
of care and education.
When disabled persons are given proper assistance in the development of
their social and vocational skills, they make a significant contribution towards the
society. Care can be defined as increased assistance both qualitative and
quantitative. It is similar for all the handicapped persons but individualized with
respect to the degree and level of impairment. Several factors influence the
outcome of care and education of the disabled but heredity may be one. There are
different approaches to the care but perfect care remains ideal. As the "learning in
most children is so automatic and spontaneous that little consideration is given to
all factors involved especially, to the importance of sensory system and their
148
relationship to brain" (Barrage, 1986). It should be kept in mind that most
important care giver is the parents. Formal care has certain limitations when
applied to any educational plan. Any successful educational plan for the disabled
requires a good relationship between provision of care and the teacher/learning
situation. Care can be seen in terms of aids and equipments employed in education
as well as in a teaching training programe. Every theory is abstract in its nature. It
becomes concrete only when we translate it into action to suit our situation.
Here is a document which caries recommendations, plan for special
education.
Directorate General of Education and Care of Handicapped 9.3
Special Education pp. 1-11
The children enjoying special education may/may not attend special school
throughout their school life.
Problems of children with hearing disabilities
Hearing impaired and speech impaired children have usually problems of
language development and they require integration with normal children even for
the sake of therapy. Speech therapy can develop residual speech function. It also
facilitates communication.
Problems of children with physical disabilities
Educational achievement and physical handicap "has no single relationship".
Children with physical disability can attend normal class while children with
severe handicap require special institutions where the services of physiotherapist,
occupation therapist, speech therapist will be made available.
Problems of children with visual handicaps
By proper training, visually impaired children can share social activities with
their normal class mates.
The curriculum and text books should be prepared and adopted according to
the need of the visually handicapped. Difference should be kept in mind. Highly
priced equipment can be made available but its proper use should be ensured.
Problems of children with mental retardation
The social integration of mentally retarded children is possible to a certain
extent but functional integration is not possible. Moderate and partially mentally
retarded children require a wide range of services and arrangements at special
schools.
149
Among other recommendations, it is proposed to establish a resource centre
at Islamabad which will provide research facilities, with other centers in the
country.
Self Assessment Questions
Q.No.I For whom are special educational facilities required?
Q.No.2 How do you conceive the socialization process of mentally retarded
persons?
Q.No.3 Go through the facilities mentioned in "Special Education" Add five more
facilities which you consider important to be included.
Q.No.4 "Intermediate and Secondary Board of the Disabled should be a part of
Directorate General of Special Education" please make comments on this
proposal.
Additional reading
Directorate General Education and Care of Handicapped "Report of
of Special Education delegation which visited the U.K, Denmark, Kuwait,
Federal Germany, and India March, 1986.
Activity
1. Select a handicapped child, see his parents and calculate the cost of care at
home for a month.
2. Visit an institution of special education. Calculate the investment per student.
3. Search for a disabled who is employed somewhere. Record his feelings on his
self employment.
150
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152
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