(Q36497109)

14 August 2017

Developing a policy for paediatric biobanks: principles for good practice (English)

1 reference

14 August 2017

0 references

4

Anne Cambon-Thomsen

0 references

Pascal Borry

3

Pascal Borry

0 references

Kristien Hens

Kristien Hens

1

0 references

Christine Patch

Christine Patch

8

0 references

Aad Tibben

Aad Tibben

12

0 references

Martina C. Cornel

5

Martina C Cornel

1 reference

14 August 2017

9

Lisbeth Tranebjaerg

1 reference

14 August 2017

6

Francesca Forzano

1 reference

14 August 2017

Carla E Van El

2

1 reference

14 August 2017

Anneke Lucassen

7

1 reference

14 August 2017

Eric Vermeulen

10

1 reference

14 August 2017

Elena Salvaterra

11

1 reference

14 August 2017

Kris Dierickx

13

1 reference

14 August 2017

PPPC of the European Society of Human Genetics

14

1 reference

14 August 2017

20 June 2012

1 reference

European Journal of Human Genetics

14 August 2017

1 reference

14 August 2017

21

1 reference

14 August 2017

1

1 reference

14 August 2017

2-7

1 reference

Genomics and privacy: implications of the new reality of closed data for the field

14 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3533257

Children, biobanks and the scope of parental consent

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3533257

Risks, benefits, solidarity: a framework for the participation of children in genetic biobank research

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3533257

Disclosure of individual genetic data to research participants: the debate reconsidered

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3533257

The return of individual research findings in paediatric genetic research

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3533257

Facilitating pharmacokinetic studies in children: a new use of dried blood spots

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3533257

Genetic testing in asymptomatic minors: background considerations towards ESHG Recommendations

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3533257

Biological sample collections from minors for genetic research: a systematic review of guidelines and position papers

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3533257

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3533257

Ethics of future disclosure of individual risk information in a genetic cohort study: a survey of donor preferences

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3533257

Incidental findings in genetics research using archived DNA

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3533257

Understanding incidental findings in the context of genetics and genomics

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3533257

Managing incidental findings in human subjects research: analysis and recommendations

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3533257

Solidarity and justice as guiding principles in genomic research

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3533257

Disclosing individual genetic results to research participants

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3533257

Consent and anonymization in research involving biobanks: differing terms and norms present serious barriers to an international framework

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3533257

One-time general consent for research on biological samples

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3533257

Should donors be allowed to give broad consent to future biobank research?

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3533257

Expanding the ethical analysis of biobanks

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3533257

Data storage and DNA banking for biomedical research: informed consent, confidentiality, quality issues, ownership, return of benefits. A professional perspective

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3533257

Human genetic research, DNA banking and consent: a question of 'form'?

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3533257

Pediatric biobanking: a pilot qualitative survey of practices, rules, and researcher opinions in ten European countries.

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3533257

Biobanks: too long to wait for consent

28 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3533257

The storage and use of biological tissue samples from minors for research: a focus group study

28 June 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2012.99

The social and ethical issues of post-genomic human biobanks

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2012.99

Population-based retrieval of newborn dried blood spots for researching paediatric cancer susceptibility genes

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2012.99

Comprehensive catalog of European biobanks

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2012.99

The consent problem within DNA biobanks.

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2012.99

‘Nothing about us without us’: considerations for research involving young people

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2012.99

Opinions of children about participation in medical genetic research

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2012.99

Storage policies and use of the Danish Newborn Screening Biobank

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2012.99

Children, longitudinal studies, and informed consent.

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2012.99

Research ethics. Children and population biobanks

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2012.99

Biobanks: oversight offers protection

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2012.99

Reporting genetic results in research studies: summary and recommendations of an NHLBI working group.

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2012.99

Screening for conditions that do not meet the Wilson and Jungner criteria: the case of Duchenne muscular dystrophy.

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2012.99

Genetic research on stored tissue samples from minors: a systematic review of the ethical literature

21 January 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3533257

Solidarity and equity: new ethical frameworks for genetic databases

21 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3533257

Deploying whole genome sequencing in clinical practice and public health: meeting the challenge one bin at a time

21 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3533257

Ethical principles and legal requirements for pediatric research in the EU: an analysis of the European normative and legal framework surrounding pediatric clinical trials

21 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3533257

Ethical implications of including children in a large biobank for genetic-epidemiologic research: a qualitative study of public opinion

4 December 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3533257

StaR Child Health: an initiative for RCTs in children

4 December 2018

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/22713814

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Informed Consent and the Bio-banking of Material from Children.

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2012.99

inferred from DOI database lookup

7 January 2021

based on heuristic

Identifiers

DOI

10.1038/EJHG.2012.99

1 reference

14 August 2017

1 reference

14 August 2017

PubMed publication ID

22713814

1 reference