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Long Covid Kids HQ 🧡 #LongCovidKids #FBLC Profile picture
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30 Sep, 8 tweets, 5 min read
Webinar 3 underway. - Real time Indoor Air Monitoring

Pollutants and sources.

#longcovidkids @better_indoors

#ProtectTheKids #makeschoolssafe
#BetterAirInSchools @SafeEdForAll_UK Image
What are we constantly exposed to?

Indoor Pollutant Thresholds

Those who warn about pollutants Without mentioning indoor the context of ambient or indoor air quality are scaremongering.

Real time monitors provide visibility.
We can’t see what we breathe.
#longcovidkids Image
We are constantly breathing levels of ozone.

Oops I missed the figures. Watch the video on YouTube later to catch them. 😬
Real time home environment- from Andrew’s own home.
#longcovidkids Image
Looking at levels in Andrew’s home 🏡

The data is immediate and constantly updated.
Ozone remains between 4 & 7 ( I think)
Virus index 0-1 - v low
Don’t be surprised at levels you see in your own home 🏡 - it is what it is. Based on what’s in it- where you live etc ImageImageImageImage
Monitoring with technology turned off …
Ozone levels were still low. #longcovidkids Image
Case study -#COVID19
#longcovidkids

Daughter got COVID at Reading festival.
Parents did not. Image
Questions

How do we monitor in a friendly way?

Is there an online resource that provides tips on managing and Minimising each potential pollution in your home?

Why is UK allowing worse air quality in various ways v other regions?

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More from @LongCovidKids

Long Covid Kids HQ 🧡 #LongCovidKids #FBLC Profile picture
2 Oct
1) Pre results from hospital's medical examiner indicate that Jorja had Covid myocarditis from #COVID19
#Sept10❤️
We wrote to @hantsconnect to ask why schools were refusing to put donated CO2 monitors in schools -7th Sept -Ticket ID 104074873
#longcovidkid
thesun.co.uk/news/16308491/…
2) On the 10th of Sept we received an email stating our enquiry had been passed to the "Assistant Director – Education & Inclusion"
We have yet to receive a response.

Our heart breaks for Jorja, her family & her community.
THIS IS #LIVINGWITHCOVID @TheSun
#Sept10❤️ #hampshire
3) We are aware of a #Hampshire school that refused the donation of #CO2monitors in favor of waiting for the same brand to arrive from @educationgovuk
😫MADNESS 💔
They also told the family that their daughter would be "exposed to #COVID19 the same as all other viruses" Image
Read 5 tweets
Long Covid Kids HQ 🧡 #LongCovidKids #FBLC Profile picture
23 Sep
1) "A change to the main list of #COVID19 symptoms is “in process” after months of inaction"@PHE_uk
"how can we expect families to know when to get their child tested, & when to stop sending them into school so that they then reduce
#longcovidkids
bit.ly/3o0FAd0
2) the risk of transmission"
LCK would like to see the 🇬🇧 #COVID19 symptom list align with the @CDCgov 🇺🇸 list which includes the symptoms that our families have been reporting since LCK started.

A source who used to work for #testandtrace highlights
3) that clinical caseworkers were identifying trends in the variability of symptoms in kids as far back as a couple of months after the service went live in 2020.
Concerns were fed back continuously but the guidance about what symptoms
#TestToProtect
bit.ly/2W7jIB6
Read 10 tweets
Long Covid Kids HQ 🧡 #LongCovidKids #FBLC Profile picture
20 Sep
🚨Around 1 in 150 child Covid-19 infections are admitted to hospital
🚨60% have no underlaying health conditions
🚨80% are admitted “with” Covid
🚨88 childen have died
🚨Asymptomatic, atypical and mildly symptomatic children are suffering #LongCovidKids which is multisystemic
threadreaderapp.com/thread/1439998…

ht @chrischirp
@sajidjavid
@nadhimzahawi
@DCSHantsIOW @RealGeoffBarton @MattHancock
@chrischirp @sajidjavid @nadhimzahawi @DCSHantsIOW @RealGeoffBarton @MattHancock threadreaderapp.com/thread/1439905…

Ht @dgurdasani1
Read 4 tweets
Long Covid Kids HQ 🧡 #LongCovidKids #FBLC Profile picture
4 Sep
1) 💔 Written by a teenager who has #LongCovid, for a #EHCP application.

What are the child or young person’s views, wishes and feelings about their education? What are their motivators?

"Education is a massive part of anyone's life and because I have been so ill I feel like
2) I have been stripped of qualities and learning that every other child has the right to.
I have spent many months almost a whole year lying in a bed not being able to do anything, not only education but normal teenage activities including meeting friends and living life,
3)
 not only affects you physically but mentally too.
I see education as the groundwork for someone's life, what prepares them for the future, and being so ill, I feel like I’m way behind everyone else. Having that extra support would make a huge difference and help prepare me
Read 7 tweets
Long Covid Kids HQ 🧡 #LongCovidKids #FBLC Profile picture
3 Sep
1) This is Ethan, now aged 15, and ill for 18 months. He would like to be listened to and believed. He is certain that he is not anxious and that he definitely does not have "anything to gain" from debilitating daily symptoms.

#AlwaysOurBabies #LongCovidKids #BacktoSchool2021
2) Anna caught #covid in April 2020, 4 weeks later she had a terrifying "inflammatory response" & was so ill. The hospital refused to see her. She has #covid triggered #CFS & #PANS & been ill since. She's not the same happy, energetic little girl she was. 💔 #AlwaysOurBabies
3) This is Evie Mae, it doesn't seem two minutes ago that she was this little.
Now she's 13 and towers above me. Evie says she's tired of being tired.
Evie Mae has crippling #longcovid.
#longcovid #BacktoSchool2021
#longcovidkids #AlwaysOurBabies
Read 12 tweets
Long Covid Kids HQ 🧡 #LongCovidKids #FBLC Profile picture
3 Sep
1) 🆘🆘🆘 SPOT THE DIFFERENCE 🆘🆘🆘

Without ANY mitigation measures in school, can we at LEAST ask for a decent list of symptoms to help families identify #COVID infection, please?

We are worried.

@NHSEngland @NHSuk @DorsetCCG @JimBethell @MattHancock @sajidjavid
2) The @CDCgov has a more comprehensive list to help families in the #USA identify infection, and they offer the #vaccine and #masks

#backtoschool #longcovid #longcovidkids
3) Here is our list - these are the symptoms families report their children and young people had.
And before the trolls their evening #LCK bashing YES we do believe ANY symptom could be #COVID
Read 6 tweets

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