The Normal Heart
The Normal Heart
The Normal Heart
STUDY GUIDE
Prepared by
Maren Robinson, Dramaturg
This Study Guide for The Normal Heart was prepared by Maren Robinson with content
by Maren Robinson, Lara Goetsch, PJ Powers and the AIDS Foundation of Chicago
for TimeLine Theatre, its patrons and educational outreach.
Please request permission to use these materials for any subsequent production.
STUDY GUIDE
Table of Contents
The Playwright: Larry Kramer .......................................................................... 3
The Play: The Normal Heart .............................................................................. 4
The Interview: David Cromer and Nick Bowling .............................................. 5
The People ......................................................................................................... 18
The Context ....................................................................................................... 22
The Disease: HIV vs. AIDS ............................................................................... 23
The Continued Fight Against HIV/AIDS.......................................................... 24
United States AIDS Statistics by Year ............................................................ 26
Glossary of AIDS Terminology ......................................................................... 27
The Organizations.............................................................................................. 32
Timeline: The Early Years of the AIDS Epidemic ........................................... 35
The Poem ........................................................................................................... 41
Discussion Questions ........................................................................................ 42
Resources ........................................................................................................... 42
References and Documentaries ........................................................................ 43
Kramer, Larry. Reports From the Holocaust, St. Martin Press, New York, NY, 1994, (224).
http://www.parade.com/56371/dotsonrader/thenormalheartplaywrightlarrykrameridontknowwhygaypeopleare
hatedbutweare/
http://www.pbs.org/wgbh/pages/frontline/aids/interviews/kramer.html
http://www.nytimes.com/2006/06/25/nyregion/25kramer.html?pagewanted=all
3http://artsbeat.blogs.nytimes.com/2013/07/25/larrykramerismarriedinhospitalceremony/?_r=0
2
4
5
Kramer,Larry.ReportsFromtheHolocaust,St.MartinPress,NewYork,NY,1994,(16).
Kramer,Larry.ReportsFromtheHolocaust,St.MartinPress,NewYork,NY,1994,(93).
happened its just chaos afterwards. And watching people live through that is
really immediate to me.
PJP: Nick, what was it that made you think Oh, this is a TimeLine show?
You are more responsible than anyone for what TimeLines mission is, since
you proposed it in 1997. So what made you think, This is something we have
to do here?
NB: Its ultimately about how people deal with a plaguean awful thing
thats happening to a group of people. And this notion of a plague hits gay
people in the 1980s with AIDS, but theres no saying when that will happen
to us again. Which is a terrifying thing to say, of course.
Im struck by this macro idea of how people deal with a plague, but then on a
more micro level Im interested in how this community, how this gay
community that Im a part of, how we dealt with each other and how we dealt
with this kind of perfect storm. Wed just been liberated in many wayswere
beginning to be liberatedin the post-Stonewall era of gay liberation and gay
sexual liberation. And then we were thrown back into fear and in some ways
back into the closet.
How did that shape us as a community? In particular Im interested in how it
shapes where we are today with finding a point in the gay community again.
Something different than sex and looks and money and these surface
priorities that easily can take over our community in particular. I think the
focus right now for our community is gay marriage and thats why I think
many people have connected this play to gay marriage, and some of the
themes of this play to the fight over gay marriage.
So thats a great reason why it needs to be seen today. You end up seeing this
group of people fight their way through something awful. I guess the idea is
that that can happen it can be done and it may have to happen again
someday.
DC: Theres a great Vonnegut quote, saying make terrible things happen to
your characters no matter how sweet and good-natured they are, that way you
can see what they are made of, or something like that. With these characters,
this emergency took place so you could find out what these people are made of.
We are seeing how people function in an emergency with their demons, their
own internal demons, and then the demons in their own community.
NB: Thats right.
DC: I was just thinking when you were talking about something I hadnt
quite connected to, which is that the big conflicts in the play are not with
forces outside the gay community. Hiram and Ben are a little bit, but
ultimately the big monolithic conflicts of the play are within this group of
guys who presumably three weeks before the play started were all on Fire
Island together, you know?
7
PJ: Lets change gears a little bit. I want to talk about how we all came to be
here working on this production together.
Nick, ever since we started talking about this play at TimeLine three years
ago youve been dying to direct it. Then about a year ago, sitting here in this
very room, in my office, I said to you one of the hardest things Ive ever said
to you: Hey, since youre already planning to do the musical Juno this
season, what if we give The Normal Heart to David Cromer? What if we
asked David to direct this?
NB: Womp, womp.
(Laughter)
NB: This comes after me also talking for many years about trying to find a
way to get Cromer here to direct a play.
PJP: Exactly. Its true.
NB: Weve both been fans for a long time and trying to find the right time
and the right project and feeling like we could pull you back here for
something.
PJP: So, for anyone reading this, Nicks entire body deflated and he said,
Youre right, that is soul-crushing, but its a brilliant idea and lets see if we
can make it happen.
DC: So we took a brilliant idea and we changed it into a terrible idea!
(Laughter)
PJP: Talk us through what happened next. You reached out to David
NB: I called Cromer
DC: It was an email, wasnt it?
NB: Oh yeah, it mightve started with an email. Thats right, and then you
sent me an email back and said
DC: I dont know.
PJP: I remember you were in town doing Sweet Bird of Youth at the time. It was
in the middle of your tech when Im sure you had nothing else on your mind.
DC: Im still in tech for Sweet Bird of Youth.
PJP: (Laughs)
NB: What was exciting is that from the get-go you were very interested in the
project. And at some point you said something to the effect of how much you
had really thought for a long time about playing Ned. And how interested you
were in that role.
9
(Laughter)
DC: And I spent all this time, all these years throwing up my hands about
actors, saying Why cant they just figure out basic shit when they come in,
and I cant do any of it. I know my lines, some of them, and I dont put my
hands in my pockets
PJP: Whats this shift like for you? You did Long Days Journey Into Night
with Bob Falls 12 years ago and you did Love Song of J. Robert Oppenheimer
about eight years ago. But other than that you havent been acting for other
people or with other people.
DC: No, no.
PJP: So whats this shift like?
DC: I still believe that I can play the role and there are things about it that I
think I have easy access to and there are things about it that I dont have
access to at all yet. I worried a little bitthis is probably a dangerous thing
to saybut you have to stick to it, you cant drift in and out of it as an art
form. I can probably play catch up a little bit and get away with it but I
havent been exercising the muscles well enough, so its going to be a little bit
of a crash course in getting back in. And I dont just mean physical shape, I
dont mean like vocally or anything like that, I just mean like Oh, right you
have be.
I have my work cut out for me just trying to do the things a halfway decent
actor is supposed to be doing. So the transition for me is fine.
PJP: Do you find that your role in the rehearsal room is different than it is
when youre a director? As a director you have to be the leader in the room in
one respect but now while it is very much an ensemble show, its Neds story.
Ned is Larry Kramer, so you have to be a leader in a different respect. Does it
feel different than how youre a leader as a director?
DC: I expect my lead actors to be much more generous than I am being.
(Laughs)
NB: It reminds me, you said something to me very early on in our
conversations on the phone. You said something like We need to be partners
on this. Not just because were both directors or whatever, but because
anyone whos playing Ned Weeks and the director need to be partners, and
its felt that way and thats exciting.
Whats great about you Cromer is that youve brought ideas into the room
that are directorial ideas, but thats what I want from every actor. And youre
doing it in the most gracious, smart and helpful way, so its actually been
really a good relationship and process that way. Id say youre leading that for
the cast and thats a way I think youre a natural leader like a director but
youre shifting that into your acting, which is cool.
11
DC: Were just not willing to be disliked. You know? And he would always do
that. He was shy, he didnt like to talk to people he didnt like and be
confrontational with people. If he was shy, doing that would have taken a
great deal of courage. Learning to be unpopular would be, for a shy and needy
person, would be harrowing, you know? So I thought that was interesting.
NB: He takes that journey in this play. It has to start that hes not inherently
that person who doesnt mind not being liked. In some way he hears that for
the first time from Emma Brookner, the doctor in the play. Shes the one that
points it out to him. And the fascinating thing is how much you end up liking
Larry Kramer or Ned Weeks for not caring about not being liked.
DC: And its only part way through that Emma says it to Ned, in scene 8
NB: The beginning of the second act.
DC: The beginning of the second act, which is when you realize retroactively
that he has been worried about it, wanting to be liked.
NB: Yeah. Thats right.
DC: That Larry conversation also helped me with something very basic that I
forget which is what we all know here as actors and/or directorsthat you
cant play the end at the beginning, you know? And I was probably thinking
about the first scene as if he was already Larry Kramer, as if he was already
a pushy militant.
NB: Right.
DC: He just followed his nose to this doctors office, you know?
NB: Yeah.
DC: And so its about the birth of someone becoming
NB: It is. Yeah, thats right.
PJP: David, here we are sitting in our home on Wellington Avenue and the
first play I ever saw in this building in 1998, a year before TimeLine
unexpectedly took over the space and made it our home, was your production
of Angels in America. In this building in 1998 you directed that play and also
played Louis.
Its interesting. The Normal Heart isnt going to take place in this building
were doing it over at Stage 773but the times that Angels in America and
The Normal Heart are mentioned in the same sentence is often. I think there
are some similarities between Louis and Ned as an agitator. Whats it like
coming back into this building after 15 years and taking on the other great
AIDS play, the other great agitator in an AIDS play?
13
DC: First of all, theres echoes in Angels in America that I can only imagine
are aggressively an homage to The Normal Heart.
NB: Yeah. Feels that way.
DC: Im taking this line from The Normal Heart because its a great line:
You cant not know, how can you not know that?
NB: Right.
DC: Its something that Louis says to Joe about Joseph McCarthy and its
something that Ned says to Hiram about the health crisis.
Ive thought about that because they are New York Jews of a certain age with
almost identical tracks. The difference is Louis is not strong enough to do what
he knows he is supposed to do. And Larry, Ned, somehow is. So I dont think its
an issue of being made of sterner stuff necessarily. I think its about whether
the thing you want is important enough to get over what youre scared of.
I identify far more with Louis because I understand my own cowardice. Im
not flagellating, Im simply saying: Im very comfortable with the idea of
seeing this person, Louis would like to have this conviction, he would like to
say this, he would like to make this point, but he cant really.
NB: Right.
DC: Hes just got to dither, hes just got to go in the corner and dither. Where
as Larry and Ned committed their lives to a fight.
PJP: And this just popped into my head. Didnt Joe Mantello play Louis also?
DC: He played Louis, yeah.
PJP: Yeah, I think I saw him play Louis. Wow, thats freakiness. And Nick,
youve directed Angles in America, too.
NB: Yes I have. It was (laughs) challenging.
DC: You had the craziest schedule in the world, right? Like some stupid
schedule.
NB: It was a challenging. It was a stupid schedule and, frankly, it was in the
shadow of Cromers production.
PJP: Which was pretty good.
NB: Which was damned good and it was earth-shattering that you decided to
go in the direction of incredibly simple, the complete stripped-down
production of Angels in America. So then to follow that, right after that, out
in DuPage at Buffalo Theatre Ensemble, I had a possibility to do something
similar, which seemed wrong, just blatant stealingor to try to go in a
different direction, which is what we tried to do. In some ways I think your
production of Angels screwed me up. Im going to tell you that.
14
(Laughter)
DC: It screwed me up, too. It screwed us all up. Id never seen it, I didnt have
any context for it.
I was just thinking about how that play and this play have a power. They
have the power of the word and they have the power of an event and the
power of an idea that almost no other plays have. Theyre really devastating
and people tend to be devastated by productions of them, and then I get very
nervous. We have to find our way to be devastating.
NB: Right, right.
PJP: Nick, just riffing on this space and now us doing The Normal Heart, not
in our home but over in Stage 773. You probably more than any other
director at TimeLine have exploited in great ways the versatility of our home.
At Stage 773, we benefit from getting to play to a larger audience, but we do
not have that versatility. How have you approached this play without as
much of a blank canvas as you get in our home, but still with your inimitable
innovation?
NB: Thank you.
DC: Fundamental Nick.
NB: One of the starting points in this space that we get to play around with
is having the audience be a flexible thing. Normally, in almost every theatre
experience you dont get that. We can make a decision here to put something
in the round or to make it a proscenium or to make it thrust or to make it
runway, and that decision by itself is an enormous decision.
If youre going in the round youre not going to have walls, probably. So that
already says its not going to be so realistic that you can have doors slamming
and walls and all that.
Thats something that you take away over at Stage 773. But we actually get
some things over there that we dont have here. Theres some scale there
thats quite beautiful, theres a canvas to play with that is not flexible but its
bigger than the canvas that we get here.
Weve really tried to use as inspiration Larry Kramers apartment itself.
There are some beautiful pictures of Larry in his house in front of his
bookshelf that became very inspiring to us. That bookshelf has become a
backdrop for us. And the play needs so many locations, from hospitals to
offices to apartments, that theres an inherent coldness that comes with that
many space changes because of how spare you need to be. So weve tried to
find the balance in this very heated play of not putting it in an incredibly cold
world. This bookshelf is one way that weve found that brings this layer of
personal and mess and human to the play.
15
DC: Its where you keep all your stuff. I might be experiencing this wrong,
but I got this impression it wasnt only going to be books, right?
NB: Its not. Its going to be pictures and memoriesits what would go on a
bookshelf.
DC: Stuff. Yeah. Its like all these people, all these lives, all these people
weve lost.
NB: Thats right.
DC: I dont mean to be reductive about the imagery here at all but its just
the idea that thats where you put your stuff. As you have a life you say, I
read this, Im going to put this over here.
NB: Yeah.
DC: Heres that tsotchke.
NB: Its these little bits, right.
DC: Heres some tsotchke here.
PJP: My office is filled with shelves of tsotchkes.
NB: Right. These little bits of all these peoples lives and in some ways it
stands as a memorial. Were looking at this play from such distance now,
looking back at it, and its not that this crisis of this plague is over, it surely
isnt, but in some ways there needs to be this sort of living memorial along
with the actual play itself. That was the idea.
PJP: Just briefly shifting gears and then Ill let you get off to rehearsal.
David, so now youve caught the acting bug and youre going to do A Raisin in
the Suna play that were ironically also currently running with this
young upstart actor named Denzel Washington.
DC: Yes, I have high hopes for him.
PJP: Is this just a coincidence that youre doing two acting things back to back?
DC: Thats a good question. Yes, it is a coincidence. It just happened to land
that way. Part of it was led by doing The Normal Heart, which is, I was
pretty burned out. I just did six plays in 12 months in four cities, some
ridiculous large number of plays. So I was a little tired and I was not taking
other work. And I had no idea how I was going to make any money and so
luckily I
PJP: You said, Come to TimeLine, thats where the cash is!
NB: Big bucks.
DC: I said, you know, You want to make some money, come and act
16
NB: In Chicago.
DC: make some money in this business. I just needed a break, but I dont
really take breaks that far away from my
PJP: Yeah. Youre not a Sandals Resort kind of guy.
DC: Nah, I just take the job where I get to leave, where I get to be one of the
first people out the door at the end of the day. (Laughs) So long suckers!
PJP: Are you going to enjoy today after the runyou dont have to stay for
the production meeting?
DC: Oh my god. Do you guys watch shows now and watch a moment in a
show and think, Oh, I know what that production meeting was like.
(Laughter)
NB: Yes.
DC: Ive been to that meeting.
PJP: Either that, or you watch a moment and youre like, How did no one
question that in a production meeting, how did that not come up?
Nick, up next for you here is something very different, your first musical at
TimeLine in six years.
NB: Yeah, were doing the Chicago premiere of Joseph Stein and Marc
Blitzsteins Juno, which is based on Sean OCaseys classic Irish dark comedy
Juno and the Paycock. Its a gorgeous score and I think it helps answer that
question of Why make a play into a musical? The music in this case feels so
right with that lyrical Irish language and the music adds even a deeper level
of despair and a higher level of comedy, so it pushes the boundaries of both
those elements that make great Irish theatre.
PJP: Well, great.
DC: Ill see that.
PJP: Thank you both for being so generous with your time before rehearsal.
Keep up this great partnership!
NB: Thank you.
PJP: Thanks guys.
17
The People
Many of the characters in The Normal Heart are based on real people. Ned
Weeks stands in for Larry Kramer, Ben Weeks for Kramers brother Arthur.
Dr. Emma Brookner is based on Dr. Linda Laubenstein, who used a wheelchair
because of childhood polio. GMHC co-founder Paul Popham was the inspiration
for Bruce. Tommy is based on former GMHC Executive Director Rodger
McFarlane; Mickey is based on Dr. Lawrence Mass, another co-founder of
GMHC. Hiram Keebler is based on Mayor Ed Kochs liaison to the gay
community, Herb Rickman. Other characters are a composite or fiction.
We have our own lives and our own set of problems; I
dont ask you to fight my battles dont expect and demand
that I fight yours. Larry Kramer quoting his brother
Arthurs response to his demands for support in his activism8
Arthur Kramer is Larry Kramers brother. He graduated from Yale Law
School in 1953 and co-founded the law firm Kramer Levin Naftalis & Frankel
since many established firms were averse to hiring Jews. His conflicts with
and support of his brother are represented in the person of Ben Weeks in The
Normal Heart.
Arthurs law firm was and remains the attorneys for Gay Mens Health Crisis
and more recently, the firm has been among those arguing in support of gay
marriage. However, initially when Larry asked Arthur for his firm to represent
them, Arthur said he had to run it by committee. Larry went to another
partner, Maurice Nessen, who said the firm could represent them, and a furious
Larry stopped speaking to his brother for a time, as depicted in the play. At
about the same time, Larry called for protests on MCI for discriminating
against gay employees. MCI was one of Arthurs biggest clients and he
perceived this as a hostile act toward him and the brothers stopped speaking
again. While his portrayal as the straight brother who could not fully accept his
gay brother as normal pushed on the relationship, the two are now close,
although Kramer describes the depiction in the play as all true.
Larry Kramer was quoted in a 2006 New York Times piece about his relationship
with his brother: He and my lover are the two most meaningful people in my
life. Arthur raised Larry, who was the unwanted second child, and both
brothers expressed distaste for their parents. Arthur said he regretted putting
Larry in therapy (after Larrys suicide attempt at Yale and the revelation that
he was gay) to try to cure him, and over time came to acknowledge that Larry
was born the way he is. Larry for his part felt that ultimately the work he did
with many psychiatrists was valuable. In 2001, Arthur gave Yale $1 million to
found the Larry Kramer Initiative for Gay and Lesbian Studies. Arthur died
from a stroke on January 31, 2008 at the age of 81.9
Kramer,Larry.ReportsFromtheHolocaust,St.MartinPress,NewYork,NY,1994,(218).
http://www.nytimes.com/2006/06/25/nyregion/25kramer.html?pagewanted=all
http://www.nytimes.com/2008/01/31/nyregion/31kramer.html
8
9
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10 http://www.nytimes.com/1992/08/17/nyregion/lindalaubenstein45physicianandleaderindetectionofaids.html
http://nymag.com/health/features/49240/index4.html
http://www.capecodonline.com/apps/pbcs.dll/article?AID=/20110423/LIFE/104230304/1/rss10
19
Rodger McFarlane was the inspiration for Tommy in The Normal Heart.
He was born February 25, 1955, in Mobile, Alabama. He played football in
high school and attended the University of South Alabama. He enlisted in the
Navy and served on a nuclear submarine. He moved to New York and worked
as a respiratory therapist. He walked into Gay Mens Health Crisis and
offered his services as a volunteer. He ended up starting a crisis hotline, at
first using his home phone. He was the first paid Executive Director of
GMHC and served in that role between 1982 and 1985.
Rodger and Larry Kramer were lovers for a time after Larry had left GMHC
and it caused certain tensions for Rodger with members of the board.11 He
went on to lead a number of prominent AIDS organizations. From 1989 to
1994 he was Executive Director of Broadway Cares/Equity Fights AIDS. He
later served as President of Bailey House, an organization providing housing
for homeless people with AIDS. He was Executive Director of the Gill
Foundation, which advocates for civil rights for gay, lesbian, bisexual and
transgender civil rights.
He was caregiver to his brother David, who was also gay, and who died of
AIDS in 2002. In 1998, he co-wrote with Philip Bashe The Complete Bedside
Companion: No-Nonsense Advice on Caring for the Seriously Ill. He
committed suicide on May 18, 2005. He had broken his back in 2002 and was
debilitated by heart and back problems.12
Nobody wanted us. We had no money, no office space, and
single-handedly Rodger took this struggling ragtag group
of really frightened and mostly young men, found us an
office and set up all the programs. The G.M.H.C. is
essentially what he started: crisis counseling, legal aid,
volunteers, the buddy system, social workers. 13
Larry Kramer quoted in The New York Times obituary of
Rodger McFarlane
Paul Graham Popham was the inspiration for Bruce in The Normal Heart.
Popham was born in Emmett, Idaho, on October 6, 1941. He graduated from
Portland State College in Portland, Oregon. As a first lieutenant in the Fifth
Air Cavalry during the Vietnam War, he was decorated with the bronze star
after his platoon had been a lure for the North Vietnamese. He retired in
1969 as a Special Forces Major in the Army Reserves.
He worked as a Wall Street banker for the Irving Trust Company, retiring as a
president in 1980. He then worked for McGraw Hill as a General Manager. He
was president of the Gay Mens Health Crisis between 1981 and 1985. He also
helped found and was chairman of the lobbying group, the AIDS Action Council.
Kramer,Larry.ReportsFromtheHolocaust,St.MartinPress,NewYork,NY,1994,(77).
http://www.nytimes.com/2009/05/19/nyregion/19mcfarlane.html?_r=0
13 http://www.nytimes.com/2009/05/19/nyregion/19mcfarlane.html?_r=0
11
12
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Popham was diagnosed with AIDS in 1985 and remained active with AIDS
organizations until he became too sick to participate. He died from
complications from AIDS on May 7, 1987 at the age of 45.
His fights with GMHC co-founder Larry Kramer are represented in the play
The Normal Heart. Kramer has written that at the time he was half in love
with Popham and that increased the discomfort between the two of them as
well as their fundamentally different approaches to how the GMHC should
take action. Popham was also closeted, which prompted more caution on his
part and was another source of tension with Kramer. Kramer and Popham
reconciled, as Popham grew weaker from AIDS. On his deathbed, Popham
repeated to Kramer on the phone, keep fighting, keep fighting, keep
fighting.14 He was survived by his mother, brother, two sisters and his
longtime partner Richard DuLong.15
Ed Koch was the Democratic Mayor of New
York City between1978 and 1989 during the
emerging AIDS crisis. His sexuality was the
subject of rumor for years and during the 1977
mayoral elections signs appeared that said,
Vote for Cuomo not the Homo. He refused to
speak publicly about his sexuality except in a
1989 interview in which he said he was
heterosexual. Many homosexuals in New York
City blamed his lack of response to the AIDS
crisis on his closeted lifestyle. A recent documentary, Outrage, features
interviews with friends of a man who claimed to be Kochs lover for two years,
then was threatened that bad things either physical or financial would
happen to him if he went public.16
Kramer,Larry.ReportsFromtheHolocaust,St.MartinPress,NewYork,NY,1994,(161).
http://www.nytimes.com/1987/05/08/obituaries/paulpopham45afounderofaidsorganizationdies.html
16 http://www.nytimes.com/2013/02/02/nyregion/edwardikochexmayorofnewyorkdies.html?pagewanted=all
http://www.apnewsarchive.com/1989/MayorKochImAHeterosexual/ida2878d372adbfd2c50331ea6ed62d74d
http://www.huffingtonpost.com/michelangelosignorile/edkochhowthegayclose_b_2614722.html
14
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The Context
A very strange thing has happened in the post-AIDS
generation. I don't know what to call them; it's not really
post-AIDS, but let's call them the healthier, younger ones.
They don't want to know. They don't want to know the old
people; they don't want to know the history; they don't
want to acknowledge that the people who died were even
part of their history. I talk about this a lot. How can you
dare to ignore everything that happened? These people
died so that you could live. Those drugs are out there
because people died for them. [It's] shocking what's going
on now in the gay population. I have lost a great deal of
pride in being gay. ...17
Larry Kramer in an interview with PBSs Frontline
The poor homosexuals--they have declared war against
nature, and now nature is exacting an awful retribution.
Pat Buchanan in a 1983 editorial18
We've got to have some common sense about a disease
transmitted by people deliberately engaging in unnatural
acts. Jesse Helms on AIDS, in an interview with The New
York Times, 199519
AIDS is the wrath of a just God against homosexuals.
Jerry Fallwell20
Because the first cases of what would come to be
known as AIDS were among homosexuals, Haitian
refugees, intravenous drug users, and hemophiliacs,
the press and the general public were slow to respond
to the growing number of mysterious deaths from the
disease. Worse, it opened up the disease to a series of
moral judgments from the religious right and
churches, which suggested that AIDS was Gods
punishment. President Ronald Reagan would not say
the word AIDS publicly until 1985.21
As the disease spread, anxiety and fear spread. When
it was unclear how the disease spread, rumors about
17
http://www.pbs.org/wgbh/pages/frontline/aids/interviews/kramer.html
http://www.thedailybeast.com/newsweek/2006/05/14/howaidschangedamerica.html
19 http://www.nytimes.com/2001/08/26/weekinreview/ideastrendsthequotationsofchairmanhelmsracegodaidsand
more.html
20 http://www.cbsnews.com/8301500486_1622816499500486.html
21 http://www.actupny.org/reports/reagan.html
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getting AIDS from toilet seats and drinking fountains abounded, and there
was little government leadership to calm public fears and offer clear
information. Surgeon General C. Everett Koop, an evangelical Christian,
angered many when he treated AIDS as the illness it is and tried to
disseminate clear scientific information. President Reagan had not met with
him even when he was going to do his first press conference on AIDS.
How that information is used must be up to schools and
parents, not the government. But lets be honest with
ourselves, AIDS information cannot be what some call
value neutral. After all, when it comes to preventing AIDS,
dont medicine and morality teach the same lessons?
Ronald Reagan in an April 2, 1987, press conference
Fears about AIDS, while largely focused on the homosexual community, also
spread to other patients. Hemophiliac AIDS patient Ryan White was forced
out of one school and had a shot fired at his home before his family moved
and he was able to attend school elsewhere.
As an AIDS test became available, new fears about human rights violations
that might occur if testing became mandatory spread through the gay
community. Congress banned people who were HIV positive from entering
the United States.
For the homosexual community, no one was untouched by the death of a
friend, acquaintance or lover, and fears over the seemingly unstoppable
progress of the disease, the ineffectiveness of treatments, and the slow
response of the government and health organizations was a cause for fear
and frustration. Hospitals unwilling, unable or uncertain how to respond to
the disease sometimes turned patients away or imposed strict quarantines
surrounding patients, which were often humiliating and demoralizing.
Most treatments developed to stop the course of the virus work to disrupt the
enzymes involved in the replication of the virus. The virus essentially takes
over the cell and uses the cell to create virions, an extracellular virus which is
designed to transmit nucleic acid genome when it permeates a host cell. Part
of the difficulty in describing the actions of viruses and HIV in particular is
that a virus is not alive and can remain dormant until provided with a host.
Then the bits of RNA in the virus begin to interact with human cells and
replicate, like a simple microorganism.22
22
http://www.niaid.nih.gov/topics/HIVAIDS/Understanding/Biology/pages/hivreplicationcycle.aspx
24
Finally, donate. AIDS service organizations need money to function, but just
as important, they need time. Volunteering to fight HIV/AIDS is meaningful.
It destigmatizes the disease and helps to create a culture of change because
someday, we believe, this disease will be over.
25
1981
159
1982
771
618
1983
2,807
2,118
1984
7,239
5,596
1985
15,527
12,539
1986
28,712
24,559
1987
50,378
40,849
1988
82,362
61,816
1989
117,508
89,343
1990
160,969
120,453
1991
206,563
156,143
1992
254,147
194,476
1993
360,909
234,225
1994
441,528
270,870
1995
513,486
319,849
1996
518,429
362,004
1997
614,086
390,692
1998
688,200
410,800
1999
773,374
429,825
2000
774,467
448,060
2001
816,149
462,653
2002
886,000
501,669
2003
930,000
524,060
2004
940,000
529,113
As of 2012, between 32.2 million and 38.8 million people are living with HIV
worldwide. Since the start of the epidemic 63-89 million people have become
infected and between 30 and 42 million people have died worldwide.24
23
24
http://www.amfar.org/thirtyyearsofhiv/aidssnapshotsofanepidemic/
http://www.unaids.org/en/resources/campaigns/globalreport2013/factsheet/
26
http://www.pbs.org/wgbh/pages/frontline/aids/virus/fighting.html
http://www.britannica.com/EBchecked/topic/46868/AZT
27 PBSFrontline:TheAgeofAIDS
25
26
27
PBSFrontline:TheAgeofAIDS
http://www.cdc.gov/hepatitis/b/
30 http://www.doctorswithoutborders.org/publications/alert/article.cfm?id=2593
28
29
28
http://www.niaid.nih.gov/topics/HIVAIDS/Understanding/Biology/pages/hivreplicationcycle.aspx
http://www.pbs.org/wgbh/pages/frontline/aids/virus/fighting.html
33 http://www.cancer.org/cancer/kaposisarcoma/detailedguide/kaposisarcomadiagnosis
34 http://www.cdc.gov/mmwr/
31
32
29
http://www.niaid.nih.gov/topics/HIVAIDS/Understanding/Biology/pages/hivreplicationcycle.aspx
http://www.pbs.org/wgbh/pages/frontline/aids/virus/fighting.html
37 http://www.niaid.nih.gov/topics/HIVAIDS/Understanding/Biology/pages/hivreplicationcycle.aspx
38 http://www.pbs.org/wgbh/pages/frontline/aids/virus/fighting.html
35
36
30
http://www.niaid.nih.gov/topics/HIVAIDS/Understanding/Biology/pages/hivreplicationcycle.aspx
http://www.pbs.org/wgbh/pages/frontline/aids/virus/fighting.html
41 http://www.virology.ws/2010/07/22/thevirusandthevirion/
42 http://www.virology.ws/2010/07/22/thevirusandthevirion/
39
40
31
The Organizations
We have many small organizations that dont cooperate,
many duplicating the same efforts and budgets and
responsibilities and fighting for the same turf. We have
too many Boards of Directors and Task Forces and
Defense Funds and Advocates and Action Councils and
AIDS networks and Coalitions and Alliances for this and
that. Each fights for the same dollars, and, hence, none of
them receives enough to be truly effective.
Larry Kramer in an October 17, 1987 speech accepting the
Arts and Communication Award at the Sixth Annual Human
Rights Campaign Fund Dinner43
AIDS Coalition to Unleash
Power (ACT UP)
Larry Kramer spoke at the Gay
and Lesbian Community Center
in New York City on March 10,
1987 (after Nora Ephron had to
cancel). After his galvanizing
speech, there was much
discussion among the large
number of attendees and a
meeting was set for 2 days later.
Those who met pledged to be a direct action protest group, concentrating in
particular on fighting for the release of experimental drugs.
On numerous occasions over the ensuing years, the group organized protests
on Wall Street, at the U.S. Food and Drug Administration (FDA), the National
Institutes for Health (NIH), drug companies and elsewhere to advocate for
speedier drug testing and lower prices for existing treatments. Their protests
garnered national and international media attention and resulted in the cost of
the AIDS drug AZT being reduced, among other successes.
Ultimately, like GMHC before it the group split (TAG broke off) and changed
focus, as it got larger and institutionalized.44 Today there are ACT UP
chapters around the United States and beyond, united in anger and
committed to direct action to end the AIDS crisis.
Image by Keith Haring of ACT UP members protesting.
43
44
Kramer,Larry.ReportsfromtheHolocaust,1994,St.MartinsPress,NY(p187188)
http://www.thedailybeast.com/newsweek/2006/05/14/howaidschangedamerica.html
32
33
As the group grew, Kramer became frustrated that the focus shifted entirely
to providing services and information to people with AIDS (which he felt the
city should be providing) rather than to putting pressure on political figures
and keeping AIDS in the public eye.
Kramer was often the spokesman for the group, but his anger and sharp
words rubbed the more diplomatic members of the group, often Paul Popham,
the wrong way. When the board prevented him from attending a meeting
with Mayor Ed Koch, which had been two years in the making, he quit in a
rage. He tried to get back into the organization without success, although
now his is on friendlier footing with the current leadership.49
Multitasking is a nonprofit organization selling office services to other
businesses and employing people with AIDS as the workers. It was founded
by Dr. Linda Laubenstein, who was concerned that AIDS patients often lost
their jobs. She felt that work was vital to emotional and physical health as
well as to financial support.50
National Institutes of Health (NIH) is the government agency that is to
provide research into a range of health issues. ACT UP protested at the NIH
in 1990 during the Presidency of George H. W. Bush about the inaccessibility
of clinical trials to many people with AIDS.51
Treatment Action Group (TAG) in 1992 members of the Treatment and
Data Committee of ACT UP broke away to form TAG and focus on
accelerating treatment research.52
49 http://www.gmhc.org/aboutus
Kramer,Larry.ReportsFromtheHolocaust,St.MartinPress,NewYork,NY,1994,(22).
50 http://www.nytimes.com/1992/08/17/nyregion/lindalaubenstein45physicianandleaderindetectionofaids.html
51 http://www.nih.gov/
52 http://www.treatmentactiongroup.org/
34
53 http://www.amfar.org/thirtyyearsofhiv/aidssnapshotsofanepidemic/
http://www.pbs.org/wgbh/pages/frontline/aids/cron/
54http://www.actupny.org/documents/Denver.html
35
55
http://www.pbs.org/wgbh/pages/frontline/aids/cron/
36
56
57
http://www.princeton.edu/~ota/disk2/1985/8523/852301.PDF
http://www.pbs.org/wgbh/pages/frontline/aids/interviews/kramer.html
37
38
1995 The New York Times reports that AIDS has become the leading cause
of death among all Americans ages 25 to 44.
Between 1991 and 1995, the number of American women diagnosed
with AIDS has increased by more than 63%.
A clinical trial establishes dual combination therapy with AZT and
other nucleoside analogues as a standard approach for HIV treatment.
The FDA approves the first protease inhibitor (saquinavir).
Actress Sharon Stone becomes Chairman of amfAR's Campaign for
AIDS Research.
Author Paul Monette dies of AIDS.
1996 For the first time in the U.S., a larger proportion of AIDS cases occur
among African Americans (41%) than among whites (38%).
The FDA approves the first non-nucleoside reverse transcriptase
inhibitor (nevirapine), as well as a new viral load test that can
measure the level of HIV in a patient's blood.
Combination therapy is made available to HIV/AIDS patients for the
first time, leading to a dramatic decline in AIDS-related deaths.
The Joint United Nations Programme on AIDS (UNAIDS) is
established to coordinate a global response to the pandemic.
Reports from the XI International Conference on AIDS in Vancouver,
Canada, indicate that new combination therapies that include a
protease inhibitor are extending the lives of some HIV/AIDS patients.
The FDA approves the first home HIV test.
The U.N. estimates that 22.6 million people are infected with HIV and
6.4 million people have died of AIDS worldwide.
40
The Poem
The windiest militant trash
Important Persons shout
Is not so crude as our wish:
What mad Nijinsky wrote
About Diaghilev
Is true of the normal heart;
For the error bred in the bone
Of each woman and each man
Craves what it cannot have,
Not universal love
But to be loved alone.
***
All I have is a voice
To undo the folded lie,
The romantic lie in the brain
Of the sensual man-in-the-street
And the lie of Authority
Whose buildings grope the sky:
There is no such thing as the State
And no one exists alone;
Hunger allows no choice
To the citizen or the police;
We must love one another or die.
Excerpts from September 1, 1939 by W. H. Auden
41
Discussion Questions
About the play
1. The words AIDS or HIV are never used in The Normal Heart. Why do
you think Kramer avoids those words?
2. Do you think Ned is an effective activist?
3. The title comes from a poem by Auden. What do you think a normal
heart is?
About the production
1. Projections and music are used in the production, particularly between
scenes. How did the images and music create a certain mood or
highlight certain themes in the play?
2. The set is filled with books from floor to ceiling. What do think the books
represent for the character of Ned Weeks? What details did you notice?
About the context
1. When was the last time you heard AIDS mentioned in relationship to
the U.S. population? Do you think AIDS has fallen out of our current
cultural consciousness? Why or why not?
2. How do you think attitudes about AIDS have changed since the play
was written?
Resources
Season of Concern
http://www.seasonofconcern.org/
UNAIDS
http://www.unaids.org/en/
AIDS.gov
http://www.aids.gov/
42
AmFar
http://www.amfar.org/
CDC HIV/AIDS
http://www.cdc.gov/hiv/
References
Kramer, Larry. The Normal Heart, Samuel French, New York. NY,
1985.
Kramer, Larry, "The FDA's Callous Response to AIDS, The New York
Times
Mass, Lawrence D., ed. We Must Love One Another or Die: The Life and
Legacies of Larry Kramer, Palgrave McMillan, New York, NY, 1997.
Documentaries
We Were Here
Outrage
43