ISSN 2664-8075 (Print) & ISSN 2706-5774 (Online)
South Asian Research Journal of Applied Medical Sciences
Abbreviated Key Title: South Asian Res J App Med Sci
| Volume-5 | Issue-1 | Jan-Feb -2023 |
DOI: 10.36346/sarjams.2023.v05i01.002
Original Research Article
Health Literacy: The Most Neglected Essential Human Quality
Abdul Kader Mohiuddin1*
1
Alumnus, Faculty of Pharmacy, Dhaka University, Nilkhet Rd, Dhaka 1000, Bangladesh, ORCiD: 0000-0003-15969757
*Corresponding Author: Abdul Kader Mohiuddin
Alumnus, Faculty of Pharmacy, Dhaka University, Nilkhet Rd, Dhaka 1000, Bangladesh, ORCiD: 0000-0003-1596-9757
Article History
Received: 04.01.2023
Accepted: 11.02.2023
Published: 16.02.2023
Abstract: People must have particular personality traits and social resources, also known as health literacy, in order
to access, comprehend, and use information to make decisions about their health. Patients' ability to engage in complex
disease management and self-care is strongly related to their level of health literacy. It can help us stay healthy by
preventing illness and effectively managing existing illnesses. People with low health literacy (LHL) may find it difficult
to manage their condition and prevent illness, which may lead to increased use of healthcare services. Furthermore, LHL
is associated with increased hospitalizations, increased use of emergency care, decreased use of preventative services,
and a worsened ability to understand labels and health messages, a worsened state of health, higher mortality, and more
expensive medical care.
Keywords:
Parental health literacy; necessary health education; understanding treatment guidelines; medication
non-adherence; healthcare, avoidable medical costs, global health burden, COVID-19 vaccine negligence.
INTRODUCTION
Understanding common health care communications, such as prescription instructions, test results, and
insurance forms, is referred to as health literacy. Health literacy improves a population's ability to care for themselves
and aids in the reduction of health disparities. It has an impact on the use of health services, as well as on patient
satisfaction and the physician-patient relationship. It is one of the major impediments to healthcare professionals
adequately transmitting information to those under their care. Personal health literacy refers to a person's ability to locate,
comprehend, and apply information and services to support health-related decisions and actions for themselves and
others. Health literacy is recommended by the World Health Organization as a tool for achieving several important
objectives outlined in the Sustainable Development Goals. Many factors can influence a person's health literacy,
including knowledge of medical terminology; understanding of how the health care system operates; ability to
communicate with health care providers; ability to locate health information, which may be associated with age, income,
education, language skills, and culture; and physical or psychological limitations. Health literacy affects treatment
adherence, which may have an impact on treatment outcomes. Despite the negative implications of LHL, physicians are
typically unaware of their patients’ health literacy levels and their subsequent effects on their patients’ outcomes.
Copyright © 2023 The Author(s): This is an open-access article distributed under the terms of the Creative Commons Attribution 4.0
International License (CC BY-NC 4.0) which permits unrestricted use, distribution, and reproduction in any medium for non-commercial use
provided the original author and source are credited.
CITATION: Abdul Kader Mohiuddin (2023). Health Literacy: The Most Neglected Essential Human Quality. South
Asian Res J App Med Sci, 5(1): 7-18.
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Abdul Kader Mohiuddin; South Asian Res J App Med Sci; Vol-5, Iss-1 (Jan-Feb, 2023): 7-18
Figure 1: Graphical Abstract Health Literacy
MATERIAL AND METHODS
Prioritized databases for public health topics included PubMed, ALTAVISTA, Embase, Scopus, Web of
Science, and the Cochrane Central Registers. Along with other online sources, journals from Elsevier, Springer, Willey
Online Library, and Wolters Kluwer were thoroughly searched. The infographic was prepared by Canva Illustrator, and
the citation work was done by citationmachine.net.
LITERATURE REVIEW
Many studies reveal that patients from high-income countries are not adequately adhering to medications as they
are prescribed. Forgetfulness, confusion about the duration required for medication use, and mistrust about the overall
efficacy of medication are among the reasons for non-adherence to diabetes management protocols in Middle Eastern
countries [1]. Conversely, after World War II, Taiwan faced severe poverty, but it is now the 8th largest economy in Asia
and also the home of type 2 diabetes patients with more than 80% health literacy [2]. LHL is a prevailing problem in
Europe, Asia and Africa. Bulgaria, Lithuania and Latvia are the 3 European countries with lowest health literacy [3].
Around the globe, LHL prevails mostly with people living in rural areas and having a low education level. Surprisingly,
LHL prevails among half of the population in both developing and developed countries [4].
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Journal Homepage: www.sarpublication.com
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Abdul Kader Mohiuddin; South Asian Res J App Med Sci; Vol-5, Iss-1 (Jan-Feb, 2023): 7-18
Prevalence, Reasons and Global Burden with LHL
Health literacy is the result of both an individual's abilities and the demands and complexities of the healthcare
system. Health literacy is heavily influenced by a country's medical practices, as well as individual and social factors
present in interactions between people and the systemic demands of the healthcare system. LHL is most frequently linked
to older people with chronic illnesses who have little education and are not necessarily from lower socioeconomic
backgrounds. Also, socioeconomically disadvantaged people, those who belong to ethnic minorities, or people with
higher psychological distress, physical limitations, poor social support, compromised mental health and quality of life are
contributors of LHL. Furthermore, being literate in general does not imply being literate in health [5, 6].
Figure 2: Low Health Literacy Facts
However, in this submission, a few more sensational facts in the form of an infographic model about LHL is
shared (Figure 1):
A. LHL is associated with people who cherish superstitions and stigma within their preset narrow mind, which
prevents them from gathering relevant health information from their surroundings [5].
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Abdul Kader Mohiuddin; South Asian Res J App Med Sci; Vol-5, Iss-1 (Jan-Feb, 2023): 7-18
B. LHL has a significant impact on patients' treatment guideline compliance, or, more directly, medication
adherence, which leads to poorer health outcomes, higher healthcare costs, increased hospitalizations, and even
higher mortality rates [6].
C. Only 12% of Americans have adequate health literacy, and improving health literacy could prevent nearly 1
million hospital visits and save more than $25 billion per year, according to the US Centers for Disease Control
and Prevention (CDC) [7].
D. The global economic cost of illiteracy is estimated to be $1.19 trillion, but LHL alone costs the US economy
$238 billion per year [8].
E. Both are found in both developed and developing countries around the world, and socioeconomic factors are not
the only cause of LHL [9].
F. Surprisingly, nearly 40% of US and UK adults have LHL, compared to around 50% of Europeans, 60% of
adults in Canada, Australia, and the UAE, and nearly 70% of Chinese [10].
G. In China, health literacy increased from 6.48% of the population in 2008 to 23.15% in 2020 [11]. However, only
1 in 5 military health providers of the Chinese People's liberation Army had adequate health literacy, found in a
recent survey published in BMC Public Health [12].
H. Evidence suggests that LHL has significant economic consequences at the individual, employer, and healthcare
system levels [13].
I. The authors of the Hamburg Diabetes Prevention Survey, a population-based cross-sectional study in Germany,
concluded that LHL is a significant risk factor for the metabolic syndrome's three conditions: obesity, diabetes,
and hypertension [14].
J. Age, place of residence, education, and family status all have an impact on health literacy [15].
K. More than half of Dutch health providers use health literacy-specific materials only infrequently [16].
L. Mistrust and LHL perceptions were linked to high levels of vaccine hesitancy, providing evidential support for
portraying these factors as perceived barriers to COVID-19 vaccine uptake [17].
M. LHL is not uncommon among patients with a high level of education or with well-off patients. Moreover,
patients with LHL, but with high education, had a higher probability of emergency department (ED) re-visits.
Empirical research based on a conceptual model estimated that LHL costs between 7 and 17% of total
healthcare expenditures [8].
N. According to patient-centered interventions, improving health literacy can reduce the risk of polypharmacy,
medication non-adherence, and healthcare costs [18].
O. According to the 1996-2017 Medical Expenditure Panel Survey (Cheng & Tanna, 2022), LHL was more
prevalent in glaucoma patients, and patients with LHL were prescribed more medications and had higher
medication costs [19].
P. Nearly 35% of diabetic patients worldwide have limited health-related education [20].
Q. LHL is linked to gestational diabetes, maternal stress and depression, low birth weight, stillbirth, and congenital
malformations during pregnancy and birth, all of which have negative consequences for the woman and her
child [21].
R. Health literacy among the population is expected to rise over time in this era of modernization. According to a
national survey conducted in the Czech Republic in 2015-16, nearly 60% of Czechs have LHL. Surprisingly, a
2018 survey revealed that health literacy in the Czech Republic was still declining [22].
S. The prevalence of LHL in the ED varies greatly, with estimates as high as 88% depending on the patient mix
and screening instruments used [23].
T. In both low and high-income countries, low parental health literacy was linked to poorer child health outcomes
[24].
U. Patients who are older, have less education, a lower income, and have chronic conditions are more vulnerable
[25].
V. LHL was discovered in more than 70% of formal paid caregivers of non-self-supporting older adults in Tuscany,
Italy, and in more than 50% of caregivers of heart failure patients in the United States [26].
W. People with LHL may have 1.5-3 times the number of serious health outcomes, such as higher mortality,
hospitalization rates, and disease management ability, as those with adequate health literacy [27].
X. In cardiac patients, it has been linked to increased mortality, hospital readmission, and lower quality of life [28].
Y. LHL represents nearly 50% of Germans [29]. In Germany, every fourth to fifth person is not immunized against
COVID-19 [30].
Z. According to a Waystar (Health Care Billing Software) report from 2019, nearly 40% of healthcare consumers
were unaware that the cost of their healthcare varied across facilities [31].
Factors or Consequences Associated with LHL
1. Superstitions: an elephant in the room
Superstition is the non-scientific belief in magical connection. Aspects of certain religions and supernatural
ideologies, such as astrology, omens, witchcraft, and prophecies, are examples of such beliefs. Even after all of the
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Abdul Kader Mohiuddin; South Asian Res J App Med Sci; Vol-5, Iss-1 (Jan-Feb, 2023): 7-18
modernization and enlightenment, superstitious beliefs still exist in our societies. Most people are thought to have
irrational, superstitious beliefs to some extent. Epilepsy and schizophrenia are still viewed in the majority of the world as
an evil spirit. Although two-thirds of patients could become seizure-free with proper care, poor adherence to proper
guidelines is a major problem for effective recovery [32, 33]. In an Indian study, 60% of the participants thought that
illnesses were the result of luck or superstition [34]. In Northern Germany, superstitions were also reported in nearly 40%
of men and 70% of women [35]. 70% of people in Africa use folk remedies like charms and witchcraft to treat their
illnesses [36]. Surprisingly, researchers found that 73% of addiction treatment programs in the USA include a
spirituality-based element and that more than 40% of Americans believe in spiritual therapies [37, 38]. According to a
South Iranian study, 60% of diabetic patients refused insulin despite doctor recommendations due to phobia [39].
Menstruation is fraught with taboos, restrictions, and misconceptions in low- and middle-income countries, especially in
India and sub-Saharan Africa [40]. In India, nearly 80% of menstruating girls and women use an old cloth that is
frequently reused. Further, around 90% of women in India sometimes resort to using ashes, rags, sand, newspapers, dried
leaves, wood shavings, hay, plastic and husk sand to aid absorption [41-43]. Additionally, these two areas are home to
more than 90% of the world's open defecation practitioners [44, 45]. Many superstitious Indians hold the view that
defecation is an impure act that should only be performed outside the home and that toilets should only be used in
inclement weather [46]. It is not surprising that at least 90% of Indian adults have poor health literacy [47].
2. Medication or Treatment Guideline Non-compliance
Medication noncompliance accounts for more than half of the $500 billion in total avoidable costs associated
with suboptimal medicine use worldwide each year [48]. LHL was linked to increased unintentional non-adherence and
poor medication self-management in a variety of domains, including forgetting or having difficulty remembering to take
medications. However, no relationship was found between health literacy and intentional non-adherence, which includes
stopping medications when feeling better or worse [49]. Studies show that LHL is connected with poorer disease
knowledge and symptom recognition, poor glycemic or dyslipidemia control, greater difficulty interpreting food labels
and estimating portion sizes, lower self-efficacy, higher level of body mass index, information gap in the use of medical
devices for self-monitoring of blood glucose (SMBG), poorer communication with their providers, higher doses of
insulin, more medical expenses and hospitalization among diabetes patients [50-57]. LHL is more common in people
with hypertension and is associated with hypertension prevalence in selected ethnic groups [58]. Among hypertensive
patients, LHL was associated with higher dietary salt intake, poor knowledge of blood pressure control, lower systolic
blood pressure control, current smoking or higher nicotine dependence, as well as established predictors of smoking
relapse [59-62]. Apart from these, LHL was associated with higher addiction severity [63], medication errors,
misinterpreting physician’s instructions and disease symptoms [64], a greater number of unreconciled medications [65],
reason behind the medication discrepancy [66], preventable adverse drug reactions [67], inequity of access to the benefits
of prescription medication [68].
3. Substance Use Disorder
Drug addiction kills approximately 8 million people each year, and the UN Office on Drugs and Crime
(UNODC)’s World Drug Report 2022 estimates that approximately 284 million people aged 15-64 used drugs worldwide
in 2020 [69, 70]. According to University of Pennsylvania research, America has spent over a trillion dollars enforcing
its drug policy since 1971 [71]. People who use alcohol (AUD) or have a substance use disorder (SUD) are at risk of
having lower health literacy due to a variety of negative health, psychosocial, and economic factors associated with
substance use [72]. Another study confirms that both LHL and low academic performance have their role in tackling the
disparities in substance use [73]. An Australian study with a mixed sample of people with AUD and SUD found that 90%
of participants had LHL [74]. In people with alcohol and drug dependence, LHL is associated with worse depressive
symptoms [63]. Patients with LHL poorly handle pain medications [75]. Around 300 metric tons of morphine-type
painkillers are used (and/or abused) worldwide each year, more than 99% of which consumed by high income countries
[76]. A study based on a mixed population of US citizens confirmed that LHL was strongly linked to opioid misuse
among adult patients with chronic pain [77]. Use of cannabis for pain management has always been a controversial issue.
Also, cannabis in the form of medical cannabis (MC) or recreational marijuana legalized or less restricted in Thailand,
Canada, Uruguay, South Korea, Japan, India, Pakistan, Israel, Belgium, USA, UK, Germany, Italy, Singapore and
Malaysia, probably among many others. However, Health literacy, social support, attitudes about MC, age, and duration
of disease were significantly associated with demand for MC use among cancer patients in Thailand [78].
4. Poor COVID-19 or Contagious Disease Management and Vaccine Negligence
A cross-sectional study of 259 school leaders in Hong Kong carried out during the COVID-19 pandemic
between April 2021 and February 2022 shows that more than 50% of participants had LHL, and their LHL was strongly
associated with a negative attitude about vaccination, low information, and confusion about COVID-19-related
information [79]. Although, an Oxford Academic study concluded that not health literacy directly but poor knowledge of
selected diseases was associated with vaccine confidence index [80]. Thankfully, another study from Oxford University
Press established health literacy as the “social vaccine” to combat against SARS-CoV-2 [81]. Even before Covid-19,
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Abdul Kader Mohiuddin; South Asian Res J App Med Sci; Vol-5, Iss-1 (Jan-Feb, 2023): 7-18
WHO has listed vaccine hesitancy as one of the top ten global health threats in 2019 [82, 83]. Also, a Swiss journal says
that a percentage increase in vaccine hesitancy can lead to a decline in vaccination coverage by 30% [84]. Therefore,
LHL was the major obstacle to create vaccine hesitancy in China, Africa [85], India [86], Europe [87] and USA [88, 89].
As expected, in three different studies, close to 40% of Chinese participants (LHL persists among more than 70% of the
population) [10], [85], more than 60% of Bulgarians (the lowest health literacy among EU countries) [3], [86] showed
hesitancy, and above all, more than one-third of European adults are not fully vaccinated (LHL persists among half of the
total population), says another Oxford University Press study [10], [89]. Vaccinated people or people wearing masks, on
the other hand, were careless about social distancing, believing that being vaccinated or wearing masks was sufficient
and that other preventive measures, such as social distancing, were unnecessary. Even the CDC redeemed fully
vaccinated people who wore a face mask or engaged in social distancing in most settings, whether outdoors or indoors, in
updated public health guidance released on May 13, 2021. Also, conspiracy theories, rallies against masks/vaccines are
vividly reported [90-97].
5. Barriers to Autism Recovery and Progression
The social burden of autism can exceed $6 trillion in the US alone by 2060, and the WHO estimated that
worldwide, about one in 100 children has autism [98, 99]. The failure to recognize the first signs of autism can
significantly postpone the age of diagnosis, the provision of informed supervision to families, and the execution of
adapted initiatives during the critical period of early development. Parent health literacy may further contribute to autism
services use for young children [100]. A misunderstanding of early signs as manifestations of a developmental condition
may lead to increased stigma and non-conventional explanations [101-103]. Parents with LHL whose child has recently
been diagnosed with autism spectrum disorder (ASD) report an information gap and a lack of resource adaptation during
diagnosis [104]. Above all, health literacy is linked to help-seeking behaviors among parents of children with special
health care needs (CSHCN), autism, and attention deficit hyperactivity disorder (ADHD); or people with Schizophrenia
and Bipolar disorders [105-107].
RESULTS AND DISCUSSION
LHL contributes significantly to the healthcare system's incompetent socioeconomic culture. Health issues are
not only overlooked but also neglected. It reflects how much health and wellbeing are overlooked in a community or
country. Economic conditions should not be condemned because they persist in developed countries as well. LHL has
grown to unbearable proportions all over the world. Reading, listening, analytical, and decision-making skills, as well as
the ability to apply them to health situations, are all components of health literacy. Literacy can only be improved
through health education, which necessitates multifaceted approaches. Many members of the health care team lack health
literacy training, are unaware of ways to improve communication, and forget to use effective communication practices on
a regular basis when providing care. Health care professionals require assistance and training to better understand health
literacy and how to address it through clear communication strategies. Customized patient education, on the other hand,
engages, motivates, and strengthens patients to participate in their own health care and treatment decisions, resulting in
better outcomes, fewer diagnostic tests, and significantly greater patient satisfaction.
CONCLUSION
Nonetheless, health literacy is clearly beneficial in addressing the healthcare needs of even the most
marginalized and disadvantaged communities. Patients must clearly and appropriately recognize healthcare information
related to their specific illness or disease in order to improve adherence. This understanding could be crucial in assisting
patients in developing the motivation, beliefs, and appropriate health behaviors needed to improve overall adherence.
LHL is a curse to be avoided. This effort should be supported by all healthcare providers, stakeholders, and even
government and community leaders.
Abbreviations
ADHD: Attention Deficit Hyperactivity Disorder
ASD: Autism Spectrum Disorder
AUD: Alcohol Use Disorder
CDC: US Centers for Disease Control and Prevention
COVID-19: Coronavirus Disease 2019
ED: Emergency Department
MC: Medical Cannabis
SMBG: Self-Monitoring of Blood Glucose
SUD: Substance Use Disorder
UNODC: UN Office on Drugs and Crime
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Journal Homepage: www.sarpublication.com
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Abdul Kader Mohiuddin; South Asian Res J App Med Sci; Vol-5, Iss-1 (Jan-Feb, 2023): 7-18
ACKNOWLEDGEMENT
Dr. Rayhan A. Tariq, Drexel University College of Medicine for taking the time to review my paper and for his
insightful comments. For lending me books, journals, and newsletters, the seminar library of the University of Dhaka's
Faculty of Pharmacy and Bangladesh's BANSDOC Library are also to be thanked.
Declarations
The current research was carried out exclusively to look into problems associated with low health literacy. With
time and the availability of newer investigation in the same field, the statistical evidence or variables presented here may
transform.
Funding: The author has not received any fund from any authority.
Author Contributions: The corresponding author is the sole contributor and the only author.
Conflicts of Interest: The author declares that he has no competing interests.
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