Psycho-oncology
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Recent papers in Psycho-oncology
As Web 2.0 technologies proliferate, patient education is changing dramatically. Information about prevention and survivorship arrives from a mix of sources. The present manuscript describes a study to shed light on how young adults (YAs)... more
As Web 2.0 technologies proliferate, patient education is changing dramatically. Information about prevention and survivorship arrives from a mix of sources. The present manuscript describes a study to shed light on how young adults (YAs) affected by cancer manage the digital world.
Our investigation was guided by a research question asking how young adults affected by cancer engage in communication work in an environment of mass personal communication. The sample for this research consisted of 500 posts comprising 50 complete threads from an online support community for young adults affected by cancer.
Threads were purposively sampled in a multi-stage process. Researchers used constant comparison to define themes, examining text in increments. Individuals harnessed assets of various communication tools for the purposes of message preparation and credibility checking. YAs demonstrated the multi-channel way they move between channels for different purposes, driven by preparation for future interactions. The result is a process that allows co-creation of knowledge in a trusted community.
Findings indicate that completing communication work through multiple channels in a deliberate and savvy way is normal for YAs, particularly for message preparation and credibility checking. The multidirectional nature of digital tools plays an important role for YAs, as interactive resources appear to be the first or second stop for information after key events in the cancer trajectory. Results from this study are important as guidance to help manage the volume and depth of information common to the cancer experience in the Web 2.0 world.
Our investigation was guided by a research question asking how young adults affected by cancer engage in communication work in an environment of mass personal communication. The sample for this research consisted of 500 posts comprising 50 complete threads from an online support community for young adults affected by cancer.
Threads were purposively sampled in a multi-stage process. Researchers used constant comparison to define themes, examining text in increments. Individuals harnessed assets of various communication tools for the purposes of message preparation and credibility checking. YAs demonstrated the multi-channel way they move between channels for different purposes, driven by preparation for future interactions. The result is a process that allows co-creation of knowledge in a trusted community.
Findings indicate that completing communication work through multiple channels in a deliberate and savvy way is normal for YAs, particularly for message preparation and credibility checking. The multidirectional nature of digital tools plays an important role for YAs, as interactive resources appear to be the first or second stop for information after key events in the cancer trajectory. Results from this study are important as guidance to help manage the volume and depth of information common to the cancer experience in the Web 2.0 world.
We aimed to describe the negative and positive impacts of changes in cancer care delivery due to COVID-19 pandemic for adolescents and young adults (AYAs) in Canada, as well as the correlates of negative impact and their perspectives on... more
We aimed to describe the negative and positive impacts of changes in cancer care delivery due to COVID-19 pandemic for adolescents and young adults (AYAs) in Canada, as well as the correlates of negative impact and their perspectives on optimization of cancer care. We conducted an online, self-administered survey of AYAs with cancer living in Canada between January and February 2021. Multiple logistic regression was used to identify factors associated with a negative impact on cancer care. Of the 805 participants, 173 (21.3%) experienced a negative impact on their cancer care including delays in diagnostic tests (11.9%), cancer treatment (11.4%), and appointments (11.1%). A prior diagnosis of mental or chronic physical health condition, an annual income of <20,000 CAD, ongoing cancer treatment, and province of residence were independently associated with a negative cancer care impact (p-value < 0.05). The majority (n = 767, 95.2%) stated a positive impact of the changes to cancer care delivery, including the implementation of virtual healthcare visits (n = 601, 74.6%). Pandemic-related changes in cancer care delivery have unfavorably and favorably influenced AYAs with cancer. Interventions to support AYAs who are more vulnerable to the adverse effects of the pandemic, and the thoughtful integration of virtual care into cancer care delivery models is essential.
Disponilbe en Revista Argentina de Terapia Ocupacional: http://www.revista.terapia-ocupacional.org.ar/descargas/volumen2/Rev2%20Rese%C3%B1a2.pdf Se trata de la reseña de un libro de autoria de la terapista ocupacional Silvina Ousdhoorn,... more
Disponilbe en Revista Argentina de Terapia Ocupacional:
http://www.revista.terapia-ocupacional.org.ar/descargas/volumen2/Rev2%20Rese%C3%B1a2.pdf
Se trata de la reseña de un libro de autoria de la terapista ocupacional Silvina Ousdhoorn, publicado en 2015, por Ed. Martin, Mar del Plata.
El libro, anunciado como el primero de una trilogía, tiene como uno de sus propósitos cuestionar aquellos supuestos que consideran a la oncología en pediatría como un escenario frecuentemente temido y evitado por los profesionales de la salud, para describirlo
como un campo pleno de posibilidades y desafíos, sobre todo si se considera la dimensión de esta enfermedad como un problema de salud pública de relevancia.
http://www.revista.terapia-ocupacional.org.ar/descargas/volumen2/Rev2%20Rese%C3%B1a2.pdf
Se trata de la reseña de un libro de autoria de la terapista ocupacional Silvina Ousdhoorn, publicado en 2015, por Ed. Martin, Mar del Plata.
El libro, anunciado como el primero de una trilogía, tiene como uno de sus propósitos cuestionar aquellos supuestos que consideran a la oncología en pediatría como un escenario frecuentemente temido y evitado por los profesionales de la salud, para describirlo
como un campo pleno de posibilidades y desafíos, sobre todo si se considera la dimensión de esta enfermedad como un problema de salud pública de relevancia.
This study explores the relationship between spiritual well-being (SWB) (meaning/ peace & faith), depression, and quality of life (QOL). Cancer survivors often use their spirituality as a way of coping. Among a sample of 97 Latina breast... more
This study explores the relationship between spiritual well-being (SWB) (meaning/ peace & faith), depression, and quality of life (QOL). Cancer survivors often use their spirituality as a way of coping. Among a sample of 97 Latina breast cancer survivors (LBCS), SWB was assessed with the Functional Assessment of Chronic Illness Therapy-Spiritual Well-being Scale, QOL was measured using the Functional Assessment of Cancer Therapy-General (FACT-G), and depression was measured with the Patient Health Questionnaire. Study findings revealed that SWB, specifically the meaning/peace factor, is the main predictor of an increase in QOL and a reduction in depression among LBCS.
Edição eletrônica em http://psicorporal.emnuvens.com.br/rbpc Revista Latino-americana de Psicologia Corporal De corpo e alma: a Análise Bioenergética na Promoção da Saúde do Paciente Oncológico 1 Resumo: O rompimento com a visão dualista... more
Edição eletrônica em http://psicorporal.emnuvens.com.br/rbpc Revista Latino-americana de Psicologia Corporal De corpo e alma: a Análise Bioenergética na Promoção da Saúde do Paciente Oncológico 1 Resumo: O rompimento com a visão dualista de tradição cartesiana mente-corpo, associado à superação do modelo biomédico de saúde como ausência de doença, nos ajuda a trazer o sujeito da patologia para o centro do processo, valorizando-o como indivíduo para além do quadro sintomatológico. Nesta perspectiva, entender a psicodinâmica do paciente oncológico auxilia no trato mais humanizado, na medida em que tal quadro o afeta nas dimensões física, psíquica e social. Os estudos de Reich e outros pesquisadores (Edwing e Foque; Peller e Greene; Iker e Schmale) apontam uma interação profunda entre estados psíquicos e o surgimento do câncer como: contração respiratória ocorrida via resignação caracterológica que afeta o funcionamento vital, a presença de sentimentos como desesperança ou vivência patológica da perda (morte ou separação), abandono, culpa, solidão, condenação, repressão de sentimentos e distresse (Leschan). A partir desse contexto, o presente trabalho visa discutir as contribuições da Análise Bionergética no auxilio ao paciente oncológico, no que se refere ao tratamento de comorbidades como a depressão, no auxílio à auto-estima e no desbloqueio de tensões afetivo-musculares que podem piorar o quadro. Nesse sentido, a proposta de uma intervenção em grupo que permita um espaço de trocas simbólicas ligadas ao quadro de sofrimento psíquico compartilhado, agregada ao trabalho psicocorporal utilizando-se os exercícios da bioenergética desenvolvidos por Lowen e os Exercícios de Liberação do Trauma de Berceli, entram como importante ferramenta de desbloqueio das contrações vegetativas, melhoramento da respiração e favorecimento grounding no enfrentamento da doença, o que proporciona a redução da ansiedade e dos sintomas do tratamento agressivo da quimio e da radioterapia. Palavras-chave: Psicodinâmica do Câncer, Análise Bioenergética, Grounding. Abstract: The break with the dualistic view of mind-body Cartesian tradition, associated with overcoming of the biomedical model of health as absence of disease, helps to bring the subject of pathology to the center of the process, valuing them as individuals beyond the symptomatology. In this perspective, to understand the psychodynamics of cancer patients helps in more humane treatment, to the extent that such a framework affects the physical, psychological and social dimensions. Studies by other researchers and Reich (Edwing and Foque; Peller and Greene; Schmale and Iker) indicate a deep interaction between mental states and the emergence of cancer as: respiratory contraction occurred by resignation that affects the vital functioning, the presence of feelings as hopelessness or pathological experience of loss (death or separation), abandonment, guilt, loneliness, condemnation, repression of feelings and distress (Leschan). From this context, this paper aims to discuss the contributions of bioenergetic analysis in help to cancer patients, in relation to the treatment of comorbidities such as depression, self-esteem and aid in the release of muscle-affective tensions that can worsen them. In this sense, the proposal of a group intervention to allow a space of symbolic exchanges connected to the frame of psychological distress shared aggregate psycho-body to work, using the exercises developed by Lowen Bioenergetics and Trauma Releasing Exercises of Berceli, that come as an important tool to unlock the vegetative contractions, improving breathing and favoring grounding in fighting the disease, provides the reduction of anxiety and symptoms of aggressive treatment of chemotherapy and radiotherapy.
This practical manual presents the main drugs and protocols currently used in the psychopharmacological treatment of psychiatric disorders in cancer and palliative care settings and explores the principal issues involved in such... more
This practical manual presents the main drugs and protocols currently used in the psychopharmacological treatment of psychiatric disorders in cancer and palliative care settings and explores the principal issues involved in such treatment. Significant clinical challenges encountered in the psychopharmacological management of various psychiatric conditions are discussed, covering aspects such as side-effects and drug-drug interactions. Attention is also paid to the emerging theme of adjuvant use of psychotropic drugs for the treatment of symptoms or syndromes not primarily related to psychiatric disorders. In addition, practical suggestions are provided for dealing with special populations, including children and the elderly. The book is designed to be easy to read and to reference, with helpful concise tables and boxes. The authors include some of the most renowned clinicians working in the field of psycho-oncology.
Cancer is a sensitive topic that still causes a lot of suffering. When it comes to children, adults sometimes decide not to reveal the diagnosis or the prognosis, in order to protect the young patients. As far as caregivers are concerned,... more
Cancer is a sensitive topic that still causes a lot of suffering. When it comes to children, adults sometimes decide not to reveal the diagnosis or the prognosis, in order to protect the young patients. As far as caregivers are concerned, those who would like to openly communicate with children are hindered by a limiting legislation. Others are hindered by a lowering of empathy that prevents them from using proper communication skills. Nevertheless, not to explain the situation to pediatric patients would mean to give up on doctor-patient relationship, which may affect compliance, treatment result and public health system. In order to help caregivers and parents to announce the diagnosis and the prognosis to pediatric patients, we made a scientific literature review and created a semi-structured model of diagnosis announcement in four phases, and in case of terminal stage we added two more phases. As we have seen in a survey conducted in several Swiss hospitals, there is still a lack of written guidelines. This leaves an opening for research in the field of communication with pediatric patients and teaching programs development as well as for the intervention of psychologists.
There is little evidence on how telephone interviews are used in qualitative psychological research compared to face-to-face interviews. This reflective methodological exercise explores the use of telephone interviews as a method in... more
There is little evidence on how telephone interviews are used in qualitative psychological research compared to
face-to-face interviews. This reflective methodological exercise explores the use of telephone interviews as a method
in relation to interviewing prostate cancer patients about their dietary changes in a recent study. In conclusion,
both methods of collecting data are qualitatively different and can offer a range of advantages. The decision
must be based on the aims of the study, the population studied, the interviewer’s experience and the decisive
balance between cost-effectiveness and wider demographics on the one hand and richer data on the other.
face-to-face interviews. This reflective methodological exercise explores the use of telephone interviews as a method
in relation to interviewing prostate cancer patients about their dietary changes in a recent study. In conclusion,
both methods of collecting data are qualitatively different and can offer a range of advantages. The decision
must be based on the aims of the study, the population studied, the interviewer’s experience and the decisive
balance between cost-effectiveness and wider demographics on the one hand and richer data on the other.
Egypt is a young nation with a growing oncology health sector. It is faced with many challenges, such as the endemicity of HCV and schistosomiasis causing the high prevalence rates of hepatocellular carcinoma and bladder cancer... more
Egypt is a young nation with a growing oncology health sector. It is faced with many challenges, such as the endemicity of HCV and schistosomiasis causing the high prevalence rates of hepatocellular carcinoma and bladder cancer respectively. In recognition of their tremendous health and economic burden, the Egyptian government established the “100 Million Healthy Lives” campaign in September 2018 for the screening of HBV, HCV, hypertension, and diabetes mellitus patients. MoH also founded the National Committee for Control of Viral Hepatitis to implement an integrated national strategy to contain the situation. More oncology-specialized hospitals and units are built every year to cope with the increased demand, such as the New National Cancer Institute, Shefaa El-Orman hospital, and Baheya hospital. Non-Communicable Diseases (NCDs), especially neoplasms, are the twenty-first century’s biggest challenge after significant control of communicable ones with the advancement of antimicrobial and progression of community health and epidemiology knowledge. Hence, we believe more light should be shed on their burden in society to increase public awareness and encourage investment in the health care sector.
Background: During the different phases of cancer treatment, it may be evident distress among patients and their families, and high scores, as measured by the Distress Thermometer (DT), indicate the need for intervention aimed at... more
Background: During the different phases of cancer treatment, it may be evident distress among patients and their families, and high scores, as measured by the Distress Thermometer (DT), indicate the need for intervention aimed at reduction or elimination of psychological and psychiatric disorders. The current study aimed to assess the incidence of distress and discuss the quality of care provided in a private cancer center, located in the Federal District. Methods: 169 patients of both genders (37.9% men e 62.1% women) and aged between 17 and 86 years (M = 53), responded to DT in three distinct phases of the chemotherapy protocol: beginning, middle and end. Results: In the first stage of evaluation, most patients had significant level of distress (69.8%). During the treatment, there was progressive reduction in the second (32.4%) and last stage of evaluation (14.3%). Conclusion: The significant reduction of distress over the treatment can be understood as an indicator of quality of service. During the study, there was a practice more humane, because the interventions were being adjusted to the needs of each case. Finally, it is suggested to carry out more research into the use of DT as a measure of indirect assessment of quality of care in Oncology.
In questa relazione l’autrice a partire dal “mito di cura” indica tre orizzonti clinici nella prospettiva fenomenologica e relazionale della Gestalt Therapy: il senso del limite che il dolore ci rimanda e la sua funzione etica; il senso... more
In questa relazione l’autrice a partire dal “mito di cura” indica tre orizzonti clinici nella prospettiva fenomenologica e relazionale della Gestalt Therapy: il senso del limite che il dolore ci rimanda e la sua funzione etica; il senso del sacro dell’arte medica e la sua funzione terapeutica; la “donazione di senso” e la sua funzione relazionale. Un processo relazionale curativo che l’autrice ha definito “palingenesi terapeutica” per indicare, in campo psicoterapico, il processo che dall’ascolto dell’inudibile ed indicibile esperienza esistenziale del paziente, ripercorrendo tramite la “memoria”, il racconto del romanzo della sua vita, prima e dopo l’evento “tragico” (sviluppo ontogenetico), conduce alla re-integrazione delle parti frantumate del sé (fase anatettica) e diventa esperienza di crescita e di arricchimento reciproco.
Quando si parla di assistenza socio-sanitaria sembra ormai impossibile non fare riferimento a quello che è considerato uno degli aspetti fondamentali del contesto di cura: la dignità. L’Organizzazione Mondiale della Sanità (WHO), a tal... more
Quando si parla di assistenza socio-sanitaria sembra ormai impossibile non fare riferimento a quello che è considerato uno degli aspetti fondamentali del contesto di cura: la dignità. L’Organizzazione Mondiale della Sanità (WHO), a tal proposito, sottolinea il bisogno di strutturare interventi sanitari sempre più mirati che abbiano il focus incentrato sul paziente e sulla necessità di preservare il suo senso di dignità, ma la complessità nella definizione di tale costrutto rende ostico non soltanto il portare avanti studi sistematici, ma inevitabilmente anche lo strutturare piani di cura adeguati a ogni categoria di paziente. Nel presente lavoro ci siamo concentrati in modo particolare sui pazienti a termine, per i quali il mantenere la dignità personale è un obiettivo critico che non può non essere tenuto ampiamente in considerazione durante il trattamento e la pratica clinica. A causa della sua natura multidimensionale, il concetto di dignità può essere indagato a partire da diverse prospettive e con diversi approcci; studi recenti nell’ambito delle cure palliative hanno fatto ampio uso di metodi d’indagine qualitativi, utilizzando strumenti come le interviste semi strutturate e i focus group. Questo perché, rispetto ad un approccio quantitativo, quello qualitativo consente di giungere ad una più ampia riflessione sul tema trattato, e di raccogliere una quantità di informazioni significativamente maggiore.
Partendo da tali premesse, questo lavoro si propone come riflessione sul tema della dignità contestualizzata nell’ambito del fine vita.
Il primo capitolo consisterà in una trattazione storica e strutturale sui contesti delle cure palliative. Dopo aver fornito una definizione di cosa siano le cure palliative e di come siano nate, si andrà a descrivere nel particolare i due ambiti principali nei quali esse vengono applicate, ossia l’assistenza domiciliare e l’Hospice. In entrambi, il paziente e la famiglia vengono seguiti da un’équipe multiprofessionale allo scopo di garantirgli, per quanto possibile, la miglior qualità di vita.
Nel secondo capitolo verrà approfondito il concetto di dignità nel contesto delle cure palliative, facendo specialmente riferimento all’impostazione operativa delineata da Chochinov in un modello teorico e nei relativi strumenti che verranno ampiamente descritti.
Nel terzo capitolo viene descritto lo stato dell’arte riscontrato nella letteratura riguardo al senso di dignità nei contesti di cura. Nel particolare, gli studi riportati presentano approfondimenti nelle differenze tra il senso di dignità per come lo intendono pazienti ed operatori, e conseguentemente come diversi orientamenti professionali possano avere diverse modalità di raffrontarsi alla stessa tematica.
Il quarto capitolo presenta i contributi sperimentali del presente lavoro. La ricerca è stata condotta mediante l’utilizzo di focus group al fine di acquisire informazioni riguardo alla percezione della dignità del paziente a termine da parte degli operatori, con lo scopo di effettuare un confronto con l’attuale stato dell’arte rilevato in letteratura descritto nel capitolo precedente.
L’obiettivo ultimo del presente lavoro è quello di ampliare il dibattito rispetto al concetto di dignità nell’ambito di cura, per favorire una presa di coscienza rispetto alla centralità che questo tema dovrebbe trovare nell’ambito dei processi terapeutici e educativi.
Keywords: dignità, cure palliative, focus group, content analysis.
Partendo da tali premesse, questo lavoro si propone come riflessione sul tema della dignità contestualizzata nell’ambito del fine vita.
Il primo capitolo consisterà in una trattazione storica e strutturale sui contesti delle cure palliative. Dopo aver fornito una definizione di cosa siano le cure palliative e di come siano nate, si andrà a descrivere nel particolare i due ambiti principali nei quali esse vengono applicate, ossia l’assistenza domiciliare e l’Hospice. In entrambi, il paziente e la famiglia vengono seguiti da un’équipe multiprofessionale allo scopo di garantirgli, per quanto possibile, la miglior qualità di vita.
Nel secondo capitolo verrà approfondito il concetto di dignità nel contesto delle cure palliative, facendo specialmente riferimento all’impostazione operativa delineata da Chochinov in un modello teorico e nei relativi strumenti che verranno ampiamente descritti.
Nel terzo capitolo viene descritto lo stato dell’arte riscontrato nella letteratura riguardo al senso di dignità nei contesti di cura. Nel particolare, gli studi riportati presentano approfondimenti nelle differenze tra il senso di dignità per come lo intendono pazienti ed operatori, e conseguentemente come diversi orientamenti professionali possano avere diverse modalità di raffrontarsi alla stessa tematica.
Il quarto capitolo presenta i contributi sperimentali del presente lavoro. La ricerca è stata condotta mediante l’utilizzo di focus group al fine di acquisire informazioni riguardo alla percezione della dignità del paziente a termine da parte degli operatori, con lo scopo di effettuare un confronto con l’attuale stato dell’arte rilevato in letteratura descritto nel capitolo precedente.
L’obiettivo ultimo del presente lavoro è quello di ampliare il dibattito rispetto al concetto di dignità nell’ambito di cura, per favorire una presa di coscienza rispetto alla centralità che questo tema dovrebbe trovare nell’ambito dei processi terapeutici e educativi.
Keywords: dignità, cure palliative, focus group, content analysis.
La ansiedad es un constructo que ha recibo muchas acepciones, tanto en el lenguaje formal como en el coloquial. Esto quizá es debido a que la vida de las sociedades industriales es cada vez más caotica y acelerada, haciendo parte de la... more
La ansiedad es un constructo que ha recibo muchas acepciones,
tanto en el lenguaje formal como en el coloquial. Esto quizá es
debido a que la vida de las sociedades industriales es cada vez
más caotica y acelerada, haciendo parte de la vida a los transtornos de la emoción. Por lo que en este artículo comenzaremos por
definir a la ansiedad como: “un estado desagradable de agitación
e inquietud, cuya principal característica es la anticipación del peligro, y que presenta tanto síntomas físicos, cognitivos y emocionales” (Sierra, Ortega & Zubeidat, 2003). Definir y entender la ansiedad es de gran importancia, ya que de acuerdo con Oblitas y Becoña (2000) cualquier trastorno físico u orgánico implica alteraciones psicológicas y viceversa. Esto cobra relevancia ya que la vida acelerada en las ciudades ha generado que las personas se encuentren cada vez con más frecuencia en períodos de mucho estrés, desequilibrando al organismo y generando diversas reacciones emocionales negativas, lo que conlleva al desarrollo
de diversas enfermedades o realizar conductas poco saludables
(Piqueras et al., 2008; Tabala, Wrzesinska, Stecz & Kocur, 2016).
tanto en el lenguaje formal como en el coloquial. Esto quizá es
debido a que la vida de las sociedades industriales es cada vez
más caotica y acelerada, haciendo parte de la vida a los transtornos de la emoción. Por lo que en este artículo comenzaremos por
definir a la ansiedad como: “un estado desagradable de agitación
e inquietud, cuya principal característica es la anticipación del peligro, y que presenta tanto síntomas físicos, cognitivos y emocionales” (Sierra, Ortega & Zubeidat, 2003). Definir y entender la ansiedad es de gran importancia, ya que de acuerdo con Oblitas y Becoña (2000) cualquier trastorno físico u orgánico implica alteraciones psicológicas y viceversa. Esto cobra relevancia ya que la vida acelerada en las ciudades ha generado que las personas se encuentren cada vez con más frecuencia en períodos de mucho estrés, desequilibrando al organismo y generando diversas reacciones emocionales negativas, lo que conlleva al desarrollo
de diversas enfermedades o realizar conductas poco saludables
(Piqueras et al., 2008; Tabala, Wrzesinska, Stecz & Kocur, 2016).
Assess the prevalence of distress and quality of life of cancer patients over the course of chemotherapy. Method. Longitudinal prospective study addressing 200 patients. The Distress Thermometer (DT) and Functional Assessment of... more
Assess the prevalence of distress and quality of life
of cancer patients over the course of chemotherapy. Method.
Longitudinal prospective study addressing 200 patients. The
Distress Thermometer (DT) and Functional Assessment of
Chronic Illness Therapy-General (FACT-G), as indicators of
distress and quality of life, were applied at three points in time
during chemotherapy: the first day (T1), half way through the
treatment (T2), and last day of medication (T3). Results. The
average age was 56.8 years old, and 70% were women while
the most frequent types of cancer included breast (30%) and
hematological (22%) cancers. The number of patients with a high
level of distress statistically decreased over time (T1=41.5%,
T2=8.0% and T3=2.5%); consequently, quality of life scores
improved (T1=85.6%, T2=90.4% and T3=92.0%). Patients
with moderate to severe distress experienced worse quality of life.
Distress, type of cancer and disease stage significantly impacted
quality of life. Conclusion. There was a reduction in the time
of impact from the side effects of chemotherapy in the patients
as a consequence of adapting to the diagnosis and treatment.
Continuous assessment of the needs of patients is essential to
ensuring integral and humanized care, contributing to improved
oncological nursing.
of cancer patients over the course of chemotherapy. Method.
Longitudinal prospective study addressing 200 patients. The
Distress Thermometer (DT) and Functional Assessment of
Chronic Illness Therapy-General (FACT-G), as indicators of
distress and quality of life, were applied at three points in time
during chemotherapy: the first day (T1), half way through the
treatment (T2), and last day of medication (T3). Results. The
average age was 56.8 years old, and 70% were women while
the most frequent types of cancer included breast (30%) and
hematological (22%) cancers. The number of patients with a high
level of distress statistically decreased over time (T1=41.5%,
T2=8.0% and T3=2.5%); consequently, quality of life scores
improved (T1=85.6%, T2=90.4% and T3=92.0%). Patients
with moderate to severe distress experienced worse quality of life.
Distress, type of cancer and disease stage significantly impacted
quality of life. Conclusion. There was a reduction in the time
of impact from the side effects of chemotherapy in the patients
as a consequence of adapting to the diagnosis and treatment.
Continuous assessment of the needs of patients is essential to
ensuring integral and humanized care, contributing to improved
oncological nursing.
Site: www.valcapelli.com WhatsApp 11 9 9471-3490 Resumo: Esse artigo objetiva apontar as causas psicoemocionais do câncer, que figuram como causas metafísicas da doença. O estudo foi baseado na larga experiência de investigação da... more
Site: www.valcapelli.com WhatsApp 11 9 9471-3490 Resumo: Esse artigo objetiva apontar as causas psicoemocionais do câncer, que figuram como causas metafísicas da doença. O estudo foi baseado na larga experiência de investigação da interface entre a mente, a emoção e o corpo; no trabalho de atendimentos individuais de psicoterapias; bem como, por meio dos atendimentos de ambulatório (de práticas integrativas) realizados no Espaço Integração Ananda; fundamentado na bibliografia consultada. Os dois casos relatados apontam as causas emocionais associadas ao câncer. No primeiro caso a pessoa demorou para se conscientizar da gravidade da doença e promover as consequentes transformações interiores. O segundo caso a pessoa buscava se trabalhar interiormente enquanto tratava a doença. Os cuidados com o corpo repercutem positivamente na mudança das causas metafísicas do câncer. Encarar os eventos traumáticos e se libertar dos sentimentos nocivos, contribui significativamente nos resultados dos tratamentos do câncer. Summary: This article focus on pointing out the psychoemotional causes of cancer, which appears as metaphysical causes of the disease. The study was based on a large experience investigation of the interface between mind, emotion and body; in the work of individual psychotherapy sessions, as well as attendance trough chromotherapy ambulatory (integrative practices) performed at Espaço Integração Ananda; based on consulted bibliography. Both related cases point to the emocional causes associated to cancer. In the first case, the person took a time to raise awareness of the gravity of the disease and to promote the consequent inner transformation. In the second case the individual was trying to work internally while treating the disease. Body care has a positive impact in the change of the metaphysical causes of cancer. Facing traumatic events and getting rid of harmful feelings, contributes significantly to the results of cancer treatments.
Background: Lung cancer is one of the most appalling diagnoses, associated with significant patient distress, poured quality of life and often limited survival. Moreover, the current literature emphasizes the effect of distress level on... more
Background: Lung cancer is one of the most appalling diagnoses, associated with significant patient distress, poured quality of life and often limited survival. Moreover, the current literature emphasizes the effect of distress level on survival rates. The purpose of this study was to explore the survival curve, considering the distress level reported by patients with advanced NSCLC cancer at the beginning of the treatment. Methods: A sample of 24 patients with newly diagnosed stage IV NSCLC, answered the Distress Thermometer (DT) and the Problem List (PL) before start the first chemotherapy infusion. They treated at a private cancer center, located at Brasília, Brazil. Survival was calculated from time of the histopathological diagnosis. The data was analyzed with descriptive evaluation, followed by Kaplan-Meier models, to test associations with survival and distress. Results: Of those patients, 58.3% were male. They were between 54-81 years old (M = 66.2; SD = 6.6); 62.5% were married; 54.2% had at least college degree. The NSCLC were 87.5% adenocarcinoma and 12.5% epidermoid. The survival rate was 10.7 months for all patients (range from 1 to 50 months; SD = 10.7); being 6.4 months for moderate to severe distress and 14.2 for mild distress. Seven types of chemotherapy regimen were prescribed: Cisplatin+Gemcitabine (45.8%); Alimta+Carboplatin (16.7%); Carboplatin+Taxol+Avastin (8.3%); Erlotinib (8.3%); Taxol+Carboplatin (8.3%); Cisplatin+Alimta (8.3%); Cisplatin+Gemcitabine+Avastin (4.2%). Half of patients (54.2%) reported moderate to severe distress (DT ≥ 4). The most problems reported at PL were worry (70.8%), sadness (66.7%), fears (45.8%), sleep (70.8%), fatigue (66.7%), pain (58.3%), eating (50%) and breathing (50%). Considering the survival curves, patients with mild distress showed better survival rate than patients with moderate to severe distress (x2 = 4.16; p = .04). Conclusion: Despite the limited sample size, the data suggest that mild distress is a prognostic factor in survival rate. The high prevalence of patients with moderate to severe distress, as well as, the problems-related distress, highlighted the importance of the distress screening and also to create an advanced care planning for patients with lung cancer, from the time of diagnosis until the last phase of illness, helping them to cope with this reality. More studies are thus needed to investigate the implication of distress level at diagnosis as a prognostic factor, increasing and diversifying the sample in order to make the data more generalizable.
Introduction: Lorsqu’un être humain est atteint du cancer mortel, c’est non seulement la personne malade elle-même qui est touchée mais également plus largement son entourage proche qui accompagne le patient jusqu’aux derniers instants.... more
Introduction: Lorsqu’un être humain est atteint du cancer mortel, c’est non seulement la personne malade elle-même qui est touchée mais également plus largement son entourage proche qui accompagne le patient jusqu’aux derniers instants. Plus particulièrement, les études actuelles démontrent que le soutien de la part du partenaire remplit une fonction primordiale dans une situation de cancer. Au sein des familles, la femme occupe une place particulière au sens où cette dernière est la principale figure de soins mais également garante de la gestion des émotions de l’ensemble des membres de la famille. Dès lors, certaines questions semblent intéressantes à investiguer dans le cadre de ce travail: «Quels mécanismes de protection la femme atteinte de cancer mortel met-elle en place afin de protéger son partenaire mais également elle-même?»; «Quels mécanismes de protection la femme met-elle en place face au cancer mortel de son partenaire?»; «Face à l’approche de la mort consécutive au cancer, comment la femme communique et interagit au sein du couple durant ce temps éprouvant?». La littérature souligne que la relation conjugale a une influence considérable sur l’adaptation au cancer. Toutefois, aucune étude n’aborde les interactions concrètes et les comportements de protection d’une telle situation auprès des couples concernés par la fin de vie suite au cancer.
Méthodes: Seize femmes tout-venantes et en bonne santé entre vingt-quatre et soixante-cinq ans sont invitées à se projeter dans deux scénarii présentant une situation de l'approche de leur fin de vie suite à un cancer et une autre situation de l'approche de la fin de vie de leur partenaire suite à un cancer également. Finalement, des questions semi-directives construites au préalable leur sont posées après chaque mise en situation. Le contenu des réponses des participantes est analysé afin d'approcher comment opèrent les comportements de protection des femmes au sein du couple.
Il s'agit donc d'une méthode projective, qualitative et comparative.
Résultats: La révélation de soi et la retenue ont pu être identifiées auprès les participantes de l’étude comme poursuivant des objectifs de protection de soi et du partenaire. Une observation intéressante réside dans les différences relevées entre les deux scénarii. Les comportements de protection sont différents selon qu'il s'agisse de la fin de vie de la femme ou de son partenaire. En effet, il apparaît que dans la mise en situation relative à la mort d’elles-mêmes, les femmes s’imaginent se révéler davantage que dans la mort de l’autre, l'objectif principal étant d'obtenir du soutien de la part de leur partenaire. Bien que des comportements de retenue ont pu être repérés dans les deux scénarii, il s’avère que dans la mise en situation se référant à la fin de vie du partenaire, la retenue est plus présente, la principale préoccupation des femmes étant de ne pas surcharger le partenaire.
Conclusion: Cette recherche élucide sur la manière comment opèrent les comportements de protection chez des femmes en couple face au contexte de fin de vie. Les comportements de protection semblent varier considérablement selon que les femmes sont confrontées à leur fin de vie ou à celle de leur partenaire. Ce travail pourrait
conceptualisations ayant entre autre comme objectif la réduction de la détresse individuelle et
guider vers une amélioration des interventions et
relationnelle lors des interactions.
Méthodes: Seize femmes tout-venantes et en bonne santé entre vingt-quatre et soixante-cinq ans sont invitées à se projeter dans deux scénarii présentant une situation de l'approche de leur fin de vie suite à un cancer et une autre situation de l'approche de la fin de vie de leur partenaire suite à un cancer également. Finalement, des questions semi-directives construites au préalable leur sont posées après chaque mise en situation. Le contenu des réponses des participantes est analysé afin d'approcher comment opèrent les comportements de protection des femmes au sein du couple.
Il s'agit donc d'une méthode projective, qualitative et comparative.
Résultats: La révélation de soi et la retenue ont pu être identifiées auprès les participantes de l’étude comme poursuivant des objectifs de protection de soi et du partenaire. Une observation intéressante réside dans les différences relevées entre les deux scénarii. Les comportements de protection sont différents selon qu'il s'agisse de la fin de vie de la femme ou de son partenaire. En effet, il apparaît que dans la mise en situation relative à la mort d’elles-mêmes, les femmes s’imaginent se révéler davantage que dans la mort de l’autre, l'objectif principal étant d'obtenir du soutien de la part de leur partenaire. Bien que des comportements de retenue ont pu être repérés dans les deux scénarii, il s’avère que dans la mise en situation se référant à la fin de vie du partenaire, la retenue est plus présente, la principale préoccupation des femmes étant de ne pas surcharger le partenaire.
Conclusion: Cette recherche élucide sur la manière comment opèrent les comportements de protection chez des femmes en couple face au contexte de fin de vie. Les comportements de protection semblent varier considérablement selon que les femmes sont confrontées à leur fin de vie ou à celle de leur partenaire. Ce travail pourrait
conceptualisations ayant entre autre comme objectif la réduction de la détresse individuelle et
guider vers une amélioration des interventions et
relationnelle lors des interactions.
Background: Defense mechanisms defined as unconscious process, cognitive operations alter by developmental periods for protective function, and that can be assessment of personality and experimental schedules. Defense Style Questionnaire... more
Background: Defense mechanisms defined as
unconscious process, cognitive operations alter by
developmental periods for protective function, and that
can be assessment of personality and experimental
schedules. Defense Style Questionnaire (DSQ-60) is a
self-report instrument designed to measuredefensive
functioning and coping styles. The aim of this study was
to adaptive theDSQ-60 in a sample of cancer patients
in Iran using exploratory and confirmatory factor
analytic procedures.
Method:The DSQ-60 was used to measure the
conscious derivatives of three factors defense styles
includeimage.distorting, affect.regulating and adaptive
in a sample of 200 cancer patients.
Result: Cronbach's coefficient alpha for
image.distorting (ex = 0.54),affect.regulating (ex =
0.53) and adaptive (ex = 0.5) were found to be poor in
terms of potential clinical significance,internal
consistency for all components was acceptable (.68).
Conclusion:Our results were consistent with the
previous research on the DSQ-60 indicating that the
psychometric features need to be improved before the
wider use of the scale. Further, DSQ-60 is a suitable
tool to assess cancer patients psychological defense
styles and that may be used for psychological
interventions to improve the care of these patients.
Keyword: defense styles, adaptation, DSQ-60,
confirmatory factor analysis
unconscious process, cognitive operations alter by
developmental periods for protective function, and that
can be assessment of personality and experimental
schedules. Defense Style Questionnaire (DSQ-60) is a
self-report instrument designed to measuredefensive
functioning and coping styles. The aim of this study was
to adaptive theDSQ-60 in a sample of cancer patients
in Iran using exploratory and confirmatory factor
analytic procedures.
Method:The DSQ-60 was used to measure the
conscious derivatives of three factors defense styles
includeimage.distorting, affect.regulating and adaptive
in a sample of 200 cancer patients.
Result: Cronbach's coefficient alpha for
image.distorting (ex = 0.54),affect.regulating (ex =
0.53) and adaptive (ex = 0.5) were found to be poor in
terms of potential clinical significance,internal
consistency for all components was acceptable (.68).
Conclusion:Our results were consistent with the
previous research on the DSQ-60 indicating that the
psychometric features need to be improved before the
wider use of the scale. Further, DSQ-60 is a suitable
tool to assess cancer patients psychological defense
styles and that may be used for psychological
interventions to improve the care of these patients.
Keyword: defense styles, adaptation, DSQ-60,
confirmatory factor analysis
Breast cancer is one of the most frequent reasons for death among women and it is also the most feared one, mainly for its psychological effects that affect the perception of the sexuality, identity, self-esteem and body image. The... more
Breast cancer is one of the most frequent reasons for death among women and it is also the most feared one, mainly for its psychological effects that affect the perception of the sexuality, identity, self-esteem and body image. The current study aimed at checking the satisfaction of 44 women in regard to the breast reconstruction dividing them in two groups: immediate reconstruction (24 patients) and late reconstruction (20 patients). It also evaluated changes in the quality of life and in anxiety and depression levels, in these patients at that moment and at the time of the diagnosis/treatment (retrospective
evaluation). Moreover, it was such a goal three questionnaires were used: one related to satisfaction at breast reconstruction, the Hospital
Anxiety and Depression Scale (HAD) and the WHOQOL}Bref. It was verified that the patients who went under late reconstruction were more satisfied than the ones who went under immediate reconstruction, which shows the importance of the psychological work of the loss and mourning of the breast before mastectomy. Furthermore, changes were verified in the levels of depression and anxiety, as well as in the quality of life of the patients during
the diagnosis/treatment.
evaluation). Moreover, it was such a goal three questionnaires were used: one related to satisfaction at breast reconstruction, the Hospital
Anxiety and Depression Scale (HAD) and the WHOQOL}Bref. It was verified that the patients who went under late reconstruction were more satisfied than the ones who went under immediate reconstruction, which shows the importance of the psychological work of the loss and mourning of the breast before mastectomy. Furthermore, changes were verified in the levels of depression and anxiety, as well as in the quality of life of the patients during
the diagnosis/treatment.
BACKGROUND: Breast cancer is the most frequent malignant disease among women in the world. There is a dearth of information about cultural differences related to distress in women with breast cancer. In the US, diagnosis of breast cancer... more
BACKGROUND: Breast cancer is the most frequent malignant disease among women in the world. There is a dearth of information about cultural differences related to distress in women with breast cancer. In the US, diagnosis of breast cancer is made earlier than in Brazil. There are other cultural differences that may provide insights as clinical care becomes more personalized. This study investigates the incidence of problem-related distress between two Cancer Centers (Brasilia, Brazil and California, US). METHOD: The data was collected from 2008 to 2010 as a part of clinical care and research in two different institutions, CETTRO (Brazil) and City of Hope (California). 307 breast cancer patients participated in this study. The samples are comparable in their demographics. Both were evaluated, using problem-checklists in the beginning of treatment. The problem-checklists address physical, practical, social, psychological and spiritual problems. The NCCN Distress Thermometer with a problemchecklist (35 items) translated and validated in Portuguese was administered at CETTRO. A touch screen version of the problem-checklist (27 items) in English was administered at COH. Both datasets obtained IRB approval. RESULTS: A sub-set of the problems (10 items) common to both measures was analyzed. Problems with Fear(66.7%) is the most common problem for the CETTRO sample, with Finances/Insurance(48.6%) being the most common for the COH sample. Problems with Sleep (CETTRO 556.4% vs. COH 542.7% ) is the second most common for both populations. There is a significant difference in the percentage of problems with Transportationbetween the two populations (CETTRO 511.5% vs. COH 530.4%). Problems with Physical Appearance were much higher for the CETTRO (47.4%) population compared to the COH (22.8%) population. Additional comparisons of the items were analyzed and will be presented. CONCLUSIONS: The results suggest that there are similarities and differences in the types and severity of problem-related distress in the two patient populations. These similarities and differences may be both related to the treatment as well as cultural issues. In the Physical Appearance problem, for example, if these two institutions reproduce what the scientific evidence shows (early diagnosis in US); surgery may be more conservative in US, which may result in a lower self-image and justify the difference found between in the two samples. RESEARCH IMPLICATIONS: These results demonstrate the importance of examining psychosocial variables that influence the incidence of distress and encourage development of new multicenter and multicultural studies. This study offers the opportunity to compare different cultures and to create new research hypotheses. It is essential to study why patients from some institutions or cultures suffer more in certain aspects, than others. Therefore it is possible to identify what needs to be changed to improve the quality of care. CLINICAL IMPLICATIONS: This multicenter, multicultural study demonstrates the importance of applying screening as a part of routine clinical care to identify the unique needs of women with breast cancer. This data can be used to improve communication among the health care team and patients around common problems that women with breast cancer experience. These findings open up opportunities to create tailored psychosocial interventions and treatment as a way to improve cancer care. ACKNOWLEDGEMENT OF FUNDING: None.
Considering the NCCN guideline for distress management and the gola of psychosocial care, which is related to recognize and address the cancer diagnosis and treatment’s effects on the mental status and emotional wellbeing of patients, a... more
Considering the NCCN guideline for distress management and the gola of psychosocial care, which is related to recognize and address the cancer diagnosis and treatment’s effects on the mental status and emotional wellbeing of patients, a Brazilian Cancer Center included the Distress Thermometer (DT) in the psychological evaluation routine, since 2007. The present study intend to evaluate the incidence of distress during each of these fi ve years, in a way to understand the implication of this assessment routine on the health team behavior. A total of 500 patients, sample of 100 per year, gave their consent in participate in this study (approved by the ethics committee), answering a demographic questionnaire and the DT throughout the chemotherapy protocol. In the whole sample, there was a prevalence of female patients (66.1%). They were between 18–86 years (M = 55.1; SD = 15.6). Breast (25.8%), hematological (22.3%) and gastrointestinal (21.4%) were the main diagnosis. About 66.2% had late stage (III and IV) disease. We observed that the incidence of distress have reduced over the years. Specifi cally in the fi rst year, 76% of patients reported high level of distress (DT ≥ 4) in the fi rst day of the chemotherapy protocol, decreasing to 15.6% in the last day of treatment (approximately fi ve months after the first assessment). In the fi fth year, only 46% of patients were with high distress, about fi ve months after only 5.5% remained with. Preliminary results suggest that in fi ve years the incidence of patients with distress reduced considerably (30% less). This reduction refl ect the major structural changes that have happened in the integration of the health team throughout these fi ve year in order to attend to patient’s psychosocial needs, including this perspective as an integral part of our quality cancer care. These changes will be reported at the meeting.
BACKGROUND: Distress, anxiety and depression are common emotional complications of cancer that deserve clinicians attention, as well as, the ways patients choose to cope with this difficult moment and the implications associated with... more
BACKGROUND: Distress, anxiety and depression are common emotional complications of cancer that deserve clinicians attention, as well as, the ways patients choose to cope with this difficult moment and the implications associated with disease and treatment in their quality of life (QoL). We examined the correlation between symptoms of distress, anxiety and depression, coping and quality of life among cancer patients from a Brazilian Cancer Center. METHOD: 44 patients participated in this pilot study, 27.3% were male and 72.7% female, average age was 57 (SD513.8), most of patients were married (70.5%), and 45.5% had college degree. The Distress Thermometer, the Hospital Anxiety and Depression Scale, the Functional Assessment of Cancer Therapy-General and the Ways of Coping Checklist were used to evaluate the psychosocial aspects, followed by a multidisciplinary discussion to define the best intervention for each case. This research was authorized by the ethics committee and the data were analyzed according to criteria defined in literature and with help of the software SPSS 17.0. RESULTS: In the beginning of treatment, 40.9% of patients had a clinically significant level of distress, 29.5% had anxiety and 25% depression, the average QoL was 89.3. At the midcycle assessment, 14% presented with distress, 4% anxiety and depression, the average QoL was 94.1. On the last day of chemotherapy 7.1% still scored above 4 on the DT, 4% showed anxiety and depression, and the average QoL was 98.7. The most common forms of coping used in all stages of evaluation was seeking social support; the second one was planful problem-solving in the beginning and distancing at middle and last day. CONCLUSIONS: This study shows that patients with high distress have worse QoL (74.8% with QoL o85) than patients without it (30% with QoL o85). Considering that coping is a major factor in the relation between distress (depression and anxiety) and cancer adaptation, patients tend to emotional support (seeking for social support) and to make efforts to seek informational. The progressive decrease of distress, anxiety and depression was attributed to screening and monitoring routine for identifying the level and nature of distress as well as the multidisciplinary intervention tailored to each case. RESEARCH IMPLICATIONS: This result supports the importance of these analyses, and the multidisciplinary discussion as a method of understanding the relations between distress, mood disorder, coping and QoL, as well as of understanding coping process and the mechanisms through which they come to affect patient’s well-being over the treatment. Furthermore, it is important to identify intersection points between patient’s psychological adjustment to cancer to know more about our patients and to offer a quality cancer care. CLINICAL IMPLICATIONS: In this journey patients have to appraisal and reappraisal to revise the meaning of events in ways that were more consistent with their new situation in an attempt to find a tolerable meaning to the event. It is important to know how is this patients process to propose the appropriate intervention strategies. Such knowledge, can favor the adequate assistance to patients because of the understanding of suffering and doubts present in the phases of disease. ACKNOWLEDGEMENT OF FUNDING: None.
BACKGROUND: Coping and Quality of life (QoL) are a central concern of clinicians working theory and research on adaptation and health. QoL is a term used to denote outcomes as experienced by the patient, that encompasses multiple domains,... more
BACKGROUND: Coping and Quality of life (QoL) are a central concern of clinicians working theory and research on adaptation and health. QoL is a term used to denote outcomes as experienced by the patient, that encompasses multiple domains, including, at least, physical, psychological, and social functioning. This study was conducted to explore the coping strategies used by cancer patients and assess their quality of life. METHOD: A total of 44 patients participated. They were between 29 and 83 years of age (M556), of both genders (27.3% male and 72.7% female), most of them married (70.5%), 45.5% had college degree, several types of cancer (gastrointestinal, breast cancer and lymphoma were the main diagnosis). They answered one sociodemographic questionnaire on the first day of evaluation and, the Functional Assessment of Cancer Therapy-General (FACT-G) and the Ways of Coping Checklist (WCC) in three distinct stages of the chemotherapy protocol: beginning, middle and last day of the treatment. RESULTS: In the beginning the average QoL was 89.3 and the three most frequent coping strategy were seeking social-support (61.4%), planful problem-solving (22.7%) and positive reappraisal (6.8%). At the middle the average QoL was 94.1, and the three most frequent coping strategies were seeking social-support (56%), distancing (24%) and positive reappraisal (12%). On the last day the average QoL was 98.7 and the incidence of coping strategies were seeking social-support (64.3%), distancing (14.3%) and confrontive coping, self control and positive reappraisal (7.1% each one). CONCLUSIONS: The patients quality of life has increased over assessments. Patients reported significantly more use of seeking social-support as a coping strategy in all evaluation. It is interesting to note the others patients: Beginning, planful problem-solving and positive reappraisal illustrates the point at which patient is trying to solve the ‘‘problem’’ and to create a positive meaning for this moment; Middle, some patients are refusing to think about or trying to create a positive outlook; Last day, patients are divided into forget something, aggressive efforts to alter the situation, regulate one’s own feeling and create a positive meaning. RESEARCH IMPLICATIONS: These findings raise the possibility to investigate the patients trajectory during chemotherapy, however other studies are necessary to evaluate the effectiveness of QoL and those coping strategies. However, effects of using particular strategies to cope with cancer on mood and QoL have been well-documented. However, findings have been somewhat inconsistent, possible due to the heterogeneous assessment techniques used to measure coping. CLINICAL IMPLICATIONS: Coping strategies are thought to play an important role with respect to managing the physical and psychological sequelae associated with a cancer diagnosis and treatment. QoL data can also be used to guide the care of individual patients. The routine evaluation of coping and QoL helps to identify individual who are at risk for or have mood problems, improves patient-clinician decision making, and guides the development of more effective therapy or supportive care. ACKNOWLEDGEMENT OF FUNDING: None.
Coping refers to the cognitive and behavioral activities by which a person attempts to manage a potentially stressful situation. This study sims to investigate the association between distress level and coping styles in 161 patients from... more
Coping refers to the cognitive and behavioral activities by which a person attempts to manage a potentially stressful situation. This study sims to investigate the association between distress level and coping styles in 161 patients from a private cancer center, located in Brasília, the capital of Brazil. They were between 19 and 84 years of age (M = 56; SD = 14.9), of both gender (29.8% male and 70.2% female), most of them married (61.5%), 61.5% had at least the college degree, with several types of cancer (gastrointestinal, breast and hematological were the main diagnosis). All patients answered the Distress Thermometer and the Ways of Coping Checklist 20 days after receive the diagnosis, on the day of the beginning of chemotherapy treatment. A signifi cant proportion of patients (42.9%) reported high level of distress (DT ≥ 4), of these patients the main coping strategy used to deal with diagnosis/treatment was seeking social support (27.5%) and painful problem solving (27.5%), followed by escape-avoidance (13%), confrontive coping, distancing and self-control (8.7% for each one). Those patients (57.1%) with low level of distress (DT ≤ 3) chose the social support (28.3%), problem solving (25%), distancing (23.9%), positive reappraisal (8.7%) and self-control (7.6%). There were similarities and diferences between group of patients with high and low of distress level. For both social support and problem solving were the most strategy used. The third one could be considered a similar construct of avoidance/denial (escapeavoidance and distancing). This preliminary fi ndings suggest that individuals who appraise their cancer illness as a threat are likely to use more social support and planful problem solving coping strategies. We suggest future studies to evaluate the relationship between coping and demographic and disease characteristics.
BACKGROUND: Distress is considered by many, the sixth vital sign in cancer care. Researches refer to high incidence of distress in cancer population. Levels of emotional distress should be evaluated in appropriate intervals as other vital... more
BACKGROUND: Distress is considered by many, the sixth vital sign in cancer care. Researches refer to high incidence of distress in cancer population. Levels of emotional distress should be evaluated in appropriate intervals as other vital signs are. Neglecting distress levels may lead losses in the therapeutic and preventive plan, with implications in adherence and coping with treatment. This procedure is standard in several countries, but not in Brazil. METHOD: In view of such reality, the present study objective was evaluate the incidence of distress, anxiety and depression during chemotherapy, among 169 patients, with age between 17 and 86 years (median553), with 18 different diagnoses of cancer, being those of major incidence: Oncohematologic (26%); Breast cancer (22.5%); Gastrointestinal (17.7%). This research was authorized by the ethics committee. The procedures of gathering data included the consent of the patients and in application of the Distress Thermometer (DT) and the Hospital Anxiety and Depression Scale (HAD). The data were analyzed according to criteria defined in literature and with help of the software SPSS 15.0. RESULTS: During the treatment 32.4% of patients were diagnosed with distress, 25.3% with anxiety and 25% with depression. While evaluating distress incidence in the diagnostics of greater incidence it was verified that: 1) Oncohematologic: 31.2% of patients showed distress, 23.2% with anxiety and 22.6% with depression; 2) Breast cancer: 26.7% of patients with distress, 23.8% with anxiety and 23.1% with depression; 3) Gastrointestinal: 28.4% of patients with distress, 25.1% with anxiety and 24.3 with depression. CONCLUSIONS: The high incidence of distress showed the necessity of an effective management of the emotional consequences of the diagnostic and treatment of cancer. Establishing a routine of screening for psychological distress and intervention, one may increase the possibility of bringing about a preventive evaluation of symptoms and psychological and psychiatric disturbances. The small difference showed between the main diagnostics in this study, assume that the distress, anxiety and depression are related to the impact of the diagnostic and the consequences of the treatment as a whole. RESEARCH IMPLICATIONS: The present study suggests that the prevalence of this suffering is independent of the type of cancer diagnosis. This research implicates the need of a deeper study of both variables (type of cancer and distress, anxiety and depression), and also an analysis of possible correlations with others variables. CLINICAL IMPLICATIONS: The screening for psychological distress may provide a preventive actuation in the reduction or elimination of psychiatric and psychologic disorders. These procedures subside action of intervention and prevention in relation to cancer patients and contribute to justify the adoption of evaluation measure of distress in oncologic treatment units. ACKNOWLEDGEMENT OF FUNDING: None.
BACKGROUND: Based on scientific evidence, it is undeniable the importance to recognize distress in cancer patients. The routine screening for distress can orient the clinical care to provide adequate support, providing feedback to... more
BACKGROUND: Based on scientific evidence, it is undeniable the importance to recognize distress in cancer patients. The routine screening for distress can orient the clinical care to provide adequate support, providing feedback to oncologists on the quality of their psychosocial care, being helpful to identify the need for improvement efforts. We investigate the course and prevalence of distress over the treatment, verifying the correlation with quality of life (QoL), and examine the effectiveness of psychosocial program. METHOD: Two hundred patients answered: (1) Distress Thermometer (DT) and Problem-List (PL) and (2) Functional Assessment of Chronic Illness Therapy-General (FACT-G) at baseline (T1), halfway time point (T2) and at completion of chemotherapy (T3). After each assessment, all results were discussed with the patients’ physician, to establish the best conduct. The conducts ranged from psycho-education, manage the side effects, to referrals. Descriptive analyses were calculated for sociodemographic, illness-related variables, DT, PL and FACT-G prevalence; chi-square and correlation were conducted to explore the effect of the distress course on PL and QoL. RESULTS: Proportion of patients experiencing moderate to severe distress (MSD) decreased (T1. 41.5%; T2. 9.1%; T3. 4.4%), being emotional and physical the most problems reported. The QoL mean scores slightly increased (T1. 85.6; T2. 90.4; T3. 92). There were a main effect of distress decreasing overtime (p = 0.000), of drop in problems reported (p < 0.05), and of QoL increase (p = 0.000). MSD were significant related (p = 0.000) to PL (T1. x2 = 77.5; T2. x2 = 79.1; T3. x2 = 158.5) and poor QoL (T1. x2 = 93.4; T2. x2 = 311.6; T3. x2 = 278.4). CONCLUSIONS: Routine screening for distress followed by personalized discussion between psychologist and oncologist (psychosocial program) resulted in reduction of MSD incidence and of problems-related distress reported, as well as, QoL increased, even under chemotherapy side effects. We observed that this kind of supportive feedback helps not only in identifying problems contributing to MSD, as offering appropriate practical and psychological assistance. This routine offers a viable strategy for ensuring that distress is identified and managed in a timely way. Moreover, we could provide more opportunities for connecting patients to adequate support, resulting in more appropriate referrals. RESEARCH IMPLICATIONS: Systematic screening for distress and multidisciplinary discussion was a good way to improve uptake of resources, rather than simplify focusing on screening alone. This routine maybe a key to reduce distress and to improve quality of life, providing equal access to psychological services. Future studies should be conducted to replicate and extend the current finding. As this study recruited patients just from a single cancer center, the study’s generalizability to other settings can be reduced. CLINICAL IMPLICATIONS: Understanding na individual’s level of distress related to their symptoms and illness-related concerns was fundamental to screening, referral, assessment and treatment. Moreover, this routine helped to determine the severity of distress and the appropriate intervention; let patients know more about the psychosocial services and the program available to take care of them, and mainly to encouraged those distressed patients without sufficient motivation for seek help and adequate active treatment. ACKNOWLEDGEMENT OF FUNDING: None.
BACKGROUND: For a long time, giving the diagnosis of cancer was considered something cruel and inhuman. Many times, doctors would prefer that patient should not know the name of the disease, in order that, they would not lose hope.... more
BACKGROUND: For a long time, giving the diagnosis of cancer was considered something cruel and inhuman. Many times, doctors would prefer that patient should not know the name of the disease, in order that, they would not lose hope. Doctors believed that there was no treatment available for cancer. Having in mind such social representation, the present study main goal was to know the influence of such representation in the reaction to diagnosis during the treatment. METHOD: Participated in this study 100 patients, of booth genders (39% male and 61% female), with the age between 17 and 86 years (median of 55 years), with 17 types of cancer. Those patients were accompanied in a specialized center in cancer, in the capital of Brazil. The research project was authorized by an ethics committee. The procedures of gathering data included in the consent of the patient and application of a structured interview during treatment. A content analysis of answers was made, with help of the software SPSS 16.0 and ALCESTE. RESULTS: The content analysis of reports identified three categories of representation of cancer, that maintained themselves during the treatment: serious and fatal disease (88%), serious disease, but treatable (9%) and disease similar to any other one (3%). In relation to reaction to diagnosis; 40% of the patients became afraid and worried; 24% became desperate; 16% had a pessimist attitude; 10% were discontented; 7% denied; 3% became frustrated. The analysis of the ALCESTE showed a relation between the cancer concept and the way patient react to diagnosis. This relationship is influenced by the history and personality of each patient. CONCLUSIONS: The fact that the increase of survival may change the cancer into a chronic disease did not diminish the stigma imposed by the historic perspective. Till today, this disease is connected to death, which compromises the coping of patients. The social representation favored negative reactions to diagnosis, similar to those related by the patients. Thus, we can infer that the initial concept of cancer does not change independent of chances of being cured. This concept is latent while the situation is favorable and it manifests itself when an expected event appears and that confirms the initial representation of this disease. RESEARCH IMPLICATIONS: The relationship between cancer and death brings up the need of new educational programs that may soothe the historic stigma and negative appeal of the midia. Furthermore, it asks for studies that investigate the influence of that relationship in the behavior, as for example: early diagnosis—fear of the disease inhibits the looking for medical assistance; coping with a diagnosis and treatment; hyper precaution with health, obsessive thoughts and hypochondria patients in remission. CLINICAL IMPLICATIONS: Knowing the patient’s concept about his own disease favors a minimization of possible negative or positive fantasies that may compromise the coping of patient and adherences to treatment. Such perception may be related with distress, anxiety and depression - answers expected from the person who has cancer. Such knowledge, can favor the adequate assistance to patients because of the understanding of suffering and doubts present in the phases of disease. ACKNOWLEDGEMENT OF FUNDING: None.
BACKGROUND: In recent decades there has been a growing interest in medical science to study the relationship between gender and health status. This relation is influenced by biological, psychological, social and cultural characteristics.... more
BACKGROUND: In recent decades there has been a growing interest in medical science to study the relationship between gender and health status. This relation is influenced by biological, psychological, social and cultural characteristics. In the cancer context, women feel safer in sharing their sorrows and fears with others as a way of dealing with vulnerability feeling. While, men tend to choose fight-or-flight response, with a penchant for introspection to resolve problem, seeking internal resources. METHOD: This study aims to investigate the difference between distress and gender in 58 patients with lymphoma, 51.7% of whom were males (Group 1) and 48.3% were females (Group 2). In Group 1, the average mean age was 50 (SD515.8), most of patients were married (62%) and 51.7% had college degree. In Group 2, the average age was 56 (SD514.3), 48.1% were married and 59.3% had college degree. The investigation was authorized by the ethics committee. The Distress Thermometer (DT) was used to evaluate distress in three different stages of treatment: beginning, middle and end of chemotherapy. RESULTS: There was a significant difference between the two groups, observed in all three stages of evaluation (po0.01). In the beginning of treatment, the incidence of distress was 34.5% for male and 40.7% for female. During treatment, there was a progressive decline at middle (7.7% male and 25% female) and on the last stage of evaluation (4.5% male and 19% female). CONCLUSIONS: The results showed that women had a higher incidence of distress than men. This difference can be observed in all stages of evaluation, suggesting that gender is an important fator to be considered in the assessment of distress, with different implications for the ability to cope with the diagnosis and treatment. However, men’s tendency to minimize and somatize their vulnerabilities through nonverbal and, the impersonal way and short emotional expression can influence the sample data in this methodology. RESEARCH IMPLICATIONS: According to the literature, there is not a distress assessment strategy that is most efficient for detection of genders differences. We emphasize the importance of conducting more research to determine the gender influence on the distress incidence. Since gender is one of the most basic biological and psycho-social characteristics of individuals, knowledge of gender can be the first step toward understanding the complexity of cancer patients. CLINICAL IMPLICATIONS: Gender has been shown to be an important component in doctor patients’ communication/relationship, treatments’ efficacy, side effects management, and mood disorder intervention. For a better health care program and to choose appropriate intervention it is important to understand how to best support women and men in their experience of cancer treatment. ACKNOWLEDGEMENT OF FUNDING: None.
The quality of life (QoL) evaluation can better contextualize the psychosocial problems experienced by patients over the disease trajectory, as well as, monitor the quality of cancer care and the effi cacy of psychosocial... more
The quality of life (QoL) evaluation can better contextualize the psychosocial problems experienced by patients over the disease trajectory, as well as, monitor the quality of cancer care and the effi cacy of psychosocial intervention/treatment. Moreover, elevated level of distress have been linked with reduced health-related QoL. A longitudinal study was carried out to investigate the relationship between high level of distress (DT ≥ 4) and QoL, throughout the chemotherapy. For this assessment was considered three points in the treatment protocol, with an average interval of two and a half months between them (fi rst day – T1; middle – T2; last day – T3). A sample of 161 patients, completed the Distress Thermometer and the Functional Assessment of Cancer Therapy – General. Of those, 29.8% were male and 70.2% female, with a mean age of 56 years (SD = 14.9; range 19–84 years). The main forms of cancer were gastrointestinal (33.4%), breast (29.8%) and hematological (21.7%). About 36.4% had early stage (I and II) disease and 63.6% late stage (III and IV). At T1 distress level was signifi cant related to QoL score (r = −0.73, p < 0.001) and QoL to disease stage (r = −0.16, p < 0.05). At T2 and T3 distress was related to QoL (r = −0.65, p < 0.001; r = −0.59, p < 0.001). Accordingly with this preliminary data distress was related to QoL over all treatment phases: fear of the unknown (T1), adaptation to side effects and the cancer reality (T2) and apprehension with the end of treatment (T3); and the disease stage just with QoL at T1. This results suggest the importance of distress and QoL screening routine, since this allows an in-depth look at the patient’s psychosocial health care needs, improving not only the psychosocial service as the quality of cancer care.
OBJECTIVES: Men and women create different structures in their caregivers roles. Women are more socio-centric and assembled, and the experimental content of their relationship with others are basic relevant. As men enter the world of... more
OBJECTIVES: Men and women create different structures in their caregivers roles. Women are more socio-centric and assembled, and the experimental content of their relationship with others are basic relevant. As men enter the world of instrumental and emotional care giving, all known rules change. The current study aimed to investigate the relation between gender and distress among patients in chemotherapy. METHOD: This study was developed in an oncology center, located in Brasilia, Brazil. The data of 267 patients, of median age 56 (14 to 86 years old), were assessed with the Distress Thermometer during three different stages of the chemotherapy protocol: beginning, middle and last day. This sample was shared according to the gender of the patients. Thus, two groups were formed: Men group, with 35.6% of the sample and the Women group corresponding to 64.4%. RESULTS: There were significant differences between groups in all stages of evaluation: beginning (po0.05), middle (po0.01) and last day (po0.05). The men group reported 50.5% of severe distress at the beginning, 20.5% middle and 12.7% last day of treatment. By the time, the incidence of distress in the women group was higher: 66.9% at the beginning, 35.5% middle and 20.9% last day of chemotherapy. CONCLUSIONS: The findings showed that the women group had a higher incidence compared to the men group. The gender proved to be an important moderate factor, with effects on the ability to cope. Furthermore, it does not exist a sole determinant factor and neither one strategy that is the most efficient. The coping strategies chosen are related to the characteristic of the disease, reaction to the treatment, patient’s dynamic and cultural and social context.
Distress is related to cancer diagnosis and treatment and is explicitly tied to a number of common practical, physical, and psychologic problems. Throughout cancer treatment different levels of distress can be expected and related to... more
Distress is related to cancer diagnosis and treatment and is explicitly tied to a number of common practical, physical, and psychologic problems. Throughout cancer treatment different levels of distress can be expected and related to changes phases. Therefore, we sought to characterize the distribution of distress level over three points of evaluation, considering the duration of chemotherapy protocol (average range of two and a half months between each assessment). To compose the sample, a total of 261 patients of a Brazilian cancer center, completed all the phases of evaluation, through the Distress Thermometer. They had a mean age of 53.3 years (SD = 15.5), 67% were women and 33% were men, most of them were married (63.2%), and 58.6% had at least college degree. The main forms of cancer were breast (27.6%), hematological (24.1%) and gastrointestinal (23.7%). In the beginning of the treatment (T1) 55.2% of patients were with signifi cant distress (DT ≥ 4). At the middle (T2) 21.8% of patients remained with high distress, 33.4% reduced distress level, 43.3% remained with low distress, and 1,5% increased distress level. At the last day of chemotherapy (T3) 8% remained with high distress, 15.3% reduced distress level, 71.3% remained with low distress, and 5.4% increased distress level. The demographic characteristic and the problems related distress, considering the distress level behavior over the points of evaluation will be presented at the meeting. Moreover, the present fi ndings shows a high incidence of distress, with a progressive decrease in reevaluation stages, not for all patients, which increased or persisted with high level of distress. We can observed that low distress in T1 is a good indicator for patients maintain low distress throughout the treatment.
BACKGROUND/PURPOSE: National and international organizations have recommended that distress be assessed as part of routine cancer care. Considering the importance of these endorsements, an NCI R25-E training program was developed to teach... more
BACKGROUND/PURPOSE: National and international organizations have recommended that distress be assessed as part of routine cancer care. Considering the importance of these endorsements, an NCI R25-E training program was developed to teach healthcare professionals to implement biopsychosocial screening programs. The purpose of our presentation is to introduce this unique training program. A past trainee will share her experiences of implementing the program in Brazil.
METHODS: The training program is offered nine times during the 5-year tenure of the award and trains 360 cancer healthcare professionals in how to implement biopsychosocial screening programs. The program includes eight pre-workshop webinars, a 2-day skills-based workshop incorporating faculty-led interactive clinical experiences, and supervised participation in the clinical implementation of a biopsychosocial screening program, including follow-up support of four post-workshop webinars, eight post-workshop faculty–trainee conference calls, and a web-based Discussion Board. RESULTS: The training program began in April 2013. Two of the nine planned workshops have been successfully conducted. The interest from healthcare professionals has been much higher than anticipated. To date, 87 healthcare professionals have been trained from institutions and community cancer settings across the United States as well as Brazil and China. 96% of the participants agreed or strongly agreed they were satisfied with the workshop. In addition, this training program allowed a Brazilian Cancer Center to improve their existing screening program.
CONCLUSIONS: Dissemination of effective biopsychosocial screening implementation strategies has impacted institutions’ ability to meet the distress screening guidelines and standards. Overall, this training program has successfully impacted cancer care nationally and internationally.
Research Implications: The research implications of this training program are to increase the number of biopsychosocial screening programs implemented in institutions and community settings, thus providing screening data to further understand the biopsychosocial needs of cancer patients globally.
Practice Implications: This training directly impacts the quality of clinical care provided in the trainees’ institutions and community settings. Additionally, the great diversity in trainees, national and international, physician, nurses, social workers, chaplains, and psychologists creates unique and innovative opportunities to fine tune biopsychosocial screening to specific populations linked to tailored interventions.
Acknowledgement of Funding: Funded by NCI Grant #1R25CA174444-01.
METHODS: The training program is offered nine times during the 5-year tenure of the award and trains 360 cancer healthcare professionals in how to implement biopsychosocial screening programs. The program includes eight pre-workshop webinars, a 2-day skills-based workshop incorporating faculty-led interactive clinical experiences, and supervised participation in the clinical implementation of a biopsychosocial screening program, including follow-up support of four post-workshop webinars, eight post-workshop faculty–trainee conference calls, and a web-based Discussion Board. RESULTS: The training program began in April 2013. Two of the nine planned workshops have been successfully conducted. The interest from healthcare professionals has been much higher than anticipated. To date, 87 healthcare professionals have been trained from institutions and community cancer settings across the United States as well as Brazil and China. 96% of the participants agreed or strongly agreed they were satisfied with the workshop. In addition, this training program allowed a Brazilian Cancer Center to improve their existing screening program.
CONCLUSIONS: Dissemination of effective biopsychosocial screening implementation strategies has impacted institutions’ ability to meet the distress screening guidelines and standards. Overall, this training program has successfully impacted cancer care nationally and internationally.
Research Implications: The research implications of this training program are to increase the number of biopsychosocial screening programs implemented in institutions and community settings, thus providing screening data to further understand the biopsychosocial needs of cancer patients globally.
Practice Implications: This training directly impacts the quality of clinical care provided in the trainees’ institutions and community settings. Additionally, the great diversity in trainees, national and international, physician, nurses, social workers, chaplains, and psychologists creates unique and innovative opportunities to fine tune biopsychosocial screening to specific populations linked to tailored interventions.
Acknowledgement of Funding: Funded by NCI Grant #1R25CA174444-01.
BACKGROUND: Cancer diagnosis and treatment promote a sense of vulnerability, sadness, and fear for patients, often resulting in distress. When this happen quality of life, satisfaction with care and treatment adherence can be greatly... more
BACKGROUND: Cancer diagnosis and treatment promote a sense of vulnerability, sadness, and fear for patients, often resulting in distress. When this happen quality of life, satisfaction with care and treatment adherence can be greatly affected.Managing this situation may require to use a variety of coping strategies for psychosocial adjustment. The present purpose was to identify variables (sociode- mographic, problem list, quality of life and coping) that predict moderate to severe distress (MSD) and mild distress (MD). METHOD: Two hundred patients from a brazilian cancer patients participate, answering before start chemotherapy (T1), halfway time point (T2) and at completion of treatment (T3): Distress Thermometer (DT) and Problem List (PL); Functional Assessment of Chronic Illness Therapy - General (FACT-G); Ways of Coping (WAYS). They were between 18–89 years old (M = 56.8; SD = 15), being 69.5% women, 63% married, and 55% had at least college degree. The main diagnosis were breast (30%), hematology (22%) and gastrointestinal (17.5%), being 59.5% with advanced disease stage. Logistic regression were used to identify predictors of distress. RESULTS: At T1, predictors for MSD were married/divorced (x2 = 15.4; p = 0.05), housing (x2 = 19.2; p = 0.002), family (x2 = 11.5; p = 0.003) and emotional problems (x2 = 99.9; p = 0.000; R2 N = 53%); for MD: distancing/positive reappraisal (x2 = 42.1; p = 0.000). At T2, spiritual problems (x2 = 7.56; p = 0.006) and nausea (x2 = 52.9; p = 0.000; R2 N = 54%) for MSD; distancing, problem solving and positive reappraisal (x2 = 24.9; p = 0.001) for MD. At T3, only family problem [x2 = 5.5; p = 0.05] for MSD. CONCLUSIONS : There was a statistically significant reduction in distress and a increased on quality of life over assessments. Our observation linking MSD to marital status (T1) and some problems at PL, and MD predicts coping strategies. This findings have a impressive prediction success, mainly for emotional (T1), and nausea (T2). Quality of life did not appear as a predictor. The same occur for age, gender, education, diagnostic and staging. Moreover, patients with MSD at T1 have an increase probability to present MSD at T2 and T3, which reinforces the literature data - the best predictors of later distress is early distress. RESEARCH IMPLICATIONS: Continued research is needed to understand how distress relates to quality of life, gender, age, cancer type and severity, treatment and symptom burden throughout the continuum of care. CLINICAL IMPLICATIONS: There is no doubt about the importance of detecting distress in cancer patients as early as possible, in order to facilitate rapid and tar- geted intervention for those who will need it most, as well as the importance of the follow-up. But, understand the predictors of distress during the treatment could be a key to improve cancer care, given more indicators to direct psychosocial care. ACKNOWLEDGEMENT OF FUNDING: None
OBJECTIVES: The NCCN guidelines of Distress Management specify the standards of care and recommend intervention modalities. The aim of this research was to make a retrospective and comparative study between two different moments of the... more
OBJECTIVES: The NCCN guidelines of Distress Management specify the standards of care and recommend intervention modalities. The aim of this research was to make a retrospective and comparative study between two different moments of the routine (Before and After changes) of an oncology center, in Brasilia, Brazil. Thus, the changes correspond to a monthly meeting between psychologist and assistant doctor to discuss level of distress and interventions, as well as changes in the technical/administrative management. METHOD: The incidence of distress was recognized through the use of the Distress Thermometer in three stages: beginning, middle and last day of chemotherapy; relating them to two diferente moments of routine. The first group (Before) consisted of 100 patients, between 17 and 86 years, 39% male and 61% female, from July 2007 to April 2008. The second (After) comprised 100 patients, 18 and 86 years, 35% male and 65% female, from January to October 2009. RESULTS: Before: In the first stage of evaluation most participants (82%) presented a severe distress; that percentage progressively decreased to 36.4%at the middle, and to 18.2% at the last day. After: The incidence of distress at the beginning (52%) decreased over the first moment of routine evaluation; these decrease trends were maintained in the middle (25%) and in the last day of chemotherapy (16.7%). CONCLUSIONS: The high incidence of distress showed in the first group (Before) brought the need for changes in the health team routine and the technical/administrative management. Thereafter, the distress management becomes an integral part of cancer care. After changes, the low incidence of distress was attributed to screening and monitoring routine for identifying the level and nature of distress; medical and psychological intervention tailored to each case. A humane practice was observed from this comprehensive assistance.
Background: Nutrition plays an important role to help patients to deal with chemotherapy side effects. Intense research were conducted on the impact of nausea, fatigue and alopecia. It would be also important to study how eating problems... more
Background: Nutrition plays an important role to help patients to deal with chemotherapy side effects. Intense research were conducted on the impact of nausea, fatigue and alopecia. It would be also important to study how eating problems can affect patient’s life. This study investigated the extent to which eating-related side effect can predict distress, anxiety/depression and low QoL over chemotherapy treatment.
Methods: We analyzed longitudinal data from 642 cancer patients, undergoing chemotherapy at a Brazilian cancer center. Assessments were obtained at the first infusion (T1) and at two follow-ups: mid-point (T2) and last day of chemotherapy regimen (T3), using Distress Thermometer, HADS and FACT-G. Descriptive statistics were used to characterize the sample, logistic regression to identify predictions variables and RM-ANOVA to check the variance/covariance matrix of the data.
Results: Eating problems showed to favor high scores of distress (T1, T2, T3), and depression (T1, T3) and low scores of quality of life (T1, T2). A significant interaction was found between eating and high level of distress, anxiety and depression; and between eating and low quality of life.
Conclusion: Eating-related problems can be considered an important side effect, that can impact on distress and QoL. Develop a nutrition program in which cancer patients receive evidence-based and individualized recommendations from a nutrition expert, based on their type of cancer, stage of disease, planned treatment, nutrition and weigh history and lab values, can be an effective strategy to decrease this side effect. Future studies should be conducted to evaluate this strategy.
Research implication: Further research is required to clarify how eating-related side effects can influence outcomes in patients undergoing cancer treatment, and also to identify how relevant is this symptom in the trajectory of the illness, affecting the patient's coping with this journey.
Clinical Implication: The present findings suggest the importance of a nutritional program over the treatment, helping patients to deal with the chemotherapy side effects, the disease symptoms and the sequelae of treatment.
Acknowledgement: None.
Methods: We analyzed longitudinal data from 642 cancer patients, undergoing chemotherapy at a Brazilian cancer center. Assessments were obtained at the first infusion (T1) and at two follow-ups: mid-point (T2) and last day of chemotherapy regimen (T3), using Distress Thermometer, HADS and FACT-G. Descriptive statistics were used to characterize the sample, logistic regression to identify predictions variables and RM-ANOVA to check the variance/covariance matrix of the data.
Results: Eating problems showed to favor high scores of distress (T1, T2, T3), and depression (T1, T3) and low scores of quality of life (T1, T2). A significant interaction was found between eating and high level of distress, anxiety and depression; and between eating and low quality of life.
Conclusion: Eating-related problems can be considered an important side effect, that can impact on distress and QoL. Develop a nutrition program in which cancer patients receive evidence-based and individualized recommendations from a nutrition expert, based on their type of cancer, stage of disease, planned treatment, nutrition and weigh history and lab values, can be an effective strategy to decrease this side effect. Future studies should be conducted to evaluate this strategy.
Research implication: Further research is required to clarify how eating-related side effects can influence outcomes in patients undergoing cancer treatment, and also to identify how relevant is this symptom in the trajectory of the illness, affecting the patient's coping with this journey.
Clinical Implication: The present findings suggest the importance of a nutritional program over the treatment, helping patients to deal with the chemotherapy side effects, the disease symptoms and the sequelae of treatment.
Acknowledgement: None.
- by Cristiane Decat Bergerot and +1
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- Depression, Cancer, Psycho-oncology, Anxiety
BACKGROUND: Cancer patients face numerous stressors in physical, emotional, social and spiritual life domains, not only because of the stigma related to this disease, but mainly because the treatment has a substantial amount of acute and... more
BACKGROUND: Cancer patients face numerous stressors in physical, emotional, social and spiritual life domains, not only because of the stigma related to this disease, but mainly because the treatment has a substantial amount of acute and late symptoms. The current literature emphasizes the effect of cancer, disease stage and treatment type on distress levels. In this study we examined the chemotherapy regimen (CR) relationship with distress levels on different stages of treatment. METHOD: Ninety women with breast cancer completed the Distress Thermometer (DT) and Problem List (PL) before first chemotherapy infusion (T1), halfway time point (T2), and at completion of treatment (T3). Five types of CR were prescribed: 34.4% of the patients took AC-TX (doxorubicin/cyclophosphamide/paclitaxel) regimen, 23.3% TC (docetaxel/cyclophosphamide), 14.4% TXT (doxorubicin/ciclophosphamide/docetaxel), 14.4% TAC (docetaxel/doxorubicin/cyclophosphamide), and 13.3% FEC (fluorouracil/epirubicin/cyclophosphamide). The data was analyzed with three-regressions of DT as dependent and CR as independent variables (controlling for age, marital status and disease stage) followed by a repeated measures ANOVA with CR as independent and five problems as dependent variables (practical, family, emotional, spiritual, physical). RESULTS: Severe to moderate distress (SMD) was reported by 48.9% of the patients at T1, 18.9% at T2 and 15.6% at T3. The most reported emotional problems were for FEC (fears, worry, sadness) and TXT (worry, depression, nervousness). For physical problems were AC-TX (constipation, fatigue, pain, appearance), TXT (appearance, sleep, nausea, fatigue) and TAC (fatigue, appearance, pain). Only TAC was a significant predictor of distress at T1 (p = 0.004) and T2 (p = 0.02) while TXT regimen was significant at T3 (p = 0.04). The repeated measures ANOVA revealed a significant interaction between CR and Physical problems (p = 0.02). CONCLUSIONS: The incidence of SMD and problems-related distress decreased between T1 to T3, despite the increase of patients’ side effects. FEC and TXT causes more emotional problems and AC-TX, TXT and TAC more physical problems. Considering the toxicity of the protocol, these results are consistent with the literature. The highest problem-related distress associated with CR was physical problems. Moreover, TAC showed to be predictive of distress in T1 and T2. RESEARCH IMPLICATIONS: Our results indicate that CR predicts distress in all treatments phases. Nonetheless, the effects of chemo can be persisted even after the end of treatment; and breast cancer survivors have increased risk for distressful symptoms related to fear of recurrence, death and disability. More studies are thus needed to investigate those factors increasing the sample in order to make the data more generalizable. CLINICAL IMPLICATIONS: The findings suggest a very positive benefit from the discussion between psychologist and physician, in which side effects and distress during treatment are addressed. It is important to create a strategy to help cancer patients to deal with chemo, mainly for patients who report problems related to TAC and TXT. This strategy could be related to tailored psychosocial education, preventive care for side effects, psychological management intervention, coping strategies and should be reinforced regularly. ACKNOWLEDGEMENT OF FUNDING: None.
- by Matthew Loscalzo and +2
- •
- Breast Cancer, Psycho-oncology, Chemotherapy, Cancer Care
Background: Genitourinary cancers (GU) are common and represent a frequent cause of death. Disease and treatment can have profound effects on patients' life. Given the lack of distress data in GU, we explore biopsychosocial aspects of... more
Background: Genitourinary cancers (GU) are common and represent a frequent cause of death. Disease and treatment can have profound effects on patients' life. Given the lack of distress data in GU, we explore biopsychosocial aspects of being treated for GU.
Methods: 29 male patients (M=65.5 years) newly diagnosed with GU (37.9% prostate, 31% bladder, 20.7% renal) consented to and answered the Distress Thermometer, HADS and FACT-G. They were assessed at the first infusion (T1) and at two follow-ups: mid-point (T2) and last day of planned chemotherapy (T3).
Results: Moderate to severe distress was reported by 48,3% (T1), decreasing to 4.3% (T3); renal cancer showed the highest average at T1 and prostate at the follow-ups. For problems-related distress, a major frequency was reported by prostate cancer overtime. Clinically significant anxiety was reported by 41.4% (T1) reducing to 3.4% (T3); prostate reported the highest average overtime. Depression also decreased overtime (24.1% to 3.4%); kidney showed a higher average at T1, bladder at T2 and prostate at T3. QoL increased overtime, from an average of 86,2 (T1) to 94.8 (T3); kidney led the average at T1 and bladder over the follow-ups.
Conclusion: Our findings highlighted the importance of biopsychosocial screening, considering the overall prevalence rate for distress, the specific characteristics of GU and the fact that men have a strong inclination to turn inward, avoiding share emocional concerns. This results also suggest the benefit of an intervention before the first infusion, to elaborate a plan of care, focus on matching resource to patient’s needs.
Research Implications: These preliminary findings provide a basis for further research on GU, considering the lack informations in the literature about distress in GU patients during the treatment. More research is also need on the long-term impact of treatment side effects on distress and QoL.
Clinical Implications: The screening program showed to be an important step in the identifications of patients who are suffering with this diagnosis and treatment. The results also suggest the benefits of a psycho-educative intervention before the first chemotherapy infusion.
Methods: 29 male patients (M=65.5 years) newly diagnosed with GU (37.9% prostate, 31% bladder, 20.7% renal) consented to and answered the Distress Thermometer, HADS and FACT-G. They were assessed at the first infusion (T1) and at two follow-ups: mid-point (T2) and last day of planned chemotherapy (T3).
Results: Moderate to severe distress was reported by 48,3% (T1), decreasing to 4.3% (T3); renal cancer showed the highest average at T1 and prostate at the follow-ups. For problems-related distress, a major frequency was reported by prostate cancer overtime. Clinically significant anxiety was reported by 41.4% (T1) reducing to 3.4% (T3); prostate reported the highest average overtime. Depression also decreased overtime (24.1% to 3.4%); kidney showed a higher average at T1, bladder at T2 and prostate at T3. QoL increased overtime, from an average of 86,2 (T1) to 94.8 (T3); kidney led the average at T1 and bladder over the follow-ups.
Conclusion: Our findings highlighted the importance of biopsychosocial screening, considering the overall prevalence rate for distress, the specific characteristics of GU and the fact that men have a strong inclination to turn inward, avoiding share emocional concerns. This results also suggest the benefit of an intervention before the first infusion, to elaborate a plan of care, focus on matching resource to patient’s needs.
Research Implications: These preliminary findings provide a basis for further research on GU, considering the lack informations in the literature about distress in GU patients during the treatment. More research is also need on the long-term impact of treatment side effects on distress and QoL.
Clinical Implications: The screening program showed to be an important step in the identifications of patients who are suffering with this diagnosis and treatment. The results also suggest the benefits of a psycho-educative intervention before the first chemotherapy infusion.
This paper introduces the bodymind model of Art Therapy and delineates the processes through which it has salutary effects on individuals coping with a variety of health related challenges. The goal of this model is to articulate how... more
This paper introduces the bodymind model of Art Therapy and delineates the processes through which it has salutary effects on individuals coping with a variety of health related challenges. The goal of this model is to articulate how activation, reorganization, growth and reintegration of the self can emerge from bodymind processes activated by art therapy. It provides a framework for the conduct of research that will test the key theoretical mechanisms through which art therapy benefits clients. We expect this model to be a spring board for discussion, debate and development of the profession of art therapy. Furthermore, this model contribute to procedures to conduct sound mechanistic studies. Social scientists and medical professionals can also use the information to consider further how art making contributes to health.
BACKGROUND: Patients with gastrointestinal (GI) cancer are often diagnosed with locally advanced disease or distant metastases. Accordingly, this patient have to cope with limited on the possibility of curative treatment and the impact on... more
BACKGROUND: Patients with gastrointestinal (GI) cancer are often diagnosed with locally advanced disease or distant metastases. Accordingly, this patient have to cope with limited on the possibility of curative treatment and the impact on quality of life due to the severe physical symptoms, which results in emotional distress. Special problems in psychosocial adjustment are posed when tumors develop in GI tract. The current study aimed to evaluate distress, anxiety and depression in patients with GI cancer. METHOD: This study was developed in an oncology center, located in Brasilia, Brazil. 93 patients, were assessed with the Distress Thermometer (DT) and Hospital Anxiety and Depression Scale (HADS) during three different stages of the chemotherapy protocol: beginning, middle and last day. This research was authorized by the ethics committee. The data were analyzed according to criteria defined in literature and with help of the software SPSS 17.0. RESULTS: At the beginning of chemotherapy, patients mean scores were distress (53.8%), anxiety (39.8%) and depression (42%). In the middle of treatment, the percentages of distress, anxiety, and depression decreased to 33.8%, 24.3%, and 27%, respectively. On the last day, the levels were 11.3% for distress, and 14.5% for anxiety and 13% for depression. CONCLUSIONS: A significant proportion of these patients shows symptoms of distress, anxiety and depression. In the beginning of therapy, the high incidence demonstrates the importance of screening and effective management of emotional disturbance related to the diagnosis and cancer treatment. Sometimes, we note, that the problem of physical and psychological dysfunction are so intertwined that they are difficult to separate. Because of that, we introduce a multidisciplinary discussion to facilitate the management of emotional disturbs related to patients’ experience in order to improve quality of life and to offer a better adaptation to this reality. RESEARCH IMPLICATIONS: There is great amount of distress associated with GI cancer. It is important to establish a routine of distress and emotional disturbance assessment as well as a multidisciplinary discussion, to open up the opportunity to work before the symptoms appear and to choose the best intervention tailored to each case. The multidisciplinary efforts to implement goals of psycho-oncology, palliative care and quality of life into routine care should also be the perspective for further research. CLINICAL IMPLICATIONS: Considering the generally poor prognosis in advanced GI tumors, supportive care intervention should be included in patients’ treatment. A consequent integration of psychosocial concerns into clinical practice and research is of particular importance in those cases with poor survival prognosis. ACKNOWLEDGEMENT OF FUNDING: None.
Even though loss and grief are common experiences, literatures informing counselling psychology illustrate some of the varied and problematic ways in which grief is talked about in psychological therapies. This study aimed to investigate... more
Even though loss and grief are common experiences, literatures informing counselling psychology illustrate some of the varied and problematic ways in which grief is talked about in psychological therapies. This study aimed to investigate and critique how counselling psychologists (CoPs) discursively construct grief in the context of their practice. Ten semi-structured interviews were conducted with accredited, practising CoPs who identified themselves as having worked with bereaved clients. The data was analysed, informed by a post-structuralist epistemological approach and a Foucauldian Discourse Analysis (FDA) was applied.
The rationale for this approach resulted from these participants’ accounts being resourced by diverse and power laden knowledges. Their multiple, conflicting and contrasting ways of talking about grief and bereavement counselling practices seemed to warrant closer attention. Specifically, the findings of this analysis identified three distinct subject positions; “The Expert Practitioner,” “The Human to Human Practitioner” and “The Reflexive Practitioner.” These subjectivities highlighted the multiple, mutable and contradictory spaces within which these CoP participants were located in their talk about grief work. Overall, these subject positions illustrate the heterogeneity and opacity in the language of grief work for counselling psychology. It is argued that these findings propose that CoPs working with multiple knowledges can cultivate a meta-perspective to appreciate the diverse, discursive power games in particular therapeutic accounts of grief work, as this research makes visible.
The rationale for this approach resulted from these participants’ accounts being resourced by diverse and power laden knowledges. Their multiple, conflicting and contrasting ways of talking about grief and bereavement counselling practices seemed to warrant closer attention. Specifically, the findings of this analysis identified three distinct subject positions; “The Expert Practitioner,” “The Human to Human Practitioner” and “The Reflexive Practitioner.” These subjectivities highlighted the multiple, mutable and contradictory spaces within which these CoP participants were located in their talk about grief work. Overall, these subject positions illustrate the heterogeneity and opacity in the language of grief work for counselling psychology. It is argued that these findings propose that CoPs working with multiple knowledges can cultivate a meta-perspective to appreciate the diverse, discursive power games in particular therapeutic accounts of grief work, as this research makes visible.
French and English Objectif : Cette étude qualitative vise à décrire les effets revitalisants d’un protocole de Danse Mouvement Thérapie chez une patiente en rémission d’un cancer du sein, Madame Magnolia (66 ans). Matériel et Méthodes :... more
French and English
Objectif : Cette étude qualitative vise à décrire les effets revitalisants d’un protocole de Danse Mouvement Thérapie chez une patiente en rémission d’un cancer du sein, Madame Magnolia (66 ans). Matériel et Méthodes : Madame Magnolia participe à un atelier de Danse Mouvement Thérapie composé de 10 moments d’expérience corporelle. Nous utilisons d’abord le logiciel T-LAB Plus 2018 (version 4.0.2.7) pour le calcul des associations de mots lemmatisés (cooccurrences) ensuite une interprétation de la narration selon l’approche de Carl Gustav Jung et de Rollo May. Résultats : La narration de Madame Magnolia peut s’organiser à travers cinq catégories d’expériences corporelles impliquant l’activation de l’archétype du Puer Aeternus ou Enfant divin. Plus précisément, nous avons identifié : « L’effort et le courage de se jeter et s’ouvrir au monde », « Renouer avec le corps et ressentir son éveil », « La mise entre parenthèses de la maladie, générant un sentiment de liberté », « Le plaisir de danser en lien avec un sentiment d’être acceptée », « Le plaisir de danser en lien à l’évocation nostalgique d’un temps lointain ». Conclusion : Nous pensons que « le travail psychique avec la Danse Mouvement Thérapie» peut non seulement éloigner le patient du poids de la maladie (symptômes, plaintes, gènes et douleurs physiques), mais aussi générer des expériences corporelles revitalisantes (sensation de liberté physique, éveil psychocorporel, sentiments d’ouverture au monde) et une narration riche d’éléments symboliques.
Mots clés: Danse Mouvement Thérapie, psychologie humaniste existentielle , cancer du sein, narrations, logiciel T-LAB Plus 2018
English
Objective: This qualitative study aims to describe the revitalising effects of a Dance Movement Therapy protocol in a patient in remission of breast cancer, Mrs Magnolia (66 years old). Material and
methods: Madame Magnolia participated in a Dance Movement Therapy workshop composed of ten different stages of experience. We first used the T-LAB Plus 2018 software (version 4.0.2.7) for the calculation of lemmatised word associations (co-occurrences), following an interpretation of her narrative, according to the approach of Carl Gustav Jung and Rollo May. Results: Mrs Magnolia's narrative can be organised into five categories of bodily experiences evoking the activation of the archetype of Puer Aeternus or Divine Child. More specifically, we have identified: « The effort and the courage to open oneself to the world and leap into it », « Reconnect with the body and to feel its awakening », « Putting the disease on pause and experiencing freedom », «The pleasure of dancing in connection with a feeling of being accepted », « The pleasure of dancing in connection with the nostalgic evocation of a distant time ». Conclusion: We believe that "the psychic work with Dance Movement Therapy can not only distance the patient from the weight of the disease (symptoms, complaints, genes and physical pains), but also generate revitalizing body experiences (sensation of physical freedom, psycho-corporeal event, feelings of openness to the world) and a rich symbolic narrative.
Key words: Dance Movement Therapy, humanist existential psychology, breast cancer, narrations, T-LAB Plus 2018 software.
Objectif : Cette étude qualitative vise à décrire les effets revitalisants d’un protocole de Danse Mouvement Thérapie chez une patiente en rémission d’un cancer du sein, Madame Magnolia (66 ans). Matériel et Méthodes : Madame Magnolia participe à un atelier de Danse Mouvement Thérapie composé de 10 moments d’expérience corporelle. Nous utilisons d’abord le logiciel T-LAB Plus 2018 (version 4.0.2.7) pour le calcul des associations de mots lemmatisés (cooccurrences) ensuite une interprétation de la narration selon l’approche de Carl Gustav Jung et de Rollo May. Résultats : La narration de Madame Magnolia peut s’organiser à travers cinq catégories d’expériences corporelles impliquant l’activation de l’archétype du Puer Aeternus ou Enfant divin. Plus précisément, nous avons identifié : « L’effort et le courage de se jeter et s’ouvrir au monde », « Renouer avec le corps et ressentir son éveil », « La mise entre parenthèses de la maladie, générant un sentiment de liberté », « Le plaisir de danser en lien avec un sentiment d’être acceptée », « Le plaisir de danser en lien à l’évocation nostalgique d’un temps lointain ». Conclusion : Nous pensons que « le travail psychique avec la Danse Mouvement Thérapie» peut non seulement éloigner le patient du poids de la maladie (symptômes, plaintes, gènes et douleurs physiques), mais aussi générer des expériences corporelles revitalisantes (sensation de liberté physique, éveil psychocorporel, sentiments d’ouverture au monde) et une narration riche d’éléments symboliques.
Mots clés: Danse Mouvement Thérapie, psychologie humaniste existentielle , cancer du sein, narrations, logiciel T-LAB Plus 2018
English
Objective: This qualitative study aims to describe the revitalising effects of a Dance Movement Therapy protocol in a patient in remission of breast cancer, Mrs Magnolia (66 years old). Material and
methods: Madame Magnolia participated in a Dance Movement Therapy workshop composed of ten different stages of experience. We first used the T-LAB Plus 2018 software (version 4.0.2.7) for the calculation of lemmatised word associations (co-occurrences), following an interpretation of her narrative, according to the approach of Carl Gustav Jung and Rollo May. Results: Mrs Magnolia's narrative can be organised into five categories of bodily experiences evoking the activation of the archetype of Puer Aeternus or Divine Child. More specifically, we have identified: « The effort and the courage to open oneself to the world and leap into it », « Reconnect with the body and to feel its awakening », « Putting the disease on pause and experiencing freedom », «The pleasure of dancing in connection with a feeling of being accepted », « The pleasure of dancing in connection with the nostalgic evocation of a distant time ». Conclusion: We believe that "the psychic work with Dance Movement Therapy can not only distance the patient from the weight of the disease (symptoms, complaints, genes and physical pains), but also generate revitalizing body experiences (sensation of physical freedom, psycho-corporeal event, feelings of openness to the world) and a rich symbolic narrative.
Key words: Dance Movement Therapy, humanist existential psychology, breast cancer, narrations, T-LAB Plus 2018 software.
PURPOSE: A longitudinal study was conducted to investigate changes in the incidence of distress level and predictive factors, as problems reported, mood disorder, and quality of life. METHODS: A total of 113 patients, recruited from a... more
PURPOSE: A longitudinal study was conducted to investigate changes in the incidence of distress level and predictive factors, as problems reported, mood disorder, and quality of life. METHODS: A total of 113 patients, recruited from a private cancer center in Brazil’s Federal District (Centro de Cancer de Brasilia - CETTRO), answered the Distress Thermometer, the Hospital Anxiety and Depression Scale, and the Functional Assessment of Cancer Therapy-General. Three points of evaluation were chosen considering the chemotherapy protocol: before the initial treatment (beginning), two and a half months after start chemotherapy (middle), and five months after start chemotherapy (last day), followed by a technical discussion between psychologist and assistant doctor. RESULTS: Ages ranged from 22 to 84 years (Mean = 56.9; SD = 14.9), being 27.4% male and 72.6% female, 62.8% were married, and 63.7% had at least college degree. In this sample we had 20 different types of cancer, whereas 64.7% were late stage disease. The incidence of distress (DT ‡ 4) at the beginning was 45.1%, 12.1% in the middle and 7.9% on the last day. For all points of evaluations distress level was significantly related (p < 0.001) to anxiety (r = 0.63; r = 0.54; r = 0.61), depression (r = 0.79; r = 0.74; r = 0.69) and quality of life (r = )0.74; r = )0.63; r = )0.54). In general there was a gradual decrease on the frequencies of problem-related distress reported by those patients, being emotional and physical the most common problem reported. CONCLUSIONS: The findings indicate that a significant proportion of patients shows high level of distress distress, which is related with anxiety, depression and quality of life throughout all points of evaluation. These findings also suggest that initial level of distress (beginning) is the most predictor for subsequent distress. The multidisciplinary discussion facilitated the symptom management related to cancer patients’ experience in order to improve quality of life. RESEARCH IMPLICATIONS: These findings supports the importance of the longitudinal investigation as a way to prevent and/or reduce the level of distress throughout the cancer treatment experience. Moreover, the DT could be used as a indirect measure for assessing quality of care in oncology. CLINICAL IMPLICATIONS: These results demonstrated the importance of distress screening and effective management of emotional disturbance related to the diagnosis and cancer treatment, to establish the level of assistance the patients needs and the strategy we have to adopt during the treatment. FUNDING: None.
Adults diagnosed with primary brain tumours often experience physical, cognitive and neuropsychiatric impairments and decline in quality of life. Although disease and treatment-related information is commonly provided to cancer patients... more
Adults diagnosed with primary brain tumours often experience physical, cognitive and neuropsychiatric impairments and decline in quality of life. Although disease and treatment-related information is commonly provided to cancer patients and carers, newly diagnosed brain tumour patients and their carers report unmet information needs. Few interventions have been designed or proven to address these information needs. Accordingly, a three-study research program, that incorporated both qualitative and quantitative research methods, was designed to: 1) identify and select an intervention to improve the provision of information, and meet the needs of patients with a brain tumour; 2) use an evidence-based approach to establish the content, language and format for the intervention; and 3) assess the acceptability of the intervention, and the feasibility of evaluation, with newly diagnosed brain tumour patients.
Objectives: Over the last few years several offers in-and outpatient creative therapy interventions for cancer patients have been developed, implemented and researched. This article describes the content, concept and structure of art... more
Objectives: Over the last few years several offers in-and outpatient creative therapy interventions for cancer patients have been developed, implemented and researched. This article describes the content, concept and structure of art therapy interventions based on painting or drawing as well as some further methodical procedures and research results of art therapy in the field of psycho-oncology. Methods: We searched electronic databases for papers published between 1987 and March 2009 on painting or drawing based art therapy interventions in oncology. The papers were selected using the inclusion criteria detailed below. Results: Of 56 retrieved manuscripts, 17 papers reporting 12 research projects were included. The art therapy interventions differ from each other considerably in their content and structure. The variance in the study design of the papers was also high. More females than males participated in the interventions. The papers dealt with a variety of questions. A total of seven quantitative papers focused on mental health. A decrease in anxiety and depression was noted in six of these. Three papers documented an increase in quality of life. Moreover, four qualitative papers indicated positive effects on personal growth, coping, the development of new form of self-expression, and social interaction. Three papers with qualitative methods investigated participants' mechanisms for coping with their disease. Conclusion: Published papers show that art therapy benefits cancer patients in various ways including improving their mental health. Nevertheless, more studies with an evidencebased design are necessary for reaching further conclusions on efficacy of art therapy. This research should include a focus on gender differences, and controlling possible influencing factors.
PURPOSE: The adventures of the goddesses and of the mythological creatures entwined in the life and adventures of human beings, create some behavioral archetypes making it easy to understand the complexity that envelop the human... more
PURPOSE: The adventures of the goddesses and of the mythological creatures entwined in the life and adventures of human beings, create some behavioral archetypes making it easy to understand the complexity that envelop the human personality. The word personality comes from the Latim term persona, that means “mask” or something used to cover, to disguise, to deceive the authentic. METHODS: Taking into consideration such archetypical tendencies the main goal of this study is to understand the association between the feminine archetypes, represented by the Greek Goddesses Athena, Aphrodite and Demeter with the confrontation and handling of breast cancer by women that suffer from this disease. This will be done by means of a bibliographic revision. RESULTS: The Woman-Athena considers the breast cancer as a disturbance that interfers in her actions. Despite being conceited she does not pay attention to the changes that occur in her body, thus making the discovery of the cancer only when in advanced stages. She is an active person, idealistc and performer, strategist and warrior. She motivate people to fight, however, she has problems to accept the help of another person. The Woman-Aphrodite is worried about her physical beauty because this is one of the main components of her capacity of seduction. She is sensual and, because of this, she suffers with the loss of her breast, and with the side effects of the chemotherapy. The Woman-Demeter is extremely motherly being, however, sometimes careless with her own self. She loves her breast because it is a symbol of maternity. For this woman, the mastectomy may bring a feeling of loss of the maternal function, a function that is very important for her. CONCLUSION: Having in mind such archetypes the women feel worries, attitudes and a different behavior among them. The identification of such patterns make it easy for a psychologist to understand the dynamic of the patients. RESEARCH IMPLICATIONS: Thus he can help them to reorganize themselves face the diagnose and treatment, giving a new meaning to the moment and helping the health staff to understand this dynamics improving the relationship doctor/patients while looking for a more adequate support and a better result in the treatment. ACKNOWLEDGEMENT OF FUNDING: None.
- by Cristiane Decat Bergerot and +1
- •
- Breast Cancer, Psycho-oncology
PURPOSE: A pilot study was conducted to investigate the relationship between distress and quality of life in women with breast cancer before start anti-cancer treatment. METHODS: 24 women completed the Distress Thermometer (DT), the... more
PURPOSE: A pilot study was conducted to investigate the relationship between distress and quality of life in women with breast cancer before start anti-cancer treatment. METHODS: 24 women completed the Distress Thermometer (DT), the Problem-List (PL), and the Functional Assessment of Cancer Therapy-General (FACTG) before start chemotherapy. Ages ranges from 25 to 80 (Mean = 53, SD = 12.2), most of them were married, 54.1% had college degree, and 66.7% were diagnosed with early stage (I and II) breast cancer. The investigation was authorized by the ethics committee. Descriptive statistics were calculated to summarize the sample characteristics. Correlation between distress and QoL were calculated. RESULTS: The incidence of distress (DT ‡ 4) was 45.8%. Considering the stage disease, the prevalence of distress between patients with early stage disease was 43.7%, and 50% of those with late stage disease. The most frequently item checked in practical problems was insurance/financial and work (12.5% for each one); in the family category was dealing with children (33.3%); in the emotional category was worry (79.2%); 16.7% of patients checked the spiritual/religious concern item; with regard to physical problems 58.3% of patients report memory/concentration item. 37.5% had a QoL lower than 80 on FACT-G (M = 93, SD = 12.9), with fall mainly in the functional and emotional wellbeing. Moreover, there was a significant relationship between the level of distress and the QoL, r = ) 0.75, p (one-tailed) < 0.01. CONCLUSIONS: These findings indicate the importance of effective management of the emotional consequences of the diagnosis/treatment. The multidisciplinary work can assist the patients needs in order to prevent and/or reduce the problemrelated distress. The significant correlation between distress and QoL emphasize the importance of working proactively with the purpose of improve QoL. RESEARCH IMPLICATIONS: There was a high incidence of distress between those women, showing us the importance of further exploring ways to help patient to coping with the complex psychological impact of breast cancer diagnosis. CLINICAL IMPLICATIONS: The findings of this study confirm previous research and highlight the importance of a routine of distress screening, which may provide a preventive actuation as a way to reduce or eliminaste psychiatric and psychologic disorders, and to improve patients QoL. FUNDING: None.
BACKGROUND: Breast cancer (BC) is the most commonly diagnosed cancer in women. It is known that the number of survivors is increasing because of recent advances in screening and treatment therefore it is necessary to give them adequate... more
BACKGROUND: Breast cancer (BC) is the most commonly diagnosed cancer in women. It is known that the number of survivors is increasing because of recent advances in screening and treatment therefore it is necessary to give them adequate support. Currently, technological devices may be useful to deliver an exercise program and to give support to these patients. The goal was to evaluate the feasibility of receiving a telerehabilitation and its psychophysical social implications in BC patients. METHOD: Our sample consisted of thirty-seven BC patients who were recruited for a randomized clinical trial (NCT01801527). The e-cuidate training was delivered through a telerehabilitation system where cancer-related symptoms were assessed. After that, patients received a tailored physical training for their specific needs (HD-image sequence and videoconferencing system to monitor their improvements were used during exercise program). The global health status/QoL, emotional, cognitive and social functionings were assessed at baseline and 8 weeks after intervention. All these scales were assessed with The European Organization for Research and Treatment of Cancer Quality of Life Questionnaire Core 30 (EORTC QLQ-C30). RESULTS: A total of twenty-three patients received the e-cuidate telerehabilitation whereas fourteen patients only received usual care. The mean age was 46.11 AE 8.44 years and most of BC survivors (91.9%) received both radiation and chemotherapy as adjuvant treatment and 48.6% of them were taken Tamoxifen as hormonal therapy. The analysis of the study results showed significant improvement in global health status and cognition in patients receiving e-cuidate system compared with control group after 8 weeks of intervention: global health status/QoL (p = 0.007) and cognitive functioning (p = 0.040). There were no significant results neither for emotional functioning (p = 0.220) nor social functioning (p = 0.268). CONCLUSIONS: These preliminary findings suggest that an 8-week program of e-cuidate telerehabilitation is feasible and improves global quality of life and cognitive functioning in BC survivors. RESEARCH IMPLICATIONS: This pilot study provides scientific evidence about telehealth systems in BC survivors. Nowadays, the use of the technological advances is an interesting and promising strategy to help patients in their recovery. On the other hand, this type of study (randomized controlled trial) gives the findings an important scientific strength. CLINICAL IMPLICATIONS: Breast cancer patients suffer functional and cognitive changes following adjuvant therapy (for example chemotherapy). According to our preliminary results, a telerehabilitation system could be an important choice of treatment not only to improve physical problems but also cognitive function.
El estrés es un fenómeno complejo que ha sido abordado a lo largo de la historia por diversos modelos y visiones del estrés (fisiológico, ambiental y psicológico), los cuales en su mayoría lo han asociado con la enfermedad. El cáncer, y... more
El estrés es un fenómeno complejo que ha sido abordado a lo largo de la historia por diversos modelos y visiones del estrés (fisiológico, ambiental y psicológico), los cuales en su mayoría lo han asociado con la enfermedad. El cáncer, y en particular el de mama, se han relacionado con el estrés como causa y como consecuencia de la enfermedad. No obstante, ésta relación aún se ve con sospecha en algunos ámbitos. Con el propósito de aclarar este constructo y su relación con el cáncer de la mama, en este artículo se hace un recorrido por los distintos modelos del estrés y se muestra como la unificación en un modelo integral del estrés puede aportar en la mejor comprensión del mismo constructo y su vinculación con el proceso salud-enfermedad.
In this research we go more deeply into EVD, studying the Etiology and realizing a Differentiation of Syndromes according to the systems: Wen Bing, San Jiao and Han Shan Lun. Later, a Treatment for Prevention, Symptomatic/Acute, and... more
In this research we go more deeply into EVD, studying the Etiology and realizing a Differentiation of Syndromes according to the systems: Wen Bing, San Jiao and Han Shan Lun. Later, a Treatment for Prevention, Symptomatic/Acute, and Remission phases is proposed. Finally, we study the economic effects of the epidemic in the most affected countries by stressing the importance of preventive health care and international aid, looking at the usefulness of Medical Matter for its low cost especially in the affected societies (that probably they will return to be).
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