In this article, we briefly review neoliberal economic rationales used to inform educational refo... more In this article, we briefly review neoliberal economic rationales used to inform educational reforms, juxtaposed with the function of public education as a public good. We then introduce a new participatory visual method grounded in a human rights education approach, digital storytelling. Digital storytelling can serve triple purposes: as a data collection technique used by social researchers to critically assess participants' experiences as they are affected by education reforms, as a collaborative method for political organizing, and as a tactic for building awareness to address these reforms. We review a digital storytelling workshop as it was carried out with graduate employees at a public university located in the Northeastern U.S. and conclude by offering implications for social research and human rights and social justice activism.
This community-based participatory research study explores the influence of structural racism on ... more This community-based participatory research study explores the influence of structural racism on sexual and reproductive health (SRH) inequities among immigrant, including refugee, youth. We conducted interviews with emerging youth and youth service providers living in two communities in Massachusetts. Our results detail three major themes illustrating how structural racism influences SRH inequities among immigrant youth: (1) lack of culture-centered SRH supports for recently immigrated youth; (2) immigration enforcement and fear impacting access to adolescent SRH (ASRH) education and services; and (3) perceived ineligibility related to tenuous legal status as a barrier to accessing ASRH services. Conclusions: Findings illustrate the importance of rooting sexuality education curricula in a culture centered framework that recognizes local cultural understandings, acknowledges structural constraints faced by young people, and prioritizes youth agency and voice when engaging in this work. Raising awareness of SRH resources available to immigrant youth may expand access for this underserved population.
International Journal of Environmental Research and Public Health
Opioid-related fatalities increased exponentially during the COVID-19 pandemic and show little si... more Opioid-related fatalities increased exponentially during the COVID-19 pandemic and show little sign of abating. Despite decades of scientific evidence that sustained engagement with medications for opioid use disorders (MOUD) yields positive psychosocial outcomes, less than 30% of people with OUD engage in MOUD. Treatment rates are lowest for women. The aim of this project was to identify women-specific barriers and facilitators to treatment engagement, drawing from the lived experience of women in treatment. Data are provided from a parent study that used a community-partnered participatory research approach to adapt an evidence-based digital storytelling intervention for supporting continued MOUD treatment engagement. The parent study collected qualitative data between August and December 2018 from 20 women in Western Massachusetts who had received MOUD for at least 90 days. Using constructivist grounded theory, we identified major themes and selected illustrative quotations. Key ...
Background It is challenging to develop health promotion interventions created in collaboration w... more Background It is challenging to develop health promotion interventions created in collaboration with communities affected by inequities that focus beyond individual behavior change. One potential solution is interventions that use digital stories (DS). Digital storytelling (DST) is an opportunity for reflection, connection with others, and the elevation of voices often absent from daily discourse. Consequently, public health researchers and practitioners frequently employ the DST workshop process to develop messaging that promotes health and highlights concerns in partnership with historically marginalized communities. With participants’ permission, DS can reach beyond the storytellers through behavior or attitude change interventions for health promotion among communities who share the targeted health concern. Our goal was to synthesize the literature describing interventions that use DS for health promotion to identify gaps. Methods We conducted a scoping review. Our inclusion cri...
Introduction When it is offered, sexuality education in the USA is far from standardized. While s... more Introduction When it is offered, sexuality education in the USA is far from standardized. While studies have explored differences in delivery and type of sexuality education across the USA, sexual and reproductive health inequities persist among historically marginalized groups (Latino/a/x, Black, African American, LGBTQ +). There is a critical need to better understand the systemic barriers to receiving effective sexuality education in these communities. Methods Participatory research methods were used in working with a community advisory board (CAB)-consisting of emerging adults and service providers from community-based organizations (CBOs) serving youth-to examine how structural barriers contribute to adolescent sexual and reproductive health (ASRH) inequities in Massachusetts. CAB meetings and semi-structured interviews were conducted in the cities of Springfield (n = 14) and Lynn (n = 9) between December 2020 and May 2021. Results Inflexible funding guidelines, a related evidence-based curricular mandate, and a lack of community-responsive sexuality education fail to meet the sexual and reproductive health (SRH) needs of these youth. Conclusions Current evidence-based mandates must be revisited to improve young people's access to quality sexuality information in public schools. To guarantee sexuality education curricula is centered in the context of the community and population in which it is implemented, collaboration between youth-serving CBOs and school districts could improve students' overall experience and social-emotional growth by providing comprehensive, positive, and community-responsive curricula. Policy Implications Funders and programming should prioritize community responsiveness by financially supporting and developing and/or adapting evidence-based curricula to better match the community's needs, which can be completed through culture-centered training and community-based partnership.
BackgroundLow/no-income Latino men are disproportionately burdened by chronic disease morbidity a... more BackgroundLow/no-income Latino men are disproportionately burdened by chronic disease morbidity and mortality, which is often compounded by persistent exposure to stress. Chronic stress is a key mediating factor in pathways linking macro-level socio-structural forces to micro-level behavioral factors with negative health outcomes. Being that Latinxs continue to be one of the fastest growing populations in the U.S., it is imperative to better understand the roots of stress pathways and explore multi-level interventions.MethodsThis study presents qualitative findings from in-depth interviews with Puerto Rican men (95%) living in Springfield, Massachusetts. We utilized the Minority Stress Model (MSM) first posited by Ilan Meyers, as a framework to understand stress and stress processes amongst Puerto Rican men. We mapped our data onto Meyers' MSM, which allowed us to find diverging themes and identify areas for expansion.ResultsAs expected, participants reported stress rooted in ex...
In this article, we briefly review neoliberal economic rationales used to inform educational refo... more In this article, we briefly review neoliberal economic rationales used to inform educational reforms, juxtaposed with the function of public education as a public good. We then introduce a new participatory visual method grounded in a human rights education approach, digital storytelling. Digital storytelling can serve triple purposes: as a data collection technique used by social researchers to critically assess participants’ experiences as they are affected by education reforms, as a collaborative method for political organizing, and as a tactic for building awareness to address these reforms. We review a digital storytelling workshop as it was carried out with graduate employees at a public university located in the Northeastern U.S. and conclude by offering implications for social research and human rights and social justice activism.
Follow this and additional works at: https://escholarship.umassmed.edu/chr_symposium Part of the ... more Follow this and additional works at: https://escholarship.umassmed.edu/chr_symposium Part of the Civic and Community Engagement Commons, Community-Based Research Commons, Community Health and Preventive Medicine Commons, Health Services Administration Commons, Health Services Research Commons, Psychiatry and Psychology Commons, Substance Abuse and Addiction Commons, Therapeutics Commons, Translational Medical Research Commons, and the Women's Health Commons
International Journal of Qualitative Methods, 2020
COVID-19 has upended community based participatory research (CBPR) projects across the United Sta... more COVID-19 has upended community based participatory research (CBPR) projects across the United States and globally. COVID-19 disproportionately impacts historically disenfranchised communities and communities of color, the very communities that CBPR is meant to engage, elevate, and support. In-person activities that help develop rapport and research protocols, build capacity, conduct collaborative data collection and analysis, disseminate findings to the community, and engage in sustainability planning are an impossible practice during the COVID-19 pandemic. The purpose of this article is to describe the challenges and facilitators of shifting to a virtual/online CBPR protocol with a Massachusetts community disproportionately affected by COVID19, as a means to keep them engaged in the research process and to elevate their experiences, perspectives, and voices during this critical time. We include insights about how to facilitate recruitment and compensate community members, form a co...
Background: Lifestyle interventions regularly rely on study staff to implement the intervention a... more Background: Lifestyle interventions regularly rely on study staff to implement the intervention and collect outcomes data directly from study participants. This study describes the experiences of project staff in two randomized controlled trials of a postpartum lifestyle intervention to reduce risk factors for type 2 diabetes in Latinas. Latinas are the fastest growing minority group in the U.S. and have the highest rates of type 2 diabetes after a diagnosis of gestational diabetes mellitus. The challenges of implementing lifestyle interventions for postpartum women have been poorly documented. Methods: A qualitative focus group was conducted with eight staff members (five health educators and three health interviewers) involved in Proyecto Mamá and Estudio Parto. The discussion was audio recorded, transcribed, and coded in NVivo. Focus group topics included: 1) participant recruitment, 2) participant retention, 3) implementation of the lifestyle intervention, 4) assessment of behavior change, 5) overall challenges and rewarding aspects of the trial, and 6) recommended changes for future trials. Results: Key themes emerged regarding enabling factors and barriers to implementing a lifestyle intervention in postpartum Latinas. Enabling factors included: a) the staff's belief in the importance of the intervention, b) opportunities associated with the longitudinal nature of the trial, c) belief that the staff could empower participants to make behavior change, d) benefits of flexible intervention sessions, and e) connection with participants due to shared cultural backgrounds. Barriers included: a) participant stressors: home, food, and financial insecurity, b) low health literacy, c) issues related to recent immigration to the continental U.S., d) handling participant resistance to behavior change, e) involvement of family members in assessment visits, f) limitations of the assessment tools, and g) time limitations. Conclusions: Findings highlight the challenging contexts that many study participants face, and shed light on the potentially influential role of health educators and interviewers in intervention implementation and data collection. Specific recommendations are made for strategies to improve adherence to diabetes prevention programs in postpartum underserved and minority populations in this challenging, transitional period of life.
The nexus of migration and family offers a conjuncture to enrich understanding of teen pregnancy ... more The nexus of migration and family offers a conjuncture to enrich understanding of teen pregnancy and parenting. This article draws findings from a project centered on participant‐produced new media to reveal how young mothers negotiate reproductive health disparities. We focus on young mothers’ experiences of migration and movement, captured in local vernacular through participants’ digital story depictions and follow‐up interviews. We argue that disparities link up with the single story of teen mothering, involve public shaming, continue hand‐in‐hand with institutional humiliation, and are exacerbated through migration and movement. To disrupt the normative notions that shadow young mothers, we take seriously the young women's narratives. We theorize how the richness of stories and storytelling may serve as a potent intervention—a narrative shock—for articulating meanings and cultivating dignity for young mothers and their families, especially those who do not fit the sedentary...
The familiar story about young pregnant and parenting Latinas relies on commonsense logic about t... more The familiar story about young pregnant and parenting Latinas relies on commonsense logic about the timing of reproductive lives. We explore young mothers' own sense making, captured in local vernacular through participants' digital story depictions, our fieldnotes of digital storytelling workshop talk, and participants' follow-up interview reflections about enduring judgment and doing their lives. In this article, we introduce the Hear Our Stories project and present key digital stories and related ethnographic material that serve as local exemplars of "doing your life." Findings reveal ways participants negotiate value making about their reproductive lives. As a narrative intervention, digital storytelling helps to gain a firmer grasp on social worlds and to better understand inequality, while also engaging participants in a process that affords them the opportunity to shift from being a judged teen mom to co-creators of knowledge and change as strategic storytellers.
This article focuses on findings of a two-year pilot research study focused on addressing sexual ... more This article focuses on findings of a two-year pilot research study focused on addressing sexual and reproductive health inequities faced by adolescent women of Puerto Rican descent living on the mainland United States. Working with three groups of young women, in the pilot study we gathered ethnographic data in and around a group-based digital storytelling process to inform the development of a larger intervention. Digital stories are short (1-3 minute), participant produced videos that synthesize still and moving image, a voiceover recording of the participant telling her story, and background music and text to document personal experiences. Based on narrative analysis of digital stories and field notes written in and around the digital storytelling workshop process, as well as follow-up individual interviews with workshop participants, our findings center on the ways that trauma has specifically shaped participants' sexual and reproductive health experiences. We argue that digital storytelling serves as a critical narrative intervention, whereby participants' engagement in the storytelling process enables them to collaboratively interrogate and potentially address prior trauma, bolster a sense of social support and solidarity, and potentially recalibrate stigmatizing conversations about them. We introduce our project methodology, and then present key findings on trauma as it informs sexual and reproductive health practices, with digital storytelling showcased as a modality for critical narrative intervention. We conclude by discussing implications for critical public health research and practice.
International Journal of Qualitative Studies on Health and Well-being, 2018
Purpose: There is a dearth of effective, evidence-based programs to reduce chronic disease in low... more Purpose: There is a dearth of effective, evidence-based programs to reduce chronic disease in lowincome African-American men. We report on the results of formative research in the National Institutes of Health (NIH)-funded MOCHA Moving Forward project on factors identified by the participants to drive health disparities. Methods: Based on individual interviews with 42 middle-aged (40-65 years), low-income African-American men, three themes emerged. Results: First, the results indicate a hierarchy in the perceived relative influence of different factors, with poverty and unemployment perceived to have the most powerful affects. Second, results show that factors in different domains do not operate as discrete independent influences, but rather, interact synergistically. Finally, the findings show how perceived social structural constraints have produced deep cynicism about the future, with notably divergent reactions, producing a sense that there is almost nothing an individual can do, or paradoxically, a greater the sense of personal responsibility. Conclusion: The implications of addressing the cascade of social determinants to reduce chronic disease in African-American men are discussed.
African American men continue to bear a disproportionate share of the burden of disease. Engaging... more African American men continue to bear a disproportionate share of the burden of disease. Engaging these men in health research and health promotion programs-especially lower-income, African American men who are vulnerable to chronic disease conditions such as obesity and heart disease-has historically proven quite difficult for researchers and public health practitioners. The few effective outreach strategies identified in the literature to date are largely limited to recruiting through hospital clinics, churches, and barbershops. The Men of Color Health Awareness (MOCHA) project is a grassroots, community-driven initiative that has developed a number of innovative outreach strategies. After describing these strategies, we present data on the demographic and health characteristics of the population reached using these methods, which indicate that MOCHA has been highly effective in reaching this population of men.
Pregnant and parenting young women are simultaneously silenced and overrepresented by raced and c... more Pregnant and parenting young women are simultaneously silenced and overrepresented by raced and classed social narratives on adolescent childbearing in the United States. These narratives posit teen childbearing as an unequivocal social, health, and economic problem, although some scholars and policy makers construct alternative narratives that focus on inequalities and propose different perspectives on causes and consequences. Narrative inquiry that analyzes how stories are produced and utilized can enable a more nuanced approach to complex social problems. We conducted 19 individual, in-depth, and semistructured interviews with young mothers ages 16 to 21 who attend a community-based alternative education program in a low-income northeastern city. Interviews were analyzed using thematic narrative techniques. The young mothers we interviewed used a process of strategic negotiation to distance themselves from prevailing social and cultural stories about the problem of teen motherhoo...
Public health efforts focused on Latina youth sexuality are most commonly framed by the syndemic ... more Public health efforts focused on Latina youth sexuality are most commonly framed by the syndemic of teen pregnancy and sexually transmitted infections, a narrow and often heteronormative focus that perpetuates silences that contribute to health inequities and overlooks the growing need for increased education, awareness, and support for LGBTQ youth. This article presents findings from the project Let's Talk About Sex: Digital Storytelling for Puerto Rican Latina Youth, which used a culturally centered, narrative-based approach for analyzing participants' own specifications of sexual values and practices. The strength of digital storytelling lies in its utility as an innovative tool for community-based and culturally situated research, as well as in its capacity to open up new spaces for health communication. Here we present two "coming out" case studies to illustrate the value of digital storytelling in supporting the development of meaningful and culturally relevant health promotion efforts for LGBTQ-identified Puerto Rican Latina youth across the life span.
Journal of the Motherhood Initiative For Research and Community Involvement, Jan 4, 2007
I got my vision, I got my dreams, and there are days when I feel down like I really can't make it... more I got my vision, I got my dreams, and there are days when I feel down like I really can't make it, I can't go no further, I'm nothing…. But it's like I have goals-I want to be something different from what I have right now … I can become what statistics have designed me to be, a nothing, or I can make statistics a lie….
Books in the Developing Qualitative Inquiry series, written by leaders in qualitative inquiry, wi... more Books in the Developing Qualitative Inquiry series, written by leaders in qualitative inquiry, will address important topics in qualitative methods. Targeted to a broad multidisciplinary readership, the books are intended for mid-level/ advanced researchers and advanced students. The series will forward the fi eld of qualitative inquiry by describing new methods, or developing particular aspects of established methods.
In this article, we briefly review neoliberal economic rationales used to inform educational refo... more In this article, we briefly review neoliberal economic rationales used to inform educational reforms, juxtaposed with the function of public education as a public good. We then introduce a new participatory visual method grounded in a human rights education approach, digital storytelling. Digital storytelling can serve triple purposes: as a data collection technique used by social researchers to critically assess participants' experiences as they are affected by education reforms, as a collaborative method for political organizing, and as a tactic for building awareness to address these reforms. We review a digital storytelling workshop as it was carried out with graduate employees at a public university located in the Northeastern U.S. and conclude by offering implications for social research and human rights and social justice activism.
This community-based participatory research study explores the influence of structural racism on ... more This community-based participatory research study explores the influence of structural racism on sexual and reproductive health (SRH) inequities among immigrant, including refugee, youth. We conducted interviews with emerging youth and youth service providers living in two communities in Massachusetts. Our results detail three major themes illustrating how structural racism influences SRH inequities among immigrant youth: (1) lack of culture-centered SRH supports for recently immigrated youth; (2) immigration enforcement and fear impacting access to adolescent SRH (ASRH) education and services; and (3) perceived ineligibility related to tenuous legal status as a barrier to accessing ASRH services. Conclusions: Findings illustrate the importance of rooting sexuality education curricula in a culture centered framework that recognizes local cultural understandings, acknowledges structural constraints faced by young people, and prioritizes youth agency and voice when engaging in this work. Raising awareness of SRH resources available to immigrant youth may expand access for this underserved population.
International Journal of Environmental Research and Public Health
Opioid-related fatalities increased exponentially during the COVID-19 pandemic and show little si... more Opioid-related fatalities increased exponentially during the COVID-19 pandemic and show little sign of abating. Despite decades of scientific evidence that sustained engagement with medications for opioid use disorders (MOUD) yields positive psychosocial outcomes, less than 30% of people with OUD engage in MOUD. Treatment rates are lowest for women. The aim of this project was to identify women-specific barriers and facilitators to treatment engagement, drawing from the lived experience of women in treatment. Data are provided from a parent study that used a community-partnered participatory research approach to adapt an evidence-based digital storytelling intervention for supporting continued MOUD treatment engagement. The parent study collected qualitative data between August and December 2018 from 20 women in Western Massachusetts who had received MOUD for at least 90 days. Using constructivist grounded theory, we identified major themes and selected illustrative quotations. Key ...
Background It is challenging to develop health promotion interventions created in collaboration w... more Background It is challenging to develop health promotion interventions created in collaboration with communities affected by inequities that focus beyond individual behavior change. One potential solution is interventions that use digital stories (DS). Digital storytelling (DST) is an opportunity for reflection, connection with others, and the elevation of voices often absent from daily discourse. Consequently, public health researchers and practitioners frequently employ the DST workshop process to develop messaging that promotes health and highlights concerns in partnership with historically marginalized communities. With participants’ permission, DS can reach beyond the storytellers through behavior or attitude change interventions for health promotion among communities who share the targeted health concern. Our goal was to synthesize the literature describing interventions that use DS for health promotion to identify gaps. Methods We conducted a scoping review. Our inclusion cri...
Introduction When it is offered, sexuality education in the USA is far from standardized. While s... more Introduction When it is offered, sexuality education in the USA is far from standardized. While studies have explored differences in delivery and type of sexuality education across the USA, sexual and reproductive health inequities persist among historically marginalized groups (Latino/a/x, Black, African American, LGBTQ +). There is a critical need to better understand the systemic barriers to receiving effective sexuality education in these communities. Methods Participatory research methods were used in working with a community advisory board (CAB)-consisting of emerging adults and service providers from community-based organizations (CBOs) serving youth-to examine how structural barriers contribute to adolescent sexual and reproductive health (ASRH) inequities in Massachusetts. CAB meetings and semi-structured interviews were conducted in the cities of Springfield (n = 14) and Lynn (n = 9) between December 2020 and May 2021. Results Inflexible funding guidelines, a related evidence-based curricular mandate, and a lack of community-responsive sexuality education fail to meet the sexual and reproductive health (SRH) needs of these youth. Conclusions Current evidence-based mandates must be revisited to improve young people's access to quality sexuality information in public schools. To guarantee sexuality education curricula is centered in the context of the community and population in which it is implemented, collaboration between youth-serving CBOs and school districts could improve students' overall experience and social-emotional growth by providing comprehensive, positive, and community-responsive curricula. Policy Implications Funders and programming should prioritize community responsiveness by financially supporting and developing and/or adapting evidence-based curricula to better match the community's needs, which can be completed through culture-centered training and community-based partnership.
BackgroundLow/no-income Latino men are disproportionately burdened by chronic disease morbidity a... more BackgroundLow/no-income Latino men are disproportionately burdened by chronic disease morbidity and mortality, which is often compounded by persistent exposure to stress. Chronic stress is a key mediating factor in pathways linking macro-level socio-structural forces to micro-level behavioral factors with negative health outcomes. Being that Latinxs continue to be one of the fastest growing populations in the U.S., it is imperative to better understand the roots of stress pathways and explore multi-level interventions.MethodsThis study presents qualitative findings from in-depth interviews with Puerto Rican men (95%) living in Springfield, Massachusetts. We utilized the Minority Stress Model (MSM) first posited by Ilan Meyers, as a framework to understand stress and stress processes amongst Puerto Rican men. We mapped our data onto Meyers' MSM, which allowed us to find diverging themes and identify areas for expansion.ResultsAs expected, participants reported stress rooted in ex...
In this article, we briefly review neoliberal economic rationales used to inform educational refo... more In this article, we briefly review neoliberal economic rationales used to inform educational reforms, juxtaposed with the function of public education as a public good. We then introduce a new participatory visual method grounded in a human rights education approach, digital storytelling. Digital storytelling can serve triple purposes: as a data collection technique used by social researchers to critically assess participants’ experiences as they are affected by education reforms, as a collaborative method for political organizing, and as a tactic for building awareness to address these reforms. We review a digital storytelling workshop as it was carried out with graduate employees at a public university located in the Northeastern U.S. and conclude by offering implications for social research and human rights and social justice activism.
Follow this and additional works at: https://escholarship.umassmed.edu/chr_symposium Part of the ... more Follow this and additional works at: https://escholarship.umassmed.edu/chr_symposium Part of the Civic and Community Engagement Commons, Community-Based Research Commons, Community Health and Preventive Medicine Commons, Health Services Administration Commons, Health Services Research Commons, Psychiatry and Psychology Commons, Substance Abuse and Addiction Commons, Therapeutics Commons, Translational Medical Research Commons, and the Women's Health Commons
International Journal of Qualitative Methods, 2020
COVID-19 has upended community based participatory research (CBPR) projects across the United Sta... more COVID-19 has upended community based participatory research (CBPR) projects across the United States and globally. COVID-19 disproportionately impacts historically disenfranchised communities and communities of color, the very communities that CBPR is meant to engage, elevate, and support. In-person activities that help develop rapport and research protocols, build capacity, conduct collaborative data collection and analysis, disseminate findings to the community, and engage in sustainability planning are an impossible practice during the COVID-19 pandemic. The purpose of this article is to describe the challenges and facilitators of shifting to a virtual/online CBPR protocol with a Massachusetts community disproportionately affected by COVID19, as a means to keep them engaged in the research process and to elevate their experiences, perspectives, and voices during this critical time. We include insights about how to facilitate recruitment and compensate community members, form a co...
Background: Lifestyle interventions regularly rely on study staff to implement the intervention a... more Background: Lifestyle interventions regularly rely on study staff to implement the intervention and collect outcomes data directly from study participants. This study describes the experiences of project staff in two randomized controlled trials of a postpartum lifestyle intervention to reduce risk factors for type 2 diabetes in Latinas. Latinas are the fastest growing minority group in the U.S. and have the highest rates of type 2 diabetes after a diagnosis of gestational diabetes mellitus. The challenges of implementing lifestyle interventions for postpartum women have been poorly documented. Methods: A qualitative focus group was conducted with eight staff members (five health educators and three health interviewers) involved in Proyecto Mamá and Estudio Parto. The discussion was audio recorded, transcribed, and coded in NVivo. Focus group topics included: 1) participant recruitment, 2) participant retention, 3) implementation of the lifestyle intervention, 4) assessment of behavior change, 5) overall challenges and rewarding aspects of the trial, and 6) recommended changes for future trials. Results: Key themes emerged regarding enabling factors and barriers to implementing a lifestyle intervention in postpartum Latinas. Enabling factors included: a) the staff's belief in the importance of the intervention, b) opportunities associated with the longitudinal nature of the trial, c) belief that the staff could empower participants to make behavior change, d) benefits of flexible intervention sessions, and e) connection with participants due to shared cultural backgrounds. Barriers included: a) participant stressors: home, food, and financial insecurity, b) low health literacy, c) issues related to recent immigration to the continental U.S., d) handling participant resistance to behavior change, e) involvement of family members in assessment visits, f) limitations of the assessment tools, and g) time limitations. Conclusions: Findings highlight the challenging contexts that many study participants face, and shed light on the potentially influential role of health educators and interviewers in intervention implementation and data collection. Specific recommendations are made for strategies to improve adherence to diabetes prevention programs in postpartum underserved and minority populations in this challenging, transitional period of life.
The nexus of migration and family offers a conjuncture to enrich understanding of teen pregnancy ... more The nexus of migration and family offers a conjuncture to enrich understanding of teen pregnancy and parenting. This article draws findings from a project centered on participant‐produced new media to reveal how young mothers negotiate reproductive health disparities. We focus on young mothers’ experiences of migration and movement, captured in local vernacular through participants’ digital story depictions and follow‐up interviews. We argue that disparities link up with the single story of teen mothering, involve public shaming, continue hand‐in‐hand with institutional humiliation, and are exacerbated through migration and movement. To disrupt the normative notions that shadow young mothers, we take seriously the young women's narratives. We theorize how the richness of stories and storytelling may serve as a potent intervention—a narrative shock—for articulating meanings and cultivating dignity for young mothers and their families, especially those who do not fit the sedentary...
The familiar story about young pregnant and parenting Latinas relies on commonsense logic about t... more The familiar story about young pregnant and parenting Latinas relies on commonsense logic about the timing of reproductive lives. We explore young mothers' own sense making, captured in local vernacular through participants' digital story depictions, our fieldnotes of digital storytelling workshop talk, and participants' follow-up interview reflections about enduring judgment and doing their lives. In this article, we introduce the Hear Our Stories project and present key digital stories and related ethnographic material that serve as local exemplars of "doing your life." Findings reveal ways participants negotiate value making about their reproductive lives. As a narrative intervention, digital storytelling helps to gain a firmer grasp on social worlds and to better understand inequality, while also engaging participants in a process that affords them the opportunity to shift from being a judged teen mom to co-creators of knowledge and change as strategic storytellers.
This article focuses on findings of a two-year pilot research study focused on addressing sexual ... more This article focuses on findings of a two-year pilot research study focused on addressing sexual and reproductive health inequities faced by adolescent women of Puerto Rican descent living on the mainland United States. Working with three groups of young women, in the pilot study we gathered ethnographic data in and around a group-based digital storytelling process to inform the development of a larger intervention. Digital stories are short (1-3 minute), participant produced videos that synthesize still and moving image, a voiceover recording of the participant telling her story, and background music and text to document personal experiences. Based on narrative analysis of digital stories and field notes written in and around the digital storytelling workshop process, as well as follow-up individual interviews with workshop participants, our findings center on the ways that trauma has specifically shaped participants' sexual and reproductive health experiences. We argue that digital storytelling serves as a critical narrative intervention, whereby participants' engagement in the storytelling process enables them to collaboratively interrogate and potentially address prior trauma, bolster a sense of social support and solidarity, and potentially recalibrate stigmatizing conversations about them. We introduce our project methodology, and then present key findings on trauma as it informs sexual and reproductive health practices, with digital storytelling showcased as a modality for critical narrative intervention. We conclude by discussing implications for critical public health research and practice.
International Journal of Qualitative Studies on Health and Well-being, 2018
Purpose: There is a dearth of effective, evidence-based programs to reduce chronic disease in low... more Purpose: There is a dearth of effective, evidence-based programs to reduce chronic disease in lowincome African-American men. We report on the results of formative research in the National Institutes of Health (NIH)-funded MOCHA Moving Forward project on factors identified by the participants to drive health disparities. Methods: Based on individual interviews with 42 middle-aged (40-65 years), low-income African-American men, three themes emerged. Results: First, the results indicate a hierarchy in the perceived relative influence of different factors, with poverty and unemployment perceived to have the most powerful affects. Second, results show that factors in different domains do not operate as discrete independent influences, but rather, interact synergistically. Finally, the findings show how perceived social structural constraints have produced deep cynicism about the future, with notably divergent reactions, producing a sense that there is almost nothing an individual can do, or paradoxically, a greater the sense of personal responsibility. Conclusion: The implications of addressing the cascade of social determinants to reduce chronic disease in African-American men are discussed.
African American men continue to bear a disproportionate share of the burden of disease. Engaging... more African American men continue to bear a disproportionate share of the burden of disease. Engaging these men in health research and health promotion programs-especially lower-income, African American men who are vulnerable to chronic disease conditions such as obesity and heart disease-has historically proven quite difficult for researchers and public health practitioners. The few effective outreach strategies identified in the literature to date are largely limited to recruiting through hospital clinics, churches, and barbershops. The Men of Color Health Awareness (MOCHA) project is a grassroots, community-driven initiative that has developed a number of innovative outreach strategies. After describing these strategies, we present data on the demographic and health characteristics of the population reached using these methods, which indicate that MOCHA has been highly effective in reaching this population of men.
Pregnant and parenting young women are simultaneously silenced and overrepresented by raced and c... more Pregnant and parenting young women are simultaneously silenced and overrepresented by raced and classed social narratives on adolescent childbearing in the United States. These narratives posit teen childbearing as an unequivocal social, health, and economic problem, although some scholars and policy makers construct alternative narratives that focus on inequalities and propose different perspectives on causes and consequences. Narrative inquiry that analyzes how stories are produced and utilized can enable a more nuanced approach to complex social problems. We conducted 19 individual, in-depth, and semistructured interviews with young mothers ages 16 to 21 who attend a community-based alternative education program in a low-income northeastern city. Interviews were analyzed using thematic narrative techniques. The young mothers we interviewed used a process of strategic negotiation to distance themselves from prevailing social and cultural stories about the problem of teen motherhoo...
Public health efforts focused on Latina youth sexuality are most commonly framed by the syndemic ... more Public health efforts focused on Latina youth sexuality are most commonly framed by the syndemic of teen pregnancy and sexually transmitted infections, a narrow and often heteronormative focus that perpetuates silences that contribute to health inequities and overlooks the growing need for increased education, awareness, and support for LGBTQ youth. This article presents findings from the project Let's Talk About Sex: Digital Storytelling for Puerto Rican Latina Youth, which used a culturally centered, narrative-based approach for analyzing participants' own specifications of sexual values and practices. The strength of digital storytelling lies in its utility as an innovative tool for community-based and culturally situated research, as well as in its capacity to open up new spaces for health communication. Here we present two "coming out" case studies to illustrate the value of digital storytelling in supporting the development of meaningful and culturally relevant health promotion efforts for LGBTQ-identified Puerto Rican Latina youth across the life span.
Journal of the Motherhood Initiative For Research and Community Involvement, Jan 4, 2007
I got my vision, I got my dreams, and there are days when I feel down like I really can't make it... more I got my vision, I got my dreams, and there are days when I feel down like I really can't make it, I can't go no further, I'm nothing…. But it's like I have goals-I want to be something different from what I have right now … I can become what statistics have designed me to be, a nothing, or I can make statistics a lie….
Books in the Developing Qualitative Inquiry series, written by leaders in qualitative inquiry, wi... more Books in the Developing Qualitative Inquiry series, written by leaders in qualitative inquiry, will address important topics in qualitative methods. Targeted to a broad multidisciplinary readership, the books are intended for mid-level/ advanced researchers and advanced students. The series will forward the fi eld of qualitative inquiry by describing new methods, or developing particular aspects of established methods.
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Papers by Aline Gubrium