Community Mental Health Services in Latin America For People With Severe Mental Disorders
Community Mental Health Services in Latin America For People With Severe Mental Disorders
Community Mental Health Services in Latin America For People With Severe Mental Disorders
34, No 2
ABSTRACT
Mental disorders are highly prevalent in Latin American countries and exact a
serious emotional toll, yet investment in public mental health remains insufficient.
Most countries of the region have developed national and local initiatives to improve
delivery of mental health services over the last 22 years, following the technical
leadership of the Pan American Health Organization/World Health Organization
(PAHO/WHO). It is especially notable that PAHO/WHO facilitated the development
of national policies and plans, as well as local programs, to deliver specialized
community care for persons with severe mental disorders. Nevertheless, at present,
the majority of Latin American countries maintain a model of services for severe
mental disorders based primarily on psychiatric hospitals that consume most of the
national mental health budget. To accelerate the pace of change, this article
emphasizes the need to develop cross-country regional initiatives that promote
mental health service development, focusing on severe mental disorders. As one
specific example, the authors describe work with RedeAmericas, which has brought
together an interdisciplinary group of international investigators to research regional
approaches and train a new generation of leaders in public mental health. More
generally, four regional strategies are proposed to complement the work of PAHO/
WHO in Latin America: 1) to develop multi-country studies on community services,
2) to study new strategies and interventions in countries with more advanced mental
health services, 3) to strengthen advocacy groups by cross-country interchange, and
4) to develop a network of well-trained leaders to catalyze progress across the
region.
Key Words: Community mental health, community psychiatry, public health, Latin
America, psychiatric epidemiology, global mental health
1
School of Public Health, Medical Faculty, University of Chile, Santiago de Chile, Chile.
2
Department of Epidemiology, Columbia University, New York, NY, USA.
3
New York State Psychiatric Institute, New York, NY, USA.
Corresponding Author Contact Information: Dr. Ezra Susser at [email protected];
Department of Epidemiology, Columbia University, 722 West 168th Street, #720E, New York,
NY 10032, USA.
2 Public Health Reviews, Vol. 34, No 2
INTRODUCTION
The care of people with mental disorders is a growing public health concern
in Latin America. These disorders are highly prevalent and exact a serious
emotional toll on individuals, families, communities and society at large.
Community-based epidemiological studies in this region have estimated
rates of lifetime prevalence of mental disorders among adults ranging from
23.7 percent to 39.1 percent and 12-month prevalence rates ranging from
11.6 percent to 20.1 percent.1 Rodriguez et al estimated that mental and
neurological disorders in Latin America accounted for over 20 percent of
all Disability Adjusted Life Years (DALYs) in 20022; in other words, these
disorders account for over 20 percent of the total “disease burden” in Latin
America. Yet almost all Latin American countries still invest far less in
public mental health than in other public health problems with comparable
disease burden. Moreover, a large part of public mental health resources are
still used to maintain a system of mental hospitals that do not offer
appropriate treatment.
In this paper, we focus on community mental health care for adults with
severe mental disorders in the Latin American region. As in many other
regions, individuals with severe mental disorders comprise a particularly
vulnerable and disadvantaged group whose needs are often overlooked,
whose human rights are often violated, and who do not receive sufficient
services in the communities where they live. We briefly describe the history
of this field, then review its current state, and conclude by offering some
thoughts about future strategies for the development of research, human
capacity, and services. Although other aspects of public mental health in
Latin America are beyond our scope, we believe that they require similar
attention. The countries of the Latin American region, broadly defined, are
many and diverse. Here we focus on countries in which Spanish, Portuguese
or French is the dominant language, and following a common convention,
define them as the 20 countries listed in Appendix 1.
Community Mental Health Services in Latin America 3
HISTORY
The transformation of ideas about mental health care was soon given
concrete expression in policy recommendations of the Pan American
Health Organization/World Health Organization (PAHO/WHO). Arguably,
the landmark event was the Regional Conference for the Restructuring of
Psychiatric Care in Latin America, convened with the support of multiple
global institutions and held in Caracas, Venezuela in 1990. The conference
brought together key stakeholders and generated an influential position
statement, the Caracas Declaration, which set forth the principles that
served as the conceptual framework for the reform movement that unfolded
in Latin America in the ensuing years.11,12 With respect to the development
of community mental health services in Latin America for people with
severe mental disorders, the Caracas Declaration was especially significant
and influential.
In the Caracas Declaration, the conference attendees endorsed a
commitment to transform antiquated hospital-based mental health delivery
systems into comprehensive community care systems. The Declaration
regarded primary care as the main vehicle for delivering mental health
services, also calling for the adoption of the Local Health Systems Model
and the integration of social and health care networks. In addition, the
Declaration called for legislative action aimed at anchoring the reform
process in a legal framework and protecting the human rights of people
with mental health problems.12
The momentum generated in Caracas was sustained through the PAHO/
WHO Initiative for the Restructuring of Psychiatric Services. This Initiative
was also launched in collaboration with a large number of countries,
international organizations, and experts.13 Its primary goal was to promote
and support mental health reform initiatives in Latin America. Furthermore,
the principles of the Caracas Declaration have been ratified, expanded and
operationalized with numerous other political and technical specifications
over the years through additional documents issued by PAHO/WHO, such
as the CD43.R10 Resolution of the PAHO Directive Council in 2001,14 the
Brasilia Principles on the Development of Mental Health Care in the
Americas,15 and the Strategy and Plan of Action on Mental Health approved
by the 49th Directive Council of PAHO in 2009.16 Also, several cross-
country regional initiatives to promote reform along the lines of the Caracas
Agenda were implemented by PAHO/WHO after 2003, including, among
others, the creation of posts of subregional mental health advisers in Central
America, South America, and the English Caribbean, the creation of
subregional mental health forums, and the development and funding of
projects involving several countries.17,18
Community Mental Health Services in Latin America 5
CURRENT STATE
Table 1
Indicators for political will to scale up mental health services
in Latin American Countries
2001 2005 2011
Number of Latin American countries reporting information
18 20 14
to Project Atlas
Countries with a policy sanctioned during the previous 10
40.0 75.0 66.7
years (%)
Countries with a national plan sanctioned during the
47.7 58.3 72.2
previous 10 years (%)
Countries with legislation promulgated during the previous
20.0 45.0 35.3
10 yrs (%)
Countries spending over 1.4% of the total health budget on
25.0 50.0 40.0
mental health
20,21,22
Source: WHO’s Project Atlas: Resources for Mental Health 2001, 2005 and 2011.
The deficiencies in political will are brought into sharper relief when
one considers the financing of mental health services in finer detail. In
Figure 2, countries are divided into low income, lower-middle income,
upper-middle income, and high income. As noted above, most though not
all Latin American countries are classified by the World Bank as lower-
middle or upper-middle income. When Latin American countries are
compared with countries in their same income group, it is evident that they
spend a smaller percentage of their health budget on mental health. The
median percentage in Latin American countries is 1.20 percent in the lower-
middle income group, and 1.52 percent in the upper-middle income group,
compared with 1.90 percent and 2.38 percent respectively for other countries
in these same income groups (see Table 1, Figure 1, and Figure 2).23
Community Mental Health Services in Latin America 7
Fig. 1. Presence of mental health policy, plan and legislation in Latin American
countries and world low-and-middle income (LMIC) and high income countries.
Source: WHO’s Project Atlas: Resources for Mental Health 2011.20,21
We can also apply the WHO Assessment Instrument for Mental Health
Systems (WHO-AIMS) mechanism to contribute to our assessment. The
WHO-AIMS data complement those of WHO Project Atlas described
above; similar to Project Atlas, these data offer only a broad overview but
are currently the best available regional data. The application of the WHO-
AIMS confirms the limitations of political will in the region.24 WHO-AIMS
has revealed that unfortunately some of the national policies, plans and
legislation in this region are not sufficiently explicit to support and facilitate
the delivery of community mental health services. Moreover, even when
they are explicit, their implementation is usually inadequate.
8 Public Health Reviews, Vol. 34, No 2
The pace of change has, however, been very slow in most countries, as
shown in Figure 4. At the national level, only three Latin American
countries, Brazil, Chile and Panama, have truly transformed the mental
hospital-based model.20-22,30-32 The average reduction of mental hospital
beds in the other countries of the region during the past ten years was only
23.9 percent.33-37 In contrast, in Brazil, Chile and Panama, the number of
hospital beds was reduced (for the three countries combined) by 62.2
percent in the last ten years. Brazil and Chile have also developed an
increasing number of community group homes for people with severe
mental disability and low or no family support; there are now more than
two beds per 100,000 people in Brazil32 and more than eight per 100,000
people in Chile.30 In these three countries, there are also users and family
organizations that frequently participate in the elaboration of policies,
plans and legislation. To achieve this change, all three countries have
increased significantly the percentage of public mental health expenditures
allocated to general hospitals, outpatient facilities and community services
(an increase of 67.7 percent in Brazil, 88.0 percent in Chile, and 56.0
percent in Panama). The rates of psychiatric beds in general hospitals,
outpatient facilities and day facilities (day centers and day hospitals) are
two to seven times higher in Brazil, Chile and Panama than in other Latin
American countries (Figure 4 and Table 2).
Table 2
Average number of psychiatric outpatient and day facilities (by 100,000
population) in Latin American countries and level of utilization20-22,30-37
Other Latin American
Brazil, Chile & Panama
countries
Outpatient facilities 1.41 0.72
Outpatient users in one year 1945.65 1389.05
Day facilities 0.36 0.18
Day facilities users in one year 31.45 4.36
have reported promising initial results. Their number is still very limited,
however, and these programs have not yet been adequately evaluated.61,62
There are many new country-specific programs that aim to improve delivery
of mental health services in Latin America. Several of these have been
described above. Looking ahead, we believe it will be equally important to
develop cross-country regional initiatives that promote reform along the
lines of the Caracas Agenda and that complement the regional work of
PAHO/WHO. A welcome recent development is the emergence of some
promising regional initiatives.
Here we describe one new regional initiative in which the authors have
been engaged by way of providing an example. It is known as RedeAmericas
or simply as “RA”.65 The more formal name is RedeAmericas: Network for
Mental Health Research in the Americas. It is one of five such initiatives
that have recently been funded by the National Institute of Mental Health
(NIMH) in Latin America, Africa, and South Asia. RA brings together an
interdisciplinary group of investigators from urban centers in Argentina
(Buenos Aires, Córdoba, and Neuquén), Brazil (Rio de Janeiro), Chile
(Santiago), Colombia (Medellín) and also from New York City in the
United States. Representatives from all sites have decades of experience in
developing and adapting interventions in a Latin American context. The
overarching objective is to improve the conditions of life for people with
mental disorders. Given limited resources, the primary focus of the RA at
present is on adults with severe mental disorders. Its vision is broader,
however, and offshoots are extending the work to children, to adults with
common mental disorders, and to other arenas such as the impact of
violence and civil conflict on mental Health.
The work of RA is built on four key premises. The first is that a regional
approach is feasible and most likely to lead to wide-scale and sustainable
change. Thus approaches need to be developed and tested that are feasible
in many countries in the region and yet can be adapted to local contexts. We
are presently piloting a regionally led randomized controlled trial of a
psychosocial intervention for people with severe mental disorders, Critical
Time Intervention-Task Shifting (CTI-TS), in three cities (Buenos Aires,
Rio de Janeiro, and Santiago). Although adapted from an intervention
previously tested in high income countries as Critical Time Intervention
(CTI),66,67 CTI-TS has been targeted to the Latin American context68,69 and
has been designed so that the same core principles could be applied, with
local adaptation, across many locales in the region.
14 Public Health Reviews, Vol. 34, No 2
CONCLUSION
Appendix 1
Latin American Countries and Classification of Economies
Countries Classification of Economies*
Argentina Upper-middle Income
Bolivia Lower-middle Income
Brazil Upper-middle Income
Chile Upper-middle Income
Colombia Upper-middle Income
Costa Rica Upper-middle Income
Cuba Upper-middle Income
Dominican Republic Upper-middle Income
Ecuador Upper-middle Income
El Salvador Lower-middle Income
Guatemala Lower-middle Income
Haiti Low Income
Honduras Lower-middle Income
Mexico Upper-middle Income
Nicaragua Lower-middle Income
Panama Upper-middle Income
Community Mental Health Services in Latin America 17
REFERENCES
43. De Souza Delfini PS, Sato MT, Antoneli PP, Da Silva Guimaraes PO. Partnership
between psychosocial care center and family health program: the challenge
of a new knowledge construction. Cien Saúde Colet. 2009;14:S1483-92. [In
Portuguese]
44. Aparicio V. Pan American Health Organization/World Health Organization.
Cuba: mental health care and community participation. In: Caldas de Almeida
JM, Cohen A, (editors). Innovative Mental Health Programs in Latin America
and the Caribbean. PAHO/WHO; 2008.
45. León M. Cuba: los centros comunitarios de salud mental. De la ideología a la
práctica. In: Rodríguez J, (editor). Salud Mental en la Comunidad. Washington,
DC: Pan American Health Organization, PALTEX; 2009. [In Spanish]
46. Ginés A, Porciúncula H, Arduino M. El Plan de Salud Mental: veinte años
después. Evolución, perspectivas y prioridades. Rev Psiquiatr Urug. 2005;
69:129-50. [In Spanish]
47. Romano S, Novoa G, Gopar M, Cocco AM, De León B, et al. El trabajo en
equipo: una mirada desde la experiencia en equipos comunitarios de salud
mental. Rev Psiquiatr Urug. 2007;71:135-52. [In Spanish]
48. Minoletti A, Sepulveda R, Horvitz-Lennon M. Twenty years of mental health
policies in Chile: lessons and challenges. Int J Ment Health. 2012;411:21-37.
49. Alvarado R, Minoletti A, Torres González F, Küstner BM, Madariaga C,
Sepúlveda R. Development of community care for people with schizophrenia
in Chile. Int J Ment Health. 2012;41:48-61.
50. Gutiérrez-Maldonado J, Caqueo-Urízar A. Effectiveness of a psycho-
educational intervention for reducing burden in Latin American families of
patients with schizophrenia. Qual Life Res. 2007;16:739-47.
51. Armijo J, Boyd Y, Herrera J. Reestructuración en la atención psiquiátrica: una
experiencia innovadora en Panamá. Cuad. Psiquiatr Comunitaria. 2009;9:147-
53. [In Spanish]
52. Mieses J, GernayJ, Soto I. Programa CLIPLE: Seguimiento de psicóticos en la
comunidad en República Dominicana.Cuad. Psiquiatr Comunitaria. 2009;
9:187-92. [In Spanish]
53. Del Castillo R, Dogmanas D, Villar M. Hacia una rehabilitación psicosocial
integral en el Uruguay. Psicología Conocimiento Sociedad. 2011;4:83-96. [In
Spanish]
54. Ainstein J. Programa vuelta a casa en la provincia de Buenos Aires. Personal
Communication, 2006.
55. Mateus MD, Mari JJ, Delgado PGG, Almeida-Filho N, Barret T, et al. The
mental health system in Brazil: policies and future challenges. Int J Ment
Health Sys. 2008;2:12.
56. Ministerio de Salud de Chile. Norma Técnica sobre Hogares Protegidos.
Santiago, Chile: Ministerio de Salud, Unidad de Salud Mental; 2000. [In
Spanish]
22 Public Health Reviews, Vol. 34, No 2