Papers by Beverley Yamamoto
申請代表者： 人間科学部 2 年 Khanna Varunアドバイザー教員： 人間科学研究科 Yamamoto Beverley採択番号: 人-0
PLOS ONE, Oct 26, 2018
This study evaluated the effects of childhood experiences of parental corporal punishment (CP) an... more This study evaluated the effects of childhood experiences of parental corporal punishment (CP) and neglectful parenting (NP) on Japanese university students' endorsement of parental CP (EPP) to discipline children, in relation to subjective happiness (SH). A total of 536 undergraduate students who showed no physical symptoms completed anonymous paperbased questionnaires addressing demographic characteristics, undergraduate classes, and recent health conditions on SF-8 (PCS, MCS). It was found that the proportions of participants who experienced pervasive CP and NP were larger in men than in women (36.5% vs. 19.4% for CP; 22.1% vs. 9.7% for NP). Multiple regression analyses (n = 346) revealed that the CP score was associated with positive EPP (β = 0.310, p < 0.001). Further, students whose major was nursery education reported significantly lower level of EPP; however, neither SH nor good recent health conditions significantly reduced EPP. The NP score was inversely associated with the SH score (β =-0.253, p < 0.001) (n = 346). In conclusion, childhood experiences of parental CP may affect adolescents' views related to their own parenting. Further investigation using internationally comparable methodologies, especially in prospective cohort studies, is warranted, not only in Japan but also in other Asian countries.
Pediatrics International, 2022
BackgroundThe WHO's Health Promoting Schools (HPS) framework is based on an understanding of ... more BackgroundThe WHO's Health Promoting Schools (HPS) framework is based on an understanding of the reciprocal relationship between health and education, and the need to take a holistic approach to health promotion in schools. We aim to clarify the degree to which the HPS framework is reflected in the national policies of eight target countries and the issues surrounding its successful implementation.MethodsDate were collected through two expert workshops with participants from eight Asian countries: Cambodia, China, Japan, Korea, Lao PDR, Nepal, the Philippines, and Thailand. In the first workshop, data collected on national policy were mapped against the HPS framework. From this, key issues were identified, and follow‐up data collection was conducted in each country for a second workshop.ResultsWe identified a policy shift toward the HPS framework in six out of the eight countries. Neither Japan nor Korea had changed their national policy frameworks to reflect an HPS approach; ho...
Human Genomics
Background A number of countries are leading the way in creating regulatory frameworks for preimp... more Background A number of countries are leading the way in creating regulatory frameworks for preimplantation genetic testing (PGT). Among these countries, a point of consensus is that PGT may be used to avoid the birth of a child with a serious genetic disease. However, standards for evaluating disease severity in this context are not always clear. Considering the numerous medical and social implications of defining a standard for serious disease, our study sought out to better understand how disease severity for PGT is being defined by analyzing and comparing the regulatory landscapes for PGT in various countries. Methods We carried out a multi-case study analysis using policy documents from the UK, Western Australia, and Japan. Documentary analysis was used to analyze and compare these documents in terms of medical indications for PGT, evaluation methods of applications for PGT, and review frameworks used during the evaluation process, which includes the specific medical and social ...
University of Hawaii Press, 2017
Intractable & Rare Diseases Research
hereditary angioedema, burden of illness, Japan, patient reported outcomes, quality of life Hered... more hereditary angioedema, burden of illness, Japan, patient reported outcomes, quality of life Hereditary angioedema (HAE) is a potentially life-threatening rare disease, which is mainly caused by the deficiency or dysfunction of C1-esterase inhibitor, and characterized by spontaneous, recurrent episodes of edema in various parts of the body including internal organs and the laryngeal area. Delayed diagnosis and treatment increase the burdens and risks of this condition. The current study aimed to understand the burden of illness for HAE patients in Japan before and after diagnosis through a patient reported outcome survey. A survey instrument was distributed to 121 adult patients with HAE by a patient organization via HAE treating physicians between July and November in 2016. Seventy patients (57.9%) returned the questionnaire. Patients reported high levels of medical resource utilization, including emergency procedures and services. Episodes of receiving laparotomy were somewhat less after diagnosis with HAE than before, but no apparent difference in episodes of tracheotomy between before and after the diagnosis. The economic burden, including direct and indirect medical costs, was highest before diagnosis, but still perceived as substantial after diagnosis. Patients reported disruption of work and school life, with 40% reporting that they miss 10 or more days from work or education per year. Sixty percent of patients reported that HAE affected their daily activities. We concluded that HAE is associated with considerable physical, social, economic and psycho-social burdens even after diagnosis, and that higher attack frequency is associated with a heavy disease burden for patients in Japan.
Palgrave Studies in Gender and Education, 2019
Just as gaining the doctorate is the start of a process of recognizing yourself and being recogni... more Just as gaining the doctorate is the start of a process of recognizing yourself and being recognized as a scholar, getting the professorship is not an end point but a beginning. You are not a professor at the moment you receive the title, but have been awarded a platform from which to begin actively constructing yourself as one. As a British woman professor in a Japanese research university, this process has some novel aspects as I have sought to create a space for myself in a highly male-dominated environment with few foreigners in leadership positions. Counter intuitively, this context has been an empowering one for me; a space with many opportunities. While my own story is rooted in the physical space of a Japanese university, it has also relied on sustaining relationships and collegiality that crosses borders. Networking with other female leaders has been enabling and creative. In this chapter, I throw light on the ongoing and accumulative process by which I have constructed myself as a professor over the past six years. I highlight both the distinct features of my positioning here in Japan, but also the shared dynamics of constructing an identity as a woman professor.
Frontiers in Public Health
Patient involvement (PI) in determining medical research priorities is an important way to ensure... more Patient involvement (PI) in determining medical research priorities is an important way to ensure that limited research funds are allocated to best serve patients. As a disease area for which research funds are limited, we see a particular utility for PI in priority-setting for medical research on rare diseases. In this review, we argue that PI initiatives are an important form of evidence for policymaking. We conducted a study to identify the extent to which PI initiatives are being conducted in the rare disease field, the features of such initiatives, the trends in the priorities elicited, and the extent to which translation into policy is reported in the academic literature. Here, we report the results of this exploratory review of the English-language literature gathered through online databases and search engines, with the aim of identifying journal articles published prior to December 2020, describing PI initiatives focused on determining priorities for medical research fundin...
Research Involvement and Engagement, 2020
Background There are increasing calls for patient involvement in sharing health research results,... more Background There are increasing calls for patient involvement in sharing health research results, but no evidence-based recommendations to guide such involvement. Our objectives were to: (1) conduct a systematic review of the evidence on patient involvement in results sharing, (2) propose evidence-based recommendations to help maximize benefits and minimize risks of such involvement and (3) conduct this project with patient authors. Methods To avoid research waste, we verified that no systematic reviews were registered or published on this topic. We co-created, with patients, a PRISMA-P–compliant protocol. We included peer-reviewed publications reporting the effects of patient involvement in preparing peer-reviewed publications or results summaries from health research studies. We searched (9/10/2017) MEDLINE, EMBASE and the Cochrane Database of Systematic Reviews, and secondary information sources (until 11/06/2018). We assessed the risk of bias in eligible publications and extract...
Journal of Empirical Research on Human Research Ethics, 2019
Dynamic consent (DC) is an approach to consent that enables people, through an interactive digita... more Dynamic consent (DC) is an approach to consent that enables people, through an interactive digital interface, to make granular decisions about their ongoing participation. This approach has been explored within biomedical research, in fields such as biobanking and genomics, where ongoing contact is required with participants. It is posited that DC can enhance decisional autonomy and improve researcher–participant communication. Currently, there is a lack of evidence about the measurable effects of DC-based tools. This article outlines a framework for DC evaluation and reporting. The article draws upon the evidence for enhanced modes of informed consent for research as the basis for a logic model. It outlines how future evaluations of DC should be designed to maximize their quality, replicability, and relevance based on this framework. Finally, the article considers best-practice for reporting studies that assess DC, to enable future research and implementation to build upon the emer...
European Journal for Person Centered Healthcare, 2018
Objective: To describe our personal experience of the potential of a rare disease patient organiz... more Objective: To describe our personal experience of the potential of a rare disease patient organization for fostering patient autonomy and creating a space for the practice of power sharing between physicians and patients.Methods: Using self-reflection and personal autobiographical experience while drawing on the conceptual framework of patient-centredness, we critically reflect on and formulate lessons from our experiences as a patient/researcher and physician/researcher active in a rare disease patient organization for hereditary angioedema established in Japan in 2013. Results: We identified multiple ways in which patient advocacy meetings shifted the patient-physician relationship to one of sharing power and responsibility. Appearing without his or her symbolic white coat, the physician is transformed into a person. In the context of shared group activities, the patient emerges as a person and one who is increasingly an informed and informing actor.Conclusion: A dedicated rare di...
In 2014, The BMJ introduced a mandatory 'Patient Involvement' statement in the Methods section of... more In 2014, The BMJ introduced a mandatory 'Patient Involvement' statement in the Methods section of research articles. We investigated the extent of patient involvement described in clinical trial research publications in The BMJ.
Journal of Medical Internet Research
Background Information and communication technology (ICT) has made remarkable progress in recent ... more Background Information and communication technology (ICT) has made remarkable progress in recent years and is being increasingly applied to medical research. This technology has the potential to facilitate the active involvement of research participants. Digital platforms that enable participants to be involved in the research process are called participant-centric initiatives (PCIs). Several PCIs have been reported in the literature, but no scoping reviews have been carried out. Moreover, detailed methods and features to aid in developing a clear definition of PCIs have not been sufficiently elucidated to date. Objective The objective of this scoping review is to describe the recent trends in, and features of, PCIs across the United States, the United Kingdom, and Japan. Methods We applied a methodology suggested by Levac et al to conduct this scoping review. We searched electronic databases—MEDLINE (Medical Literature Analysis and Retrieval System Online), Embase (Excerpta Medica ...
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Papers by Beverley Yamamoto