SIN Newsletter2 V4
SIN Newsletter2 V4
SIN Newsletter2 V4
Colorado
http://www.strengthinnumbers.org/
The Official Newsletter for the Colorado Chapter of Strength in Numbers
Spring 2008
V o l u m e I , I ss u e I I SIN IN THE CITY
By Rod Rushing
Inside this issue
SIN in the City 1 Welcome to the 2nd edition of SINews. The mission of this newsletter
is to provide good solid information regarding accessing treatment,
The History of SIN 1 benefits eligibility, and social events that no doubt will increase the
quality of our lives. There is quite a landscape to navigate being posi-
Update from State Health 2 tive, both emotionally and socially, so I tend to believe that any sup-
port is greatly appreciated. And I am thrilled to pass any of this along
My Favorite Resource 3 to others in my community.
Since I came on board as moderator last August, the group has grown
SIN Computer Help 3 by over 100 and we have begun to enjoy SIN-in-the-City with bi-weekly
brunches, monthly happy hours, and several pot lucks. All of which is
My SIN Story 4 a good start down the path to becoming a community. The number of
gay poz men in the metro area is actually quite large but that number is not always evident. With
Community Educational 5 effort, we can emerge as a strong, colorful, and vibrant tribe of men in our city. With that in mind,
Forums SIN has begun to make friends with a number of businesses in town that support our efforts by
providing a safe space for poz guys to meet, socialize, hold events, and share information and in-
Mayor’s Office of HIV Re- 6 sight. One such event was the UB2 in January at Lannie’s Clocktower Cabaret. There were over 110
sources attendees and it was a huge success. Other events included a singles mixer, 3rd Thursday Happy
Energy Work and HIV 7 Hours, bi-monthly Coffee Talk gatherings at Hamburger Mary’s, and the monthly educational fo-
rums.
SIN Crap 8
(Continued on page 3)
My Tribe 8
The Yogettes 9
T H E H I S T O RY OF THE FOUNDING
OF STRENGTH I N N U M B E R S By Jude Fisher
The Second Closet 10
It’s Baaaack. . . 11
Bryan Levinson is ready to take on the world. His social networking
Shadowcliff Update 12
organization, Strength In Numbers (SIN,) has carved out a place for
The Bumpy Night 13 itself in the US among an endless and ongoing number of social and
support groups that have been coming on the scene since the arri-
Resource Page 15 val of AIDS and HIV in the 1980’s. In the spirit of moving onwards
and upwards Levinson has already began expanding his organization’s appeal by taking it to a
Upcoming Events 16 global audience.
Levinson, who tested positive in 2000, started SIN five years ago in Los Angeles after attending
MISSION STATEMENT various social and dating events organized especially for people with HIV and AIDS. “I attended
The mission of Strength In Numbers is to pro-
because I didn’t want to feel alone.” Says Levinson. “It was at a time when I was still newly diag-
vide social support and educational resources to nosed and wanted to find a boyfriend.” Levinson recalls that “some of the events were set up like
HIV+ gay men around the world thereby helping
to improve their quality of life, quality of health
speed dating or mini dates where you would chat with several assigned candidates over the course
and their ability to help others. Our activities of the evening. I always found this a bit formal and since everyone hates interviews why would you
include operation of an interactive Internet-based
communications system, development of pro- want to do that on a date?”
grams that increase self-esteem and social inter-
action skills, organization and guidance of
While volunteering at different HIV and AIDS organizations Levinson made friends with several guys
activities that increase physical abilities, and and decided to put together something a little more casual. He organized a potluck evening and
promoting volunteer opportunities by our mem-
bers in HIV-related efforts including fundraising
between 50 and 60 people turned out for his first event. The gathering eventually became a weekly
for treatment services and research (such as AIDS thing and the group’s list of activities expanded to include weekly breakfasts, hikes, whitewater
Walks and the California AIDS Life/Cycle) and
HIV prevention campaigns. (Continued on page 4)
http://www.strengthinnumbers.org/
Strength in Numbers Page 2
F RO M S T A T E H E A LT H
By Todd Grove
tions (such as Nexium), diabetic treatments care participants only). BTGC will now pay all
and supplies, antibiotics, anti-diarrheal medi- eligible participants prescription drug plan
cations, smoking cessation treatment (PDP) premiums, co-pays, deductibles, as
(Chantix), birth control items, and testoster- well as the “coverage gap” fees that all plans
one therapies. The ADAP can also pay for will have this year. Basically, if you qualify,
several vaccines and inoculations. Recently, you will have no cost associated with any
the ADAP Review Committee has recom- medication that is on your chosen PDP from
mended that Hepatitis C treatments such as January 1st, 2008 until you reach the far
interferon treatment should be added. I will side of the coverage gap. BTGC will pay all of
update you if the recommendation is ap- these fees (which can amount to over
Hello! My name is Todd Grove, and I work proved. $5,400) for you until you reach the
with the Ryan White Part B Program at the “catastrophic level” on your plan. Since the
Colorado Department of Public Health and Insurance Information: last SIN newsletter, we have decided we will
Environment (CDPHE). I write an occasional The insurance continuation program has also pay the 5% co-pay for any ADAP medica-
article for the Strength in Numbers newslet- been seeing a large increase of enrollees tion at the catastrophic level.
ter detailing information from our program over the last several months. If you, a partner I have spoken to many people who have told
that you may use if you are a person living or family member are working, and can ac- me that this program has greatly improved
with HIV/AIDS in Colorado. I have had the cess insurance through an employer on your their ability to manage the costs of medica-
opportunity to meet several people through behalf (or a COBRA policy through a former tions. Some have even told me that they are
SIN that were either not aware of some of our employer), this program may be for you. now taking medicines that they used to skip
statewide programs, or misunderstood the If you have ever checked into private insur- due to the cost. We realize there have been
eligibility requirements. In several instances, ance and thought that the only way you could some glitches getting this program off the
we were able to work together to help con- receive it is through Cover Colorado ground, but we’re very proud of it and are
nect them with medications, insurance, and (Colorado’s only insurance intended for peo- considering greatly expanding the number of
medical care through our department, ple with major chronic or acute illness), pharmacies that will accept the BTGC card in
through the Denver Mayors Office of HIV Re- here’s some interesting information: If you the new plan year, beginning January 1,
sources, through other Ryan White funded are self -employed, or if you have a company 2009. We are currently negotiating with an
providers. If you are not in case management of two or more employees (or can form one), additional Denver area pharmacy to join
at any of the local HIV/AIDS service provid- you may be eligible to enroll in private insur- BTGC within the next month for those who
ers, I strongly encourage you to do sign up. It ance without a provision that denies you you who do not get care at Denver Health or
is not required that you be case-managed in coverage due to a preexisting condition University and are now required to use mail-
order to access most forms of assistance (insurance companies can deny individual order service from the Apothecary for your
available, however. coverage to anyone for this reason). If you medications.
think this may be relevant to your situation,
ADAP ADDITIONS: check with a private insurance broker in your
If you are not enrolled in our program yet,
Since the last SIN newsletter, there have area and discuss your options. If you find please see our website (www.stdhivco.org)
been several new medications added to the such private insurance that works for you, for more information, or contact me directly
AIDS Drug Assistance Program (ADAP) formu- our insurance program may also be able to at CDPHE. Please note you need to continue
lary for complications of HIV. If you have had pay for such policies if you are eligible. For to be enrolled in ADAP to participate.
difficulty accessing any of these medications information about the insurance program for
in the past and are on ADAP, please speak to those of you who live in the Denver metro
Until next time, be well!
your doctor or pharmacist at an ADAP phar- area, contact Colorado AIDS Project (303-
macy. If you're not enrolled in ADAP, and 837-0166). Other enrollment agencies are
want more information, see our website listed on our website (www.stdhivco.org).
(www.stdhivco.org), or call Santos Rivera, the
ADAP enrollment coordinator, at 303-692- Bridging the Gap— Update:
2716. Over 480 PLWHA who have Medicare, either Todd Grove - Project Administrator
because they’ve reached retirement age, or DCEED – STD/HIV Ryan White Part B
Psychotropic medications: 3835
have SSI or SSDI, and were in the ADAP have
• Depakote, Remeron, Celexa, Zolofta, joined the new State Pharmaceutical Assis- 4300 Cherry Creek Drive South
Zyprexa, Risperdal and Geodon) tance Program, “Bridging the Gap, Colorado” Denver, CO 80246
Antihypertensives: (BTGC), since it began in January. CPDHE and (303) 692-2783
the ADAP Review Committee established this [email protected]
• Lisinopril, Hydrochlorothiazide, Atenolol, program as a way to help Medicare Part D-
Metoprotol, Cozar eligible ADAP participants pay for their medi-
Cholesterol Treatments: cations. Members need to use an ADAP quali-
fied pharmacy (Denver Health, University
• Gemfibrozil, Lipitor, Lescol and Crestor Hospital, the Apothecary for mail order pre-
Also included were gastrointestinal medica- scriptions, and Kaiser Permanente for Medi-
Strength in Numbers Page 3
M Y F AV O R I T E R E S O U R C E
D E N V E R I N F E C T I O U S D I S E A S E C O N S U LT A N T S ;
A P E R S O N A L 1 0 - Y E A R E X P E R I E N C E By Rick Smith
While I still do not care for the name of this clinic -- Denver Infectious Disease Consultants (DIDC)-- it is, in my
opinion, the best place for a person with HIV/AIDS to receive compassionate, quality medical care in the Denver
area, if not the world. The name of the clinic could provoke a prejudiced response from those not familiar with
DIDC or the HIV/AIDS community. In fact, I once had my doctor write a letter for me without the clinic name on
the letterhead so as to avoid an insensitive response.
I first approached DIDC In 1997, when I scheduled a time to interview a potential HIV doc for me. I had just relo-
cated to Denver from a small mountain community, 35 miles west of Denver, and my HIV had then converted to full blown AIDS. “Interview a
potential doctor?” you ask, and my answer would be an emphatic Yes! I felt then, and still do feel that we all need to take control of our
medical care, and who better than me to make the decision about who will provide my care?
On my first visit, I was introduced to Benjamin Young, M.D. who, when we met, insisted I call him Ben, and not Dr. Young. That took some
getting used to, but now-- 10 years later-- it comes naturally to me now and I consider him to be a good friend.
Ben spent over an hour with me that first day and was gracious enough to give me candid answers to questions that some docs might have
viewed as difficult, even somewhat intimidating. I asked him about everything— his training, his background, his personal life, his spiritual
life, and about how he would help me stay empowered in the medical decisions that could ultimately affect my life. I must say he did win me
over with his well-thought-out but natural and candid answers to my many questions. At that initial interview, I brought along some informa-
tion about HIV that I’d found on the Internet. He told me that eventually I would probably know more about HIV than he/him, because he
could see that I took the diagnosis and treatment very seriously. The Internet remains my best tool for getting needed information, besides
Ben Young and his associates.
Although I don't feel that I know more about HIV than Ben, I do feel that I am better informed about treatment issues, including the drug
resistance often associated with long term treatment. Additionally, because of my involvement with DIDC I have been introduced to the Sun
Study, a study for those who are HIV+ and on treatment who are willing to go through a series of scans for bone health, fat distribution, and
cardiac status, as well as undergo anal pap smears and answer a series of boring questions about one's sexual encounters. Not that my sex
life is boring, but the questions are boring and rather clinical, it being a clinical trial, after all. They also have a computerized memory test
(Continued on page 5)
—Chuck
Chuck with one of his first “snuggle buddies”
H I S T O RY OF SIN (CONT.)
(Continued from page 1)
rafting trips and fund-raising events to help other organizations. Levinson is quick to point out that “SIN is not a new idea or concept, just a
format that works - it can be easily replicated in other cities.”
The SIN gatherings were becoming well known among the HIV community in Los Angeles, where Levinson was living at the time and the
word about SIN was spreading. Bryan was soon contacted by someone in Phoenix who wanted to start a SIN group in that city. With Levin-
son’s guidance and direction more groups were started in different US cities under the SIN umbrella and the organization has been growing
at a steady pace ever since. There are 31 US chapters including a new chapter in Napa, California but where Levinson is spending more and
more of his efforts is helping to develop SIN in other countries. There are now several international chapters of SIN in cities including Lon-
don, Sydney, Toronto and Rio De Janeiro. A Scandinavian chapter has also recently been started.
Part of SIN’s success and growth can be attributed to its simple structure. It doesn’t have a lot of rules or mandatory do’s and don’ts. “We
don’t have committees or board members. I think when organizations become too bureaucratic, especially a less formal organization like
SIN, they are less likely to succeed.” Levinson has learned over the years that new chapters will only succeed if there is a lot of initial in-
volvement from the chapter leader. So he puts anyone who wants to start a new chapter through a pretty rigorous interview process and
insists on a commitment of at least a year before the reins can be handed over to others. “Once a chapter is created and is up and running,
they pretty much take care of themselves. They might come to me with general guidance questions but mostly we just give each other sup-
port. We’re kinda like a big family.”
The Internet has played a large part in helping to broaden to organization’s horizons and Levinson definitely wants to continue to take ad-
vantage of it. It’s been a valuable tool in helping to extend SIN to countries outside the US. SIN members in US cities, such as Wayne Nor-
man who runs the Dallas/Ft. Worth chapter, help with outreach programs to establish new SIN chapters in other countries. As part of this
outreach Levinson is planning to take a trip to Brazil in 2008 with several US SIN members with the goal of more firmly establishing it’s
roots in South America and leveraging the help of it’s Brazilian brothers to help with the task. “We want to be in less developed countries
where there are large populations of gay men who are positive but who don’t have access to services that are available in more developed
countries.
As Levinson is finding out, expanding with such lofty goals brings its own set of challenges. Communicating with new chapters in foreign
countries can be difficult because of the language barrier. Levinson is already brushing–up on his Portuguese in preparation for future de-
velopment of SIN in Brazil. Workload is also another challenge. Levinson, who now lives in San Francisco, has a full-time job so juggling his
career, SIN and any kind of a personal life can be difficult.
It’s not stopping him though, with discussions underway for start-up chapters for women who are HIV positive and another one for HIV posi-
tive gay men in the US prison system, it seems like the world may not be enough.
Strength in Numbers Page 5
C O M M U N I T Y E D U C AT I O N A L F O RU M S
The educational
forums are infor- Upcoming Education Forums*:
mative and useful June 17th
presentations on A thorough outline of all the various services available to peo-
HIV and HIV- ple with HIV, how to qualify and how to hook in (presented by a
related topics and panel of individuals involved in HIV services).
are organized &
conducted with July 15th
the belief that “Beyond Survival: A Breakthrough in Well-Being” (practical
k n o wl e d g e is health tips from a long term survivor) presented by Nelson Ver-
power. The fo- gel from the Program for Wellness Restoration in Houston.
rums also afford Nelson also moderates the largest poz yahoogroup, and is co-
an opportunity for author of the book “Built to Survive”.
poz people to Aug. 12th
socialize and net- Community Potluck BBQ in Cheesman Park (in lieu of forum).
work. The forums are usually held on the second or third Tuesday of Watch for details.
each month in the community room at Our Saviors Lutheran
Church, 9th & Emerson St. A free catered dinner is served at 6:00 Sept. 9th
pm and the presentations begin at 6:30 pm. The educational forums “Drug Resistance and Resistance Development”
are coordinated each month by a small group of individuals (also The rest of the autumn is unplanned, and we welcome your
living with HIV) who are not associated with an agency (hence the ideas and input. If you would like to be placed on the e-mail list
motto: “by the community, for the community”). We welcome volun- to receive a monthly notification, please request to be added to
teers and participants in this effort. If you would like to help out with the list by sending an e-mail to: [email protected]
planning and/or occasional set up or clean up, please contact
Michael at: *All forums are subject to change. Check the SIN website -calendar sec-
tion- for updates
[email protected]
M Y F AV O R I T E R E S O U R C E ( C O N T . )
(Continued from page 3)
E N E RG Y W O R K A N D HIV
By Craig Chapin
When Rod ask me to write an article about Energy Work and HIV for the SIN newsletter, I thought I would be
able to crank it out in no time. However, after many failed attempts, I have chosen to tell my story.
In June 2001 I tested positive for HIV. I was the Director of HIV Prevention at an AIDS Service Organization at
the time, so I tested myself. I was overwhelmed with guilt and shame and felt that I could not let anyone know I
was POZ, as it was my job to help all my “boys” to remain HIV negative— something I could not even do for
myself. I started medical care immediately, but taking care of the emotional part of being POZ was not some-
thing that I was able to do at that time. For the next two months, I went on with my life as if nothing had
changed, at least as far as my friends knew.
In August of that year, I had a wonderful experience at a street fair. I was aimlessly walking around the booths,
taking in what the fair had to offer, when all at once my attention was drawn to one booth in particular. As I walked toward it, I noticed a man
standing, holding his hands over a woman on a massage table, and I could feel this wonderful energy that he was sharing with her. My first
thought was, “I need to experience that energy and how can I do this for myself?” At that moment the man turned to me, nodded and
smiled. Without uttering a word, he seemed to be saying, “there you are” and “yes, I will share this energy with you.” Then he turned back to
the woman he was working with.
I started looking at the other booths, not wanting to go too far away, as I needed to talk to him and find out what just happened. About ten
minutes later I saw the woman he’d been working on walk away with a beautiful aura surrounding her. I wasted no time going over and intro-
ducing myself and finding out what it was that he did. His name was Michael and he explained that he’d been doing Usui Tibetan Reiki en-
ergy work. He then asked me to lay on the table so that he could perform some Reiki on me. It was an experience that I will never forget.
After fifteen minutes of receiving Reiki, I knew that it was something that I need to learn so that I could start taking care of myself. Michael
and I set a time to meet so that I could begin my Reiki training.
The word Reiki is made up of two Japanese words: Rei, or universal spirit, and ki, (like Chi, in Chinese medicine.) Thus, the word Reiki means
"universal life energy." Reiki is preformed by the practitioner placing his or her hands a few inches above the recipient’s body and letting the
universal energy flow in to the body. It is important for the person receiving Reiki to state a healing inten-
tion of what he would like to get from the Reiki session. Reiki is very difficult to explain; it is much better to
experience it firsthand to gain an understanding. Two good websites I’ve found on the subject are:
http://reiki.7gen.com/
and
http://nccam.nih.gov/health/reiki/.
I use Reiki in my daily life to help reduce every day stresses, keep my viral load in control, and to check in
with my physical and emotional body so that I better able to help myself and others. Since my first experi-
ence with Reiki at the street fair, I’ve continued to study Reiki daily and have received four attunements,
to become a Reiki Master/Teacher. I addition, I have become a Certified Massage Therapist. The massage
and Reiki compliment each other greatly. In my business, many of my clients do a combination of Reiki
and massage. They find that the two together do a better job of relieving muscle stress and tension, and Divine Light Reiki &
they have more energy afterwards. Massage
If you have any questions about Reiki, please feel free to contact me. 6 0 5 ½ S o uth College Ave.
F o r t C o l l in s , C O 8 0 5 2 4
Be Peace -Craig
r e i k i c r a i g @ h o t m a i l . c om
I ’ V E F I N A L LY F O U N D M Y T R I B E By Jeff Willett
I heard of this group called Strength in Numbers (SIN) over a year and a half ago; but I was hesitant to join in the
activities. Sure I always had an excuse; something else to do. But as I think about it, this is what I’ve been
searching for all of my life.
When I came out of the closet, as a gay man, I had visions of a welcoming committee; a group of hundreds of
gay men standing there, with arms wide open, welcoming me to the group of enlightened people. Well that
never happened! So, then I picked up the gay newspaper and tried to find a group that I could belong to.
As I scanned down the list of groups, I concluded that I couldn’t go to gay Alcoholic’s Anonymous (hadn’t drunk
enough yet), I had no interest in being a Drag Queen, I didn’t have the vehicle for the 4-wheeling group, I wasn’t
a Buddhist vegetarian and I was too young to be playing checkers with the retirees. These are all great groups;
but as I searched through the whole list I couldn’t find a place where I belonged.
And then I noticed that all of the gay ethnic groups had a strong sense of community and belonging. The Hispan-
ics, African Americans, Native Americans and Asians all had their own group to go to. But where is the Regular
Average Guy (RAG) group?
So, finding SIN is finding the social group that I’ve been searching for! SIN is a melting pot of all ethnicities and interest groups. But the
thing that binds us together is that we are gay/bi men who are HIV POZ and come together with a social agenda.
Having HIV is a major life changing event and not normally a reason to celebrate. But it’s something that we all have in common. We’ve
learned how to get through the tough times and we’ve become stronger on our own. But when we’re all together at a SIN event, there’s
even greater strength in numbers.
When you attend a SIN activity, you have the opportunity to both give and receive strength in the knowledge of someone who’s overcome
what seemed to be an insurmountable mountain. And sometimes, it’s just great to relax, laugh and forget for a moment that we have a
chronic illness.
A tribe is not just a group of people with ethnic ties. A tribe is also defined as “a class or set of persons, esp. one with strong common
traits or interests or a large family.”
Now that’s what SIN is all about! I’ve finally found my tribe! I am a part of a large family. See you at the next event! —-Jeff
Strength in Numbers Page 9
Ow!!
IT’S BAAAACCK.. . .
!@*!#%!!
MY EXPERIENCE WITH SYPHILIS
By Chris Kenry
In case you haven't noticed the billboards, and signs on busses, syphilis is back.
I'm not sure it ever really went away, but I'm here to tell you that it is, most cer-
tainly out there. I am also here to tell you that you definitely don't want it and
should probably take some steps to avoid getting it, unless you want to endure
the hassle and humiliation described below.
Initially, I went to the doctor because I thought I was having a really persistent
outbreak of herpes (yeah, I've got that, too. Makes me a real catch, I know).
Anyway, the doctor looked at the sore on my dick and said, "why don't we run
some tests for other STDs."
A few days later he called to say that the tests for Chlamydia and gonorrhea
were negative, but the one for syphilis had come back positive.
Great, I thought. No big deal. A course of antibiotics and I'll be done with it. Unfortunately, treatment of syphilis in HIV+ patients is not quite
so simple, and success depends on the strength of the immune system as much as it does on antibiotic effect. For me, it was determined
that I would need a 3-week course of oral antibiotics, two pills, twice a day, which wasn't great since I'm not wild about having to remember
to take an additional set of pills in addition to all the others, but it seemed doable.
It wasn't.
I had an adverse reaction to this particular flavor of antibiotics and it left me nauseous to the point of vomiting, and generally feeling like I
had the Mother of all hangovers. Three weeks of that was not going to happen so I called the doctor and was told that the only alternative
was to get three rounds of penicillin injections, spread out over a period of three weeks.
Three little shots. Again, no big deal. Whatever it takes to get rid of the oozing sore on my dick.
Well, it was a big deal. A very big deal. I arrived on a Friday for the first round of shots and was told by the doctor that he wanted the interns
to give the injections, "so that they can get the practice."
Practice? How hard can it be to give someone a shot in the ass?
"These shots are different," he said, and then went on to describe the stuff they were going to inject as having "the consistency of cake frost-
ing. They really have to jam it in there," he said, miming something out of a brutal fisting movie.
Not since Bill Clinton met Monica Lewinsky has someone so regretted contact with interns. There were three of them, all prim and virginal,
and probably too young to legally buy alcohol. First, I heard their tittering teenage giggles in the hallway as I waited in the examination room,
then they entered and I suffered the considerable embarrassment of having to drop my pants in front of these barely post-pubescent girls.
And then, the pain. Jesus H. Christ did it hurt! And from the horrified gasps and expressions of "Oh my God!" that came from the interns, I
gather that it was none too pretty to look at, either.
The thing about intramuscularly injected penicillin is that it is designed to be released into the bloodstream over time (hence the cake frost-
ing consistency) and so it balls up in the muscle when they inject it. It hurts, to say the least, and I broke into a cold sweat when they in-
jected it, and I cried real tears. And that was just after the first shot. Then they nailed me with another one in the other cheek and I came
close to passing out. When it was over, I pulled up my pants and walked out to my truck, feeling like I'd just spent several days riding across
bumpy terrain (dare I say "bareback") on a pack mule. Nor did the pain stop once I got to the truck. I rolled up the windows, howled a stream
of four-letter words, and banged my fists on the steering wheel. Eventually the pain died down enought that I could drive back to work, but it
certainly didn't go away-- for three days! When I got home that night, my ass felt like I had spent the better part of the day doing squats and
lunges, followed by a severe and lengthy spanking with a fraternity paddle. It hurt so bad that the only comfortable way I could sit down was
to perch on the edge of a chair. And laying in bed was even worse as the pain would come back each time I rolled one way or the other.
A friend of mine who spent years overseas in the army told me that army doctors used to give penicillin to anyone who whined or com-
plained about anything, not because penicillin was some magical cure-all, but because the injection hurt so much that it would make them
think twice about whining and complaining the next time. It's a skewed logic, of course, but now makes perfect sense to me.
So, this all leads, as T.S. Eliot said, " to an overwhelming question … " Why go through all this shit? I've already got HIV. And herpes. And
have had my share of crabs, non-gonnochocal urethritis, etc. Why subject myself (not to mention others) to this? Why do I never learn? Why
do I always think that this guy's dick, or ass, or mouth is somehow going to be better, or more fascinating, than all the rest? Why do I find it
so difficult to actually put on a condom? The possible answers probably run into the hundreds and range from indifference and despair, to
selfishness and, yes, to a bit of an addiction. But honestly, most of my sleeping around is a clumsy attempt to find a place where I feel I be-
long. At times I've felt that being gay has marginalized me, or enclosed me in a circle. And having HIV, too, is like being enclosed in a smaller
circle within that circle, in which it seems like no one wants to touch you. How many of us can honestly say we haven't bristled with indigna-
tion when we read personal ads that say "D&D free only." Or worse, "Looking for someone clean," the implication being that HIV makes you
somehow dirty. Of course, if I were on the other side of the HIV fence, I would probably be the one posting such ads but, nevertheless, read-
ing things like that can really throw me into a state of existential despair. A state in which it is difficult, if not impossible, to give a shit about
myself, let alone my fellow man. And that, in turn, leads me recklessly out into the streets, not giving a damn about what's out there.
And maybe that's where Strength in Numbers comes in—as a place where I don't have to feel shame about what I've got. A place where I can
feel a part of something instead of feeling apart from everything— included rather than excluded. Sometimes I guess it takes a shot in the
ass (or in this case, six) to realize how important that really is. —Chris
Strength in Numbers Page 12
Shadowcliff is an historic,
S H A D OW C L I F F R E T R E A T S —2008
rustic, & beautiful alpine
lodge bordering Rocky The 2008 HIV Retreats are June 19-22 and July 17-20. The retreats are 3-day events with a full program of
Mountain National Park, interactive workshops & educational seminars, a variety of body therapies, social activities, and various other
Arapaho Forest, Indian sessions. Their purpose is to offer a proactive environment where poz folks can empower themselves with
Peaks Wilderness Area, knowledge and skills about health, living, and coping in a setting of friendship, safety and acceptance by pro-
and the roaring North Inlet viding an affordable 3-day mountain getaway in an awesome setting with a full
Stream. Perched on a cliff agenda of educational, social, and other activities.
overlooking Grand Lake Shadowcliff has a main lodge with a lounge, an annex lodge with a lounge for
Village and the Colorado body therapies, an outdoor area with a fire pit, and another building for work-
"Great Lakes" area, Shad- shops and group sessions. Our retreat has exclusive use of all buildings & facili-
owcliff treats its guests to ties the entire weekend. Sessions for both retreats this year include "Living Well
the magnificent grandeur with HIV, Not Just Longer" presented by Lark Lands; a treatment update by Ben
of the majestic Colorado Young MD in June and by Steve Johnson MD in July; "Creative Visualization"; a
Rocky Mountains. The nutrition workshop; HIV Jeopardy & Wheel of Fortune; and a crash course on
lodge was built over a 40 the pine beetles & sustainability. A variety of body therapies are provided by
year period by volunteers licensed practitioners who volunteer their time all weekend. These include Mas-
from 30 different coun- sage, Energy Work, Acupuncture, Reflexology, and Chiropractic. Each morning
tries, on land that is sacred we offer brief sessions of Yoga, Meditation, T'ai Ji, and Chi Gong. There are na-
to the Native American ture walks in the area, hikes in Rocky Mountain National Park (trailheads are
community. The retreat adjacent to the property), a boat ride on Grand Lake, fireside chats & discus-
was founded in 1990 by sion groups, an interactive team challenge, as well as "down time" for hanging
Pat & Warren Rempel, to
out, socializing, reading, games, or just relaxing and taking in the beauty of the environs.
honor their son Scott who
died of AIDS in 1989. The The base cost is $80 (which includes 3 days lodging, all meals, body therapies, and all activities). Each retreat
Lodge is now owned and is limited to 40 participants and 10 volunteers. The retreat prohibits the use of alcohol and illegal drugs (both
operated by a non-profit on and off property). Shadowcliff is a non-smoking facility both inside and outside, but there is a designated
organization whose mis- smoking area down the road off the property. To ensure that everyone is able to attend, we organize a carpool
sion centers around sus- that leaves from a convenient location in Denver at 10 am on Thursday morning. With good traffic, the trip
tainability education and takes 2 hours, and detailed driving directions are provided for everyone.
creating a climate for a Registration forms are available (as a Word doc) by sending an e-mail to: [email protected] (you may
restorative world. also request one by mail at: 303.587.0233). For more information, visit: www.shadowcliffretreat.blogspot.com
(or call Michael at: 303.587.0233).
Strength in Numbers Page 13
In the first and vitally important issue of the SIN newsletter last December, I promised that this column
would focus on HIV/AIDS public policy and political developments as we were about to start the 2008
Colorado Legislative Session. Well, the session that was on the verge of starting then has concluded
now, and this legislative session like all the legislative sessions going back to 1986 (royally) substanti-
ates, in my view, the concept that our communities' interests are best served by full-time representa-
tion of a Person Living With HIV/AIDS working in conjunction with the organizations that, statewide,
serve our communities which are represented by Colorado Organizations Responding to AIDS (CORA).
The representation of our interests by a person experiencing living with HIV/AIDS is what I have worked
to provide with various sets of colleagues and dear friends over a span of nearly twenty-two years,
now. And in this second, and very encouraging, issue of the SIN newsletter for which we have Rod
Rushing and hard working SIN volunteers to thank (Rod has the patience of Job), I provide part 1 of my
report as to the most salient developments of the Colorado Legislative Session of this year.
The State legislative session ended relatively well in terms of results. We'll commence with HB 1072:
"Concerning Employment Incentives for Persons With Disabilities Through A Medicaid Buy-In Program,"
one of two bills that represented the highest legislative priorities for the the HIV/AIDS Communities in
the 2008 legislative session, which passed both Houses of the Legislature and is headed to the Governor for signing. I fervently hope that
he does so and I believe you'll agree as you read what this legislation creates. HB 1072 would make possible the option of returning to work
for Persons Living With HIV/AIDS and other disabilities enrolled in Colorado Medicaid without putting their Medicaid participation and eligibil-
ity at risk by establishing a Medicaid Buy-In program.
Presently, serious, programmatic structural impediments exist in Colorado Medicaid related law, rules, and regulations inhibiting Persons
with Disabilities including Persons Living With HIV/AIDS who are on Medicaid from returning to work as "medically improved" individuals. For
Persons With Disabilities and HIV/AIDS on Colorado Medicaid, returning to work could now, all too easily, lead to the loss of Medicaid-
eligibile status and, from there, the loss of the unique, crucial components of health-care provided by Medicaid, such as attendant-care sup-
port services and durable medical equipment provision, that virtually no typical health insurance plan provides. For many Persons with Dis-
abilities on Medicaid, these components of care - including, for example, prescription drug coverage so critical to Persons Living With
HIV/AIDS on antiretroviral drugs - signify the difference literally between life and death. Losing Medicaid eligibility for these components of
care in an effort to return to working-- an effort made possible by becoming "medically improved" because of receiving health-care through
the Medicaid program in the first place-- would be no less than a devastating reversal for Persons With Disabilities and HIV/AIDS, of course,
and ultimately would cause an affected person not to be able to continue working due to the loss of access to Medicaid-provided medical
services, and the deterioration of health and well-being that would result. If you perceive in this scenario a circular, bedevilling, even agoniz-
ing Catch-22 for the disabled on Colorado Medicaid who want to try going back to work with their stabilized health, you would be correct. The
Medicaid Buy-In program proposes to change all this for the better by eliminating the current set of impediments to efforts on the part of the
disabled on Colorado Medicaid to return to working.
As a direct result of the problems HB 1072 would address, many Persons With Disabilities and HIV/AIDS who would like to work are unable
to do so and, instead, spend their lives simply rotting away, unable potentially to improve their all-too-often painful economic plights and,
moreover, to lead creative, productive, fulfilling lives. Thirty-eight other states have various formats of a Medicaid Buy-In program for these
reasons, and we have needed one in Colorado since, well, forever. This bill specifically puts into motion Phases I and II of the process of
implementation of the Medicaid Buy-In program, and paves the way for ultimate operational implementation without the severe constraint of
budget neutrality that plagued the two, historic bills attempting to establish a Medicaid Buy-In program approved by the State Legislature
years ago (the first one over TEN years ago) which rendered them essentially useless. This format of Medicaid Buy-In legislation WITHOUT
budget neutrality, indeed, has been a long time in the "making," but the absence of budget neutrality this time around has fiscal implications
that had to be cleared with the Legislature. And without the efforts of our Community, no question about it, HB1072 would have been lost
specifically in the House Appropriations Committee, a key step in the legislative process involving the funding of the Program by the State
Legislature. It took a lot of work to save the bill, but the effort, of course, was well worth it given all the "disability folks" (thousands, literally)
and the 500 - 800 Persons Living With HIV on Colorado Medicaid who could benefit. In the Senate, our community was able to effect an
important amendment relating to program eligibility and obviating a need mandated in the original version of HB 1072 to spend-down cer-
tain of one's assets and their related income before being able to qualify for the Program.
HB 1390: "Concerning The Cover Colorado Program," which is the health insurance program in our state for persons with medical conditions
of a chronic or terminal nature that renders them significantly uninsurable, also passed the Legislature and is expected to be signed by the
Governor. Primarily, this legislation seeks to stabilize the funding sources sustaining this important health insurance program for largely
uninsurable persons such as Persons Living With HIV/AIDS who, otherwise without this program, would be compelled circumstantially to
support all their medical care and expenses out-of-pocket-- a daunting challenge, indeed! Now Cover Colorado, in my view, and the view of
others, is beset with problems relating to affordability due to the premiums, deductibles, and co-pays being comparatively very high, making
the program inaccessible to many who otherwise would qualify for, and need it acutely. The program also has a problematic, individual life-
time cap on costs and outlays of $1.million. HB 1390 crucially sets the stage for going to the Cover Colorado Board of Directors and petition-
ing them to raise the life-time cap on benefits from the current $1.million to $1.5 million or $2.million. One of the principle arguments in
favor is that the current cap has been in place since the program's inception in 1990 and has never been adjusted upward to account for
the medical rate of inflation that has accrued since. From l990 to 2008, that's a lot of medical inflation not taken into account for persons
on the program who have high cost medical conditions! We are looking forward to furthering the conversation on the subject of the life-time
cost cap, and the issues relating to affordability, with the Board of Directors beyond the pointed testimony provided with regard to these
issues in the House Business Affairs and Labor Committee when HB 1390 was presented, there.
In the closing days of the Legislative Session, we were able to have approved a "clear" path to the potential establishment of an office of
State Insurance Consumer Ombudsman in the Colorado Division of Insurance/Department of Regulatory Agencies (of which the Division of
Insurance is a part) over the objections of the insurance industry and its forty-two lobbyists. They SWARMED us and the legislators trying to
fight-off the amendment to HB 1216: "Concerning The Creation Of The Consumer Outreach and Education Program Within The Department
Of Regulatory Agencies" creating this position/office, an extremely important office to defend the interests of virtually ALL insurance con-
sumers in Colorado. We had "won" with regard to our original (and ideally crafted and phrased by Senator Bob Hagedorn, the amendment's
sponsor) amendment and the battle in support of it against the insurance industry outright, with the amended bill (sponsored by Senator
Chris Romer and Representative Mark Ferrandino) passed out of the Senate on 3rd reading by a vote of 20 - 15 (the bill had already passed
through the House). But the insurance industry threw a FIT and did so with the Chair of the Joint Budget Committee (a member of the
House, this year) who, we believe, then went to the Senate leadership and compelled the recall to the Senate of HB 1216 as amended, in an
extremely rare maneuver to modify the amendment for the insurance ombudsman to a version that the insurance industry could point to
and "save face," exceedingly frustrating(!). We had, to that moment, every reasonable expectation to believe that we had succeeded out-
right. Still, we did so to a significant degree despite their efforts against the idea of this office on behalf of consumers. The Insurance indus-
try was seething, and the fight took both sets of parties (our four advocates to their forty-two or so lobbyists) right up to the moment the Leg-
islative Session ended on Tuesday evening, May 6th.
There's plenty more to summarize and digest concerning the Legislative Session and its results, especially in terms of broad efforts toward
health-care reform culminating in SB 217: "Centennial Care (health-care) Choices" in its final, amended form, and with regard to HB 1389:
"Concerning Increased Oversight of Health Insurance Rates," a hugely important piece of legislation with impact affecting truly much of the
population of Colorado in terms of health insurance rate regulation. However, this report to this point is all this writer has the strength,
health, and stamina to write, just now, in the aftermath of the Colorado Legislative Session of 2008. I'm exhausted(!), so please under-
stand. In the next issue of the SIN newsletter, this report will be completed, including a report on the reauthorization of the Ryan White Care
Act which affects so many of us as Persons Living With HIV/AIDS in a spectrum of ways from primary health care and the provision of antiret-
roviral drugs to housing. Meanwhile, take care and have a terrific Summer.
Arthur Powers, Managing Director, THRIVE: The Persons Living With HIV/AIDS Initiative of Colorado
[email protected]
AIDS Drug Assistance Program ARTS (Addiction Research and Treat- Children's Hospital HIV Program
303.692.2783 ment Services) 303.764.8233
http://www.atdn.org/access/states/co/ 303.355.1014 http://www.chipteam.org
co.html http://www.artstreatment.com
VETERAN’S SERVICES
The American Legion Department of Colorado
John McCartney, Department Service Officer
E-mail: [email protected]
Office: 303.914.5587, Toll Free: 1.877.917.5381
The intention of the Resource section is to provide a concise practical HIV guide for the community to reference. If you have a resource, or have
accessed an HIV resource that has been beneficial, please submit it to the SIN website, message section, so that it may be added.
Strength in Numbers Page 16
Numbers
SIN COLORADO
LIST OF UPCOMING EVENTS
All events are subject to change. Check the online calendar to confirm times, dates and locations:
http://groups.yahoo.com/group/SINColorado/cal///group/SINColorado/?v=2&t=1214812800